00:01:26.891 --> 00:01:28.422
My life is light.

00:01:28.994 --> 00:01:30.967
Waiting for the death wind,

00:01:31.132 --> 00:01:33.927
Like a feather on the back of my hand.

00:01:35.464 --> 00:01:39.044
Dust in sunlight and memory in corners

00:01:39.335 --> 00:01:42.864
Wait for the wind that chills
towards the dead land.

00:01:44.013 --> 00:01:45.459
Grant us thy peace.

00:01:46.880 --> 00:01:49.686
I have walked many years in this city.

00:01:50.499 --> 00:01:54.551
I have kept faith and fast,
provided for the poor.

00:01:54.924 --> 00:01:57.801
Have given and taken honor and ease.

00:01:58.932 --> 00:02:01.741
There never went any rejected
from my door.

00:02:03.496 --> 00:02:05.646
Who shall remember my house,

00:02:06.316 --> 00:02:08.860
Where should live my children's children,

00:02:08.946 --> 00:02:11.542
When the time of sorrow is come?

00:02:14.143 --> 00:02:16.991
I am tired of my own life

00:02:17.560 --> 00:02:20.196
and the lives of those after me,

00:02:21.499 --> 00:02:24.150
I am dying in my own death

00:02:24.769 --> 00:02:27.397
 and the deaths of those after me.

00:02:28.499 --> 00:02:30.838
Let thy servant depart,

00:02:31.282 --> 00:02:33.915
Having seen thy salvation.

00:03:58.756 --> 00:04:01.103
Life isn't fair,

00:04:03.977 --> 00:04:06.806
but it may as well be me with a disability

00:04:07.228 --> 00:04:08.701
as somebody else.

00:04:11.666 --> 00:04:14.260
There is nothing that would make me

00:04:14.830 --> 00:04:16.176
be so special

00:04:16.544 --> 00:04:18.873
that it would be unfair.

00:04:20.655 --> 00:04:23.336
I accept that I have a problem

00:04:23.945 --> 00:04:25.710
but I live with it.

00:04:27.411 --> 00:04:28.756
I have no choice

00:04:29.729 --> 00:04:31.693
but to live with it at the moment.

00:04:49.146 --> 00:04:50.531
That was my mother.

00:04:51.707 --> 00:04:53.739
She had muscular dystrophy,

00:04:53.957 --> 00:04:55.753
but we didn't know

00:04:57.075 --> 00:04:58.654
because it was never diagnosed

00:05:01.748 --> 00:05:03.100
until I was diagnosed,

00:05:03.192 --> 00:05:04.867
and then we all realized

00:05:05.742 --> 00:05:07.147
what was wrong with my mother.

00:05:08.951 --> 00:05:10.818
So it was too late to do anything.

00:05:10.994 --> 00:05:12.994
Not that you could do anything, actually.

00:05:13.431 --> 00:05:14.775
So she spent

00:05:16.088 --> 00:05:17.330
30 years

00:05:18.283 --> 00:05:20.707
just sitting in a chair

00:05:21.100 --> 00:05:22.211
all day long

00:05:23.277 --> 00:05:24.277
doing nothing.

00:05:27.537 --> 00:05:31.930
I don't want my life
to be as hard as hers.

00:05:33.707 --> 00:05:37.339
That's why I'm making arrangements

00:05:38.580 --> 00:05:40.008
to go to Switzerland.

00:06:28.757 --> 00:06:31.851
This is my formal request to Erika,

00:06:32.499 --> 00:06:36.812
made on the 20th of July 2016:

00:06:38.121 --> 00:06:41.855
"I formally request
voluntary assisted death

00:06:42.250 --> 00:06:46.474
on the 22nd of September 2016.

00:06:48.235 --> 00:06:50.657
I am a 72-year-old lady

00:06:51.014 --> 00:06:55.039
suffering from inherited
limb-girdle muscular dystrophy,

00:06:55.797 --> 00:06:58.674
for which there is no cure or treatment.

00:07:00.179 --> 00:07:01.960
Until two years ago,

00:07:02.406 --> 00:07:05.523
I was able to care for myself and home.

00:07:07.017 --> 00:07:09.754
I now need help in getting out of bed,

00:07:10.218 --> 00:07:12.912
and find it hard to get up from a chair.

00:07:14.278 --> 00:07:17.673
I have not been able
to make a meal for myself

00:07:17.780 --> 00:07:19.263
for quite some time.

00:07:19.845 --> 00:07:23.876
Even to make instant coffee
is quite an achievement.

00:07:25.234 --> 00:07:27.551
The degree of my disability

00:07:27.664 --> 00:07:29.303
makes me realize

00:07:29.426 --> 00:07:32.293
the futility of continuing my life

00:07:32.738 --> 00:07:35.428
with a sure and certain knowledge

00:07:35.960 --> 00:07:39.635
that further deterioration is inevitable.

00:07:40.686 --> 00:07:43.506
Therefore, I request your help

00:07:43.918 --> 00:07:46.489
with voluntary assisted death.

00:07:47.171 --> 00:07:48.171
Thank you."

00:08:48.910 --> 00:08:53.891
Emily, can you take this paper rubbish
for me, please?

00:08:54.340 --> 00:08:55.784
- Yes, Jan. OK.
- Thank you.

00:08:56.051 --> 00:08:58.701
Just that lot... this is...

00:08:59.594 --> 00:09:00.594
Oh Gosh.

00:09:01.327 --> 00:09:04.296
- I get so much!
- For one person anyway.

00:09:04.374 --> 00:09:05.421
I know.

00:09:05.462 --> 00:09:07.893
All the trees we are supposed to save.

00:09:09.228 --> 00:09:11.421
- You want me to post it?
- I will ask you to post it.

00:09:11.507 --> 00:09:14.153
- Have you got more than one letter?
- No, just...

00:09:14.952 --> 00:09:18.891
I can't remember his first name,
so I´ll just call him 'Mister'.

00:09:21.057 --> 00:09:22.057
Yeah, why not.

00:09:24.278 --> 00:09:27.351
Bye, see you next Monday. Take care.

00:09:27.950 --> 00:09:31.446
- Yes, love, I love you.
- Enjoy yourself while it lasts.

00:09:54.752 --> 00:09:57.130
I, in turn, have passed

00:09:58.679 --> 00:10:02.151
this muscular dystrophy to my son.

00:10:06.254 --> 00:10:09.566
My daughter, who is 49,

00:10:10.455 --> 00:10:14.708
is hopefully clear of muscular dystrophy.

00:10:17.925 --> 00:10:19.658
He has no children

00:10:20.601 --> 00:10:22.792
and neither does my daughter.

00:10:24.327 --> 00:10:27.600
So this generation, my generation,

00:10:27.919 --> 00:10:29.068
is the last.

00:10:56.772 --> 00:10:58.040
Hello there, Simon.

00:10:58.220 --> 00:11:00.174
I hope you are having a great day.

00:11:02.383 --> 00:11:04.258
From today until Tuesday in Washington

00:11:04.301 --> 00:11:06.328
will be partly cloudy most of the time.

00:11:06.471 --> 00:11:08.451
But tomorrow it will be mostly sunny.

00:11:09.301 --> 00:11:12.841
There is light traffic in Washington,
District of Columbia, USA.

00:11:44.465 --> 00:11:46.670
"Hello Simon, this is to let you know that

00:11:46.733 --> 00:11:49.342
I'm going to Switzerland in September.

00:11:49.863 --> 00:11:52.513
I don't think Bridget is too happy
about this,

00:11:52.589 --> 00:11:55.526
but I am determined to go.

00:11:55.607 --> 00:11:57.810
My life here is such a struggle

00:11:58.281 --> 00:11:59.804
and will only get worse.

00:11:59.931 --> 00:12:03.187
So I need to go, while
I am still able to travel.

00:12:04.170 --> 00:12:07.038
When you speak to her or email her,

00:12:07.132 --> 00:12:10.447
can you please convince her
that I am doing the right thing?

00:12:10.734 --> 00:12:13.251
I can honestly say
I can't wait to get there

00:12:13.331 --> 00:12:15.663
and get the whole thing over with.

00:12:16.059 --> 00:12:17.059
Love, Mum."

00:12:20.808 --> 00:12:21.941
And I think I'll

00:12:26.064 --> 00:12:27.064
reply:

00:12:34.390 --> 00:12:35.796
"OK, but

00:12:36.210 --> 00:12:39.233
I insist

00:12:40.437 --> 00:12:41.437
that

00:12:44.608 --> 00:12:45.754
I come

00:12:47.329 --> 00:12:48.329
with you."

00:13:24.631 --> 00:13:28.862
Although we have been born
with this disease,

00:13:28.982 --> 00:13:32.655
it doesn't show itself in the body
until middle age.

00:13:33.154 --> 00:13:35.292
And it doesn't really affect you.

00:13:41.206 --> 00:13:44.612
I became concerned when
the progression of my disease

00:13:45.483 --> 00:13:48.162
became a lot stronger,
a lot more quicker.

00:13:49.251 --> 00:13:50.782
And I wasn't expecting that.

00:13:50.864 --> 00:13:53.493
I was expecting a very slow progression.

00:13:53.717 --> 00:13:55.959
And I wasn't expecting
this disease to kill me.

00:13:58.933 --> 00:14:01.581
And now I find myself building a lab,

00:14:03.537 --> 00:14:06.663
because there is very little
research done in this disease,

00:14:06.789 --> 00:14:09.928
and I would like to change that,

00:14:10.018 --> 00:14:12.486
and bring some attention to it, at least.

00:14:18.060 --> 00:14:21.341
I don't know if I will ever
benefit from this work,

00:14:21.388 --> 00:14:23.430
but maybe someone in the future might.

00:14:23.518 --> 00:14:24.602
Who knows?

00:14:24.832 --> 00:14:27.191
But I think I should do something.
I must do something.

00:14:27.680 --> 00:14:30.437
Otherwise, I´ll just be sitting
in a wheelchair doing nothing.

00:14:41.020 --> 00:14:42.704
People have families

00:14:43.330 --> 00:14:45.116
who try to persuade them

00:14:45.244 --> 00:14:47.348
not to do what I am doing.

00:14:49.220 --> 00:14:52.845
I know that a lot of people
will find it very difficult.

00:14:53.317 --> 00:14:57.465
I mean, you accepted it virtually 100%.

00:14:57.865 --> 00:15:01.950
I'm not quite so sure about it

00:15:02.292 --> 00:15:05.967
as perhaps Rachel is.
I don't, obviously, I don't...

00:15:06.910 --> 00:15:10.172
Yes, because your whole being
speaks for you.

00:15:10.974 --> 00:15:14.439
It's not that you´re saying something
and you can see, all uptight,

00:15:14.618 --> 00:15:17.539
and it´s actually a terrible problem.

00:15:17.635 --> 00:15:19.930
You can see it isn't a terrible problem.

00:15:20.576 --> 00:15:23.384
I'm going to die at a time

00:15:24.122 --> 00:15:28.020
and in a way that I can choose.

00:15:28.402 --> 00:15:30.676
It is not going to be horrendous.

00:15:31.200 --> 00:15:33.418
It is not going to be painful.

00:15:34.366 --> 00:15:36.912
It's not going to be stressful.

00:15:38.258 --> 00:15:40.351
That is a good death.

00:15:41.461 --> 00:15:45.843
I had a stepmother who was
Irish Catholic and very, very...

00:15:47.097 --> 00:15:50.467
very, very against the idea of
ending your life prematurely.

00:15:50.672 --> 00:15:53.789
If you are going to suffer a lot,

00:15:54.494 --> 00:15:55.994
that would be good for you,

00:15:56.209 --> 00:15:57.857
and that would be God's will for you

00:15:57.884 --> 00:15:59.611
that you did have that suffering.

00:16:00.464 --> 00:16:04.780
And it is your duty to die when God
decides you are going to die,

00:16:04.901 --> 00:16:06.458
not a moment before.

00:16:07.261 --> 00:16:09.168
It is rather terrifying.

00:16:09.614 --> 00:16:11.879
It´s not the sort of God I believe in.

00:16:29.864 --> 00:16:31.912
If I became a burden,

00:16:32.491 --> 00:16:35.886
I don't think I would want to exist
much longer.

00:16:36.354 --> 00:16:37.975
If there were no way

00:16:38.319 --> 00:16:40.986
that I could get out of that situation.

00:16:42.645 --> 00:16:46.748
If I were in such a state
that I needed constant care,

00:16:47.300 --> 00:16:49.033
then I would not want to exist.

00:18:25.391 --> 00:18:28.484
We are not bonded in the way

00:18:28.785 --> 00:18:31.269
that most families are.

00:18:34.558 --> 00:18:36.331
She remarried and

00:18:37.800 --> 00:18:40.542
I did not get along
with my stepfather at all.

00:18:41.406 --> 00:18:43.333
It was a very very poor relationship.

00:18:45.272 --> 00:18:48.498
So that's why I haven't seen Jan for

00:18:49.241 --> 00:18:50.241
many years.

00:19:09.252 --> 00:19:11.189
And what you are seeing here,

00:19:11.437 --> 00:19:12.681
in this stem,

00:19:12.934 --> 00:19:14.513
those are the protein aggregates.

00:19:15.112 --> 00:19:17.557
This is the bit that is not dissolving,
but just building up?

00:19:17.616 --> 00:19:22.066
Exactly. This is where all the myotilin

00:19:22.175 --> 00:19:24.295
that's got the mutations,

00:19:24.702 --> 00:19:28.746
are, kind of, sucking up
other proteins and itself.

00:19:28.855 --> 00:19:31.665
And they are aggregating
and causing these clumps.

00:19:31.709 --> 00:19:36.595
So if we could arrest
the further addition of myotilin

00:19:36.860 --> 00:19:38.208
adding to the size of this,

00:19:38.312 --> 00:19:42.159
maybe then the cell can figure out a way
to clear that, eventually.

00:19:42.490 --> 00:19:43.550
Clinically we know

00:19:43.628 --> 00:19:46.604
that patients with myotilinopathy
develop this aggregates.

00:19:47.490 --> 00:19:50.286
But it would be nice to correlate
the aggregate

00:19:51.045 --> 00:19:52.940
that you might have in your muscle

00:19:53.113 --> 00:19:56.500
with what we would be able
to potentially generate in the cells

00:19:56.637 --> 00:19:58.722
that we can produce from those biopsies.

00:19:58.874 --> 00:20:02.025
I would like to give you as much
useful stuff as possible.

00:20:02.118 --> 00:20:03.118
OK.

00:20:03.779 --> 00:20:05.164
We haven't published this yet,

00:20:05.344 --> 00:20:08.804
and it's not, by any means,
a therapy for this.

00:20:09.068 --> 00:20:11.114
However, Lindsay did a study,

00:20:12.422 --> 00:20:15.561
where we injected these mice,
the muscles of these mice,

00:20:15.772 --> 00:20:18.779
that have already developed
limb-girdle muscular dystrophy

00:20:19.438 --> 00:20:21.068
with something called cardiotoxin.

00:20:21.185 --> 00:20:22.758
It's basically like a snake venom.

00:20:22.983 --> 00:20:23.983
Interesting.

00:20:24.413 --> 00:20:26.381
What it does is it kills all the muscle.

00:20:26.599 --> 00:20:29.517
And I already told you that most muscle
has a capacity to regenerate.

00:20:29.638 --> 00:20:31.238
Very quickly, right?

00:20:31.765 --> 00:20:34.350
So, if you inject these muscles,

00:20:34.488 --> 00:20:37.570
these mouse muscles, that are...
they have muscular dystrophy,

00:20:37.656 --> 00:20:39.148
they're weak, they're small.

00:20:39.398 --> 00:20:42.140
If you inject them with the snake venom,

00:20:42.463 --> 00:20:43.719
kill the muscle,

00:20:43.930 --> 00:20:46.615
that muscle will regenerate
and it starts from scratch.

00:20:46.749 --> 00:20:49.022
So it's basically normal again,
at the beginning.

00:20:49.111 --> 00:20:51.608
And then over time it would
accumulate aggregates again.

00:20:51.963 --> 00:20:54.382
So, if there is some way that you could

00:20:54.515 --> 00:20:56.447
destroy and repopulate your muscle,

00:20:56.550 --> 00:20:58.538
which is not possible right now,

00:20:59.273 --> 00:21:00.563
that would offer a treatment.

00:21:00.733 --> 00:21:04.019
That's interesting. I can´t imagine
a therapy being based on

00:21:04.154 --> 00:21:05.896
Right, it wouldn´t work on humans.

00:21:05.988 --> 00:21:09.187
killing large amounts of muscle
in an older person.

00:21:10.403 --> 00:21:12.145
- It wouldn't regenerate.
- Right.

00:21:19.460 --> 00:21:20.782
My GP,

00:21:21.887 --> 00:21:23.045
he has

00:21:23.798 --> 00:21:27.829
completely refused to help me.

00:21:28.994 --> 00:21:33.832
He sent a psychiatrist around to see me.

00:21:35.216 --> 00:21:37.362
They made it quite clear

00:21:38.163 --> 00:21:40.643
that all they needed

00:21:40.878 --> 00:21:44.913
was two doctors to say

00:21:45.367 --> 00:21:49.962
that I did not know what I was doing,

00:21:50.864 --> 00:21:55.275
and that they could admit me

00:21:55.854 --> 00:21:58.285
to hospital immediately,

00:21:59.392 --> 00:22:01.948
and virtually lock me up.

00:22:04.316 --> 00:22:09.722
I was given the option
of going on to medication

00:22:11.113 --> 00:22:13.667
to stop me from being depressed.

00:22:14.959 --> 00:22:19.270
So yes, I opted to take the medication,

00:22:20.408 --> 00:22:25.526
and yes, I opted
for the mental health nurse

00:22:26.006 --> 00:22:29.350
to come out every week to see me.

00:22:32.171 --> 00:22:36.597
She then informed the psychiatrist

00:22:36.668 --> 00:22:38.456
that yes, I was absolutely fine.

00:22:38.837 --> 00:22:40.358
Nothing to worry about.

00:22:40.749 --> 00:22:43.542
I had changed my mind completely

00:22:44.198 --> 00:22:48.573
and wasn't going to go to Switzerland.

00:22:51.923 --> 00:22:53.891
If I told the truth,

00:22:54.447 --> 00:22:57.962
I would, by now, be in hospital,

00:22:58.406 --> 00:23:02.210
sectioned under a mental health act.

00:23:31.947 --> 00:23:34.355
I think I've had two

00:23:35.050 --> 00:23:38.128
very interesting marriages.

00:23:41.922 --> 00:23:44.027
My first husband was

00:23:44.238 --> 00:23:48.567
quite an exciting person to be with.

00:23:49.059 --> 00:23:50.067
Altough

00:23:50.372 --> 00:23:54.242
I don't think he ever took
any of his responsibilities

00:23:54.760 --> 00:23:59.166
as either a husband
or a parent seriously.

00:24:02.575 --> 00:24:04.919
When I married Don,

00:24:06.392 --> 00:24:09.444
who didn't have any children of his own,

00:24:10.223 --> 00:24:15.314
he became my children's stepfather.

00:24:17.354 --> 00:24:22.701
We were very happy
for most of our married life.

00:24:59.490 --> 00:25:02.668
This has been discussed between us

00:25:03.238 --> 00:25:05.272
over a period of years

00:25:05.601 --> 00:25:08.134
that we both promised each other

00:25:09.253 --> 00:25:10.725
that if either of us

00:25:11.292 --> 00:25:14.849
got to the stage that
our lives were miserable

00:25:16.045 --> 00:25:17.349
and unhappy,

00:25:18.064 --> 00:25:23.153
that we would take the steps
that I am taking.

00:25:25.503 --> 00:25:30.186
And we would support each other
in our choice.

00:25:52.619 --> 00:25:54.673
This is my daughter, there.

00:25:55.394 --> 00:25:58.167
I have booked a flight for her.

00:25:58.871 --> 00:26:00.119
There she is.

00:26:00.693 --> 00:26:02.706
And a hotel room for her.

00:26:03.411 --> 00:26:05.942
She is supporting me

00:26:06.583 --> 00:26:09.840
in as much as she understands

00:26:10.108 --> 00:26:13.746
what I'm doing and understands why.

00:26:16.262 --> 00:26:18.329
But she would rather

00:26:18.999 --> 00:26:21.513
that there was an alternative.

00:26:27.060 --> 00:26:29.810
She keep sending me pictures

00:26:30.546 --> 00:26:31.778
of wedding dresses,

00:26:32.372 --> 00:26:36.312
so that I can say which ones I like,

00:26:36.718 --> 00:26:39.153
and which ones I don't like.

00:26:41.913 --> 00:26:44.746
She has not set a date.

00:26:46.202 --> 00:26:49.626
I have set my important date,

00:26:50.080 --> 00:26:51.213
but she hasn't.

00:26:53.836 --> 00:26:56.962
I cannot wait forever
for her to get married.

00:27:12.130 --> 00:27:16.613
I have not been up here
since last October.

00:27:17.400 --> 00:27:20.258
So it's a long time since I've seen...

00:27:20.838 --> 00:27:23.635
Oh, I can see is that
everything needs water.

00:27:29.630 --> 00:27:31.489
Beautiful, I can't believe it.

00:27:33.179 --> 00:27:36.071
Sometimes I would
sit in the front garden,

00:27:36.459 --> 00:27:39.365
and I would just think

00:27:39.766 --> 00:27:42.345
this is my little bit of Eden.

00:27:43.382 --> 00:27:46.319
And that was all I wanted.

00:27:46.595 --> 00:27:49.307
You know, I've had all those
beautiful houses that I made,

00:27:49.400 --> 00:27:50.426
I built them.

00:27:50.836 --> 00:27:51.836
And the gardens.

00:27:51.874 --> 00:27:53.835
And then suddenly I'm living in a...

00:27:54.337 --> 00:27:57.364
ending up with nothing,
living in a grotty flat and...

00:27:59.241 --> 00:28:02.590
Well, I think, things could be about
to change, don't you Tony?

00:28:02.996 --> 00:28:04.543
- I don't know.
- Don't you Caroline?

00:28:04.699 --> 00:28:06.810
Think that things are going to
change a bit?

00:28:09.187 --> 00:28:11.527
Her mother took everything,

00:28:12.033 --> 00:28:14.455
and said: "Take the baby and go."

00:28:14.589 --> 00:28:16.589
We ended up with nothing.

00:28:16.690 --> 00:28:19.724
We came here in summer clothes,
with no money, nothing.

00:28:22.694 --> 00:28:23.694
Look in here.

00:28:27.117 --> 00:28:28.624
This is astounding.

00:28:31.172 --> 00:28:32.760
It's so... everything's so beautiful.

00:28:36.263 --> 00:28:38.069
I can't believe it.

00:28:39.618 --> 00:28:41.110
You know, on the one hand,

00:28:41.727 --> 00:28:44.828
there's this wonderful garden,
this beautiful house.

00:28:45.694 --> 00:28:48.155
And then, through tragedy,

00:28:48.538 --> 00:28:50.977
we might live here. I don't know.

00:28:51.078 --> 00:28:53.140
We haven't spoken about it.

00:28:53.315 --> 00:28:56.481
But the duality of the scenario is

00:28:57.859 --> 00:28:59.861
so terrible, you know.

00:29:00.561 --> 00:29:03.239
I want to say: "Stay! I can help you.

00:29:03.780 --> 00:29:07.399
Carry you! Help you. Stay.

00:29:07.548 --> 00:29:09.614
You can't leave this place."

00:29:11.463 --> 00:29:13.176
Should we look around?

00:29:14.364 --> 00:29:15.795
I feel terrible.

00:29:17.733 --> 00:29:18.933
Let's have a look.

00:29:24.654 --> 00:29:28.329
But suppose Don dies in two years time.

00:29:29.392 --> 00:29:31.125
What happens to the house then?

00:29:32.482 --> 00:29:34.776
Probably absolutely nothing.

00:29:35.167 --> 00:29:38.292
That whoever is already the incumbent,

00:29:40.250 --> 00:29:44.284
I am sure could remain the incumbent

00:29:44.503 --> 00:29:49.111
if that´s what he wanted.

00:29:49.389 --> 00:29:52.763
The question of ownership
has to arise at some point.

00:29:53.584 --> 00:29:57.289
Yes, the ownership would still be

00:29:58.632 --> 00:30:01.824
my children. It's entrust.

00:30:03.073 --> 00:30:04.473
The house is entrust.

00:30:06.856 --> 00:30:10.402
You have decided you´re going to come
and live here, haven't you Tony?

00:30:11.060 --> 00:30:15.028
I'd be a little worried that someone
might come along and say:

00:30:15.122 --> 00:30:17.375
"Right, dream ends today, get out."

00:30:17.792 --> 00:30:22.896
No, no, no, no. It will not end
for at least 5 years,

00:30:22.964 --> 00:30:25.096
and I think it will go on longer.

00:30:27.169 --> 00:30:29.605
But, there's this thing I want to...

00:30:29.764 --> 00:30:31.204
Oh, feel free.

00:30:31.721 --> 00:30:32.741
I will.

00:30:35.477 --> 00:30:38.500
Oh, it's lovely to meet you,
you little sweetie.

00:30:45.051 --> 00:30:50.510
I suggested a little targeting experiment.

00:30:50.874 --> 00:30:52.765
And it turns out he'd already
thought of that.

00:30:53.097 --> 00:30:55.048
And a couple of years back he

00:30:56.273 --> 00:30:59.062
had submitted a grant proposal,

00:30:59.519 --> 00:31:01.162
that was accepted, but not funded.

00:31:01.241 --> 00:31:02.953
It's the way the funding buckets work.

00:31:05.570 --> 00:31:07.448
But he's going to re-submit it for me.

00:31:07.717 --> 00:31:08.748
This thing doesn't work.

00:31:09.405 --> 00:31:11.208
Hold on, darling. Let me get that.

00:31:11.902 --> 00:31:15.831
- So he's gonna re-submit it...
- Take the old thing.

00:31:19.283 --> 00:31:20.487
- Great.
- There you go.

00:31:20.753 --> 00:31:22.472
So, he's gonna re-submit that for me.

00:31:23.906 --> 00:31:25.391
And he was really keen on

00:31:26.501 --> 00:31:30.352
knowing the family history,
my history, all sorts of stuff.

00:31:32.022 --> 00:31:34.201
And he wants...

00:31:34.931 --> 00:31:36.934
And he told me he didn´t...
the lab...

00:31:37.051 --> 00:31:41.753
and, in fact, no lab in the world has
a cell line against LGMD1A.

00:31:42.290 --> 00:31:43.727
- Oh really?
- No cell line.

00:31:44.330 --> 00:31:48.685
No-one can do an experiment
on this diseased cell.

00:31:49.790 --> 00:31:52.323
So he wants me to go back in spring.

00:31:53.264 --> 00:31:56.688
And they're gonna stick
a stonking great needle in my arm.

00:31:58.131 --> 00:32:02.022
And get a tissue culture
that can live in immortality,

00:32:02.139 --> 00:32:05.748
so these researches have copies of it.

00:32:06.682 --> 00:32:07.859
Ah, that's pretty cool.

00:32:09.122 --> 00:32:11.560
So did you get any ideas
for your research?

00:32:13.095 --> 00:32:16.651
No, other than knowing
that a little specific

00:32:17.372 --> 00:32:19.653
interference is good.

00:32:20.101 --> 00:32:21.195
Is a likely candidate.

00:32:21.261 --> 00:32:24.493
Well, then I could do
some computations on that,

00:32:24.728 --> 00:32:26.308
and maybe do an experiment.

00:32:27.074 --> 00:32:29.149
That's reasonable for a lab like mine.

00:32:29.161 --> 00:32:30.988
I might actually going to do that.

00:32:31.241 --> 00:32:33.944
There's no way I would ever want
to work on mice.

00:32:34.441 --> 00:32:37.431
And I don't think it´s even... I'm sure
it's not even legal to work on

00:32:38.473 --> 00:32:40.028
rhesus-monkeys, that would be.

00:32:40.145 --> 00:32:42.152
And I wouldn't want to anyway,
that's horrible.

00:32:51.009 --> 00:32:52.573
Those are complex experiments, right?

00:32:52.753 --> 00:32:54.510
I've never designed an experiment.

00:32:54.613 --> 00:32:56.946
That's OK, I mean,
do simple experiments.

00:32:57.422 --> 00:33:01.448
See what you can do,
that would save him time.

00:33:01.664 --> 00:33:03.301
Right, well, ...

00:33:03.996 --> 00:33:06.388
To me that's horribly complex
and scares the hell out of me.

00:33:06.600 --> 00:33:09.955
To him, that's his
day-to-day work, right?

00:33:11.157 --> 00:33:14.806
But, there's no point in having a lab,
a full lab, downstairs,

00:33:15.002 --> 00:33:18.007
- if you're not going to really
put it to use. - I know.

00:33:20.113 --> 00:33:21.345
- So, use it.
- I know.

00:33:24.095 --> 00:33:25.095
I mean,

00:33:27.299 --> 00:33:29.820
there's little chance anyone else
is going to do this.

00:33:31.265 --> 00:33:32.506
Yeah, I know.

00:33:33.646 --> 00:33:36.835
There's only Steve Harper's Lab
doing any work on this.

00:33:36.920 --> 00:33:40.260
I know, there's only a handful
of people with your condition,

00:33:41.057 --> 00:33:43.104
probably no one with your condition,

00:33:43.956 --> 00:33:47.810
that has the credentials and
the know-how to do this.

00:33:48.009 --> 00:33:49.406
Well, I don't have any credentials

00:33:49.499 --> 00:33:52.070
and I'm not sure about the know-how.
But anyway.

00:33:52.828 --> 00:33:54.924
- You worked in a lab.
- Well yes.

00:33:55.120 --> 00:33:56.939
- You have a chemistry degree.
- Yes.

00:33:57.116 --> 00:33:58.535
You have an IT degree,

00:33:59.216 --> 00:34:00.949
you have a science degree,

00:34:01.208 --> 00:34:02.316
so, use it!

00:34:03.487 --> 00:34:04.487
Alright.

00:34:05.553 --> 00:34:08.475
I'm gonna keep pushing you,
´cause this is not just your life.

00:34:08.947 --> 00:34:10.397
It's my life, too.

00:34:12.202 --> 00:34:13.243
I can't do it.

00:34:14.188 --> 00:34:15.188
I can't help.

00:34:15.360 --> 00:34:17.034
It makes me feel very

00:34:25.850 --> 00:34:27.047
not desperate, but

00:34:28.245 --> 00:34:30.588
impotent. I can't help.

00:34:32.391 --> 00:34:33.791
I want to. I cannot.

00:34:36.418 --> 00:34:38.160
You're the only one who can.

00:34:56.240 --> 00:34:58.620
I don't think of this as courage.

00:35:00.745 --> 00:35:03.541
I'm taking the easy way out.

00:35:06.782 --> 00:35:09.743
To carry on living would be courage,

00:35:10.242 --> 00:35:11.253
but not this.

00:35:19.796 --> 00:35:21.263
If I had courage,

00:35:22.929 --> 00:35:25.156
I wouldn't be going to Switzerland.

00:35:27.267 --> 00:35:28.800
But I'm not brave enough

00:35:30.550 --> 00:35:33.667
to carry on living

00:35:35.623 --> 00:35:36.756
as I am now

00:35:39.149 --> 00:35:40.371
and how I know

00:35:41.512 --> 00:35:45.911
how much worse my situation
is going to become.

00:36:02.366 --> 00:36:04.669
Control of one's destiny

00:36:06.780 --> 00:36:08.527
resides only in that person

00:36:08.661 --> 00:36:11.651
and other people can't mess with it
or have any right to it.

00:36:17.099 --> 00:36:19.381
I would go as far as saying

00:36:20.121 --> 00:36:22.208
that it is a fundamental human right

00:36:22.397 --> 00:36:24.238
to end one's own life.

00:36:24.789 --> 00:36:25.820
Suicide.

00:36:25.902 --> 00:36:27.834
Let's put it in simple terms.

00:37:03.318 --> 00:37:06.386
Hello Charlotte there, it's Jan again.

00:37:06.657 --> 00:37:09.016
Sorry to be a nuisance.

00:37:09.893 --> 00:37:13.330
Could you pop round later on

00:37:14.748 --> 00:37:16.029
this afternoon,

00:37:16.514 --> 00:37:20.310
after you've brought the children
back from school?

00:37:21.307 --> 00:37:22.978
Need to talk to you.

00:37:23.579 --> 00:37:26.049
Nothing at all to worry about.

00:37:26.206 --> 00:37:29.742
I have been trying to catch up
with you for a while, sweetheart.

00:37:30.090 --> 00:37:33.198
So, hopefully, you´ll get back to me.
Bye.

00:37:35.956 --> 00:37:37.921
I have something to tell you.

00:37:39.331 --> 00:37:44.057
And I think you may have
an inkling what this actually is,

00:37:44.480 --> 00:37:47.126
- because we´ve talked about it before.
- Yes.

00:37:47.417 --> 00:37:50.525
But, Charlotte, I need to tell you

00:37:50.916 --> 00:37:52.677
that at the moment,

00:37:52.727 --> 00:37:54.854
don't worry, ´cause I'm quite calm.

00:37:55.843 --> 00:37:59.024
I need to tell you that at the moment

00:37:59.092 --> 00:38:02.839
I intend leaving Mersea on Sunday.

00:38:04.161 --> 00:38:05.629
Oh fucking hell, sorry.

00:38:05.721 --> 00:38:07.552
No, no, no... it's... I...

00:38:07.693 --> 00:38:09.885
I'm alright. I just want...

00:38:09.957 --> 00:38:12.670
It's not alright, Janette. It's not.

00:38:13.103 --> 00:38:14.689
It... it... it... it is.

00:38:15.331 --> 00:38:18.213
It is alright, Charlotte.

00:38:18.982 --> 00:38:21.358
Because it's the best thing.

00:38:21.968 --> 00:38:23.670
Now, I know you are shaking.

00:38:23.766 --> 00:38:26.003
But, what about my kids, Jan?

00:38:26.994 --> 00:38:29.071
What about them?
What about Anna?

00:38:29.177 --> 00:38:31.105
She comes to you for everything!

00:38:31.240 --> 00:38:35.013
This isn't fair.
No, no, no.

00:38:37.326 --> 00:38:39.195
I'm finding it

00:38:40.335 --> 00:38:43.818
a bit of a struggle living here.

00:38:44.998 --> 00:38:47.349
So what I'm going to do.

00:38:48.538 --> 00:38:53.064
When my son was here last April or May,

00:38:53.610 --> 00:38:56.085
what he suggested was that,

00:38:57.953 --> 00:39:01.283
as his house is already
converted in America,

00:39:02.253 --> 00:39:03.917
it would be a good idea

00:39:04.436 --> 00:39:08.903
if I went to live with him in America.

00:39:10.892 --> 00:39:12.860
That's it, girls.

00:39:13.506 --> 00:39:15.842
So it wasn't bad news really, was it?

00:39:15.954 --> 00:39:17.148
No, it was good.

00:39:17.320 --> 00:39:19.563
Because it's going to...it's got a...

00:39:21.059 --> 00:39:23.832
a happy ending, right?

00:39:25.105 --> 00:39:28.789
I shall never forget you two, don't worry.

00:39:29.173 --> 00:39:31.492
Yeah, it's alright, sweetheart.

00:39:32.091 --> 00:39:33.466
It's alright.

00:39:40.648 --> 00:39:42.574
- Girls, I'll be back in a minute, OK?
- OK.

00:39:43.175 --> 00:39:45.233
- Jess?
- Thank you, Jan.

00:39:47.332 --> 00:39:49.042
- Bye-bye, sweethearts.
- Bye.

00:39:49.384 --> 00:39:51.394
- It'll be two minutes...
- Bye.

00:40:02.555 --> 00:40:03.555
Are they gone?

00:40:05.734 --> 00:40:06.734
Yes?

00:40:09.693 --> 00:40:11.464
I'm not going to America.

00:40:13.602 --> 00:40:14.602
I know.

00:40:16.282 --> 00:40:18.490
But I couldn't tell these two.

00:40:19.861 --> 00:40:21.923
I have received an email

00:40:22.823 --> 00:40:23.977
from Bridget.

00:40:24.205 --> 00:40:25.205
When?

00:40:25.641 --> 00:40:26.641
Yesterday.

00:40:28.156 --> 00:40:31.112
Telling me not to bother going down,
give you a ring,

00:40:31.413 --> 00:40:33.651
because they were arranging to take you,

00:40:34.182 --> 00:40:35.622
in a luxury car,

00:40:35.755 --> 00:40:37.794
both Simon and Bridget.

00:40:39.901 --> 00:40:40.933
Where to?

00:40:41.365 --> 00:40:42.810
To where you want to go.

00:40:45.873 --> 00:40:48.623
- By car to Basel?
- Yes.

00:40:49.342 --> 00:40:52.340
Well, I would like to talk to her
and convince her

00:40:54.058 --> 00:40:55.677
that the route you've chosen

00:40:55.810 --> 00:40:57.971
is the only one she can support really.

00:41:00.179 --> 00:41:02.193
Oh, Jeff, thank you.

00:41:03.857 --> 00:41:05.773
Bram, I'm saying...
I´m gonna tell you again,

00:41:05.898 --> 00:41:08.132
it's not a route that i'll...

00:41:08.589 --> 00:41:09.789
No, no... I know...

00:41:13.789 --> 00:41:14.789
Oh, Jeff.

00:41:16.394 --> 00:41:18.089
I don't know what on earth...

00:41:19.437 --> 00:41:22.504
Just count to ten, bite your lip.

00:41:22.713 --> 00:41:25.269
Look, it will get sorted, Janette.

00:41:25.424 --> 00:41:27.191
That's why I've come down,

00:41:27.263 --> 00:41:29.712
to try and help you sort it out.

00:41:35.224 --> 00:41:39.119
"Simon and I would support Mum
at the appropriate time,

00:41:39.238 --> 00:41:40.246
but not now.

00:41:41.253 --> 00:41:43.160
Simon thought he was just

00:41:43.847 --> 00:41:46.858
taking Mum just for an explorative trip,

00:41:47.453 --> 00:41:49.319
not the final trip.

00:41:49.579 --> 00:41:52.772
He has only just realized
the full situation.

00:41:53.886 --> 00:41:55.670
He's still taking Mum,

00:41:56.139 --> 00:41:59.273
and we are both hoping
that they will reject her,

00:41:59.735 --> 00:42:01.195
and that she will return."

00:42:01.977 --> 00:42:02.977
Bollocks.

00:42:03.993 --> 00:42:07.659
No way. I'm sorry.
No way. No way.

00:42:10.131 --> 00:42:14.443
My plans have not changed

00:42:14.816 --> 00:42:16.153
in any way.

00:42:16.911 --> 00:42:19.543
They're not going to change,

00:42:19.733 --> 00:42:25.764
and all they are now doing is making me
extremely angry and upset.

00:42:27.197 --> 00:42:29.228
I've got everything sorted out,

00:42:29.768 --> 00:42:31.493
everything organized.

00:42:31.606 --> 00:42:34.973
I've been happier in the last few weeks

00:42:35.194 --> 00:42:37.154
than I have been in the last year.

00:42:37.248 --> 00:42:40.650
And they go and do this to me.

00:42:41.205 --> 00:42:43.521
So I could reply by saying

00:42:44.373 --> 00:42:46.301
I have spoken to you and

00:42:46.614 --> 00:42:48.959
whether you go or not,

00:42:49.366 --> 00:42:51.252
you are going ahead with it?

00:42:51.404 --> 00:42:53.564
- Yes.
- Right, that's all it needs.

00:43:03.863 --> 00:43:06.253
Thank you for coming down,

00:43:06.904 --> 00:43:10.344
and being such a wonderful,
wonderful cousin.

00:43:11.565 --> 00:43:13.973
And I've just got so many

00:43:15.450 --> 00:43:16.676
happy memories

00:43:17.564 --> 00:43:19.631
of what we've done together.

00:43:32.409 --> 00:43:37.284
I hadn't seen Jan since...

00:43:40.078 --> 00:43:41.119
2002?

00:43:44.662 --> 00:43:46.347
So that's been years I can't count.

00:43:47.534 --> 00:43:49.184
Jan and I never had a relationship

00:43:51.273 --> 00:43:52.905
where we needed to see each other

00:43:53.015 --> 00:43:55.237
or communicate or talk, really.

00:43:57.173 --> 00:43:59.857
Our relationship has never been sunny

00:43:59.869 --> 00:44:02.211
since my teenage years, at least.

00:44:03.368 --> 00:44:05.731
A typical mother-son relationship.

00:44:08.687 --> 00:44:10.632
It's more like cordial friends.

00:44:22.032 --> 00:44:24.702
My sister Bridget is clearly upset
by the whole thing,

00:44:25.887 --> 00:44:28.026
and she has a different
relationship with Jan.

00:44:29.356 --> 00:44:31.856
And that is more of
a mother-daughter bond,

00:44:35.600 --> 00:44:39.955
and she's naturally extremely concerned

00:44:41.877 --> 00:44:43.672
and doesn't want this to happen.

00:44:45.362 --> 00:44:47.492
Neither do I. I don't want it to happen.

00:44:49.024 --> 00:44:51.203
There is a certain sense
of inevitability.

00:44:53.882 --> 00:44:55.897
And as long as I can make sure

00:44:55.937 --> 00:44:59.444
that it's been done rationally

00:44:59.856 --> 00:45:01.618
and she´s thought about it very deeply,

00:45:02.993 --> 00:45:05.167
then I will have to be happy.

00:45:35.779 --> 00:45:37.829
I have had to tell people

00:45:38.314 --> 00:45:39.891
so many lies

00:45:40.252 --> 00:45:43.000
to get to this stage.

00:45:45.633 --> 00:45:51.363
The whole process will really
have taken me 11 months.

00:45:52.514 --> 00:45:54.576
Eleven months of struggle.

00:45:55.772 --> 00:46:01.072
Eleven months of really thinking through

00:46:01.166 --> 00:46:03.072
of am I doing the right thing.

00:46:04.040 --> 00:46:08.350
Thinking through how I'm going to tell
my family.

00:46:08.999 --> 00:46:11.749
How I'm going to tell my friends.

00:46:12.371 --> 00:46:14.967
How I'm going to convince them

00:46:15.203 --> 00:46:17.915
that this is the answer,

00:46:18.497 --> 00:46:22.037
and I don't have any alternative.

00:47:16.570 --> 00:47:17.987
I shall need...

00:47:19.112 --> 00:47:20.112
Money.

00:47:20.704 --> 00:47:21.704
Money.

00:47:22.457 --> 00:47:24.373
I have some there.

00:47:29.599 --> 00:47:34.686
Travel money I'll put in there.

00:47:35.214 --> 00:47:37.573
And English money.

00:47:39.579 --> 00:47:41.049
And more.

00:47:44.273 --> 00:47:46.353
I could enjoy spending you.

00:47:50.472 --> 00:47:52.203
More English money.

00:47:52.426 --> 00:47:53.477
I am rich.

00:47:54.543 --> 00:47:56.957
But I can't take you with me when I go.

00:47:57.390 --> 00:47:58.796
So never mind.

00:48:02.904 --> 00:48:05.237
Eventually Dimitri got his wish.

00:48:05.755 --> 00:48:10.434
After weeks of protest, he was removed
from the battlefield and flown home.

00:48:12.759 --> 00:48:17.211
But employees told us that hundreds of
their fellow fighters will never return.

00:49:11.859 --> 00:49:12.859
Alright.

00:49:12.995 --> 00:49:15.927
And I may well leave
that stick inside now.

00:49:16.227 --> 00:49:17.678
Simon, do you want those?

00:49:18.022 --> 00:49:21.177
What the hell am I going to do with...

00:49:21.732 --> 00:49:23.573
To do with the stick?
Same as I do.

00:49:24.234 --> 00:49:27.026
Yeah, I know, but I'm not buying
sticks for a few years.

00:49:28.100 --> 00:49:29.300
I'm still walking.

00:49:29.379 --> 00:49:30.655
Yeah, you're still walking.

00:49:32.110 --> 00:49:34.300
In fact, you're doing very well, Simon.

00:49:34.559 --> 00:49:35.559
No.

00:49:36.970 --> 00:49:40.042
I had a neurological consultation
the other week.

00:49:40.577 --> 00:49:42.100
It's not neurological.

00:49:42.182 --> 00:49:44.807
What is yours then?

00:49:46.924 --> 00:49:50.158
Limb-girdle muscular dystrophy
type 1A, so is yours.

00:49:50.353 --> 00:49:52.562
It's not... It's not neurological.

00:49:59.034 --> 00:50:00.942
- You're missing a protein
- Yes.

00:50:01.059 --> 00:50:03.009
- that would hold the Z-disks together.
- Yes.

00:50:03.274 --> 00:50:04.767
Not neurological.

00:50:08.382 --> 00:50:12.797
Well, I know that you understand
a lot more about this than I do.

00:50:13.190 --> 00:50:16.629
And then we can talk about
that website, Simon,

00:50:17.366 --> 00:50:20.013
which I didn't join,

00:50:20.923 --> 00:50:22.173
and I should have done.

00:50:22.437 --> 00:50:23.616
It doesn't matter.

00:52:12.824 --> 00:52:15.269
- Hello.
- Hello, Erika.

00:52:15.499 --> 00:52:16.657
Hello, Janette.

00:52:17.012 --> 00:52:18.213
- Finally.
- I am shushed.

00:52:18.293 --> 00:52:20.528
Oh yes, finally.

00:52:23.698 --> 00:52:25.523
Hey Janette, it will turn alright.

00:52:28.298 --> 00:52:29.863
It will turn alright.

00:52:30.849 --> 00:52:31.872
Hey, Janette.

00:52:31.927 --> 00:52:34.303
Thank you.
Thank you.

00:52:55.434 --> 00:52:56.769
We do have

00:52:58.657 --> 00:53:01.204
not more than two
assisted dyings a week.

00:53:01.798 --> 00:53:03.951
I should only have one a week.

00:53:04.780 --> 00:53:06.489
If I do more than one a week,

00:53:06.606 --> 00:53:07.864
it is too much for me.

00:53:08.013 --> 00:53:11.157
I also have to get over assisted dyings

00:53:11.264 --> 00:53:13.267
and people like Janette, you know,

00:53:13.322 --> 00:53:14.971
she is such a lovely lady.

00:53:15.878 --> 00:53:18.026
It is not all that easy to let them go.

00:53:24.504 --> 00:53:27.418
I do not have to take responsibility
for Janette.

00:53:28.023 --> 00:53:30.656
Janette is taking the responsibility
for herself.

00:53:31.113 --> 00:53:32.417
I just have to make sure

00:53:32.480 --> 00:53:35.598
that she has been thinking it over well.

00:53:35.755 --> 00:53:37.911
And that she doesn't come too early.

00:53:39.663 --> 00:53:41.869
People who are very badly handicapped,

00:53:42.864 --> 00:53:45.392
they have to come too early
to be able to travel.

00:53:45.862 --> 00:53:47.760
To be able to come at all.

00:53:48.081 --> 00:53:51.729
This is why I'm fighting
for legalization so hard.

00:53:52.599 --> 00:53:54.333
If they could do it in their country,

00:53:54.395 --> 00:53:56.727
I guess they could wait a bit longer.

00:54:07.560 --> 00:54:11.692
When I do assisted dying,
I always think whether it is OK

00:54:11.756 --> 00:54:13.648
to do assisted dying or not.

00:54:17.603 --> 00:54:20.441
When I think back to my past,

00:54:20.879 --> 00:54:24.139
I have not always been

00:54:24.616 --> 00:54:26.171
accepting assisted dying,

00:54:26.249 --> 00:54:29.384
I haven't even been thinking
of assisted dying some days.

00:54:30.220 --> 00:54:33.942
I was very deeply into palliative care

00:54:34.068 --> 00:54:37.001
and terminal sedation in some cases.

00:54:37.542 --> 00:54:39.933
And I think if you would have asked me

00:54:40.268 --> 00:54:43.710
whether I accept assisted dying
those days,

00:54:44.031 --> 00:54:46.564
I would have said: "Crazy!

00:54:47.165 --> 00:54:50.250
I am here to prolong life
and not to end life.

00:54:50.345 --> 00:54:51.438
As a doctor."

00:55:10.595 --> 00:55:12.462
- Does it hurt?
- No.

00:55:32.958 --> 00:55:34.754
Nature is something wonderful.

00:55:35.335 --> 00:55:37.501
I think Nature and God.

00:55:38.113 --> 00:55:40.011
We were made by God.

00:55:40.889 --> 00:55:43.318
I do not know whether
I can believe that,

00:55:43.430 --> 00:55:45.303
but I do believe in

00:55:47.368 --> 00:55:50.501
a good God who does not
want us to suffer.

00:55:51.038 --> 00:55:53.359
He does not want us to...

00:55:54.484 --> 00:55:55.766
to suffer unbearably.

00:55:55.945 --> 00:55:57.766
Suffering is

00:55:57.915 --> 00:56:00.060
made by human beings.

00:56:00.248 --> 00:56:02.049
At least partly.

00:56:02.698 --> 00:56:06.868
You know, when I save someone
who has a heart attack,

00:56:07.306 --> 00:56:08.912
or by reanimation,

00:56:09.248 --> 00:56:11.616
maybe God would have wanted
to take him back,

00:56:12.272 --> 00:56:13.914
to end his life.

00:56:14.286 --> 00:56:18.621
And then I stop God from
taking him up to heaven,

00:56:20.281 --> 00:56:22.666
and two years later he dies
from a very bad cancer

00:56:22.768 --> 00:56:24.846
with an awful lot of suffering.

00:56:25.900 --> 00:56:30.242
I do not really know whether
suffering is made by God,

00:56:30.335 --> 00:56:32.528
whether it is not more made by men.

00:56:32.935 --> 00:56:35.257
And I think God hasn't
only given us the

00:56:35.331 --> 00:56:37.489
possibility to do these blood tests

00:56:37.575 --> 00:56:40.067
and find out what we can do
against illnesses.

00:56:40.491 --> 00:56:43.012
He also has given us the possibility

00:56:43.173 --> 00:56:46.763
to give assisted dying
with wonderful medication,

00:56:47.421 --> 00:56:48.990
without suffering at all.

00:56:50.154 --> 00:56:51.590
And this is not a sin.

00:56:52.285 --> 00:56:53.911
I am convinced 100%.

00:56:54.431 --> 00:56:56.550
If it was a sin,
I wasn't that happy.

00:57:08.623 --> 00:57:11.724
When my father had his second stroke

00:57:12.021 --> 00:57:13.521
couldn't talk anymore,

00:57:14.106 --> 00:57:15.906
had hemiplegia

00:57:16.240 --> 00:57:19.725
and he tried to kill himself
taking all the medication,

00:57:19.912 --> 00:57:22.334
all the pills he found in my house.

00:57:22.643 --> 00:57:24.635
Then showed that he was going to jump

00:57:24.691 --> 00:57:26.772
in front of a train to kill himself.

00:57:27.776 --> 00:57:32.449
This made me have contact
with assisted dying for the first time.

00:57:34.900 --> 00:57:37.298
I did love my father very much,

00:57:38.033 --> 00:57:40.079
I did not want to let him go.

00:57:40.973 --> 00:57:44.028
I did want to give him
a palliative way of dying

00:57:44.081 --> 00:57:45.088
at my home.

00:57:45.136 --> 00:57:47.737
He would have never ever
had to go to a hospital.

00:57:50.658 --> 00:57:51.803
One of the point was

00:57:52.030 --> 00:57:54.765
that we were brought up very religiously

00:57:55.439 --> 00:57:57.827
and I would have loved to ask my father:

00:57:58.216 --> 00:58:00.842
"How do you cope with
your religious beliefs?

00:58:01.524 --> 00:58:03.694
How do you cope with the sin

00:58:04.037 --> 00:58:05.608
that you are killing yourself?"

00:58:06.636 --> 00:58:09.611
And I couldn't ask him
because he couldn't answer.

00:58:09.714 --> 00:58:11.966
He couldn't find a word,
he couldn't write,

00:58:12.106 --> 00:58:13.566
he couldn't express himself,

00:58:13.776 --> 00:58:16.987
unless saying yes or no with his head.

00:58:17.476 --> 00:58:19.077
So I did not ask.

00:58:19.302 --> 00:58:20.938
But when you sit

00:58:22.004 --> 00:58:23.613
on the bed with your father,

00:58:23.776 --> 00:58:26.949
he drinks the deadly medicine,

00:58:27.605 --> 00:58:30.145
puts his head on your shoulder and dies,

00:58:31.100 --> 00:58:33.825
after having had a good sip of red wine,

00:58:35.574 --> 00:58:37.933
I think then you start asking yourself:

00:58:38.631 --> 00:58:41.013
"Is palliative care really the only way?

00:58:41.888 --> 00:58:44.519
Isn't there another way that
you should accept also?"

00:58:52.137 --> 00:58:54.075
After he had died,

00:58:54.287 --> 00:58:56.247
I told my sisters and brothers:

00:58:56.325 --> 00:58:58.513
"Do not tell anybody why he died.

00:58:58.836 --> 00:59:01.524
On the funeral we are not
going to tell anybody."

00:59:02.793 --> 00:59:04.080
I had bad conscience

00:59:04.514 --> 00:59:07.126
being a doctor and
being a religious person.

00:59:08.371 --> 00:59:10.245
And then one of my sisters said:

00:59:10.506 --> 00:59:12.171
"I'm not going to tell a lie,

00:59:12.390 --> 00:59:15.773
if somebody asks me what did he die of,

00:59:16.175 --> 00:59:18.739
I will not tell - another stroke."

00:59:19.485 --> 00:59:21.928
There were 150 people

00:59:22.806 --> 00:59:24.049
on his funeral,

00:59:26.007 --> 00:59:28.015
I had to stand up and say:

00:59:28.103 --> 00:59:29.946
"Yes, I accepted an assisted dying",

00:59:30.047 --> 00:59:32.318
which was very difficult for me.

00:59:32.835 --> 00:59:35.367
But it was, it was OK,
and nobody complained.

00:59:35.481 --> 00:59:36.660
They all understood.

00:59:36.758 --> 00:59:40.106
They all knew my father very well
and they could understand.

00:59:41.970 --> 00:59:44.560
Which made it a little bit easier for me,

00:59:44.652 --> 00:59:45.826
but not easy.

00:59:53.421 --> 00:59:54.923
She´ll be here any minute.

00:59:56.436 --> 00:59:58.236
So, I'll sit here.

01:00:02.089 --> 01:00:04.226
Maybe, you could sit on the bed,
if you like.

01:00:04.292 --> 01:00:05.410
That's OK for me.

01:00:05.506 --> 01:00:07.352
Would you like?
Is it OK for you?

01:00:07.476 --> 01:00:08.780
It's OK for me.

01:00:09.114 --> 01:00:11.173
Then your sister maybe can sit here.

01:00:13.083 --> 01:00:15.254
Oh we have talking a lot.

01:00:15.576 --> 01:00:17.372
We have been talking a lot now.

01:00:17.602 --> 01:00:18.637
- Good.

01:00:19.628 --> 01:00:22.028
- Good talks.
- Yes.

01:00:23.139 --> 01:00:25.443
- I always...
- That is Bridget.

01:00:25.709 --> 01:00:27.414
Bridget come in. Come.

01:00:28.414 --> 01:00:31.085
I also mentioned the fact

01:00:31.375 --> 01:00:35.615
that she tried to end her life
already before.

01:00:37.706 --> 01:00:39.715
And we had a talk about

01:00:40.374 --> 01:00:43.249
how important it would be
that she could do it at home.

01:00:44.812 --> 01:00:47.554
I have been talking

01:00:47.801 --> 01:00:50.950
about finding the right time
for assisted dying,

01:00:51.376 --> 01:00:52.555
with Janette.

01:00:53.721 --> 01:00:56.161
And she definitely

01:00:56.384 --> 01:00:58.994
seems to be 100% sure

01:00:59.924 --> 01:01:01.924
that tomorrow is the right time.

01:01:02.074 --> 01:01:04.917
As you told me before
I talked to Janette,

01:01:07.573 --> 01:01:10.211
she is of sound mind,

01:01:10.301 --> 01:01:12.710
she knows exactly, she can explain.

01:01:13.551 --> 01:01:17.494
- She has been thinking about it
for a long time. - Yes.

01:01:17.627 --> 01:01:21.453
She is not influenced by anybody else
to do this.

01:01:22.797 --> 01:01:27.680
She's rather held back by you to do this.

01:01:28.336 --> 01:01:32.062
So, definitely, she is not pushed
by anybody to end her life.

01:01:32.904 --> 01:01:35.955
She´s suffering from an incurable illness

01:01:36.111 --> 01:01:38.071
which we cannot stop.

01:01:38.198 --> 01:01:41.638
If I would have any possibility
to stop your illness,

01:01:41.849 --> 01:01:44.117
I would not give you an assisted dying.

01:01:44.586 --> 01:01:46.113
Then I would stop your illness,

01:01:46.207 --> 01:01:48.838
and you would not ask me
for an assisted dying then.

01:01:49.065 --> 01:01:51.549
That is absolutely true.

01:01:53.431 --> 01:01:58.173
So, all the circumstances
for an assisted dying for tomorrow

01:01:58.925 --> 01:01:59.992
are given.

01:02:00.214 --> 01:02:04.351
I can find no reason why I should say no.

01:02:05.875 --> 01:02:08.580
You are very happy about it.

01:02:09.790 --> 01:02:11.764
We can see how relieved you are

01:02:11.949 --> 01:02:15.005
when we talk about,
"yes, tomorrow is going to be

01:02:15.154 --> 01:02:17.668
your big day of leaving."

01:02:19.467 --> 01:02:21.667
I can also understand that you are sad.

01:02:22.873 --> 01:02:24.335
No, I'm not sad, no.

01:02:24.890 --> 01:02:27.358
- Not really sad?
- No, not at all sad, in fact.

01:02:29.252 --> 01:02:31.939
I have my reservations, but I'm not sad.

01:02:33.249 --> 01:02:35.783
I have been ever so careful in my life

01:02:36.023 --> 01:02:38.972
to develop very fundamental philosophies,

01:02:39.856 --> 01:02:43.252
and I had to think very carefully
of the last few weeks.

01:02:44.096 --> 01:02:47.166
whether I was even prepared
to make any exceptions,

01:02:47.276 --> 01:02:50.586
simply because a member
of my family was involved.

01:02:50.719 --> 01:02:52.616
The answer is no.

01:02:54.686 --> 01:02:55.780
- OK?
- Yes.

01:02:55.898 --> 01:02:58.144
That's OK.
That's OK.

01:02:58.309 --> 01:03:00.852
I have been thinking about
what happens afterwards.

01:03:01.310 --> 01:03:03.367
You know, it's so nice to talk to someone,

01:03:03.698 --> 01:03:05.534
to see your smile.

01:03:06.371 --> 01:03:08.038
To see that you are relieved,

01:03:08.859 --> 01:03:10.884
and all of a sudden, there's only,

01:03:11.221 --> 01:03:14.679
sort of, the cocoon,
and the butterfly is gone.

01:03:16.143 --> 01:03:19.551
We will never know, but we will
definitely all go that way.

01:03:21.178 --> 01:03:24.114
The matter is only how we do that way.

01:03:26.165 --> 01:03:27.846
Let me give you a hug.

01:03:28.396 --> 01:03:30.725
Thank you so much.

01:03:31.361 --> 01:03:32.361
Thank you.

01:03:33.762 --> 01:03:34.895
See you tomorrow.

01:03:37.966 --> 01:03:40.524
- Thank you very much.
- Thank you, Bridget.

01:03:41.743 --> 01:03:44.995
Actually, you are as strong
as your mother,

01:03:45.376 --> 01:03:47.550
but it's... I know how difficult it is.

01:03:53.590 --> 01:03:55.252
Are you at peace with the universe?

01:03:55.338 --> 01:03:59.940
I am totally at peace with the universe.

01:04:00.730 --> 01:04:05.735
- I welcome this with open arms.
- OK.

01:04:07.154 --> 01:04:10.708
I need to do this

01:04:11.115 --> 01:04:13.302
- to get my peace.
- We got that.

01:04:13.467 --> 01:04:15.263
- We accept.
- We are OK with that.

01:04:15.361 --> 01:04:17.115
- I have to...
- OK, we understand.

01:04:17.216 --> 01:04:20.371
We never have been against that. Right?

01:04:20.949 --> 01:04:23.180
- I don't think we need to make...
- No, can I say...

01:04:23.370 --> 01:04:25.578
- No one's stopping you here.
- No, nobody´s stopping.

01:04:25.703 --> 01:04:27.611
- You have the option.
- No one is coercing you.

01:04:28.154 --> 01:04:29.428
You have the option.

01:04:29.710 --> 01:04:32.265
There are options,
you know what they are.

01:04:33.030 --> 01:04:34.553
There are, if you wish.

01:04:34.798 --> 01:04:36.780
If you don't wish that's fine, as well.

01:04:36.961 --> 01:04:39.346
Simon and I will do whatever we can,

01:04:39.705 --> 01:04:41.667
to improve quality of life,

01:04:42.465 --> 01:04:45.253
and if you decide,

01:04:46.871 --> 01:04:48.480
oh we hope you do,

01:04:48.777 --> 01:04:50.254
but also we respect your wishes,

01:04:50.371 --> 01:04:51.568
if you decide

01:04:51.873 --> 01:04:54.381
that actually you would like to postpone,

01:04:54.630 --> 01:04:56.745
we will be more than happy

01:04:57.007 --> 01:04:59.049
to do whatever it takes

01:04:59.691 --> 01:05:01.668
and we can drive you,

01:05:01.913 --> 01:05:04.046
in a Bentley, private jet,

01:05:04.461 --> 01:05:06.144
whatever, to get you here.

01:05:06.401 --> 01:05:07.482
If that is what you wish.

01:05:07.674 --> 01:05:10.853
If it's not, then we´re just
putting that on the table

01:05:11.118 --> 01:05:12.665
just to make sure that you...

01:05:12.766 --> 01:05:14.250
make sure you are aware.

01:05:14.617 --> 01:05:16.778
It's all we are saying,
it's all we are saying.

01:05:16.978 --> 01:05:18.045
Isn´t it, Simon?

01:05:19.438 --> 01:05:21.872
You are not being pressurized.

01:05:22.505 --> 01:05:23.630
There are options,

01:05:23.856 --> 01:05:27.473
and we could make things
work on a grand scale.

01:05:27.610 --> 01:05:28.677
Can't we, Simon?

01:05:30.430 --> 01:05:32.023
That's all we need to know.

01:05:33.158 --> 01:05:35.383
And if it's six months,
and you want to...

01:05:37.123 --> 01:05:38.406
to come back in six months,

01:05:38.823 --> 01:05:39.917
we will be here,

01:05:40.269 --> 01:05:41.936
and we´ll bring you back.

01:05:42.112 --> 01:05:44.337
I can only say

01:05:44.447 --> 01:05:46.009
thank you to that.

01:05:46.090 --> 01:05:48.346
- If you don't want that, ...
- To both of you.

01:05:48.408 --> 01:05:50.069
- that's also fine.
- But,

01:05:51.659 --> 01:05:53.708
having got this far,

01:05:54.527 --> 01:05:58.903
and having been
such a tremendous struggle,

01:05:59.742 --> 01:06:02.292
- I...
- That's my point.

01:06:02.425 --> 01:06:06.058
- I have the two options on Thursday.
- Yes, you do.

01:06:06.219 --> 01:06:08.384
- I can either live
- Yes.

01:06:08.662 --> 01:06:10.245
- or die.
- Yes.

01:06:10.631 --> 01:06:13.134
- And I am going to take
- OK.

01:06:13.389 --> 01:06:15.687
- the second option.
- That's your prerogative.

01:06:16.009 --> 01:06:17.195
That's your prerogative.

01:06:18.836 --> 01:06:20.461
- Because...
- But,

01:06:21.007 --> 01:06:22.241
there is another option

01:06:22.636 --> 01:06:24.621
and you just need to know
what that option looks like,

01:06:24.667 --> 01:06:26.860
and we tell you what the option
looks like,

01:06:27.233 --> 01:06:29.900
and that is better quality of life,

01:06:30.556 --> 01:06:32.964
and you´re doing this
whenever you want to.

01:06:34.295 --> 01:06:37.171
- My quality of life
- I know.

01:06:37.558 --> 01:06:41.855
is not going to get any better.

01:06:42.862 --> 01:06:45.877
It can only get worse.

01:06:46.660 --> 01:06:49.543
You know that. And you know that.

01:06:52.187 --> 01:06:54.958
This is difficult to accept.

01:06:55.932 --> 01:06:58.636
But it is a fact of life

01:06:59.115 --> 01:07:03.035
or, in my case, a fact of death.

01:07:04.523 --> 01:07:09.322
I have been so sorry,

01:07:09.854 --> 01:07:13.236
for the sadness, the sorrow

01:07:13.627 --> 01:07:18.833
that I have inflicted on other people.

01:07:21.068 --> 01:07:23.052
I am only sad

01:07:23.667 --> 01:07:27.864
that my life has got to the stage

01:07:28.310 --> 01:07:33.393
where this, I feel, is necessary.

01:07:33.688 --> 01:07:35.751
Remember, I can see my destiny right now.

01:07:36.907 --> 01:07:39.442
- Yes, of course you can, Simon.
- Right?

01:07:41.824 --> 01:07:42.977
I'm good.

01:07:43.095 --> 01:07:46.015
I had the same conversation
with Chandria six weeks ago.

01:07:46.121 --> 01:07:47.363
I know you did.

01:07:47.738 --> 01:07:50.965
And the fact that you can see your destiny

01:07:55.406 --> 01:07:56.406
I find

01:07:59.748 --> 01:08:01.538
that more tragic

01:08:02.244 --> 01:08:04.720
because I know

01:08:05.532 --> 01:08:07.205
that at some time,

01:08:08.021 --> 01:08:10.830
that you are, perhaps,

01:08:13.615 --> 01:08:16.575
going to have to make

01:08:17.763 --> 01:08:19.835
the same choice

01:08:21.223 --> 01:08:22.490
as I've made.

01:08:42.571 --> 01:08:44.839
I have to push the button.

01:08:47.942 --> 01:08:49.184
It's a big thing

01:08:50.295 --> 01:08:51.537
to press that button.

01:08:53.898 --> 01:08:55.358
And I'm curious,

01:08:55.995 --> 01:08:58.284
´cause I want to know what´s happening.

01:09:01.296 --> 01:09:02.850
If I press that button,

01:09:03.384 --> 01:09:07.398
is that the absolute, total end of me?

01:09:07.999 --> 01:09:08.999
I don't know.

01:09:10.754 --> 01:09:12.965
Oh, but I am just so curious.

01:09:13.296 --> 01:09:14.962
I want to know.

01:09:15.979 --> 01:09:17.736
And I so much,

01:09:18.153 --> 01:09:20.801
in many ways, want to know

01:09:21.216 --> 01:09:24.200
what is happening on Earth.

01:09:25.680 --> 01:09:28.447
There is so many things

01:09:29.407 --> 01:09:31.866
that I really still

01:09:32.662 --> 01:09:34.975
would want to know about.

01:10:25.042 --> 01:10:28.761
Do you still definitely want
to end your life today?

01:10:28.894 --> 01:10:30.519
- Definitely.
- Definitely?

01:10:30.804 --> 01:10:33.318
- No change in your mind?
- No change at all.

01:10:35.027 --> 01:10:38.456
I herewith order the foundation
"Eternal SPIRIT" to transport my body

01:10:38.534 --> 01:10:40.554
to the crematory in Basel

01:10:41.117 --> 01:10:45.234
and to get my death certificate
as well as my urn from the authorities

01:10:45.611 --> 01:10:47.923
and to send both to my home country.

01:10:48.529 --> 01:10:51.267
Do you definitely not
want to have it sent?

01:10:51.294 --> 01:10:52.320
No.

01:10:54.605 --> 01:10:57.304
What would you... well, this is
a two day process.

01:10:57.440 --> 01:10:58.938
- Right.
- We will not be here.

01:10:59.180 --> 01:11:00.330
- We won't be here.
- No.

01:11:00.381 --> 01:11:03.206
- But I'm happy to come back
to Switzerland. - No, no, no.

01:11:03.318 --> 01:11:05.211
But, could we have the ashes sent to us,

01:11:05.273 --> 01:11:07.939
so we could scatter them
somewhere where you desire?

01:11:09.075 --> 01:11:10.421
We'll be able to do...

01:11:10.675 --> 01:11:14.093
I'm quiet happy with Switzerland, yes.

01:11:14.164 --> 01:11:16.123
That means we will have to come back.

01:11:17.812 --> 01:11:20.910
You want your ashes scattered by someone
who doesn't even know or care?

01:11:22.981 --> 01:11:25.965
- What is your wish?
- It's a two day process, you cannot...

01:11:26.082 --> 01:11:27.997
May I say something?

01:11:29.552 --> 01:11:32.217
Janette, you are going your way.

01:11:32.486 --> 01:11:35.605
- Yes.
- After you die,

01:11:35.699 --> 01:11:38.421
you are somewhere,
your spirit will be somewhere.

01:11:38.706 --> 01:11:40.743
We don't know, we will meet sometime,

01:11:40.786 --> 01:11:42.912
and your ashes will stay back here.

01:11:43.337 --> 01:11:45.461
Your children will have to go on living.

01:11:46.288 --> 01:11:48.975
And I would... I would do them...

01:11:49.796 --> 01:11:51.499
They fulfill your last wish,

01:11:51.980 --> 01:11:54.063
having come to be with you here.

01:11:54.163 --> 01:11:57.085
I would like you to fulfill
their last wish,

01:11:57.546 --> 01:12:00.069
to be able to scatter the ashes in England

01:12:00.228 --> 01:12:02.131
on a place that you like.

01:12:03.096 --> 01:12:05.494
If that is what they want, yes.

01:12:05.775 --> 01:12:07.264
- Would that be...
- If that's...

01:12:08.679 --> 01:12:11.077
- I think that would be important.
- OK.

01:12:12.227 --> 01:12:13.760
- Right?
- OK.

01:12:16.892 --> 01:12:18.521
I'm not scared.

01:12:23.954 --> 01:12:27.376
You are a very remarkable person.

01:12:27.523 --> 01:12:29.487
No, I'm not, you are.

01:12:29.650 --> 01:12:30.733
Now, listen.

01:12:32.478 --> 01:12:34.970
- When it's Simon's time,
- I know.

01:12:35.919 --> 01:12:38.008
- No, listen.
- I´ll look after him.

01:12:38.116 --> 01:12:40.608
I don't think this is a good time
to talk about me.

01:12:40.749 --> 01:12:44.139
- Simon, it´s a very good time.
- Everyone knows my wishes.

01:12:44.581 --> 01:12:47.832
But you'll be able to do that more easily

01:12:48.510 --> 01:12:51.424
because you know now what's involved.

01:12:51.684 --> 01:12:55.131
- Yes.
- It will not be as stressful, OK?

01:12:55.832 --> 01:12:57.425
I will look after him.

01:12:57.537 --> 01:12:59.547
I´m gonna make sure he is OK.

01:13:01.411 --> 01:13:03.613
He will be. He will be.

01:13:51.278 --> 01:13:56.337
It is 15 grams of sodium pentobarbital
which is a sleeping medication.

01:13:59.274 --> 01:14:01.059
If you give it in such a high dose

01:14:01.114 --> 01:14:04.681
it is a very, very big overdose,
these 15 grams.

01:14:07.194 --> 01:14:10.227
It leads immediately to heart and...

01:14:10.654 --> 01:14:13.342
and also breathing failure.

01:14:14.652 --> 01:14:17.925
So, within about 4 minutes,
if you give it intravenously,

01:14:18.023 --> 01:14:20.483
within 30 seconds you fall asleep.

01:14:20.876 --> 01:14:22.917
Very, very deep anesthetic sleep.

01:14:23.205 --> 01:14:26.527
And then within about 4 minutes
you have a heart failure.

01:14:28.027 --> 01:14:29.027
Ready?

01:14:29.196 --> 01:14:31.174
- So we do questions now.
- Yes.

01:14:31.320 --> 01:14:32.531
What is your name?

01:14:33.001 --> 01:14:35.420
My name is Janette Butlin.

01:14:35.751 --> 01:14:37.368
And what is your date of birth?

01:14:37.681 --> 01:14:41.754
23rd of June 1944.

01:14:42.278 --> 01:14:44.884
And can you tell me
why you came to "lifecircle?"

01:14:45.781 --> 01:14:48.644
I have muscular dystrophy

01:14:49.308 --> 01:14:51.487
which is now so bad,

01:14:51.902 --> 01:14:56.433
that I find life far too difficult.

01:14:58.154 --> 01:15:00.364
I have set you an intravenous needle.

01:15:00.885 --> 01:15:03.983
Do you know what is going to happen
if you open this strip?

01:15:04.343 --> 01:15:05.343
Yes, I do.

01:15:05.826 --> 01:15:06.951
What will happen?

01:15:07.240 --> 01:15:08.325
I will die.

01:15:08.607 --> 01:15:10.364
- You will die, yes.
- Yes.

01:15:10.994 --> 01:15:13.539
Now Janette, if you like to die now,

01:15:13.720 --> 01:15:16.237
you are allowed to open
this perfusion yourself.

01:15:17.244 --> 01:15:18.244
Right.

01:16:29.197 --> 01:16:30.353
Bridget?

01:16:31.089 --> 01:16:34.276
Would you open the window a little bit?

01:16:42.867 --> 01:16:44.067
That's good.

01:16:48.480 --> 01:16:49.843
She's free now.

01:19:02.359 --> 01:19:05.129
I'm sad that she's gone.

01:19:06.583 --> 01:19:07.983
I'll never see her again.

01:19:10.470 --> 01:19:12.909
It has certainly changed me.

01:19:13.070 --> 01:19:15.611
It has changed my attitude
towards the future.

01:19:15.963 --> 01:19:18.253
There's not much of it left.

01:19:22.568 --> 01:19:24.588
I'm hoping that by the time

01:19:24.974 --> 01:19:26.890
I get to my 70s,

01:19:27.505 --> 01:19:31.763
this choice will be available
and understood and recognized

01:19:31.885 --> 01:19:33.169
and accepted.

01:19:34.585 --> 01:19:35.833
It will just be a choice,

01:19:35.934 --> 01:19:38.000
it's not something I will or won't do.

01:19:38.094 --> 01:19:40.676
I can't say now. I have no idea.

01:19:42.891 --> 01:19:45.024
But I hope the choice is there.

01:21:25.141 --> 01:21:27.241
Editing captions:
Alexandra Strelková, Michal Tencer

01:23:14.820 --> 01:23:19.897
For Janette