Boy In The World
- Description
- Reviews
- Citation
- Cataloging
- Transcript
For many three and four-year-olds, learning how to live in the world begins in a preschool classroom. Children with developmental disabilities are no exception. This intimate documentary follows four-year-old Ronen, a young boy with Down syndrome, who attends a fully inclusive early childhood education center. Through his story we learn what it really means for a child to be included: the triumphs, the struggles, and the positive effects on everyone involved: classmates, parents, teachers, and community. Through interviews with teachers, administrators, parents and disability professionals, the film explores the inclusion process in depth, and concretely demonstrates that inclusive classrooms can benefit all children, both those with special needs and their typical peers. This is a rich, evocative exploration of how inclusion works, from the nuts and bolts of a successful inclusive classroom to the benefits and challenges of educational practices that help all children to learn and to find their place in the world.
'Bravo! Addresses critical elements of genuine, effective inclusion.' -Sally S. Arsenault, R.I. Department of Education
'A beautifully made film and a wonderful example of inclusion done well!' -Dr. Deborah Goessling, Providence College
'BOY IN THE WORLD shows the essence of inclusion.' -Claudia Buchinsky, parent
Citation
Main credits
Jennings, Jessica (Director)
Jennings, Jessica (Film editor)
Jennings, Jessica (Cinematographer)
Britt, Kris (Producer)
Lavall, John (Producer)
Other credits
Editor, Jessica Jennings; director of photography, Jessica Jennings.
Distributor subjects
Adolescence; Civil Rights; Disabilities; Education; Fanlight Collection; Psychology; Youth IssuesKeywords
WEBVTT
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I was a good student. I worked really hard…
I\'m also kind of a complicated memory…
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I learned always pass by… Doing something so…
I didn\'t like things that I had to remember.
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I\'m not an auditory learner at all. And
things came very easy in the gifted programs,
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didn\'t really have to work too hard. I had to put tremendous
amount of time (inaudible)… …Liked to looking at the chalk board.
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I learned today that writing… I was
an average student (inaudible)…
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…Twice as long as some of the other
students. (inaudible). If you were to now
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moving me back 50 years I would end up being
(inaudible), having a learning disability.
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In the mid \'80s, the US
department of mid education,
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started asking the questions,
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\"What\'s happening to our special education
students as they graduate?\" The study was
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rather uh… discouraging. It revealed that
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most students who got out of special
education entered adulthood
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unemployed or unemployable, very isolated,
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experiencing a lot of problems
and adjusting with society,
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lot of them had some kind of
encounter with the judicial system.
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One other things that became obvious
in this analysis of the data was that,
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the group that was having the most success was the
group that had spent the most amount of their time
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in regular education environments. Over all
other variables that people looked at,
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the only variable that was
predictive of success in adulthood
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was the amount of inclusion they
had experienced as children.
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[sil.]
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A good inclusive program
is going to make sure that
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every child knows that we learn it all on right, that
we\'re good at some things, we\'re working on others,
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and that\'s true for everyone. The
program, the administration,
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the teachers, and the other families have made a
commitment to be inclusive of all sorts of differences.
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Ronen is the first child with Down syndrome
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who has been enrolled at Brown/Fox Point.
And he is in a room that roughly maps out
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the demographics of the
society that he will enter
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and inclusion in that sense is
seeking and education for Ronen
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that helps him go be in the
world he\'s going to be in.
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We fully expect Ronen to be a positive
contributing member of society.
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In order to be able to function in
society, he\'s going to have to compensate
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for certain qualities that he may not have
with the other qualities that he has.
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No, Daniel. Nate, instead of throwing them,
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just put them inside just like that. Yes.
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(inaudible) got some Michael. You
don\'t want them in your coat.
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See that, Ronen is picking them out for you.
If he\'s off in a special education program
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where he doesn\'t interact with
members of his society at large
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then he\'s never gonna develop those skills
that he needs. It\'s really nice Ronen,
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to help tie out like that.
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Nate\'s helping you too. The
world that Ronen\'s gonna enter
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does not accommodate all of his issues
related to his different disabilities.
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That means that we want Ronen
to get used to self advocated
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in situations where he must determine
how to get those accommodations.
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That may mean a communication issue, it may mean an
access issue, it could mean any of the number of things.
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But the way we think about inclusion
is grounded in that notion
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that we want Ronen to be in a room, with his peers,
who are learning from him and he is learning from,
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about the way our world works.
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Ronen? Ronen?
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Ronen, (inaudible) on the floor. Come
on, down. If you need something,
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you need to ask another child.
You need to use your words.
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Allow me. (inaudible).
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Andrew, are you listening to Ronen\'s words?
A marble please.
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[sil.]
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No.
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Andrew, did you want Ronen
to sit in your seat?
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No. Then you need to use your words to tell him that you did
not want him in that seat. I don\'t want you in my seat.
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Ronen, you need to listen to Andrews words.
Come on back over to your seat.
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If you wanna play with Andrew\'s structure,
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you can use your words to ask him,
and it\'s okay for you to use it.
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Andrew, please.
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Andrew, please.
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Andrew, did you hear Ronen? He asked if he could use
that also, please. He may use it but don\'t break it.
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Ronen, you need to just keep it together.
This is Andrew\'s structure.
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Ronen, if you want you may put
your marble in the top, Ronen.
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Ronen, you want to put one right here?
Reach up, put in there.
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[sil.]
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All education is social.
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He learns from social process. Interacting with other
people weather it\'s our teacher or classmates.
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And so then there is certainly is a
social element to uh… inclusion.
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But the real reason I think that
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children need to be included is that they
need to learn, not just social skills,
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they need to learn
functional, real life skills
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in the context of normalcy. Their
peers, they\'ll correct them,
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their teachers expect a lot of them, they\'re
giving instruction, they\'re corrected,
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they\'re redirected, they\'re though
about how to work with other people.
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When a student with significant disability
is in a self contained environment,
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none of those things are going out.
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Look, Ronen, when you lean on this,
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it starts to fall over and pin\'s
head is right there. Okay?
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You got it. I think also that clear
inclusion, the bar is set a lot higher,
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the standards are higher for the individuals
who have disabilities and that they acquire,
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they get so much more, not only
cognitively but just like the nuances,
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the social nuances, umm… you
know, between peers, you know,
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a typical developing peers, you model, umm…
you just in indeed with that, you know,
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so think every aspect of their classroom
is on the level that you want your child
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to gain those skills. The
expectations are just there.
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(inaudible) gonna read a story.
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[sil.]
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When parents are exploring the inclusion of their
children disabilities they need to think about
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the fact that educational experience
is only part of life experience there.
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All of us have, I\'m concerned
when parents think that
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just inclusive will prepare their child
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for real life functioning, there is gonna
be work that they\'re going to have to do
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to build on that learning that
occurred in regular environment
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and now transfer that into the
regular community to the real world
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that their neighborhood and families
aren\'t prepared to do that.
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I think the benefits of inclusion
in school become more limited.
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So other things that families need to do is that they need to
recognize, they\'re really making kind of life long commitment here
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for a different way of living, a way
of living that\'s much more focused
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on the child\'s need for normalcy
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as supposed to focusing on the child\'s
uniqueness or specialness or disability.
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If they can do that, then all the research shows
that the children are gonna do quite well as adults.
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Who (inaudible) story back yesterday?
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We were on trip yesterday? (inaudible).
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There are particular thing about Ronen that are
charming, there are particular thing about Ronen
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that are teeth crunching in that way, he is like every other
four and a half to five-year-old kid in the entire building.
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Ronen, Ronen is Ronen. Ronen
has likes and dislikes.
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He\'s not very shy and he can
basically make himself fit in.
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He\'s very cheerful. He is agreeable. I think
Ronen is a very hard working student.
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He\'s a loving and fun child.
He is willing to try anything.
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He knows what he wants. You know, like any kid at
times, he misbehaves. Very sociable, very warm.
00:10:10.000 --> 00:10:14.999
He gets excited about new activities. Part
of the problem in answering the question,
00:10:15.000 --> 00:10:19.999
what kind of student is Ronen? Is it Ronen
just happens to be a child with Down syndrome?
00:10:20.000 --> 00:10:24.999
That\'s not the lens through which we few Ronen all the
time. Even though there are elements of Ronen\'s program
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that we connect it to his disability,
the disability just define who he is
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nor is the disability necessary to think about what
those challenges are because there are other children
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who have the same types of challenges. Inclusion
is just a name for doing the right thing.
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Good schools are already inclusive.
Good classrooms are already inclusive.
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The way that they\'re inclusive is learned who their
children, they learn what their children need to grow
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and they provide their children with those things.
It\'s not rocket science. It\'s fairly straight forward
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and good teachers have been
doing this for generations.
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I think inclusion has gotten a
bad wrap from the beginning.
00:11:05.000 --> 00:11:09.999
Because I think when it first started
there was no support network
00:11:10.000 --> 00:11:14.999
for the general education teachers. Okay,
Monday morning you walk into school,
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you get to class list, and all of a sudden you have
a child with some special needs in your classroom.
00:11:20.000 --> 00:11:24.999
No help, no nothing. They just appear.
00:11:25.000 --> 00:11:29.999
So I think unfortunately, that\'s the way it
started and lots of teachers still think
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that\'s the way it is. What do we put
on our papers first? Our names.
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I think that one of the biggest
concerns for teachers who hear that
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they\'re gonna get a child special needs or that they\'re gonna
have to work in an inclusive setting is basically the work load.
00:11:45.000 --> 00:11:49.999
But something that you hear when you\'re at, you know,
in college or taking classes as a professional.
00:11:50.000 --> 00:11:54.999
It is hard work but when
inclusion is done correctly
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there is also more support
and more resources dedicated
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to kind of spreading that work. If
you\'re working in a school system
00:12:05.000 --> 00:12:09.999
that has kind of a culture of not
doing that of not supporting people
00:12:10.000 --> 00:12:14.999
and then you bring in the need for inclusion
you\'re gonna feel some resistance
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because culturally the school staff is
not used to working in a different way.
00:12:20.000 --> 00:12:24.999
Inclusion now is asking
adult to adult interaction.
00:12:25.000 --> 00:12:29.999
Not every teacher has those skills. You
need a teacher, who has a desire to do it,
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then it will work. Because then
they can go get all the other keys.
00:12:35.000 --> 00:12:39.999
The teachers that are forced to do
this, it doesn\'t usually workout,
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it\'s not a team effort and
it\'s not a good situation.
00:12:45.000 --> 00:12:49.999
In that case any minister who has to work very hard
to cultivate a sense of trust with that teacher
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and specifically in skill are real commitment
to self reflective practice with that teacher.
00:12:55.000 --> 00:12:59.999
If you don\'t have that attitude of
admitting when you are having a hard time
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and things aren\'t going so well, then it\'s really
hard to correct, make adjustments and to move forward
00:13:05.000 --> 00:13:10.000
with the sense of optimism that
comes from doing everything right.
00:13:15.000 --> 00:13:19.999
[sil.]
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I\'ve been teaching approximately
15 years, this was actually
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my first year of full inclusion where everything happened
in the classroom which was really exciting for me.
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We all were very excited about
having Ronen in our classroom
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and we were all willing to learn and read and work
together and talk things out and find out what\'s working
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and what\'s not working. Ronen,
are you listening? Yes.
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Thank you. Would you raise you hand? Me. Okay,
great. We\'re ready. Each child is so unique
00:13:50.000 --> 00:13:54.999
that I have to say that for this
situation I believe full inclusion was
00:13:55.000 --> 00:13:59.999
definitely the best situation for Ronen.
But I would say that you have to look at
00:14:00.000 --> 00:14:04.999
each individual child and decide when they\'re gonna
flourish and where they\'re gonna feel successful
00:14:05.000 --> 00:14:09.999
and what\'s gonna work for them. There were
various programs for us to choose from,
00:14:10.000 --> 00:14:14.999
weather they were special education in
integration program or inclusion program,
00:14:15.000 --> 00:14:19.999
but we felt that Ronen had demonstrated
that he was able to succeed
00:14:20.000 --> 00:14:24.999
in the inclusive program based
on his day care experiences.
00:14:25.000 --> 00:14:29.999
First we were a little confused because we were used to
thinking that a children who has disabilities needed to attend
00:14:30.000 --> 00:14:34.999
special education classes so that they
would cater to their specific needs
00:14:35.000 --> 00:14:39.999
and then we listen to this new philosophies, and
philosophies for us and when we questioned it to learn,
00:14:40.000 --> 00:14:44.999
how would it work, how would a
child who can\'t quite perform up
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to par with other classmates come cognitively
be able to, you know, sit in the classroom
00:14:50.000 --> 00:14:54.999
and the parents had explained to us
that, you know, adaptations are made
00:14:55.000 --> 00:14:59.999
in the curriculum so that, even though
my child may not be responsible
00:15:00.000 --> 00:15:04.999
for the way the project is actually described for
the rest of the class, he can still participate
00:15:05.000 --> 00:15:10.000
and whatever the project may
be and still learn something.
00:15:20.000 --> 00:15:24.999
[sil.]
00:15:25.000 --> 00:15:29.999
When we are planning up to reach for the
week, we\'ll think about some of the kids
00:15:30.000 --> 00:15:34.999
who are counting really high or like I said can
right the number the words, we\'ll think about them
00:15:35.000 --> 00:15:39.999
when we\'re planning the activities but we are also
thinking about some other kids in the classroom
00:15:40.000 --> 00:15:44.999
who have English as a second language.
When we do things in the classroom
00:15:45.000 --> 00:15:49.999
it\'s not just with Ronen in mind
but we\'re thinking of several kids
00:15:50.000 --> 00:15:54.999
of kind of on different ends
to the ends of the spectrum.
00:15:55.000 --> 00:15:59.999
We\'ve made slight adaptations throughout
the year on different lessons,
00:16:00.000 --> 00:16:04.999
that has been facilitated
with the help of Carol,
00:16:05.000 --> 00:16:09.999
we prepare our lessons a week prior and ask her to
look out them and see if she would come up with ideas
00:16:10.000 --> 00:16:14.999
that would help Ronen. In Ronen\'s classroom
I have a combination of a consult
00:16:15.000 --> 00:16:19.999
and also a direct service provider \'cause I
get a chance to determine along with them
00:16:20.000 --> 00:16:24.999
if there is any need for adaptations with that
particular lesson (inaudible) for the entire class.
00:16:25.000 --> 00:16:29.999
So now we\'re gonna use this and this to make a
house. Okay. Because that\'s what I\'m doing.
00:16:30.000 --> 00:16:34.999
I go in this classroom and used to get all kids to write their
names and some of them were able to do it at the end of the year
00:16:35.000 --> 00:16:39.999
and some were not. One thing that we
found that helped Ronen with that,
00:16:40.000 --> 00:16:44.999
was this system where, he would put
one letter in each box and R-O-N-E-N
00:16:45.000 --> 00:16:49.999
and this was made into a smaller sheet of
paper and added in all different areas.
00:16:50.000 --> 00:16:54.999
So he knew, when he saw this piece of paper
that we wanted him to write his name.
00:16:55.000 --> 00:16:59.999
While tracing butterflies and this
pattern was a little complicated
00:17:00.000 --> 00:17:04.999
umm… some of the children who are at the younger
four levels still write now had trouble with this.
00:17:05.000 --> 00:17:09.999
So basically we took down the ears we put
a piece of tape and we took the head off.
00:17:10.000 --> 00:17:14.999
So that (inaudible) Ronen, (inaudible), he took
about five seconds to put a piece of tape on this
00:17:15.000 --> 00:17:19.999
and take out, you know, the
complicated ears and head
00:17:20.000 --> 00:17:24.999
and he was able to trace this, you know, in blink
of an eye and due to so everyone else did.
00:17:25.000 --> 00:17:29.999
And as I said some of the typical children
in the classroom who are at the younger age,
00:17:30.000 --> 00:17:34.999
then the most of the children were had a hard time
with this and we also gave them that benefit,
00:17:35.000 --> 00:17:40.000
the folding aspect and
taking the heads out.
00:17:50.000 --> 00:17:54.999
Is that yours? Yes.
00:17:55.000 --> 00:17:59.999
No, that one is not yours. Where\'s yours?
Which was right
00:18:00.000 --> 00:18:04.999
? Is that one yours, Sam? Are you sure?
Look at, look at the name. No.
00:18:05.000 --> 00:18:09.999
Okay. Where\'s Ronen\'s? No, this is Ronen\'s.
00:18:10.000 --> 00:18:14.999
I think yours is over there. You name starts
with R too. The full inclusion program
00:18:15.000 --> 00:18:19.999
that we ran in our classroom this year meant
that all services were given to Ronen
00:18:20.000 --> 00:18:24.999
in the classroom and as part of the group. So all
our services providers came into the classroom
00:18:25.000 --> 00:18:29.999
and we were the part of the teaching team.
Carol Carr, who is his resource teacher,
00:18:30.000 --> 00:18:34.999
his physical therapist, his occupational
therapist and the speech therapist,
00:18:35.000 --> 00:18:39.999
all four of those people see Ronen on the weekly basis.
All of the professionals and power professionals
00:18:40.000 --> 00:18:44.999
in the school or with the
administration, Ann, Penny, and David
00:18:45.000 --> 00:18:49.999
decided at the beginning or the year that we are gonna
advocate for him to stay with the Acron classroom
00:18:50.000 --> 00:18:54.999
no matter what they were doing at any point and time in the
day. He needs to feel like he is a part of this classroom
00:18:55.000 --> 00:18:59.999
and I think that when children
are pulled out even aside
00:19:00.000 --> 00:19:04.999
in the classroom, if we\'re doing a right activity
and Ronen wants to pull a table to a side,
00:19:05.000 --> 00:19:09.999
children notice that and makes him different. Every child in
the classroom is very different, but we don\'t want to make him
00:19:10.000 --> 00:19:14.999
stick out any more. So we are writing our
names. First Elizabeth and then (inaudible)…
00:19:15.000 --> 00:19:19.999
Remember guys (inaudible) names where the
lines are, so that you have lots of room
00:19:20.000 --> 00:19:24.999
to draw your picture. Because of the way Brown/Fox
Point has actually setup their program,
00:19:25.000 --> 00:19:29.999
Ronen is included in a group of children.
So when we go into the center
00:19:30.000 --> 00:19:34.999
we know what we\'re doing, we know that the group we
have to work in and we know Carol\'s gonna be there
00:19:35.000 --> 00:19:39.999
on a Tuesday and Thursday. Okay. (inaudible)
And so your name David (inaudible).
00:19:40.000 --> 00:19:44.999
R-O-N…
00:19:45.000 --> 00:19:49.999
Up…. Up…
00:19:50.000 --> 00:19:54.999
In order to help facilitate lesson, you know, and
if Ronen gets stuck, then I\'m there to help,
00:19:55.000 --> 00:19:59.999
not to do it for him, but to do
it with him but I\'m also there
00:20:00.000 --> 00:20:04.999
to help the other kids. And my name?
There\'s no C in your name
00:20:05.000 --> 00:20:09.999
but there is… I think the inclusive process, they
adjust more seamlessly. It just flows, it just flows.
00:20:10.000 --> 00:20:14.999
Not that we always don\'t have a bumps every once in
a while but overall it\'s just nice smooth process.
00:20:15.000 --> 00:20:19.999
With Ronen, he\'s benefiting academically
from being in an inclusive setting,
00:20:20.000 --> 00:20:24.999
but he\'s also getting a lot of socialization
and a lot of those social pragmatic practice
00:20:25.000 --> 00:20:29.999
that he needs to be an actual communicator.
(inaudible).
00:20:30.000 --> 00:20:34.999
Oh, I don\'t know. Look at your friend.
She wants to go first.
00:20:35.000 --> 00:20:39.999
So you wanna go first? Yes.
00:20:40.000 --> 00:20:44.999
All right, can you be polite, please?
00:20:45.000 --> 00:20:53.000
(inaudible).
00:20:55.000 --> 00:20:59.999
Take it back.
00:21:00.000 --> 00:21:04.999
I do know that he benefits
from not being called out,
00:21:05.000 --> 00:21:09.999
because of the interaction and the social
contact he\'s getting in a therapeutic context
00:21:10.000 --> 00:21:14.999
with me being in the classroom with him.
So we\'re able to practice
00:21:15.000 --> 00:21:19.999
just what he needs to do where he needs
to do it. It makes him very functional
00:21:20.000 --> 00:21:24.999
and very hands on and it makes it
easier for that skill to carry over.
00:21:25.000 --> 00:21:29.999
[sil.]
00:21:30.000 --> 00:21:34.999
I enjoy working here.
00:21:35.000 --> 00:21:39.999
It\'s a great group of teachers, you know,
they\'re very kind to not just in the…
00:21:40.000 --> 00:21:44.999
the follow through and they\'ll ask me
questions. It\'s a great setting for him.
00:21:45.000 --> 00:21:49.999
Right now, he is playing in the sand box. He is very involved with
the other kids. That\'s why I\'m not gonna pull him away with that
00:21:50.000 --> 00:21:54.999
and try to get him to play basketball, you know,
sometimes he just goes off and does other activities,
00:21:55.000 --> 00:21:59.999
then I try to put myself into that.
00:22:00.000 --> 00:22:04.999
The physical therapy, it
depends on what their need is.
00:22:05.000 --> 00:22:09.999
In his case, it\'s mostly
general strengthening.
00:22:10.000 --> 00:22:14.999
There are some things he give up
like intensively paying attention
00:22:15.000 --> 00:22:19.999
to what he can do and can\'t do. Sometimes he
can\'t do that if you\'re working with, you know,
00:22:20.000 --> 00:22:24.999
you got five or six children there
but it\'s so important to have him
00:22:25.000 --> 00:22:29.999
uh… included in what they\'re doing. He really
does watch what the other children are doing
00:22:30.000 --> 00:22:34.999
and try to follow what
they\'re doing, quite often,
00:22:35.000 --> 00:22:39.999
it\'s a very good thing.
00:22:40.000 --> 00:22:44.999
Lots of clean up in the sand box.
00:22:45.000 --> 00:22:49.999
The best part about working in
inclusion is being on the team
00:22:50.000 --> 00:22:54.999
that\'s working together to help a child and
at the same time, the biggest challenge was
00:22:55.000 --> 00:22:59.999
setting up a system of communication
that worked for everyone involved.
00:23:00.000 --> 00:23:04.999
We\'ve devised a system early on
where we have a note book system
00:23:05.000 --> 00:23:09.999
that works really well because I do always get a chance to talk to the
physical therapist, I don\'t always get a chance to occupational therapist,
00:23:10.000 --> 00:23:14.999
not always get a chance to talk to
a, you know, to Ronen\'s parents.
00:23:15.000 --> 00:23:19.999
Parents I find to be extremely important in order
to make this work. So it\'s nice to know that
00:23:20.000 --> 00:23:24.999
we have this notebook. I write in it saying
what I\'ve done that day, what we needed to do
00:23:25.000 --> 00:23:29.999
in order to accomplish a task. They write in it too,
the other support staff. So there is a collaboration
00:23:30.000 --> 00:23:34.999
so we know what\'s happening. I think that\'s why
this classroom works as an inclusive setting.
00:23:35.000 --> 00:23:39.999
There\'s the 0, there\'s the 0.
They come into our program
00:23:40.000 --> 00:23:44.999
and what they do needs to be
reinforced by what we do in the room
00:23:45.000 --> 00:23:49.999
and therefore vice versa. It\'s a coming
upon me in particular to make sure that
00:23:50.000 --> 00:23:54.999
I\'m communicating effectively with the people who are
providing those extra services that come from the district.
00:23:55.000 --> 00:23:59.999
That is actually have been a pleasure this year because
we\'ve actually been able to integrate a lot of the things
00:24:00.000 --> 00:24:04.999
that they\'re using to support Ronen in our general
curriculum. Every four-year-old needs to learn
00:24:05.000 --> 00:24:09.999
how to jump on a trampoline, every
four-year-old need to learn how to pronounce
00:24:10.000 --> 00:24:14.999
ending consonant sounds. These are things that Ronen has been
working on but there are things that other children in our center
00:24:15.000 --> 00:24:19.999
are working on too and all the
children benefit from incorporating
00:24:20.000 --> 00:24:25.000
these precise responsive
strategies into the classroom.
00:24:30.000 --> 00:24:34.999
[sil.]
00:24:35.000 --> 00:24:39.999
How\'s the traffic report? It\'s good.
It\'s good? We have four teachers
00:24:40.000 --> 00:24:44.999
in the room that Ronen is in which is one
more teacher that in all the other room.
00:24:45.000 --> 00:24:49.999
That\'s because the school district at
Providence provides us with the salary benefits
00:24:50.000 --> 00:24:54.999
for Emily Martin, who is Ronen\'s assistance
teacher and that the extra person in the room.
00:24:55.000 --> 00:24:59.999
We need someone extra to help because Ronen does have
additional needs involving toileting and some other things.
00:25:00.000 --> 00:25:04.999
The independent learning is a key
for the child and we\'re read a lot
00:25:05.000 --> 00:25:09.999
and learned a lot but seeing a lot too, that
person cannot become the child\'s best friend.
00:25:10.000 --> 00:25:14.999
This year has been wonderful in that Emily
has stepped back and out of that role
00:25:15.000 --> 00:25:19.999
and the children in the classroom see her
as another teacher in the classroom.
00:25:20.000 --> 00:25:24.999
When I first started
interviewing everyone was quite,
00:25:25.000 --> 00:25:29.999
I thought in independent learning to
somebody who kind of just followed
00:25:30.000 --> 00:25:34.999
and child would develop (inaudible) around
and there wasn\'t much space or independence
00:25:35.000 --> 00:25:39.999
for the child. She was trained by me
00:25:40.000 --> 00:25:44.999
and some other folks in response to the research
so that we understood that her role was
00:25:45.000 --> 00:25:49.999
not to be in the way of Ronen\'s
education, she was not there to
00:25:50.000 --> 00:25:54.999
umm… interact with other children for him, she was
not there to prevent him from ever being challenge.
00:25:55.000 --> 00:25:59.999
She needed to learn a way to interact with Ronen,
but also be respect about the other children.
00:26:00.000 --> 00:26:04.999
So she was an effective teacher in the classroom center.
Zoo, zoo, zoo. Yeah, you have the Zoo book, don\'t you?
00:26:05.000 --> 00:26:09.999
That\'s the animals. I\'ll read it when
I\'m done with this book, if you want?
00:26:10.000 --> 00:26:14.999
Okay? I work with all the children,
00:26:15.000 --> 00:26:19.999
not just with Ronen. I establish relationships with
other children, Jessica and Donna planned for me
00:26:20.000 --> 00:26:24.999
to do needing once a week with the kids,
just so they wont see me as Ronen\'s teacher.
00:26:25.000 --> 00:26:29.999
Not one the children have ever
asked, \"Why does Ronen have Emily?\"
00:26:30.000 --> 00:26:34.999
or think of it that way. From what I\'ve been able to perceive
all your loyal. All the children will go to her for help
00:26:35.000 --> 00:26:39.999
or with questions just like they would
come to me. So that has been wonderful
00:26:40.000 --> 00:26:44.999
and helping Ronen be part of the group, part of
the community and not being seen differently.
00:26:45.000 --> 00:26:49.999
One other things that parents joke about is
00:26:50.000 --> 00:26:54.999
the \"Independent Learning\" aids were \"Velcro Aids\"
that they\'re kind of like stuck to your child
00:26:55.000 --> 00:26:59.999
so that your child can\'t explore and
make the friendships on their own.
00:27:00.000 --> 00:27:04.999
Parents have a lot that they could do about this. They can
give the message. I\'m looking for really important change
00:27:05.000 --> 00:27:09.999
in my child and I know the way
that change is gonna occur,
00:27:10.000 --> 00:27:14.999
is going to occur as result of interaction with a
lot of people. Not just the one on one person.
00:27:15.000 --> 00:27:19.999
There are no guide books for this. She
has to figure that out on a day-to-day,
00:27:20.000 --> 00:27:24.999
week-to-week, month-to-month basis with
input from administrators, other teachers,
00:27:25.000 --> 00:27:29.999
parents, resource people, researches she\'s
doing, classes she\'s taking, you name it.
00:27:30.000 --> 00:27:34.999
It was really hard at first and people
had to, at the beginning they tell me,
00:27:35.000 --> 00:27:39.999
\"Emily, you need to back off, you need to give
him space.\" And now I think I finally learned
00:27:40.000 --> 00:27:44.999
when Ronen needs help and
when I should be backed away,
00:27:45.000 --> 00:27:49.999
working with the other children and doing something else around the
classroom. Supporting that person is an incredibly important part
00:27:50.000 --> 00:27:54.999
of an illustrator\'s job, but it\'s also
important that we recognize that person
00:27:55.000 --> 00:27:59.999
is the most crucial person in the equation.
If she is getting in the way,
00:28:00.000 --> 00:28:05.000
then that child is not gonna get any
of the benefits of the inclusion.
00:28:10.000 --> 00:28:14.999
Max, put your book away.
00:28:15.000 --> 00:28:19.999
Ronen, put your book away.
00:28:20.000 --> 00:28:24.999
Kevin, put your book away, line up.
00:28:25.000 --> 00:28:29.999
Put the book away. No.
00:28:30.000 --> 00:28:34.999
It\'s not a choice. We\'re cleaning up.
Put it away. Ronen is a smart guy.
00:28:35.000 --> 00:28:39.999
He is figuring out how to interact in the world, and
as he figures out how to interact in the world,
00:28:40.000 --> 00:28:44.999
he\'s learning that there are
people who will cuddle him,
00:28:45.000 --> 00:28:49.999
they will put his coat on for him, they will carry him downstairs,
they will give him what he wants, if he finds effectively.
00:28:50.000 --> 00:28:54.999
That is exactly what he should be doing
developmentally. It\'s how he learns socially,
00:28:55.000 --> 00:28:59.999
but our responsibility as
parents and as teachers both
00:29:00.000 --> 00:29:04.999
is to set limits and make very
clear what expectations are
00:29:05.000 --> 00:29:09.999
to hold the bar higher than he or any other child
may think they can get over. Finish cleaning up.
00:29:10.000 --> 00:29:14.999
The values that you have for typically developing
children need to have those same values
00:29:15.000 --> 00:29:19.999
for your child who has a delay. You can only make an
attempt, you can only make an attempt to teach them
00:29:20.000 --> 00:29:24.999
and you make excuses for then
they\'re never going to learn it.
00:29:25.000 --> 00:29:29.999
If we didn\'t treat them in the same as everyone else, then
this could be very manipulative. We would have a child
00:29:30.000 --> 00:29:34.999
who is, you know, who knew that he could manipulate
the system, and then he can manipulate us
00:29:35.000 --> 00:29:39.999
as his parents. Our expectations for Ronen
00:29:40.000 --> 00:29:44.999
are the same as everyone else. The rules are the
same. Nothing changes if you\'re talking for example
00:29:45.000 --> 00:29:49.999
at morning meeting, you got a couple chances
and then you have to wake the (inaudible).
00:29:50.000 --> 00:29:54.999
He knows now the rules and routines of the classroom which
is something that we all hoped for in the beginning of year
00:29:55.000 --> 00:29:59.999
but didn\'t really know that was gonna
happen. Andrew and Jessica, you can choose.
00:30:00.000 --> 00:30:04.999
Turn around, sit down,
00:30:05.000 --> 00:30:09.999
sit on your bottoms till I call your name.
00:30:10.000 --> 00:30:14.999
Nate and Erik, you can choose. Ronen,
stop, look at me. Ronen, five minutes.
00:30:15.000 --> 00:30:19.999
If the teacher is very accepting and expecting a
lot, the other children will pick up on that.
00:30:20.000 --> 00:30:24.999
And they\'re aware of that, you know, we expect
Ronen to do everything else, everybody else does
00:30:25.000 --> 00:30:29.999
and the children wants that and so
he\'s treated as peer and as an equal.
00:30:30.000 --> 00:30:34.999
You need to be sitting. (inaudible). Sorry.
00:30:35.000 --> 00:30:39.999
Daniel and (inaudible) I can choose.
00:30:40.000 --> 00:30:44.999
At the beginning of the year,
00:30:45.000 --> 00:30:49.999
personally I struggled with making sure that I
treated Ronen the as same as any other child,
00:30:50.000 --> 00:30:54.999
so what I did, in my head was to
substitute another child\'s name
00:30:55.000 --> 00:30:59.999
every time I was dealing with Ronen, and this was
when Ronen\'s really good friends names Andrew,
00:31:00.000 --> 00:31:04.999
so I would say, \"How would I do this if I were
Andrew, how would I react if this was Andrew?\"
00:31:05.000 --> 00:31:09.999
and that\'s how I did it, but it worked
really well for me. To make sure that
00:31:10.000 --> 00:31:14.999
I didn\'t give Ronen that special treatment that
you\'re very tempted to do. The template is closed,
00:31:15.000 --> 00:31:19.999
choose a different area. Yes.
00:31:20.000 --> 00:31:24.999
Ronen, that\'s not okay, choose it… No,
00:31:25.000 --> 00:31:29.999
you may not touch anyone else\'s name,
that\'s Andrew, he is your friend.
00:31:30.000 --> 00:31:34.999
You may not move this name.
Later, choose a different area.
00:31:35.000 --> 00:31:39.999
Then go to (inaudible).
00:31:40.000 --> 00:31:44.999
It is very hard because I think
Ronen, thugs at the heart.
00:31:45.000 --> 00:31:49.999
He\'s just really special kid
and I care about him deeply
00:31:50.000 --> 00:31:54.999
and I knew that, me treating
him like the other students
00:31:55.000 --> 00:31:59.999
would be best for him and
that\'s what I wanted.
00:32:00.000 --> 00:32:04.999
What would you like to use, cards,
blocks, okay, put your name in box that.
00:32:05.000 --> 00:32:09.999
Go find (inaudible) and Daniel.
Pretend, play later.
00:32:10.000 --> 00:32:15.000
[music]
00:32:20.000 --> 00:32:24.999
I was looking back over the
year, the biggest challenge was
00:32:25.000 --> 00:32:29.999
when the children started to question, why Ronen
was different. So we met along with Chris
00:32:30.000 --> 00:32:34.999
to brainstorm what we could do in the
classroom. Donna, and Jessica and I
00:32:35.000 --> 00:32:39.999
decided that we\'d have a meeting with the
children and we\'d make a list of everything
00:32:40.000 --> 00:32:44.999
that the kids were working on. So for example we said,
\"Andrew, what are you working on?\" and Andres said,
00:32:45.000 --> 00:32:49.999
\"May be I\'m working untying my shoes.\"
And Ronen was working o his speaking
00:32:50.000 --> 00:32:54.999
and another child was working and learning to ride a
bike. Everybody had something they were working on.
00:32:55.000 --> 00:32:59.999
And that kind of explained it more to
the other children that we all have
00:33:00.000 --> 00:33:04.999
things that we try to build up on.
You can\'t pretend that
00:33:05.000 --> 00:33:09.999
there is not something that\'s different.
Trying to appear calm and relaxed about
00:33:10.000 --> 00:33:14.999
things with the kids, and trying
to have a conversation with them
00:33:15.000 --> 00:33:19.999
about it is a lot better than dictating how they
should think or how they should feel about Ronen.
00:33:20.000 --> 00:33:24.999
We are not all friends in life but
we have to respect each other.
00:33:25.000 --> 00:33:29.999
So that\'s our rule and the sunshine room is,
it\'s not about being friends with everybody
00:33:30.000 --> 00:33:35.000
but about being respectful.
00:33:40.000 --> 00:33:44.999
Aim for that high bar
with receptive language
00:33:45.000 --> 00:33:49.999
\'cause he\'s there, so we should be talking to
him like we would together for (inaudible),
00:33:50.000 --> 00:33:54.999
I just wanted to… I just wanted to clarify that.
Chris, our director, is very involved in this with us.
00:33:55.000 --> 00:33:59.999
He ran numerous meetings on
inclusion with us in the fall.
00:34:00.000 --> 00:34:04.999
It takes a lot of preparation at the beginning.
Most successful inclusive initiatives
00:34:05.000 --> 00:34:09.999
that are school wide or district wide
00:34:10.000 --> 00:34:14.999
are actually led by people that I was
concerned pretty visionary administrators.
00:34:15.000 --> 00:34:19.999
It had to start from the top. If the
administrator of the day care had start
00:34:20.000 --> 00:34:24.999
whatever is not in support of
it, it\'s not going to work.
00:34:25.000 --> 00:34:29.999
Plain simple cut dry. In this
instance its working because
00:34:30.000 --> 00:34:34.999
the administration wants it to work, and they\'re willing to
have this command, they\'re willing to have a dialogue with us.
00:34:35.000 --> 00:34:39.999
Chris also helped in opening up
conversations within the staff
00:34:40.000 --> 00:34:44.999
and what was going on in the classroom. We have
to have the… the support of administration
00:34:45.000 --> 00:34:49.999
which we had and we needed to meet,
we need to go talk for 20 minutes,
00:34:50.000 --> 00:34:54.999
extra help would come in and so that we could
do that. More so at the beginning of the year,
00:34:55.000 --> 00:34:59.999
and then as the year went on. We became a
community in the classroom, not just the children
00:35:00.000 --> 00:35:04.999
but the teachers also. I
got my job two years ago
00:35:05.000 --> 00:35:09.999
and when I got it, I was told that there
was a child who is enrolled at school
00:35:10.000 --> 00:35:14.999
who had had a pretty rough year. There
were lots of concerns and conflicts
00:35:15.000 --> 00:35:19.999
and discussions going on and at
that point my job was to figure out
00:35:20.000 --> 00:35:24.999
how to help a child enrolled at our school
get the best opportunities to learn.
00:35:25.000 --> 00:35:29.999
The first two weeks that
I started confronting
00:35:30.000 --> 00:35:34.999
what was happening in my program around inclusion
were by far the hardest because it seemed
00:35:35.000 --> 00:35:39.999
an (inaudible) problem. People were arguing
with each other, there was a very little trust.
00:35:40.000 --> 00:35:44.999
It made inclusion seem like one of the
most impossible things in the whole world.
00:35:45.000 --> 00:35:49.999
As soon as I started talking with
people it became very clear that
00:35:50.000 --> 00:35:54.999
those challenges weren\'t the problem, the problem
was communicating effectively and collaborating
00:35:55.000 --> 00:35:59.999
in solving those problems. So under
strengths so far I have personable, happy,
00:36:00.000 --> 00:36:04.999
enjoys books and music, inquisitive and willing to
try new things, shows empathy towards his friends,
00:36:05.000 --> 00:36:09.999
is persistence. Finally I think that
administrators can support teachers
00:36:10.000 --> 00:36:14.999
by making it really clear to all the
parents and all the other teachers
00:36:15.000 --> 00:36:19.999
and everyone else in the community, why we\'re doing,
what we\'re doing and what the benefits sorted are
00:36:20.000 --> 00:36:24.999
so that they can stay focused on the
matters of teaching them and learning
00:36:25.000 --> 00:36:29.999
and not have to be taking on the political role which is
pretty honest for a teacher to be handling on a daily basis.
00:36:30.000 --> 00:36:34.999
Good morning Michelle.
Good morning Michelle.
00:36:35.000 --> 00:36:39.999
Tuck your feet in please.
00:36:40.000 --> 00:36:44.999
1, 2, 3, 4, 5, 6,
00:36:45.000 --> 00:36:49.999
7, 8… I think that biggest myth
that exist concerning inclusion
00:36:50.000 --> 00:36:54.999
could be called the contagion myth, which
is that if a child with Down Syndrome
00:36:55.000 --> 00:36:59.999
is in my room, what will happen to my
child as if there is something contagious
00:37:00.000 --> 00:37:04.999
about down syndrome as if the quality
of the construction will be lowered,
00:37:05.000 --> 00:37:09.999
as if the academic opportunities will be
lessened. Parents says to me, \"Your child,
00:37:10.000 --> 00:37:14.999
your child with special needs is gonna take away from my
child.\" They often have a lot of preconceived notions
00:37:15.000 --> 00:37:19.999
about what it means to have Down syndrome,
what children can and can\'t do.
00:37:20.000 --> 00:37:24.999
Unfortunately, I think that lot of families still tend to think
that children with Down syndrome could be more dangerous,
00:37:25.000 --> 00:37:29.999
or that there could be more a aggression and so on.
A lot of these parents, younger than me, obviously,
00:37:30.000 --> 00:37:34.999
grew up in a time where
it wasn\'t happening,
00:37:35.000 --> 00:37:39.999
you know, their age is the most part when I started in 1977, when
you had those classes that were all you know, self contained,
00:37:40.000 --> 00:37:44.999
so it was us and them. It\'s one to
those sad chapters of US history
00:37:45.000 --> 00:37:49.999
that the lessons that we are
learning now are indicating that
00:37:50.000 --> 00:37:54.999
in fact the limitations that supposedly
people with Down syndrome have
00:37:55.000 --> 00:37:59.999
are not in fact limitation of the syndrome
but rather limitations of our society.
00:38:00.000 --> 00:38:04.999
The unfortunate fact is that families who
meet, 40 or 50 or 60 year old people
00:38:05.000 --> 00:38:09.999
with down syndrome see someone with down syndrome.
They don\'t see someone with down syndrome
00:38:10.000 --> 00:38:14.999
who perhaps has been institutionalized much of his
or her life may never had been given the opportunity
00:38:15.000 --> 00:38:19.999
to read or write because they could not
learn how, all of the societal prejudices
00:38:20.000 --> 00:38:24.999
were part of the obstacles that prevented people
from attaining just what the could attain.
00:38:25.000 --> 00:38:29.999
What we fight against
in a program like this
00:38:30.000 --> 00:38:34.999
is a general societal notion that
academic achievement is the only measure
00:38:35.000 --> 00:38:39.999
and that quantifiable assessments
of child\'s performance
00:38:40.000 --> 00:38:44.999
are the only meaningful ways to determine whether
children are learning. What we know from our program
00:38:45.000 --> 00:38:49.999
and what lot other research seems to point
out is that in fact children benefit more
00:38:50.000 --> 00:38:54.999
from having a child in their
room that has disabilities
00:38:55.000 --> 00:38:59.999
because they are able to learn how to interact other
people. The program is usually very self reflective
00:39:00.000 --> 00:39:04.999
about the instructional practice. And in general,
people are all committed to making sure that
00:39:05.000 --> 00:39:09.999
every child is getting a lot of opportunities to succeed
and grow. My job is to help them recognize that
00:39:10.000 --> 00:39:14.999
having a child with Down syndrome in
the room benefits their own child
00:39:15.000 --> 00:39:19.999
in ways that they will probably
never get anywhere else.
00:39:20.000 --> 00:39:24.999
There have been many people
who have come before us
00:39:25.000 --> 00:39:29.999
and it\'s almost like a bridge builder,
everybody builds the bridge a little further.
00:39:30.000 --> 00:39:34.999
As we are doing also so that the people will come
after us will have a little bit of an easier time.
00:39:35.000 --> 00:39:39.999
Each generation going forward
is accomplishing more and more
00:39:40.000 --> 00:39:44.999
and we don\'t know what the ceiling is, we don\'t know
what the potential is. My very first day of (inaudible),
00:39:45.000 --> 00:39:49.999
you know, in 1977 was
at a class of children
00:39:50.000 --> 00:39:54.999
who were (inaudible) trainable mentally
retorted. That\'s what we called
00:39:55.000 --> 00:39:59.999
kids who had a label, trainable or educable.
They were in self contained classrooms,
00:40:00.000 --> 00:40:04.999
they avoid any typical developing kids.
So now 27 years later,
00:40:05.000 --> 00:40:09.999
I have, you know, a child with Down
syndrome fully included in his day care
00:40:10.000 --> 00:40:14.999
making great games. Children and parents
can think and say what they want about it,
00:40:15.000 --> 00:40:19.999
but having Ronen in our
classroom shows that it exists,
00:40:20.000 --> 00:40:24.999
that people are in society function
society with Down syndrome.
00:40:25.000 --> 00:40:29.999
And I think especially for kids at this young age, who aren\'t
always gonna go home and have this huge conversations about it.
00:40:30.000 --> 00:40:34.999
Having something that\'s in their
environment that they see all the time,
00:40:35.000 --> 00:40:39.999
that for them is just the lesson in itself.
00:40:40.000 --> 00:40:44.999
The Invisible Man, written by Ralph
Allison, that just at opening segment,
00:40:45.000 --> 00:40:49.999
kind of a prolog, where he talks
about how being in visible
00:40:50.000 --> 00:40:54.999
is do damaging. It\'s so true
00:40:55.000 --> 00:40:59.999
for people with disabilities.
If all we ever see
00:41:00.000 --> 00:41:04.999
are the disabilities of people, they\'re
future is really pretty sparse
00:41:05.000 --> 00:41:09.999
and are risk, but if people
get to see the real person
00:41:10.000 --> 00:41:14.999
that happens through inclusion,
through interaction with people,
00:41:15.000 --> 00:41:20.000
I think their future is
gonna be pretty good.
00:41:25.000 --> 00:41:29.999
I had a child at Brown/Fox Point
00:41:30.000 --> 00:41:34.999
three years ago. He has not
moved on to the second grade.
00:41:35.000 --> 00:41:39.999
He had a significant speech impairment.
00:41:40.000 --> 00:41:44.999
So for the longest time I was
carrot, I was carrot, I was carrot.
00:41:45.000 --> 00:41:49.999
He would see me coming, he would give me great big
hug, he come running, \"Carrot, carrot, here.\"
00:41:50.000 --> 00:41:54.999
Well, he learned (inaudible) and the
first time I heard him say Carol,
00:41:55.000 --> 00:41:59.999
I was like so disappointed, because
I wasn\'t a carrot anymore,
00:42:00.000 --> 00:42:04.999
I was Carol and I don\'t know if I had that experience
at any other place except did in inclusive setting
00:42:05.000 --> 00:42:09.999
One interesting anecdote
00:42:10.000 --> 00:42:14.999
that really demonstrated how
will inclusion is working was
00:42:15.000 --> 00:42:19.999
one of his teachers came and told us that they
were very happy with it, and we were happy too
00:42:20.000 --> 00:42:24.999
that a girl in his class came up
and told him that she hates him,
00:42:25.000 --> 00:42:29.999
you know, just, that\'s what kids say to each other,
sometimes just say, you know, like, \"Oh, I like you,\"
00:42:30.000 --> 00:42:34.999
or \"I hate you,\" you know, that\'s still
inclusion because his been included
00:42:35.000 --> 00:42:39.999
in the negative aspect as well as the positive
aspects and that\'s exactly what we want.
00:42:40.000 --> 00:42:44.999
In November of this year, something
happened that made be really believe
00:42:45.000 --> 00:42:49.999
that inclusion was working. There were
three sunshines one of them was Ronen,
00:42:50.000 --> 00:42:54.999
who were interacting. One of the sunshine\'s
said to the other sunshine something
00:42:55.000 --> 00:42:59.999
and got in the of that sunshine
00:43:00.000 --> 00:43:04.999
and Ronen threw his shoulders back, threw
his chest out, stepped between the two boys
00:43:05.000 --> 00:43:09.999
and said to the boy who was getting
in the way of the other boy,
00:43:10.000 --> 00:43:14.999
you can\'t do that, very angrily.
Ronen has never confronted
00:43:15.000 --> 00:43:19.999
at other child (inaudible) aggressive
way, Ronen has never asserted himself
00:43:20.000 --> 00:43:24.999
using angry language like that, Ronen
in that moment displayed a host of
00:43:25.000 --> 00:43:29.999
social and emotional developmental items. After
class that the several of us were talking
00:43:30.000 --> 00:43:34.999
and one of started crying because we recognize
that this was absolutely (inaudible) improve
00:43:35.000 --> 00:43:39.999
that there were things happening in
Ronen\'s interactions with his peers
00:43:40.000 --> 00:43:44.999
and in their interactions with him that meant that he
was included, that meant that he was asserting himself,
00:43:45.000 --> 00:43:49.999
and that meant that he was responding
to the social world around him
00:43:50.000 --> 00:43:54.999
with strategies that made sense. Now do we want to
(inaudible) telling each other, of course, we don\'t,
00:43:55.000 --> 00:43:59.999
but do we want children asserted themselves in demonstrating
that they have a sense of who they are and what they need to do.
00:44:00.000 --> 00:44:05.000
You bet (inaudible) and that\'s
what happen in that day.