WEBVTT

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[sil.] So, Andrew, is your family different
than other people\'s family? Somewhat, some

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what, \'cause we are special needs kids,

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to so, kids with special needs in
our family. Alison, Aiden. But

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it doesn\'t really ma-, doesn\'t make a difference.
Lots of other families have kids with special

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needs, but, and

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I, it doesn\'t really matter to

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me if I\'m different. My family\'s
just like anyone else\'s family.

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[sil.] Alex had a lot of lung problems
and, but he was our first one

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in the nursery and he was, he got so, so sick, but
he really wasn\'t in light of everything else.

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Ahm, but we were more afraid and then

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with, when Andrew came along,
he had a lot of metabolic

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dis-, trouble, holding his different
levels of sodium and things like that

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,so he was really sick in that regard
and he was on oxygen a lot longer

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and so he seemed more sick than Alex had, so we
were afraid again. But then when Alison came,

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she had so many more problems. So every
time was a little more traumatic, but,

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ahm, it was also a different
level for us because we

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already knew a lot, too, we thought,

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maybe not.

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(crosstalk)I have a better idea
to (crosstalk) (inaudible)

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They have to be objective. They
have to be able to say, in

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our medical expert opinion, this child
may or may not have a tremendous

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quality of life. If, had you given that
information to us, regarding Alison, let\'s

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say, um, we would have said, OK, you know,

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she\'s in our midst and she\'ll stay in
our midst, high quality or low quality.

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Other families might say
we, we just can\'t do that.

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[sil.] Mom, (inaudible)

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look at me. How small are you? This small.

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Going to show you. This, this big.

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This big. No, you aren\'t. Yeah?
Don\'t smile. You\'re grabbing.

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No, I that big. Yes, you are That big.

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That means you\'re bigger than me. I
was bigger than you when I was born.

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I was smaller than you.

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Yeah, I know. Did mumma e-, e-

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because my dad ashum-ashum da webba peepa.

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Yeah.

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The next one is 37.2 divided by,

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37, yeah, um divided by

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6.12. Can we fix it?

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I don\'t know, can we? Yes, we can.

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Can we fix it? Yes, we can. Come on.

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Come here. I didn\'t see
Aiden or meet Aiden until

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he was 11 months old. And that\'s
when he came to live with us. He was

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very, very sick and very tiny at that time.
And he weighed at 11 months

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old, he weighed, ahm, about
7 and a half pounds.

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He had a broken femur, so
he came to us with a cast.

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It was on both legs and up to his waist.
The state just kept saying, we don\'t have

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anywhere else to go. We don\'t have anywhere else
to go. So I guess, that was probab-, pretty much

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when it changed, when I realised that he was going
to have to be a part of our, really be a part of

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the family. So it was pretty much the end
of the story, we, it was just a legal

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procedure. We went to court and adopted
him. Butt, happy birthday to you,

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happy birthday to you,

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happy birthday, dear

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Bob. Happy birthday to you.

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I\'m not Bob. Blow out the

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candles. Ahhhh. Aaahh, Mummy,

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ahh. Come here, you wingnut.

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Mummy, mummy. What\'s next?
What are we spelling?

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Flower. Flower. Llllll Flower. Lllllll.

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What\'s, what makes that sound?

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Flower. We did the F, now we need the llll.

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L. You got it. Aaah.

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What do we need to do?

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You need to fix it. How should I fix

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it? Ho-,

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hold it. OK. Because Aiden, er,

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is, er, legally blind but he has a little
bit of vision, he\'s not considered

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totally blind. But he has
such little functional vision

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that he might as well be. Where
is the train? Now, where\'s the

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train? When you\'re making an accommodation
for his vision, it can change everything

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for him. The way he learns,
the way he reacts to things,

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but it might not be the first thing you
think of when you work with him. Found

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James. Which one\'s that?
This is James. James.

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Hi, James.

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[music] Alison is just
completely another story.

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She\'s just, um, learning is very,
academic learning is very difficult

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for Alison and she\'s not really
progressing. Um, by school

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standards, um, really at all, um.
She\'s having a terrible

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time making any connection in maths,
terrible time reading. She\'s not getting

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any sight, you know, barely any sight words and the same
words that she\'s been doing for the last couple of years.

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So it\'s, it\'s, it\'s almost depressing
because she\'s, as much as we

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see her growth at home and the things
that she does. When you go into

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school, she is compared against typical
second-graders. She\'s in an inclusion class

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and you can\'t help but walk away
feeling a little depressed.

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You know this word.

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Go-. -go-to... to the... the

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toy... store.

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Right. As much as we feel that
we accept her, there\'s always

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that looming around, what,
what she could have,

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what she should have been doing or could have been doing
if she hadn\'t had a brain haemorrhage or, you know,

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if all these things.

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[sil.] Well, you\'ve had such a jolly week.

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Mmmm huh Take a first bite, that\'s the
worst one and then you\'re home free.

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Take a first bite. Come on, come on.
No, no. Aiden.

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Good.

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Bye Daddy. Bye Daddy.

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Bye.

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I love that. Hmmm.

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Hmm. Goodbye, Daddy. Have a good day today.

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That tickles. His appointments
at, at what time?

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Ten? Ten. Yeah. (inaudible)

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How many appointments do you have today?
That\'s it. So you\'re planning,

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Alison\'s on half day today. Yeah, I\'ll
be back. You\'re planning to be back

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before, ah. Bye Daddy. Bye Aiden.

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I got, I have,

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Am I taking Alex to er... No. -to
gymnastic tonight? Please. (ph) Blub. No.

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OK. I\'m picking him up from track...
track. Truck... track

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Yeah... and Elizabeth, Yeah. I\'m going
to drop... Mummy ...Elizabeth off, and

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I\'m just, I\'ll have someth-, get something
for him to eat quick. And then he\'s gotta

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go - and then he\'s gotta be at gymnastics. So there\'s no point,
are you going to come home? I\'ll probably, probably more around

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8.30 or so. Alright? Alright.
OK. I love you, sweet.

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Have a good day pal. Yup. My eye

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is open. Uh, uh, uh.
Where\'re you going? Head up.

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[sil.] Oh, hey. What?

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You, you do that. Oh, you do that.

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What did I do?

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[sil.] Lift your arms

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up for me. That\'s a good boy.
You feel OK, no pain.

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No pain. No pain? Which hand
do you eat Cheerios with?

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Well, If he ate Cheerios, which hand
would you eat with? He doesn\'t-

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Which hand would you eat French fries with?

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This one? Fries. Fries. You like fries?

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Oh, good day, this is Doctor (ph)Ade Pearl,
dictating from Orthopaedics\' Palsy clinic.

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On January 17th, 2001, on patient no 2-0-2

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-1-2-4-6. Name is Aiden, A-I-D-E-N.

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What\'s your favourite thing to study?
Do you like to read? Do you like to do

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math? Yeah. Do you like recess?
Yes, but I don\'t

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go out at recess. She doesn\'t. doesn\'t
normally get recess. She has to

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go and have a (ph)toop
reading at that time.

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Class, er, school\'s going well, as far
as the studies. The academic part of it.

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Just? Ah, she\'s struggles. Mummy, you
didn\'t look. She struggles in all academic

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areas. Has that been going on since, you
know. Yeah. It hasn\'t got any worse

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recently, or (crosstalk) No. no. And how
many seizures has she been having a day?

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Mommy. Ahm, she has a lot, little staring
spells and things. She can have,

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you know, anywhere from 25 to 100.
During the

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course of a day? Mmm hmm. En, but, up, you said, ah, over the last month
and a half you\'ve had to up their medication, before the last month

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and a half, let\'s say three months ago. Was she having
any, was she (inaudible)(crosstalk) I think about 25. OK.

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So it\'s gone from... Yeah. Here
it says, please do therapy, how?

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OK. Please

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do therapy twice a week. So
then they\'ll complain and

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maybe they\'ll do it once a week. (crosstalk)
Once a week. She was having a lot of..

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Staring spells. Probably anywhere
from 25 to a hundred a day,

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which, er, normally was 25. Or,
you, I don\'t like to say above

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that., obviously, but,
ahm, but, (inaudible)

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Seconds, and then she would-? Seconds, yeah, but was also
doing a lot more clustering where she\'d have one after

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another, after another but we\'re (crosstalk)
also seeing a lot more of temporal lobe stuff

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where she was doing some really, (crosstalk) you
know, she\'d suddenly become really aggressive,

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or really angry or something. And then all
of a sudden, snap out of it and be so

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remorseful, it was pathetic. You know, just sobbing, saying
\"I don\'t know what happened.\" (crosstalk) (inaudible)

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(crosstalk) (inaudible)

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(inaudible)

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by the way (crosstalk) (inaudible)

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Mommy. Aiden?

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Aiden. That\'s enough. And last year, she

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was getting twice weekly PTOT,
speech and language and vision.

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So what\'s happened this year? This year? She
was... The beginning of the year, she, ahm,

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the physical therapist decided to, ahm,
cut her down to once a week which-Is this

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PT? PT. For one thirty minute
session which we agreed to.

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That was OK because she had a lot of academic
stuff and she takes gym and regular gym and,

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ahm, but then, ah, her IEP expired,

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or came up again in November and we were
surprised that she felt she doesn\'t need PT

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any more at all. At all? Yeah.
And OT, she\'s only, she\'s

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still supposed to get, ahm, that hasn\'t
changed. She\'s supposed to get an half an hour,

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ahm, once a week. Once a week or twice a week?
Once a week. She hasn\'t, she\'s only had

00:14:20.000 --> 00:14:24.999
it three times this whole year
because the person never shows up.

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(crosstalk) In her F plan,
it\'s supposed to be, ahm, ahm,

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making sure that she can, you know, open
up her, all her, you know, her snack box,

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her, do all those kind of things
independently and also, ahm, writing

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skills. Give me a hand (crosstalk) And are they working at all
on oral motor skills? No. And how\'s her chewing these days?

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They don\'t work, they won\'t work on any
of that. OK. She still chokes a lot, ahm,

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she\'s very picky. Very picky. Hold
still, Alison. Hold still. (crosstalk)

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Ahm, soft purees, those sorts of textures.
No. she likes hard, crunchy, hot

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things. It\'s this way. Alright.

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What?

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[sil.] Alison, sit down and watch your
show. And then, it\'ll be bedtime.

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Wha, what\'s you doing? I\'m
cutting it in half. You

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get a half. Can I help? Nope,
I already did it. Open,

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big. Big. Put your tongue in.

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Let me see,

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ah? OK. Are you ready? No. You\'ve got,

00:15:45.000 --> 00:15:49.999
here, put these on

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the table. Put it on the table. One,

00:15:55.000 --> 00:15:59.999
two, how many?

00:16:00.000 --> 00:16:04.999
Three. Three.

00:16:05.000 --> 00:16:09.999
Four. Five

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and that one.

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I can make a big castle.

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[sil.] OK, go throw those in the trash.

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[sil.] No, no, no. Aiden, throw
them in the trash, over here.

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Over here. Yeah.

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[sil.] Ready, let\'s go. Ready.

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Wait a minute, I can watch Rugrats.
No, you can get a story?

00:17:05.000 --> 00:17:09.999
[sil.] um, multiplied by nine,

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and then multiply the eight by four.
And then you get the

00:17:15.000 --> 00:17:19.999
same answer. Huh? Oh, I see that.
What time is that?

00:17:20.000 --> 00:17:24.999
Aiden. Aiden.

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A. B. C. Ds.

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[sil.] I have to go earlier than I thought to Children\'s
tomorrow. I\'m going to have to leave at eight.

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Oh. Instead of like 11.30.

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But we\'re going to be there all day
\'cause the nex... For who? Is that just

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for Aiden? That\'s for Aiden and then I have CP clinic
all afternoon. For Alison? For both of them. Oh,

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so the, oh.

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OK. (inaudible)

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It\'s mainly

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Mom\'s actually. Whoah, Andrew. Do
you think you can fit anything

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else in that? Wait, Andrew.

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Watch your milk. Why don\'t
you just move it there?

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Come, Lord Jesus, be our guest.

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Please give, to us, your blessing, Amen.

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[sil.] Cheese. Gonna have to
staple that, there\'s not enough.

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[sil.] We already been
through them, there two.

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I know. But you\'re having trouble again.
Come on, hurry up.

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[sil.] Sit down, no, I need the water.
I need it, sit.

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[sil.] May I drink the water?
I need it. Why?

00:19:30.000 --> 00:19:34.999
For drinking? No. For your,
this tube, when I\'m done.

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[sil.] It\'s sore,

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Mom. Did you have PaediaSure at lunch
today? I didn\'t, it wasn\'t in your book.

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Which did you have? Water or PaediaSure?
Water. You did? You ate your

00:19:55.000 --> 00:19:59.999
lunch. Yeah.

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[sil.] OK, and how are we doing? Ha... Is he
on the Dexedrine at all? He\'s on the Dexedrine

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and Tenex. Five, and two and a half
in the morning? Yeah. Just 12 and a

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half. One and a half. And, er,
seven and a half at night. Dad.

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What time does he go to sleep? Oohh. Um,
about eight. Right, what time does he wake

00:20:35.000 --> 00:20:39.999
up? (ph)I tell yer. It ranges. If he\'s,
sometimes he\'s awa-, he does wake up

00:20:40.000 --> 00:20:44.999
still in the night, sometimes. But he just lays
there. Awake and then he falls, when he falls

00:20:45.000 --> 00:20:49.999
back, if he does that, he falls back asleep.
Then he\'ll sleep til 9 o\'clock in the morning,

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cos he\'s been up for, you know, awake for a few
hours. He just lies in bed. He just lays in bed.

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Doesn\'t get up. He can\'t get up, because he has a
(ph)G-tube and he\'s hooked up to a (inaudible)

00:21:00.000 --> 00:21:04.999
(crosstalk) and he knows that. We have
a really hard time with his routine

00:21:05.000 --> 00:21:09.999
at school and you can just see it every

00:21:10.000 --> 00:21:14.999
day for five days. It\'s getting, it gets
worse and worse and by Friday, it\'s just,

00:21:15.000 --> 00:21:19.999
out of control. So really, he\'s not getting
a lot of (ph) exe-dexedrine at all,

00:21:20.000 --> 00:21:24.999
maybe when he needs it the most, \'cause he\'s in
school during that time. But how come, like on the

00:21:25.000 --> 00:21:29.999
weekends, he doesn\'t... I mean, is it just,
what does that... where the weekends

00:21:30.000 --> 00:21:34.999
and holidays he doesn\'t do that. Does he take the
medication the same? Yeah. It\'s probably the

00:21:35.000 --> 00:21:39.999
transition. But even at school...(crosstalk) Make a
motorcycle. he\'s still, they say when, you know, he comes in

00:21:40.000 --> 00:21:44.999
really loud and he\'s really jus.. I mean
from the minute he gets there. The more

00:21:45.000 --> 00:21:49.999
structured that his day is, the more that it\'s the
same. The better, everything\'s going to be. Mmm hmm.

00:21:50.000 --> 00:21:54.999
Initially, for him, long term for, all,
for everyone. We do have a big problem.

00:21:55.000 --> 00:21:59.999
He does have a big problem at school
because it\'s change, change, change and

00:22:00.000 --> 00:22:04.999
he... just doesn\'t cope. I mean,

00:22:05.000 --> 00:22:09.999
every, it\'s, it\'s... Oh no, not there. Is
there? Are there no kindergartens in the

00:22:10.000 --> 00:22:14.999
morning? Or there are? There are, but not for special needs
kids. Special needs kids all have to go in the afternoon.

00:22:15.000 --> 00:22:19.999
And the class just changed
from the session switch,

00:22:20.000 --> 00:22:24.999
mid-year? So the afternoon kids go in the morning
and the morning kids go in the afternoon,

00:22:25.000 --> 00:22:29.999
but he had to stay in the afternoon so he
lost all the kids that he went to school

00:22:30.000 --> 00:22:34.999
with. All his group. All this time, erm,
a couple of weeks ago, it all switched

00:22:35.000 --> 00:22:39.999
and so he was left in the afternoon.
Go.(inaudible)

00:22:40.000 --> 00:22:44.999
So. So, ahm, and he\'s in a regular,

00:22:45.000 --> 00:22:49.999
er, inclusionary kindergarten? Yeah. So what
are you guys, are you guys, are you fighting

00:22:50.000 --> 00:22:54.999
this? Yes. Oh yeah. Yes.

00:22:55.000 --> 00:23:03.000
[sil.] That\'s great. No, it isn\'t.
No, it\'s not.

00:23:25.000 --> 00:23:29.999
Andrew, come here.

00:23:30.000 --> 00:23:34.999
This part,

00:23:35.000 --> 00:23:39.999
you should feel good about that part.
It\'s a good grade.

00:23:40.000 --> 00:23:44.999
It\'s just this one sheet.
And I know you knew it.

00:23:45.000 --> 00:23:49.999
One, two, three,

00:23:50.000 --> 00:23:54.999
four, five. They counted
for a lot, didn\'t they?

00:23:55.000 --> 00:23:59.999
I\'m sorry that you had such a bad day.

00:24:00.000 --> 00:24:04.999
But I\'m not mad,

00:24:05.000 --> 00:24:09.999
because I know you studied. I knew
you knew it. You worked really hard.

00:24:10.000 --> 00:24:11.999
What have you got tonight? (inaudible)

00:24:12.000 --> 00:24:14.999
and math. Oh,

00:24:15.000 --> 00:24:19.999
you can do those, right? How\'s math?

00:24:20.000 --> 00:24:24.999
Oh oh. Forgot my math book.
Forgot your math

00:24:25.000 --> 00:24:29.999
book? You know what, I\'ll
ca-, OK, Ok, alright. Relax.

00:24:30.000 --> 00:24:34.999
Relax, I\'ll call Dad. I\'ll
call Dad and maybe he can stop

00:24:35.000 --> 00:24:39.999
by and get it, OK? Shall we do that?
Alright, come here.

00:24:40.000 --> 00:24:48.000
[sil.] Sorry.

00:24:50.000 --> 00:24:54.999
Hey Alex, Dad\'s not home, or

00:24:55.000 --> 00:24:59.999
- at work, can you put your shoes
on and walk, and run with Alex,

00:25:00.000 --> 00:25:04.999
er, Andrew, back to school. He
forgot his math book and he\'s not,

00:25:05.000 --> 00:25:09.999
not in, er, a good frame of mind.
OK. Can you do that?

00:25:10.000 --> 00:25:14.999
Yeah. OK. I forget my... Still have
your slippers on. Let me go tell him.

00:25:15.000 --> 00:25:19.999
Andrew, Andrew? Dad was not there

00:25:20.000 --> 00:25:24.999
so Alex...

00:25:25.000 --> 00:25:29.999
And sign the bottom of this one. Gives the
hospital permission to release medical

00:25:30.000 --> 00:25:34.999
information to the insurance companies so they
can pay for today. Yeah. So how much (inaudible)

00:25:35.000 --> 00:25:39.999
has she taken? She takes, ahm, thir,
ahm, 50 in the morning and then

00:25:40.000 --> 00:25:44.999
she alternates 50 and 75 at night, every
other night. Oh? Just to make it...

00:25:45.000 --> 00:25:49.999
To make my... yes, interesting. OK. And how,
what did she take last night then? Ahm, she took

00:25:50.000 --> 00:25:54.999
75 last night. At what time? Was that
about 7 o\'clock? 7.30. Did she say

00:25:55.000 --> 00:25:59.999
how much longer it\'s gonna be? Well, she
said that they running an hour late.

00:26:00.000 --> 00:26:04.999
An hour late? Mmm hmm. (ph)Don\'t swap cars.

00:26:05.000 --> 00:26:09.999
[sil.] Oh.

00:26:10.000 --> 00:26:14.999
Oh. Oh.

00:26:15.000 --> 00:26:19.999
If she is eventually gonna have..., is she
gonna, do you think, eventually have another a,

00:26:20.000 --> 00:26:24.999
a Benik splint again? It would
depend on what the goals were for

00:26:25.000 --> 00:26:29.999
her, her occupational therapy programme.
I mean, I think that

00:26:30.000 --> 00:26:34.999
if she had good luck with it last time. Yeah. Then I
can get it rolling. I can give you a prescription

00:26:35.000 --> 00:26:39.999
today. OK. Did you bring her old one with you? I did. I did.
OK, so I\'ll give you a prescription for the same design. OK.

00:26:40.000 --> 00:26:44.999
Since that design worked well for you. Are you, were
you gonna... Last time, we\'ve done a couple of times,

00:26:45.000 --> 00:26:49.999
the arm and last time we did a little serial casting
after and it seemed to work better. Are you gonna

00:26:50.000 --> 00:26:54.999
do that this time? Well, I\'m gonna see her a week after.
When I saw you in July, I dictated into my report that we\'d

00:26:55.000 --> 00:26:59.999
do a week afterwards. OK. So, today, before we leave,
we\'ll help you set up an appointment to come in to clinic

00:27:00.000 --> 00:27:04.999
next week. OK. It\'ll be an appointment
with me and the castroom. Got it.

00:27:05.000 --> 00:27:09.999
Do you have any questions, Alison? Do
you know what\'s going to happen today?

00:27:10.000 --> 00:27:14.999
We\'re going to have you fall asleep and then we\'ll try
loosening up the muscles so they won\'t hurt when... I..

00:27:15.000 --> 00:27:19.999
(crosstalk) you stretch up for anything. (crosstalk) I..I
know. I know OK, I just thought... Just a need to know

00:27:20.000 --> 00:27:24.999
things. I will never watch it again.
That was...

00:27:25.000 --> 00:27:29.999
(crosstalk) You should... It\'s the needle going in
and out, that does it to you. Well, when she was

00:27:30.000 --> 00:27:34.999
a baby she would have drains put
in before she had her shunts

00:27:35.000 --> 00:27:39.999
and she had to have a new drain put in.
And they, um,

00:27:40.000 --> 00:27:44.999
the neurosurgeon came up to the nursery
and he said, \"Where you going?\"

00:27:45.000 --> 00:27:49.999
And I said, oh I thought I had to leave. \"No
you can watch.\" Why I stayed, I don\'t know.

00:27:50.000 --> 00:27:54.999
But I watched the, him, skkkkkk, oh.
Stayed with you,

00:27:55.000 --> 00:27:59.999
for the rest, stay with you
for the rest of your life.

00:28:00.000 --> 00:28:04.999
Hi Bob, it\'s Karen. It\'s, um, we\'re,

00:28:05.000 --> 00:28:09.999
I\'m at Childrens still. We haven\'t
even gone in yet and it\'s um, it\'s

00:28:10.000 --> 00:28:14.999
11.30, so, um, I don\'t know when
we\'ll be home but it won\'t be

00:28:15.000 --> 00:28:19.999
till mid-afternoon now so, um,
I\'ll talk to you soon. Bye.

00:28:20.000 --> 00:28:28.000
[sil.] Don\'t like this

00:28:40.000 --> 00:28:44.999
part. I know. I know.

00:28:45.000 --> 00:28:53.000
[sil.] She did really, really well. Good.

00:29:20.000 --> 00:29:24.999
You doing OK, sweetie. You did a great job.

00:29:25.000 --> 00:29:29.999
She\'s got her blankie, without it,
she wouldn\'t. Well, I did the

00:29:30.000 --> 00:29:34.999
muscles we talked about. OK. And ah,

00:29:35.000 --> 00:29:39.999
wondering when we should see her? Probably in about one to
two weeks, I already wrote up your therapy prescriptions.

00:29:40.000 --> 00:29:44.999
OK. Ah, I don\'t think Alison\'s gonna need a
cast. No, oh. She actually felt really good

00:29:45.000 --> 00:29:49.999
whilst she was sleeping. Good. Ok, ahm...
And her arm was nice and loose, so I\'d like

00:29:50.000 --> 00:29:54.999
to just see what the botox does. Well,
lets do it a week then, if that\'s...

00:29:55.000 --> 00:29:59.999
a good time. Earlier the better.
So you want, er, like 9

00:30:00.000 --> 00:30:04.999
or... 10? 10. 10 would be good. Uh-huh. Ten would
be good. Sure. Ten would be good. Ten would be

00:30:05.000 --> 00:30:09.999
perfect.

00:30:10.000 --> 00:30:14.999
[sil.] Here. I know.

00:30:15.000 --> 00:30:19.999
Oh.

00:30:20.000 --> 00:30:28.000
[sil.]

00:30:30.000 --> 00:30:38.000
[music] Did you see Plymouth Rock?
Yeah. What did it feel

00:30:55.000 --> 00:30:59.999
like? Bumpy. It was bumpy.

00:31:00.000 --> 00:31:04.999
Yeah? And sad. Is that right? Yeah. It was sad. Why was
Plymouth Rock sad? (crosstalk) Why was Plymouth Rock sad?

00:31:05.000 --> 00:31:09.999
Happy. It became happy after
it moved to its new home,

00:31:10.000 --> 00:31:14.999
right? It was sad when it was left in the water
and every body was kicking it and stepping on it

00:31:15.000 --> 00:31:19.999
and that made it sad? Is that right? Yeah.

00:31:20.000 --> 00:31:24.999
He was like all over the place
so I pulled that rock out of

00:31:25.000 --> 00:31:29.999
the bag and the other special needs
kids in the bunch who didn\'t

00:31:30.000 --> 00:31:34.999
have anything were just wandering all over the
place. Nobody was stopping them. They were like,

00:31:35.000 --> 00:31:39.999
every once in a while, one of the aides would go, \"huuh,
I have to get her again.\" And \'cause she\'d be off

00:31:40.000 --> 00:31:44.999
like on the, you know, on the park... (crosstalk)Can I...
Yeah... Can I pull... Go get em but nothing, nothing for them.

00:31:45.000 --> 00:31:49.999
(crosstalk)Absolutely nothing. (crosstalk)Please.
I have to finish with your mom first. OK.

00:31:50.000 --> 00:31:54.999
Did I make, so the teacher
now, leans over and she goes,

00:31:55.000 --> 00:31:59.999
what\'s that? And I said, it\'s Aiden\'s own Plymouth
Rock and she goes, \"Where did you get that?\"

00:32:00.000 --> 00:32:04.999
And I said, I bought it with me.
She goes, \"That\'s a good idea.

00:32:05.000 --> 00:32:09.999
I wish I\'d thought of that.\" and I said,
I said, \"Yeah,\" I said, \"yeah, he needs

00:32:10.000 --> 00:32:14.999
everything tactile.\" So I said, \"If you\'re gonna talk
about a rock, you need to have a rock for him to hold.\"

00:32:15.000 --> 00:32:19.999
\"Yeah, yeah, I know. I
know.\" Meantime, Alexis is

00:32:20.000 --> 00:32:24.999
screaming, sitting next to us on Mrs. Simmon\'s
lap because there was nothing there for her,

00:32:25.000 --> 00:32:29.999
you know. And so I took the rock from Aiden and I
passed it to Alexis and I said you can hold the rock.

00:32:30.000 --> 00:32:34.999
Anyway, she stopped screaming and she\'s
like playing with the rock and so then

00:32:35.000 --> 00:32:39.999
I said, did you hear what they, what the lady said.
She said that the Plymouth Rock was really sad,

00:32:40.000 --> 00:32:44.999
can you show me sad? And she said, \"Huh, huh, huh.\"
Something needs to be done, to be able to get

00:32:45.000 --> 00:32:49.999
through to them that... (crosstalk) Please, Daddy...
they\'re not doing what these children need and in fact,

00:32:50.000 --> 00:32:54.999
if they... (crosstalk) Daddy would do what the children... (crosstalk)
Daddy needed. Their lives would be so much more fulfilled as well,

00:32:55.000 --> 00:32:59.999
I mean, in some ways... (crosstalk) Daddy ...the kids that are losing out these adults would
be out as well. They don\'t feel any satisfaction... (crosstalk) Daddy ...with this kids.

00:33:00.000 --> 00:33:04.999
They\'re just a burden to them. (crosstalk) Daddy They said... (crosstalk) Daddy
Let me just take him in and put this on, and I\'ll be right out. Come on.

00:33:05.000 --> 00:33:09.999
And, and I understand that the

00:33:10.000 --> 00:33:14.999
adults that were with them were aides and not special
needs teachers... But that\'s what\'s wrong with this whole

00:33:15.000 --> 00:33:19.999
picture... Precisely and I don\'t...
the... these... these...

00:33:20.000 --> 00:33:24.999
If you\'re gonna have inclusion classroom, you have to have somebody there that
can teach them. There was nobody there that was responsible to teach those kids

00:33:25.000 --> 00:33:29.999
or... a... they were responsible, maybe but
they were not... equipped... able to. Yeah.

00:33:30.000 --> 00:33:34.999
It\'s, it\'s foolish to think that
one special needs teacher is going

00:33:35.000 --> 00:33:39.999
to be able to meet the needs of all of these kids. The aides
aren\'t responsible for them. Exactly. Exactly right, I mean,

00:33:40.000 --> 00:33:44.999
and that\'s, and that\'s just another... frustration
because they\'re not doing their job, even

00:33:45.000 --> 00:33:49.999
if they don\'t realise it. I think
at some level they understand that.

00:33:50.000 --> 00:33:54.999
[music] C.

00:33:55.000 --> 00:33:59.999
That\'s big.

00:34:00.000 --> 00:34:04.999
U.

00:34:05.000 --> 00:34:09.999
P, try this letter in the word. Aiden

00:34:10.000 --> 00:34:14.999
worked on a map today.

00:34:15.000 --> 00:34:19.999
Yeah? I said, did you make this Aiden?
Hey, Aiden... Yes?

00:34:20.000 --> 00:34:24.999
Come here a minute. OK. Yes. Aiden, did you

00:34:25.000 --> 00:34:29.999
make this? Yes. Who made this?
Miss, Mrs. Simmons.

00:34:30.000 --> 00:34:34.999
Mrs. Simmons made that. Yeah. Did
she make that for you? Yeah.

00:34:35.000 --> 00:34:39.999
She ma-?

00:34:40.000 --> 00:34:48.000
[sil.] Very sad.

00:34:50.000 --> 00:34:54.999
Let\'s get ready for play.
Thank you for helping.

00:34:55.000 --> 00:35:03.000
[sil.] Hi, oh you

00:35:15.000 --> 00:35:19.999
have a Aiden too. We have Aiden, too.

00:35:20.000 --> 00:35:28.000
[sil.] Can you wait? What\'s the,

00:35:40.000 --> 00:35:44.999
what are we waiting for? Doctor (ph)
Rosetal, Doctor (ph) Nimik and Doctor...

00:35:45.000 --> 00:35:49.999
T...T... Do you see all these people at the
same time or...? No. they put you in a room and

00:35:50.000 --> 00:35:54.999
then they come in when they feel like it.

00:35:55.000 --> 00:35:59.999
Don\'t start trouble. Well. Don\'t start.

00:36:00.000 --> 00:36:04.999
Do we have an appointment? Bob,

00:36:05.000 --> 00:36:09.999
(crosstalk)this is a clinic. You know when you
go to your clinic. This is the same thing.

00:36:10.000 --> 00:36:14.999
Well, in my clinic, they have to do labs, they
have to wait for that to come back. Just don\'t.

00:36:15.000 --> 00:36:19.999
It\'s early, trust me, don\'t start. What\'s
that? It\'s early. What I\'m asking...

00:36:20.000 --> 00:36:24.999
It takes a long time. It takes a
very long time. I\'ve told you that.

00:36:25.000 --> 00:36:33.000
[sil.] Can I have a turn?
I\'m gonna do this.

00:36:35.000 --> 00:36:39.999
Aiden, Aiden. You can do the other side.

00:36:40.000 --> 00:36:44.999
You do the other side. Are
you finished with that? No.

00:36:45.000 --> 00:36:49.999
No. Now, would you like
to sit in this chair

00:36:50.000 --> 00:36:54.999
or would you like to
play on something else?

00:36:55.000 --> 00:36:59.999
Not gonna do both. Right, you can\'t do both.
Right, you can either sit here or go over

00:37:00.000 --> 00:37:04.999
and play on the other side. Now look,

00:37:05.000 --> 00:37:09.999
I don\'t like that. Stop it,

00:37:10.000 --> 00:37:14.999
when we get home

00:37:15.000 --> 00:37:19.999
today, there\'s gonna be, there\'s
gonna be a time out for you today.

00:37:20.000 --> 00:37:24.999
See, \'cause what I\'m trying to
figure out is Dr. Nimmick Rowe\'s

00:37:25.000 --> 00:37:29.999
recommendations will get an 18
lateral forearm to rule out, ahm,

00:37:30.000 --> 00:37:34.999
subluxation of the radial head. But I don\'t
know if she means that for last time

00:37:35.000 --> 00:37:39.999
or (crosstalk) if she means it for this time... Well, we did
do that, a couple of weeks ago. Yeah. She said it was fine.

00:37:40.000 --> 00:37:44.999
She said it was fine. OK, well I\'m gonna go with what you say.
Mmm hmm. Because Mom\'s usually right. OK, so we just gotta

00:37:45.000 --> 00:37:49.999
find a room for you. OK. We\'ll
hold off on the X-ray, she....

00:37:50.000 --> 00:37:54.999
As soon as we have a room. I\'m sorry.
Oh, ok, ok. Just wanted to clear up

00:37:55.000 --> 00:37:59.999
on that x-ray.

00:38:00.000 --> 00:38:08.000
[sil.] Why aren\'t you (inaudible)

00:38:20.000 --> 00:38:24.999
Because I don\'t. I said that before.

00:38:25.000 --> 00:38:33.000
[sil.] Wow.

00:38:50.000 --> 00:38:54.999
[sil.] Woah.

00:38:55.000 --> 00:39:03.000
[sil.]

00:39:20.000 --> 00:39:28.000
[music] First.. OK that\'s great.
Now, go wash your hands.

00:39:45.000 --> 00:39:49.999
In the bathroom. OK, are we
making it on the, on the

00:39:50.000 --> 00:39:54.999
table? Yeah. Go wash your hands.

00:39:55.000 --> 00:39:59.999
Both of them.

00:40:00.000 --> 00:40:04.999
Did you put soap on?

00:40:05.000 --> 00:40:09.999
(ph)Did Drew move the

00:40:10.000 --> 00:40:14.999
mattress, the mattress. No, not yet.

00:40:15.000 --> 00:40:19.999
OK, get on your stool. One, two, three.
Oooh, we missed.

00:40:20.000 --> 00:40:24.999
Let\'s try that again.
We\'ll get a paper towel.

00:40:25.000 --> 00:40:29.999
Alison, you know what. What? Cracking eggs

00:40:30.000 --> 00:40:34.999
is not easy, is it? No. Especially

00:40:35.000 --> 00:40:39.999
when you don\'t have a metal
bowl or a glass bowl.

00:40:40.000 --> 00:40:44.999
Yuck and look what we got in here.

00:40:45.000 --> 00:40:49.999
That\'ll be crunchy. That\'s crunchier
than nuts. Wait, wait, wait.

00:40:50.000 --> 00:40:54.999
. Ready? You know what, I\'m
going to have to do the

00:40:55.000 --> 00:40:59.999
eggs. I can\'t do it with one.
OK, I\'m sorry. OK.

00:41:00.000 --> 00:41:04.999
We\'ll do it that way.

00:41:05.000 --> 00:41:06.000
Can we (inaudible)

00:41:06.001 --> 00:41:09.999
You can put in the water and the oil,

00:41:10.000 --> 00:41:14.999
how\'s that? OK, the oil, coming up.
Ah, wait, hey,

00:41:15.000 --> 00:41:19.999
hey. Water first, right. Wash your hand.

00:41:20.000 --> 00:41:24.999
We should.

00:41:25.000 --> 00:41:29.999
What do you think we should do about that?
There\'s got to be a better way. Yeah, metal.

00:41:30.000 --> 00:41:34.999
We\'re not

00:41:35.000 --> 00:41:39.999
going to have a moo-You know who we
should ask about that? What? Mrs. Murphy.

00:41:40.000 --> 00:41:44.999
The OT, I bet you they
have a gadget for that.

00:41:45.000 --> 00:41:49.999
Yeah. Don\'t you think? Yeah. Just
like your buttoner and all that.

00:41:50.000 --> 00:41:54.999
You think?

00:41:55.000 --> 00:41:59.999
Who\'s Mrs. Murphy? Your OT at school.

00:42:00.000 --> 00:42:04.999
Aiden, go put it in the
garage if you\'re done. No,

00:42:05.000 --> 00:42:09.999
that\'s not where it goes.

00:42:10.000 --> 00:42:14.999
OK, Aiden, one, two, three.

00:42:15.000 --> 00:42:19.999
Now, go put it where it belongs.
Keep going.

00:42:20.000 --> 00:42:24.999
Hello? Hi, hi.

00:42:25.000 --> 00:42:29.999
I do not have a soap opera life.

00:42:30.000 --> 00:42:34.999
Yeah(ph)right? The star of
the soap opera is speaking.

00:42:35.000 --> 00:42:43.000
[sil.] Licking.

00:42:45.000 --> 00:42:49.999
[sil.] (ph)Cooking is one
of my favourite things.

00:42:50.000 --> 00:42:54.999
Very chocolatey. (ph)White chocolate.

00:42:55.000 --> 00:42:59.999
Brownies, brownies, love to make

00:43:00.000 --> 00:43:04.999
brownies.

00:43:05.000 --> 00:43:13.000
[sil.] Mmm hmm.

00:43:20.000 --> 00:43:24.999
Mmmm, listen, can I call you later?

00:43:25.000 --> 00:43:29.999
Alright. Ok. OK, OK.

00:43:30.000 --> 00:43:34.999
It\'ll come in a

00:43:35.000 --> 00:43:39.999
, kinda push it out like this. No, mmm.
That\'s how you do it. Push it.

00:43:40.000 --> 00:43:44.999
That, that will make a big mess. No,

00:43:45.000 --> 00:43:49.999
we\'ve got to scrape it out.
Scrape down. I\'m back.

00:43:50.000 --> 00:43:54.999
Are you done digging? Yes. Did you put the,

00:43:55.000 --> 00:43:59.999
did you put the bucket away? No. Well, if you\'re
done, that\'s what you need to do. I found

00:44:00.000 --> 00:44:04.999
it. Oh, don\'t bring the bucket in here,
Aiden. Why? Because that\'s an outside toy.

00:44:05.000 --> 00:44:09.999
Pick it up. Pick it up

00:44:10.000 --> 00:44:14.999
and go put it back in the garage. Did you just
lick that? Yeah. You can\'t lick that. Do you know

00:44:15.000 --> 00:44:19.999
why? Why? When you lick that and then
if you stick it in there, what happens?

00:44:20.000 --> 00:44:24.999
People\'s, your germs get into people\'s brownie,
nnnn, nnnn, nnnnn, nnnnn, nnnnn. Go, put the bucket

00:44:25.000 --> 00:44:29.999
in the garage. OK. Thank you. Ohhh,

00:44:30.000 --> 00:44:34.999
ju, ju, just fell. Oh dear. Oh dear,

00:44:35.000 --> 00:44:39.999
dear, dear. What?

00:44:40.000 --> 00:44:48.000
[sil.] Did you put it away?
Yeah. No you did not.

00:44:50.000 --> 00:44:54.999
Go put it in the garage, right now.

00:44:55.000 --> 00:44:59.999
Hurry up, Aiden.

00:45:00.000 --> 00:45:08.000
[sil.] Put it in.

00:45:20.000 --> 00:45:28.000
[sil.] OK, come on. Close the door.

00:45:30.000 --> 00:45:34.999
Coming.

00:45:35.000 --> 00:45:38.999
[sil.] Want a (inaudible)

00:45:39.000 --> 00:45:40.000
. Well,

00:45:40.001 --> 00:45:41.999
just a little bite. (inaudible)

00:45:42.000 --> 00:45:44.999
Alex, just a, let\'s start getting
ready, are you ready for, are you

00:45:45.000 --> 00:45:46.000
wearing .. (inaudible)

00:45:46.001 --> 00:45:49.999
tissues. No, where\'s the tissues?
Right here.

00:45:50.000 --> 00:45:51.000
(inaudible)

00:45:51.001 --> 00:45:54.999
Is the top one turning up on,

00:45:55.000 --> 00:45:56.000
on, on the [(inaudible)

00:45:56.001 --> 00:45:59.999
Aiden, it\'s OK. No

00:46:00.000 --> 00:46:04.999
I can\'t. Yes you can Right.
Andrew, will you go help

00:46:05.000 --> 00:46:09.999
her a sec? One more bite. Why?

00:46:10.000 --> 00:46:14.999
One more. Gross.

00:46:15.000 --> 00:46:23.000
[sil.] OK, swallow it and you\'re done.

00:46:25.000 --> 00:46:29.999
Done. Look at me, look at me.
What? Did you swallow it?

00:46:30.000 --> 00:46:34.999
Nope. Is it out of your mouth?
Done. Ahhh. Ahh. OK.

00:46:35.000 --> 00:46:39.999
Goodbye.

00:46:40.000 --> 00:46:44.999
[sil.] Andrew\'s having a really hard

00:46:45.000 --> 00:46:49.999
time lately but I didn\'t know it.
I\'ve seen it

00:46:50.000 --> 00:46:54.999
more at home but I just figured
it was the weather, you know, the

00:46:55.000 --> 00:46:59.999
becoming summer.

00:47:00.000 --> 00:47:04.999
So does he need to increase his medication? Well,
I\'m not going to do that. At this point, it\'s

00:47:05.000 --> 00:47:09.999
just nine days left of school and I, I don\'t think
he needs that over the summer. Huh. But I wish

00:47:10.000 --> 00:47:14.999
I\'d known, I, I guess.. are you still seeing,
are we still seeing Doctor What\'s his face?

00:47:15.000 --> 00:47:19.999
Yeah. we, we haven\'t, we haven\'t
seen him in like six months, have

00:47:20.000 --> 00:47:24.999
we? Well, three months. Has he been, it\'s been
at least that long, hasn\'t it? Two months ago,

00:47:25.000 --> 00:47:29.999
he went. And you don\'t, we don\'t have
another appointment with this guy do we.

00:47:30.000 --> 00:47:34.999
No, well, I, he doesn\'t. I
had, he hadn\'t, need, I hadn\'t

00:47:35.000 --> 00:47:39.999
had any concerns. Oh. The speech
teacher said that his teacher

00:47:40.000 --> 00:47:44.999
was really concerned about the MCAS.
Yeah, he told me about that. He did.

00:47:45.000 --> 00:47:49.999
That he didn\'t do well.
Well, she thinks he failed.

00:47:50.000 --> 00:47:54.999
She attributes that to
his inability to focus?

00:47:55.000 --> 00:47:59.999
Well, if he fails the MCAS, then we\'re all set.
Oh really. Yeah. Oh, oh good. That\'s a comfort.

00:48:00.000 --> 00:48:08.000
[sil.] Kinda reminiscent of kindergarten when we found
out three weeks before kindergarten was out that

00:48:10.000 --> 00:48:14.999
they were thinking of having him repeat and we didn\'t...
Yeah. Yeah... we didn\'t have a clue. It\'s true,

00:48:15.000 --> 00:48:19.999
ser... It\'s true

00:48:20.000 --> 00:48:28.000
[sil.] ...I don\'t know if
you know her, but, um,

00:48:30.000 --> 00:48:34.999
she doesn\'t speak English very well.
Oh. And, er, she, er,

00:48:35.000 --> 00:48:39.999
she gave 20 dollars and she
only got seven dollars back.

00:48:40.000 --> 00:48:44.999
And her bills... Aiden, let go.

00:48:45.000 --> 00:48:49.999
It\'s mine. Let go, Aiden.
It\'s me. Bad Andrew.

00:48:50.000 --> 00:48:54.999
Did you have the onion ring? No,
er, no I had that scallops.

00:48:55.000 --> 00:48:59.999
No, I wasn\'t there. I told you on the
phone. You\'ve got Alzheimer\'s today.

00:49:00.000 --> 00:49:04.999
Thank you. Let go.

00:49:05.000 --> 00:49:09.999
Getting bigger every day. Aiden.

00:49:10.000 --> 00:49:14.999
Yes. Hey, Aiden, Yes

00:49:15.000 --> 00:49:19.999
Are your hands to yourself? No.

00:49:20.000 --> 00:49:24.999
They better be. I\'m being naughty again.

00:49:25.000 --> 00:49:33.000
[sil.] This is my life. For me.
Karen goes into the store

00:49:35.000 --> 00:49:39.999
and I sit out in the parking lot
with the children and we wait.

00:49:40.000 --> 00:49:44.999
And we wait, and how long do we wait?
For hours. Forever,

00:49:45.000 --> 00:49:49.999
yes. Can\'t you save it? Is his seat
back there? Or is he in the seat belt?

00:49:50.000 --> 00:49:54.999
Yup. Aiden? Yes Knock it off.

00:49:55.000 --> 00:49:59.999
I knew you were shopping...

00:50:00.000 --> 00:50:04.999
I had to get... I knew it.

00:50:05.000 --> 00:50:13.000
[sil.]

00:50:30.000 --> 00:50:34.999
You over here, help me. Help
you with what? (inaudible)

00:50:35.000 --> 00:50:36.000
(crosstalk) (inaudible)

00:50:36.001 --> 00:50:37.999
(crosstalk) (inaudible)

00:50:38.000 --> 00:50:39.999
(crosstalk)

00:50:40.000 --> 00:50:44.999
Hoo, oh, pilchards.

00:50:45.000 --> 00:50:49.999
Um, um, um, um.

00:50:50.000 --> 00:50:54.999
Dropped it.

00:50:55.000 --> 00:50:59.999
Oh, rolling.

00:51:00.000 --> 00:51:04.999
Rollee, rollee, rollee. Rollee,

00:51:05.000 --> 00:51:09.999
rollee, rollee, rollee, rollee.

00:51:10.000 --> 00:51:18.000
[sil.] What happened?

00:51:25.000 --> 00:51:29.999
Where is it?

00:51:30.000 --> 00:51:34.999
Where\'s the tooth? Oh no, it\'s gone.

00:51:35.000 --> 00:51:36.000
Where is it? (inaudible)

00:51:36.001 --> 00:51:39.999
swallowed it.

00:51:40.000 --> 00:51:44.999
Alex, go look up in his bed.

00:51:45.000 --> 00:51:49.999
Oh, rollee, rollee.

00:51:50.000 --> 00:51:54.999
Ohhh. Oh, rollee, rollee, rollee, rollee.

00:51:55.000 --> 00:51:59.999
Very big end.

00:52:00.000 --> 00:52:04.999
Oh, oh, oh, again,

00:52:05.000 --> 00:52:09.999
again, again, again, again, again.
I already showed you

00:52:10.000 --> 00:52:14.999
the pictures. Yes? Where
are you going? Going,

00:52:15.000 --> 00:52:19.999
going, going down. I\'m I\'m,

00:52:20.000 --> 00:52:24.999
I\'m, I\'m, I\'m, I\'m downstairs.
What\'s downstairs?

00:52:25.000 --> 00:52:29.999
Me. Good answer. What are
you doing downstairs?

00:52:30.000 --> 00:52:34.999
I\'m (inaudible)

00:52:35.000 --> 00:52:39.999
for(ph) bones.

00:52:40.000 --> 00:52:44.999
[sil.]

00:52:45.000 --> 00:52:49.999
How was cooking? We made a milkshake.
What kind?

00:52:50.000 --> 00:52:54.999
Chocolate. No way.

00:52:55.000 --> 00:52:59.999
Our favourite. And I eve, even eat all my

00:53:00.000 --> 00:53:04.999
peanut butter sandwich.
Oh, I\'m so happy. No,

00:53:05.000 --> 00:53:09.999
we can\'t. Well done.

00:53:10.000 --> 00:53:14.999
Well done. What else did you have today?

00:53:15.000 --> 00:53:19.999
That was fun. So you had a good day? Ah

00:53:20.000 --> 00:53:24.999
ah. Nothing new.

00:53:25.000 --> 00:53:33.000
[music] (crosstalk)Hey.

00:53:50.000 --> 00:53:54.999
Thanks. Happy birthday,

00:53:55.000 --> 00:53:59.999
Andrew.

00:54:00.000 --> 00:54:04.999
Yumm, yum, yum. Yum, yum, yum.

00:54:05.000 --> 00:54:09.999
Oh no,

00:54:10.000 --> 00:54:14.999
my nose. What? Mommy.

00:54:15.000 --> 00:54:19.999
What happened? My, my, my nose getting

00:54:20.000 --> 00:54:24.999
bigger. Your nose is getting bigger. Yeah.

00:54:25.000 --> 00:54:29.999
Are you growing? Yeah.

00:54:30.000 --> 00:54:34.999
[sil.] Yummy, yummy mommy.

00:54:35.000 --> 00:54:39.999
[sil.]

00:54:40.000 --> 00:54:44.999
I\'m like a, like a fish.

00:54:45.000 --> 00:54:49.999
(crosstalk)(inaudible)

00:54:50.000 --> 00:54:54.999
A whale.

00:54:55.000 --> 00:54:59.999
[sil.] All better? My turn. Watch T.V.
ok?(crosstalk) Are you all better? Yeah.

00:55:00.000 --> 00:55:04.999
Oh Watch tv OK? Sisters say Ah.

00:55:05.000 --> 00:55:09.999
Ah. That\'s good.

00:55:10.000 --> 00:55:14.999
Mmm hmm. There. That\'s good.

00:55:15.000 --> 00:55:19.999
Aiden.

00:55:20.000 --> 00:55:24.999
Say ah. Ah.

00:55:25.000 --> 00:55:29.999
That\'s good. Mumm hmm. Sub pan a pine.

00:55:30.000 --> 00:55:34.999
D, d, der wa, wa,

00:55:35.000 --> 00:55:39.999
wa, was a cat. And what was this cat?
What did this cat do?

00:55:40.000 --> 00:55:44.999
Find, he found

00:55:45.000 --> 00:55:49.999
his family. The,

00:55:50.000 --> 00:55:55.000
the end.