Mortal Lessons
- Description
- Reviews
- Citation
- Cataloging
- Transcript
Death is inevitable, yet we spend most of our lives trying to ignore that fact. We use euphemisms like 'passing on,' as if to talk about death would make it happen sooner. On the surface this film is about death and dying, yet it's really about living, and about learning to face our own mortality.
This moving program follows two extraordinary women who are facing death head on. Both are stage-four lung cancer patients, and have been told they have only months to live, yet they have found that moving beyond the diagnosis preparing for what is to come has enabled them to face each new day with resolution and a level of calm. Their openness enables their loved ones and others involved to communicate their own hopes and fears, and to begin the grieving process.
Threaded through the two women's narratives are the perspectives of hospice workers, funeral directors, bereavement counselors and others who deal with death and with dying people on a daily basis. Palliative and hospice care are examined, as well as advance directives and how to include loved ones in end-of-life decisions. The last few chapters discuss the cycle of life and explore both religious and non-religious perspectives on the possibility of an afterlife.
By confronting what happens in the days and hours leading up to our deaths, Mortal Lessons suggests, we can free ourselves to lead richer, more rewarding lives. The film includes a chaptered menu, and two bonus tracks offering a brief look at the modern funeral industry, and at how death is portrayed in the media.
Citation
Main credits
Hammett, Carole (interviewee)
Haney, Cindy (interviewee)
Liban, David (film producer)
Liban, David (film director)
Liban, David (editor of moving image work)
Other credits
Camera, David Liban; music composed, arranged, and produced by Esteban Mejía Mesa, performed by the Umma Project.
Distributor subjects
Death and Dying; Ethical Dilemmas; Fanlight Collection; Grief and Recovery; Healthcare; Issues and Ethics; Psychiatry; Psychology; Social WorkKeywords
WEBVTT
00:00:00.000 --> 00:00:08.000
[sil.]
00:00:35.000 --> 00:00:39.999
Now when it comes to whining, I don\'t consider
that a uh, psychological problem, I consider that
00:00:40.000 --> 00:00:44.999
a character fault. I hate whiners,
00:00:45.000 --> 00:00:49.999
I\'ve hated whiners my whole life, and I have tried
very hard not to be one myself. And I think
00:00:50.000 --> 00:00:54.999
anybody that gets a death sentence,
00:00:55.000 --> 00:00:59.999
be it can-, uh, whether it\'s cancer or
anything else, such as I have, that then
00:01:00.000 --> 00:01:04.999
proceeds to whine and say, \"Why me?\"
and sp-, and, and spin their wheels
00:01:05.000 --> 00:01:09.999
over that question, they\'re just
wasting time. They\'re wasting
00:01:10.000 --> 00:01:14.999
what could be quality time.
00:01:15.000 --> 00:01:23.000
[sil.]
00:01:30.000 --> 00:01:34.999
There\'s three truths. You\'re going to
die, I\'m going to die, we are all going
00:01:35.000 --> 00:01:39.999
to die at some point. None of
us will get out of this place
00:01:40.000 --> 00:01:44.999
alive. I may die tomorrow. You may not.
Everyone dies.
00:01:45.000 --> 00:01:49.999
And that\'s not a terrible thing. People fear death
because it\'s, we all know it\'s gonna happen.
00:01:50.000 --> 00:01:54.999
If it\'s n-, it\'s gonna happen to us, and it\'s gonna
happen to people that we love. And it\'s so scary,
00:01:55.000 --> 00:01:59.999
and there\'s nothing we can do to control that. Yeah, I
mean, I\'ve always known that was gonna die sometime.
00:02:00.000 --> 00:02:04.999
I think all of us think it\'s gonna be later.
People are more afraid of the act of dying
00:02:05.000 --> 00:02:09.999
than they are of death. Death,
that it\'s chasing me down,
00:02:10.000 --> 00:02:14.999
that it\'s chasing everybody
down, and it\'s just a terrible,
00:02:15.000 --> 00:02:19.999
terrible, inevitable monster. And we
don\'t have anyone who has come back
00:02:20.000 --> 00:02:24.999
and given a good report about that.
What I\'m afraid of
00:02:25.000 --> 00:02:29.999
is, is what it would do to my family. That\'s,
that\'s my fear. You know, and some people
00:02:30.000 --> 00:02:34.999
are concerned about \"my legacy\" or \"a
memorial to me\" or \"did I write this
00:02:35.000 --> 00:02:39.999
book?,\" \"did I make my mark in the world?\" We
afraid of anything we don\'t know and we don\'t
00:02:40.000 --> 00:02:44.999
understand. And we\'re not taught how to
deal with death. We\'re not how to-, taught
00:02:45.000 --> 00:02:49.999
to deal with other people\'s death or our own
death. So we don\'t have any kind of, a bank
00:02:50.000 --> 00:02:54.999
of information to pull from. Oh, gosh,
time is running out. I haven\'t made my
00:02:55.000 --> 00:02:59.999
relationships with people the way I wanted
them. I\'ve screwed those up, in a way.
00:03:00.000 --> 00:03:04.999
I would to live another 20 years. Don\'t get me
wrong. I\'m not happy about dying now. I mean,
00:03:05.000 --> 00:03:09.999
\'scuse me, I\'ll take any extra time I
can get. But if I am going to die,
00:03:10.000 --> 00:03:14.999
that is natural. People die.
00:03:15.000 --> 00:03:19.999
I remember that when my grandmother was murdered,
it was after that, you know, my sister had died and
00:03:20.000 --> 00:03:24.999
I was probably nine years old. And uh,
my mom and dad, they were getting
00:03:25.000 --> 00:03:29.999
th-, a divorce, so my dad wasn\'t at home. And
uh, I would call my dad every single night,
00:03:30.000 --> 00:03:34.999
saying, \"Dad, I\'m afraid of death, I\'m
afraid of dying. I don\'t want you to die.
00:03:35.000 --> 00:03:39.999
I don\'t want Mom to die.\" And uh, this
was something that kept awake every
00:03:40.000 --> 00:03:44.999
single night. And then when I was
14, my dad dies of a heart attack.
00:03:45.000 --> 00:03:49.999
Thing I remember is a couple days later, after
my dad had died, is we all shuffling into the
00:03:50.000 --> 00:03:54.999
school library to watch the Challenger launch.
And that exploded. And, and so, for me,
00:03:55.000 --> 00:03:59.999
it was like, everybody\'s dying. There\'s
no safety, there\'s-, uh, we\'re all
00:04:00.000 --> 00:04:04.999
gonna die. So wi-, with that outlook, I didn\'t
care about school. What, what does school matter
00:04:05.000 --> 00:04:09.999
when, you know, you\'re gonna die anyways?
If death doesn\'t do
00:04:10.000 --> 00:04:14.999
anything else, it gets our attention. Every
time, it gets our attention. So it\'s this
00:04:15.000 --> 00:04:19.999
pervasive experience that no one\'s talking about. It\'s
like the elephant in the room. And we\'re, you know,
00:04:20.000 --> 00:04:24.999
we\'re all running away, distracting
ourselves with something
00:04:25.000 --> 00:04:29.999
that makes us feel we are in control. And I
think when you face it, it, it is a fear,
00:04:30.000 --> 00:04:34.999
but you find that you have the
courage to face it. At lot of
00:04:35.000 --> 00:04:39.999
people out there, apparently they don\'t
realize we were born to die. And I do realize
00:04:40.000 --> 00:04:44.999
that. I remember one time a
friend of my dad\'s said, um, uh,
00:04:45.000 --> 00:04:49.999
to my dad, he says, \"Boy, your daughter sure is
brave,\" and my dad said, \"Nah, she\'s just too
00:04:50.000 --> 00:04:54.999
stupid to be scared.\"
And maybe that\'s what\'s
00:04:55.000 --> 00:04:59.999
going on right now! I\'m just
too stupid to be scared!
00:05:00.000 --> 00:05:08.000
[sil.]
00:05:10.000 --> 00:05:14.999
I have lung cancer. It is now July of \'08.
00:05:15.000 --> 00:05:19.999
I\'m five months past my expiration
date, so I consider myself
00:05:20.000 --> 00:05:24.999
to be pretty lucky.
00:05:25.000 --> 00:05:29.999
I have a diagnosis of lung cancer
that I\'ve had for four years now.
00:05:30.000 --> 00:05:34.999
And I do have brain and
bone metastasis. I hadn\'t
00:05:35.000 --> 00:05:39.999
a clue that anything was really wrong.
I had this little cough.
00:05:40.000 --> 00:05:44.999
And I went to the doctor, and I told her about it, and she said,
\"Well, let\'s get an x-ray,\" and she sent me downstairs, and I got
00:05:45.000 --> 00:05:49.999
the x-ray, and by the time I got back up to her
office, she had it on her computer screen. And
00:05:50.000 --> 00:05:54.999
there was a big, giant tumor. I mean,
I\'m incredibly fortunate to be alive
00:05:55.000 --> 00:05:59.999
because with my diagnosis, I think I\'m like
in the 2 percentile at this point in time.
00:06:00.000 --> 00:06:04.999
So I keep thinking, \"Gosh,
I\'ve had this time,\" and,
00:06:05.000 --> 00:06:09.999
you know, \"Have I used it well?\" or, \"Why
have I had this time?\" It\'s very challenging
00:06:10.000 --> 00:06:14.999
to deal with your own death. First of all, I, I
remember Kubler-Ross talking about the fact that it\'s
00:06:15.000 --> 00:06:19.999
really difficult to even envision yourself
dying. It\'s very hard to imagine yourself not
00:06:20.000 --> 00:06:24.999
being. If the disease is
progressing quickly, they
00:06:25.000 --> 00:06:29.999
have a sense of urgency to get things done.
You know, at the same time I have
00:06:30.000 --> 00:06:34.999
to say, it\'s not easy. It\'s, it\'s really been
a hard four years. There\'s not one experience
00:06:35.000 --> 00:06:39.999
that anyone who is dying of cancer can
have that\'s outside the realm of our own
00:06:40.000 --> 00:06:44.999
personal experience. The day the doctor
tell you that you have cancer, it doesn\'t
00:06:45.000 --> 00:06:49.999
matter what kind of cancer or what stage,
you feel like you\'ve just been handed
00:06:50.000 --> 00:06:54.999
a death sentence. Your life changes, and it\'ll
never be the same again. And it doesn\'t
00:06:55.000 --> 00:06:59.999
matter if it\'s a cancer that has a 99%
00:07:00.000 --> 00:07:04.999
survival rate or one that has 1%, your
life changes. Your perspective on your
00:07:05.000 --> 00:07:09.999
relationships, your beliefs. Before
my diagnosis, I would probably say,
00:07:10.000 --> 00:07:14.999
\"Gosh, I know real well that I could step
off a curb and be hit,\" but I have to tell
00:07:15.000 --> 00:07:19.999
you, when you have a terminal diagnosis,
you don\'t have that perspective anymore
00:07:20.000 --> 00:07:24.999
cuz you know you\'re probably gonna
die within a limited time period.
00:07:25.000 --> 00:07:29.999
Once it leaves the lungs, there are three likely
places for it to go. One is brain, one is
00:07:30.000 --> 00:07:34.999
bone, one is liver. Brain is the one that
scares me. I\'ve kinda lived and died by mine.
00:07:35.000 --> 00:07:39.999
There are-, my brains are important to me.
I\'ve, I\'ve used them.
00:07:40.000 --> 00:07:44.999
But I have been told that I am
unusual, and I have been told this
00:07:45.000 --> 00:07:49.999
by a number of people in the medical profession
who have said that, that it\'s more likely when
00:07:50.000 --> 00:07:54.999
a person is dying that they will go
into denial and not face it head-on.
00:07:55.000 --> 00:07:59.999
You\'re not in a situation
where the old uh, ways
00:08:00.000 --> 00:08:04.999
of relating to each other work anymore. So you\'re in a situation
where you\'re being very present with what\'s happening
00:08:05.000 --> 00:08:09.999
day in and day out. And I
think it\'s fair to say that
00:08:10.000 --> 00:08:14.999
people that have a level
of wisdom and a level of
00:08:15.000 --> 00:08:19.999
spirituality and a level of
acceptance have a much easier time.
00:08:20.000 --> 00:08:24.999
As to why I feel so good when
I, my prognosis is so bad,
00:08:25.000 --> 00:08:29.999
I don\'t know. My oncologist said, \"You\'re doing something
right, and I don\'t know what it is, but whatever you\'re doing,
00:08:30.000 --> 00:08:34.999
don\'t stop.\" I think Cindy is a
00:08:35.000 --> 00:08:39.999
wonderful, very brave person.
00:08:40.000 --> 00:08:44.999
Very much of a risk-taker, and
letting things fall where they may.
00:08:45.000 --> 00:08:49.999
[sil.]
00:08:50.000 --> 00:08:54.999
As I\'m out of treatment and have a couple
of months where I\'m feeling more energy,
00:08:55.000 --> 00:08:59.999
you know, there\'s a tendency to kind of fell
like, \"Oh, everything\'s normal again.\" Then
00:09:00.000 --> 00:09:04.999
all of a sudden, you know, you get all these
MRis and all these tests coming out. Then
00:09:05.000 --> 00:09:09.999
the reality of it really
comes back in a harsh way.
00:09:10.000 --> 00:09:14.999
I am transformed by the experience of being
00:09:15.000 --> 00:09:19.999
with those who are facing their own mortality. In fact, that\'s
why I work with cancer patients, because they are my greatest
00:09:20.000 --> 00:09:24.999
teachers. Because the masks come off, and
people deal with you from their hearts.
00:09:25.000 --> 00:09:29.999
And in everyday life people are
afraid to unmask themselves,
00:09:30.000 --> 00:09:34.999
to give you that kind of revelation of themselves. They
have a different awareness and a different experience
00:09:35.000 --> 00:09:39.999
of life than most of us do.
It makes almost more stark
00:09:40.000 --> 00:09:44.999
the contrast between how I live
my life now, post-death-sentence,
00:09:45.000 --> 00:09:49.999
versus before. Because before
I took it all for granted.
00:09:50.000 --> 00:09:54.999
And I don\'t take anything
for granted anymore.
00:09:55.000 --> 00:09:59.999
Well, there\'ve been some recent studies
00:10:00.000 --> 00:10:04.999
regarding vitamin D and cancer. Yes. And I thought maybe
it was time for me to get it. Can\'t hurt. You know.
00:10:05.000 --> 00:10:09.999
Yes, it\'s a really, a really great supplement.
It\'s not like I\'m not dying anyway, so trying
00:10:10.000 --> 00:10:14.999
You could make your own. Exactly.
Exactly. I\'m not on any chemo
00:10:15.000 --> 00:10:19.999
anymore. I\'m not any traditional treatments. There
is no reason for me not to try some of these things.
00:10:20.000 --> 00:10:24.999
If I were to guess, I would guess that I
probably have at least another three months
00:10:25.000 --> 00:10:29.999
that may be pain-free,
that I may have energy, or
00:10:30.000 --> 00:10:34.999
next week my heart may stop. We don\'t know.
I plan to enjoy
00:10:35.000 --> 00:10:39.999
every day to the fullest until then. Her
attitude on life and quality of life is
00:10:40.000 --> 00:10:44.999
the most incredible thing I\'ve ever
experienced. She feels my heart more than
00:10:45.000 --> 00:10:49.999
I could ever do anything for her. I
decorated the heck outta this deck.
00:10:50.000 --> 00:10:54.999
I had Rudolph the Red-Nosed Reindeer,
I had Frosty the Snowman, I had
00:10:55.000 --> 00:10:59.999
lights all over the place. I had four
Christmas trees. And you know what?
00:11:00.000 --> 00:11:04.999
I left them up until late March which
is when started the garden cuz I said,
00:11:05.000 --> 00:11:09.999
\"This might be my last Christmas, and I\'m gonna make
the most of it.\" So I had it, it lasted four months.
00:11:10.000 --> 00:11:14.999
I\'m at a point now where
00:11:15.000 --> 00:11:19.999
I can say I\'ve been able to integrate this
into my life, rather than just thinking,
00:11:20.000 --> 00:11:24.999
\"That\'s the end.\" I may have become adjusted to
the fact that I\'m dying, but that doesn\'t mean
00:11:25.000 --> 00:11:29.999
I wanna go any sooner than I have to. There\'s
still too many things I wanna be doing. You know,
00:11:30.000 --> 00:11:34.999
life is interesting, and, and there\'s a lot of
things that are important and a lot of things
00:11:35.000 --> 00:11:39.999
that you wanna do. And be creative
and be of service and work and
00:11:40.000 --> 00:11:44.999
you know, and you, you deal with that every day in
your life. But when I think you\'re in this kinda
00:11:45.000 --> 00:11:49.999
situation, I still deal with that. But
deaths come in many forms. The death of a
00:11:50.000 --> 00:11:54.999
relationship, the death of an experience at a
work situation where people may have been,
00:11:55.000 --> 00:11:59.999
you know, in a family-like environment for
15, 20 years, and that comes to an end with
00:12:00.000 --> 00:12:04.999
the termination. So there are many terminations
or ending points throughout our lifespan
00:12:05.000 --> 00:12:09.999
that I think are there to prepare us for
the ultimate end of our lives. I have
00:12:10.000 --> 00:12:14.999
a friend, and both of us ov-, since we\'ve been
diagnosed, we\'ve been complemented by other people,
00:12:15.000 --> 00:12:19.999
\"You are so brave,\" or, \"You are so
courageous. You\'re facing this head-on,
00:12:20.000 --> 00:12:24.999
so on and so forth.\" And we have had private conversations
with each other about the fact that either that is true,
00:12:25.000 --> 00:12:29.999
or we are both in total denial. And we won\'t
know until the end what, which is true.
00:12:30.000 --> 00:12:34.999
For all we know, we\'re gonna turn into whimpering,
whining babies when we get to the end.
00:12:35.000 --> 00:12:39.999
I mean, who knows? It\'s quite a journey
where I think your life is just amplified,
00:12:40.000 --> 00:12:44.999
and you really, things are
in focus, and you\'re really
00:12:45.000 --> 00:12:49.999
in a corner dealing with them.
00:12:50.000 --> 00:12:54.999
This is what I take daily. Now
that I know that I\'m dying,
00:12:55.000 --> 00:12:59.999
with a timetable as versus the
fact that all of us are dying,
00:13:00.000 --> 00:13:04.999
I have learned to treasure every day.
I wake up in the morning
00:13:05.000 --> 00:13:09.999
happy to have awakened. Yes!
00:13:10.000 --> 00:13:14.999
[music]
00:13:15.000 --> 00:13:19.999
My days, I treasure the activities
00:13:20.000 --> 00:13:24.999
of my days or the non-activities. I treasure
the days that I grab a paperback and
00:13:25.000 --> 00:13:29.999
go lay down out on the swing and read
for a few hours in the afternoon.
00:13:30.000 --> 00:13:34.999
My wish list? Oh, when I get down to
the last two weeks, peanut butter,
00:13:35.000 --> 00:13:39.999
jelly, homemade fudge, uh,
00:13:40.000 --> 00:13:44.999
my brother\'s homemade blackberry jelly, my mother\'s
and my sister-in-law\'s homemade fudge, and
00:13:45.000 --> 00:13:49.999
Baileys on the rocks, lots
of Baileys, few rocks.
00:13:50.000 --> 00:13:54.999
I can take you right here. Okay.
Thank you. Yes, I am a
00:13:55.000 --> 00:13:59.999
pragmatic person. In my own way.
Pragmatic with lots of flights of fancy.
00:14:00.000 --> 00:14:04.999
Do those go together? I don\'t think so.
There\'s uh, there\'s a bit of a
00:14:05.000 --> 00:14:09.999
uh, contradiction there, but,
I mean, I know I\'m dying.
00:14:10.000 --> 00:14:14.999
That, that is a given. I\'m a stage 4b, I\'m
definitely dying. I metastasized to the liver.
00:14:15.000 --> 00:14:19.999
There\'s no doubt I\'m going down. But my short-term
goal, and it\'s my number-one goal, is to live
00:14:20.000 --> 00:14:24.999
through the first Tuesday in November.
I want to not only be able to cast
00:14:25.000 --> 00:14:29.999
my vote for Barack Obama, but I
wanna to see him win, which I\'m
00:14:30.000 --> 00:14:34.999
positive he\'s going to do. And I\'m not positive it can
happen without me, so I\'m just gonna have to stay
00:14:35.000 --> 00:14:39.999
alive. All right!
00:14:40.000 --> 00:14:44.999
That\'s all we need today. The same failed
politics that we\'ve seen over the last
00:14:45.000 --> 00:14:49.999
eight years, and somehow expect a
different result. Uh, we need fundamental
00:14:50.000 --> 00:14:54.999
change in this country.
Often it\'s the family
00:14:55.000 --> 00:14:59.999
who wants the patient to keep fighting.
00:15:00.000 --> 00:15:04.999
We want people here, so we will watch them suffer, we
will cater to them, we\'ll bring water just to keep them
00:15:05.000 --> 00:15:09.999
alive because we need them to
be alive, not because of what
00:15:10.000 --> 00:15:14.999
they uh, uh, what they are, they are going through
themselves. They feel that the patient is giving
00:15:15.000 --> 00:15:19.999
up, and they wanna rally the patient to
keep fighting, and it causes a lot of
00:15:20.000 --> 00:15:24.999
anxiety for the patient who often
times is ready, ready to accept
00:15:25.000 --> 00:15:29.999
\"this is the end phase of my life.\" When
my mother died, if I coulda kept her alive
00:15:30.000 --> 00:15:34.999
on, on ventilators or whatever, just
to be here, I\'d probably would\'ve
00:15:35.000 --> 00:15:39.999
been selfish to so-, some extent. Uh, but I
realize that she was tired and it was time.
00:15:40.000 --> 00:15:44.999
Another day, another two
days, another three.
00:15:45.000 --> 00:15:49.999
Excuse me. This is a person who is dying,
whose life is miserable. Uh, you\'ve got \'em
00:15:50.000 --> 00:15:54.999
on all kinds of pain medicine while
giving them food and, and water
00:15:55.000 --> 00:15:59.999
to keep them alive. This,
this is not, this is
00:16:00.000 --> 00:16:04.999
putting yourself first.
00:16:05.000 --> 00:16:09.999
Family members may stay in denial
for a very long time, so that
00:16:10.000 --> 00:16:14.999
the person who is dying realized that, \"If I try to
engage with you about this, about my experience,
00:16:15.000 --> 00:16:19.999
and I get, \'Oh no, you\'re gonna be fine.\'
\"\" We gotta try physical therapy. We,
00:16:20.000 --> 00:16:24.999
you need to take this medication. You need to get up every
day. That\'s the problem, you\'re not getting up every day.\"
00:16:25.000 --> 00:16:29.999
They recognize they\'re hitting a wall.
Then the patient begins to
00:16:30.000 --> 00:16:34.999
stop talking about it because they
see that it\'s provoking anxiety.
00:16:35.000 --> 00:16:39.999
You\'re witness to their suffering and there\'s a,
a great sense of futility because often you can
00:16:40.000 --> 00:16:44.999
do so little to alleviate the suffering.
My oncologists
00:16:45.000 --> 00:16:49.999
and I had a long discussion. There
are only two other potential
00:16:50.000 --> 00:16:54.999
chemos out there for me to try. Both of them
have less than a 20% chance of working,
00:16:55.000 --> 00:16:59.999
more like 10%. And they\'ve got about a
90% chance of being toxic to my health.
00:17:00.000 --> 00:17:04.999
So I have opted to stop all therapy.
That can be a very complex
00:17:05.000 --> 00:17:09.999
situation because you have competing
ideas of how people want to proceed.
00:17:10.000 --> 00:17:14.999
I have chosen for voluntary refusal of water
and nutrition when I get down to the,
00:17:15.000 --> 00:17:19.999
toward the end. And for palliative
sedation. Palliative sedation
00:17:20.000 --> 00:17:24.999
is when the patient asks to be put
in a coma. I want that to happen
00:17:25.000 --> 00:17:29.999
if I reach the point where I\'m in
incredible pain. If I\'m miserable,
00:17:30.000 --> 00:17:34.999
put me out of my misery. Put me into a coma status.
That is not considered to be euthanasia or
00:17:35.000 --> 00:17:39.999
physician-assisted suicide under the law.
I may not be able to control death
00:17:40.000 --> 00:17:44.999
itself, but I can control the details
and make it as pleasant as possible for
00:17:45.000 --> 00:17:49.999
both me and my family. And that way, they don\'t have
to make decisions and second-guess later whether
00:17:50.000 --> 00:17:54.999
or not it was the right one because I\'ve
made those decisions ahead of time.
00:17:55.000 --> 00:17:59.999
You know, I deal with my own diagnosis
and my own ups and downs and,
00:18:00.000 --> 00:18:04.999
and without minimizing it,
I also try to remember
00:18:05.000 --> 00:18:09.999
there are just so many people in this world
that have got very different circumstances
00:18:10.000 --> 00:18:14.999
than I. You know, and I\'m incredibly
grateful for what I\'ve got. There\'s always
00:18:15.000 --> 00:18:19.999
somebody out there that has it worse.
My mother is
00:18:20.000 --> 00:18:24.999
experiencing some form of dementia.
She needs
00:18:25.000 --> 00:18:29.999
help with every aspect of her life.
She needs to be fed and
00:18:30.000 --> 00:18:34.999
uh, cleaned, and she can\'t
do anything for herself.
00:18:35.000 --> 00:18:39.999
I enjoy my time with my mother. And
00:18:40.000 --> 00:18:44.999
going there is like a sanctuary. And
it\'ll be interesting to see if I
00:18:45.000 --> 00:18:49.999
really am open and finished with the gifts
she\'s given me or if I\'m holding onto her for
00:18:50.000 --> 00:18:54.999
some reason, I dunno. For some
reason she\'s staying. You know,
00:18:55.000 --> 00:18:59.999
that\'s the gift that, that that particular
person is stowing upon us. You know, of opening
00:19:00.000 --> 00:19:04.999
our eyes and expanding into an awareness that there\'s so
much more to be experienced through this than what we
00:19:05.000 --> 00:19:09.999
perceive as grief and suffering and loss
and separation. That if we can, if we can
00:19:10.000 --> 00:19:14.999
open up to a whole new experience then we
will all be profoundly affected. I\'ve seen
00:19:15.000 --> 00:19:19.999
that she teaches profoundly
and is a presence
00:19:20.000 --> 00:19:24.999
of great import to my life.
And I\'m learning
00:19:25.000 --> 00:19:29.999
daily from her. And uh, and the
opportunities that her life right now has
00:19:30.000 --> 00:19:34.999
presented me. You really
learn so much about living
00:19:35.000 --> 00:19:39.999
that that is, that\'s the real gift.
00:19:40.000 --> 00:19:44.999
How\'re you going to learn
about your own mortality
00:19:45.000 --> 00:19:49.999
unless someone close to you dies?
I lost my husband 5 1/2 years
00:19:50.000 --> 00:19:54.999
ago, and it was a sudden
death and a tragic death.
00:19:55.000 --> 00:19:59.999
Had to take him off life support.
Uh, that was a very big life
00:20:00.000 --> 00:20:04.999
lesson about how little we really control.
00:20:05.000 --> 00:20:09.999
My daughter had cancer when she was 3, and died
when she was 4, or just a month before she
00:20:10.000 --> 00:20:14.999
turned 4. And my son was 9, and I remember him telling
me when she was sick, \"Well she won\'t die, Mom.
00:20:15.000 --> 00:20:19.999
Children don\'t die.\" And so how do you explain
that to a child, \"Yeah, children do die.\"
00:20:20.000 --> 00:20:24.999
I just went to visit her in the
hospital, and I thought they
00:20:25.000 --> 00:20:29.999
would, like, cure it or something.
When I saw a grief councilor I said,
00:20:30.000 --> 00:20:34.999
\"Ignore my degrees, ignore my background,
I\'m j-, a grieving mother like anybody
00:20:35.000 --> 00:20:39.999
else.\" And um, and with my son, the same thing.
I couldn\'t be there. You know, I\'d worked with
00:20:40.000 --> 00:20:44.999
children in trauma for years, but with
my own child in trauma I couldn\'t,
00:20:45.000 --> 00:20:49.999
couldn\'t help him uh, like I would\'ve liked
to, so I had him see other professionals.
00:20:50.000 --> 00:20:54.999
First, like, couple weeks I
was, like, sad, but then um,
00:20:55.000 --> 00:20:59.999
but now I\'m as sad as much. Like,
I\'m used to it now. So, yeah.
00:21:00.000 --> 00:21:04.999
Children, for example,
00:21:05.000 --> 00:21:09.999
who are dying of cancer often
have a, a prescience about their,
00:21:10.000 --> 00:21:14.999
their life and their experience that most of
us don\'t have. And I think it\'s because they
00:21:15.000 --> 00:21:19.999
develop an awareness of what this really
is all about, this life is all about,
00:21:20.000 --> 00:21:24.999
so they have a kind of wisdom that is
far beyond their years. And they often
00:21:25.000 --> 00:21:29.999
are instructive to their own family. I was
talking to someone just the other day was saying
00:21:30.000 --> 00:21:34.999
they realized their child was ready to die,
they weren\'t ready to let the child go.
00:21:35.000 --> 00:21:39.999
And the child was really suffering. And the
child really needed to be able to let go.
00:21:40.000 --> 00:21:44.999
And one day the parent woke up
and said, \"I\'m preventing this.
00:21:45.000 --> 00:21:49.999
I\'m blocking this child\'s passage to another
place,\" and got up and went to the child
00:21:50.000 --> 00:21:54.999
and said, \"I\'m really sorry. I haven\'t been
ready, but I know you\'re ready. It\'s okay,
00:21:55.000 --> 00:21:59.999
you can go.\" And the child died right away.
00:22:00.000 --> 00:22:04.999
When she actually died, she went to sleep and just never woke up,
and what a beautiful thing to be able to do. It was a shock for us
00:22:05.000 --> 00:22:09.999
because we weren\'t expecting it. But yet, for her sake,
I think, \"Oh, what a wonderful, what a wonderful
00:22:10.000 --> 00:22:14.999
way to go.\" Sometimes, the actual
death then is a re-, a form of relief
00:22:15.000 --> 00:22:20.000
only because you know that that person
is now free from their suffering.
00:22:30.000 --> 00:22:34.999
That was the last time I ever saw Grace.
00:22:35.000 --> 00:22:39.999
[sil.]
00:22:40.000 --> 00:22:44.999
My sister died in \'69, 39 years
ago, and my parents changed,
00:22:45.000 --> 00:22:49.999
and they never made it back. In my
opinion, it was the worst thing
00:22:50.000 --> 00:22:54.999
I could\'ve possibly gone through was having my
daughter die. But, uh, and nothing will ever make that
00:22:55.000 --> 00:22:59.999
okay. She didn\'t get to say goodbye to
us, we didn\'t get to say goodbye to her.
00:23:00.000 --> 00:23:04.999
And she never got to have a life. She didn\'t have
marriage, children, career, travel, hobbies,
00:23:05.000 --> 00:23:09.999
everything that I\'ve gotten to have.
She was 20 years old. I\'m 62.
00:23:10.000 --> 00:23:14.999
I still miss Glenda. And I
always will, and there\'s always
00:23:15.000 --> 00:23:19.999
that ache for her, that hurting. And it\'s
00:23:20.000 --> 00:23:24.999
it\'s gonna be hard to lose both of
00:23:25.000 --> 00:23:29.999
\'em. I mean, if you\'re watching someone
who is suffering from a terminal
00:23:30.000 --> 00:23:34.999
illness, and they\'re allowed to go through their different,
you know, stages of grieving and dealing with their
00:23:35.000 --> 00:23:39.999
upcoming demise, that helps the family, and
there\'s some time, there\'s some preparation.
00:23:40.000 --> 00:23:44.999
If a child is killed suddenly, that,
that can be almost overwhelming.
00:23:45.000 --> 00:23:49.999
Nothing\'s easy about death that
is out of generation order.
00:23:50.000 --> 00:23:54.999
Surviving your own children has got to
be the worst thing in, in the world.
00:23:55.000 --> 00:23:59.999
And at many times I\'ll get to a point, well
okay, I guess I\'ll never know why. And um,
00:24:00.000 --> 00:24:04.999
I heard someone once say that you go from asking why
to asking what. So you stop asking all the whys
00:24:05.000 --> 00:24:09.999
and you start saying, \"Well, what can I do?\" You
know, what can I do now? And what can I do to
00:24:10.000 --> 00:24:14.999
embrace this person\'s memory or to
honor them? One of the most difficult
00:24:15.000 --> 00:24:19.999
things for me in getting my
diagnosis has been my mother.
00:24:20.000 --> 00:24:24.999
She already lost one child.
00:24:25.000 --> 00:24:29.999
She\'s about to survive her last child.
That upsets me.
00:24:30.000 --> 00:24:34.999
I know it\'s not my
00:24:35.000 --> 00:24:39.999
fault, but I hate that
it\'s happening to her.
00:24:40.000 --> 00:24:44.999
I\'m going to miss her so much.
She\'s my very
00:24:45.000 --> 00:24:49.999
best friend and a loving daughter.
00:24:50.000 --> 00:24:54.999
[sil.]
00:24:55.000 --> 00:24:59.999
Many people spend the end-phase of their
00:25:00.000 --> 00:25:04.999
life suffering because either
they don\'t know about hospice
00:25:05.000 --> 00:25:09.999
soon enough or when they learn about
hospice, they have such an association
00:25:10.000 --> 00:25:14.999
with it that they feel it\'s giving up.
\"Oh my God, the doctor wants my
00:25:15.000 --> 00:25:19.999
mother to go on hospice.\" The dreaded word.
Hospice is not a dreaded word.
00:25:20.000 --> 00:25:24.999
And that it isn\'t saying, \"Okay, might
as well just lie down and die.\"
00:25:25.000 --> 00:25:29.999
Instead, let\'s live every
moment you have to the fullest.
00:25:30.000 --> 00:25:34.999
They\'re all about comfort care. They have
made my life so much more comfortable
00:25:35.000 --> 00:25:39.999
than it would have been otherwise. I mean, they come out and do
things that otherwise I would be having to go to the doctor or
00:25:40.000 --> 00:25:44.999
even state hospital stays. I have been
able to avoid hospital stays before them.
00:25:45.000 --> 00:25:49.999
Well I\'m much more comfortable here
in my own home than in a hospital.
00:25:50.000 --> 00:25:54.999
My setup in here, I talked about it being perfect.
I have my laptop. I have my good speakers.
00:25:55.000 --> 00:25:59.999
I have over-, I have an iPod,
I have over 2,800 songs
00:26:00.000 --> 00:26:04.999
on it and over 1,000 pictures.
Uh, various, you know, old, new,
00:26:05.000 --> 00:26:09.999
whatever. I have my fiction, my
non-fiction, my political, my DVDs,
00:26:10.000 --> 00:26:14.999
my VCR. Uh, I, my bills and
stuff, my bill paying,
00:26:15.000 --> 00:26:19.999
my paperwork is all right there
within reach. It\'s perfect.
00:26:20.000 --> 00:26:24.999
I have created this little haven
for myself and it\'s just perfect.
00:26:25.000 --> 00:26:29.999
We consider the patient
being the whole family,
00:26:30.000 --> 00:26:34.999
not just the person with the diagnosis.
Hospice, because of the skills of the
00:26:35.000 --> 00:26:39.999
medical team that works with patients at
end of life, are capable of providing
00:26:40.000 --> 00:26:44.999
the palliative care. Which is one
step before hospice. I will,
00:26:45.000 --> 00:26:49.999
as of my de-, because of my decision last week to stop
therapy, I will be moving from palliative to hospice.
00:26:50.000 --> 00:26:54.999
To palliate means to soothe or comfort,
00:26:55.000 --> 00:26:59.999
to treat symptoms. In palliative care,
00:27:00.000 --> 00:27:04.999
they\'re given a diagnosis,
unlike hospice, that says
00:27:05.000 --> 00:27:09.999
that if this disease progresses
in its normal progression, this
00:27:10.000 --> 00:27:14.999
person will probably not be alive 12
months from now. Whereas in hospice,
00:27:15.000 --> 00:27:19.999
it\'s six months. I honestly believe that
I probably would not be alive today
00:27:20.000 --> 00:27:24.999
if not for the care that they\'ve given me. I
mean, they\'re out here every week, practically
00:27:25.000 --> 00:27:29.999
every day I\'ve got somebody coming in to
help me. I\'m working with great clientele
00:27:30.000 --> 00:27:34.999
that appreciate me and love me. And I
can turn around and love them back.
00:27:35.000 --> 00:27:39.999
And showing that to people, that,
00:27:40.000 --> 00:27:44.999
that means everything to me. Actually, Kati\'s the boss.
And the reason I say that is because she\'s always
00:27:45.000 --> 00:27:49.999
telling me what to do.
00:27:50.000 --> 00:27:54.999
It\'s all because I love ya.
Yes. Helping someone
00:27:55.000 --> 00:27:59.999
in, in their dying situation is
a very honorable place to go
00:28:00.000 --> 00:28:04.999
with another human being. We consider
ourselves midwives at the other end
00:28:05.000 --> 00:28:09.999
of life. Being able to
take someone that close
00:28:10.000 --> 00:28:14.999
to what I fell like is them going
back to God, it was a miracle.
00:28:15.000 --> 00:28:19.999
And we can\'t go any further. And we can give them
all the love and the care we need, but we are only
00:28:20.000 --> 00:28:24.999
ticketed passengers beyond this point.
00:28:25.000 --> 00:28:29.999
Yes, you grieve over and over
again when you lose patients.
00:28:30.000 --> 00:28:34.999
You grieve more deeply for
some patients than others.
00:28:35.000 --> 00:28:39.999
Working in hospice, I was able to
see the miracle of death, rather
00:28:40.000 --> 00:28:44.999
than um, just death as the enemy.
We\'re lucky enough to be
00:28:45.000 --> 00:28:49.999
able to get to know people at a
very intimate time of their life.
00:28:50.000 --> 00:28:54.999
And we\'re, I think, honored guests
in their home. When I work with
00:28:55.000 --> 00:28:59.999
families and they\'re so
wonderful at expressing love
00:29:00.000 --> 00:29:04.999
amidst all the grief, and they get their stuff
out of the way to take care of this person
00:29:05.000 --> 00:29:09.999
who has died, it\'s an incredible
gift to be around that.
00:29:10.000 --> 00:29:14.999
Kathy, Kathy, why don\'t you lead the way.
It may sound crazy to some
00:29:15.000 --> 00:29:19.999
people, but you, that\'s a very
special feeling, it\'s a very
00:29:20.000 --> 00:29:24.999
special feeling. It was an experience where I
think you learn so much at the time and yet you
00:29:25.000 --> 00:29:29.999
don\'t know it. You, you\'re still focused on just
being with the person and what has to be done
00:29:30.000 --> 00:29:34.999
physically, emotionally, and mentally and how to
cope with things. It really brought generations
00:29:35.000 --> 00:29:39.999
together. The patient\'s children, their
children, and their grandchildren.
00:29:40.000 --> 00:29:44.999
You know, it just, it was beautiful. I
worked with a family where there was
00:29:45.000 --> 00:29:49.999
an elderly mother dying. Five
daughters, two of whom were there
00:29:50.000 --> 00:29:54.999
at the event of death, and they were coaching
their mother. It took them a lot to get
00:29:55.000 --> 00:29:59.999
to the point where they were able
to say to their mother, \"Mom,
00:30:00.000 --> 00:30:04.999
you can go,\" and the words they used were
\"wings on your feet\" to give her encouragement
00:30:05.000 --> 00:30:09.999
because there was a sense that
she was working hard to leave.
00:30:10.000 --> 00:30:14.999
[sil.]
00:30:15.000 --> 00:30:19.999
It\'s usually peaceful.
00:30:20.000 --> 00:30:24.999
The people that have trouble going, there\'s a little
bit of chaos in the air. And it makes it hard,
00:30:25.000 --> 00:30:29.999
too, I find, when I\'m with a patient
who is going through this process and
00:30:30.000 --> 00:30:34.999
everyone around them in the room is grieving.
It\'s very difficult for that person
00:30:35.000 --> 00:30:39.999
to leave. Frequently, family members will be saying,
\"Mom, you have permission to go. We\'re gonna
00:30:40.000 --> 00:30:44.999
be okay,\" and there\'s lots of tears and
love. And it\'s just, it\'s an intense,
00:30:45.000 --> 00:30:49.999
wonderful, joyous experience because
00:30:50.000 --> 00:30:54.999
everyone is just, almost rallying
that person on to the next phase in
00:30:55.000 --> 00:30:59.999
their journey. But people
will often be holding
00:31:00.000 --> 00:31:04.999
a patient\'s hand. The breath is very labored,
and you can just see that everything
00:31:05.000 --> 00:31:09.999
now is just, all the organs and
everything is shutting down.
00:31:10.000 --> 00:31:14.999
All of a sudden, there\'s like a quietness.
00:31:15.000 --> 00:31:19.999
It\'s like the frequency patterns shift and change and, and
their anxiety and fear and, you know, it just, the vibration
00:31:20.000 --> 00:31:24.999
of the whole experience changes. And
then it\'s almost as if you feel
00:31:25.000 --> 00:31:29.999
that spiritual being in the room with you.
And that, that bond can still
00:31:30.000 --> 00:31:34.999
be felt, sometimes even more keenly
and strongly than when the person was
00:31:35.000 --> 00:31:39.999
embodied. Some of the things we, we don\'t talk about because
we do fear that people will think that we are crazy.
00:31:40.000 --> 00:31:44.999
And some of the things that we don\'t
share is because our theologies
00:31:45.000 --> 00:31:49.999
or our doctrines say this, and what we feel
00:31:50.000 --> 00:31:54.999
or what we experience is not congruent with
that, so you better keep it to yourself.
00:31:55.000 --> 00:31:59.999
\"My brother, Herbert, was here.\" Someone\'ll say, \"Her-,
what? Herbert couldn\'t have been here, he died 30
00:32:00.000 --> 00:32:04.999
years ago,\" and that\'ll cause the
patient to stop talking. It\'s a
00:32:05.000 --> 00:32:09.999
beautiful thing when it
satisfies and pleases
00:32:10.000 --> 00:32:14.999
the person who\'s seeing it.
Is it okay if, for your mom,
00:32:15.000 --> 00:32:19.999
Herbert was here? And we\'ll talk about what
all that means to her and work that out.
00:32:20.000 --> 00:32:24.999
I also saw with my father
00:32:25.000 --> 00:32:29.999
uh, the reaching with both
hands, and that\'s not
00:32:30.000 --> 00:32:34.999
explainable to me. There are
some faiths that have a
00:32:35.000 --> 00:32:39.999
belief system that people come to get you.
Prior to my mother\'s death, she told me,
00:32:40.000 --> 00:32:44.999
she said, \"I saw your uncle Bo,\" and that
was her brother, \"come in,\" she said,
00:32:45.000 --> 00:32:49.999
\"He didn\'t frighten me. He came in and he sat on
my bed. He was younger, he, he,\" and Uncle Bo was
00:32:50.000 --> 00:32:54.999
a dresser, he loved to dress. And she
said, He had on the most beautiful
00:32:55.000 --> 00:32:59.999
suit. He sat on my bed, and
um, I wasn\'t afraid of him.\"
00:33:00.000 --> 00:33:04.999
We can\'t deny that it\'s not happening. I mean,
we\'re in the room, and we\'re watching this
00:33:05.000 --> 00:33:09.999
happen. And, and, and it, and it has to be a personal experience.
It has to be something that you perceive in order to
00:33:10.000 --> 00:33:14.999
really trust it and feel that it\'s true.
00:33:15.000 --> 00:33:19.999
I don\'t think this is lights out.
00:33:20.000 --> 00:33:24.999
I do believe that there is, is something
beyond this, but as I get older, my
00:33:25.000 --> 00:33:29.999
sense of what that is is more in flux.
Either everything\'s gonna come
00:33:30.000 --> 00:33:34.999
to a total halt when I die or it isn\'t.
And if it doesn\'t, I have no idea
00:33:35.000 --> 00:33:39.999
what direction it might go in.
In watching people die,
00:33:40.000 --> 00:33:44.999
ac-, it actually dispelled some of the
religious doctrine that I had learned.
00:33:45.000 --> 00:33:49.999
Uh, I don\'t believe that people go to Hell if
they\'re not baptized. I don\'t think that is
00:33:50.000 --> 00:33:54.999
anything that man does that
determines the destiny of the dying.
00:33:55.000 --> 00:33:59.999
Many people who have religious views will
tell you that they believe there\'s a
00:34:00.000 --> 00:34:04.999
hell. I\'ve rarely met a person who will tell
you that they think they\'re going there.
00:34:05.000 --> 00:34:09.999
So, cuz usually they think they\'re going to
a reward, um, that this is a good thing,
00:34:10.000 --> 00:34:14.999
you know, a positive experience, not a
hellish one. But I, I don\'t believe that
00:34:15.000 --> 00:34:19.999
there is a heaven, and you\'re walking
on clouds. And I believe that,
00:34:20.000 --> 00:34:24.999
that there\'s this energy, and that our energy never
stops, that it\'s eternal that will last forever.
00:34:25.000 --> 00:34:29.999
And when we die, we\'re not really
destroyed. This vessel, our human bodies,
00:34:30.000 --> 00:34:34.999
are gone, but that that energy is still out in the
universe. I believe there\'s a continuity after
00:34:35.000 --> 00:34:39.999
death. It\'s a transition. It\'s a birth.
It\'s a birth into the spiritual.
00:34:40.000 --> 00:34:44.999
Everybody\'s somewhat in the same boat, unless they have very strong beliefs
that they really believe to be true, and this is what\'s gonna happen
00:34:45.000 --> 00:34:49.999
and. I believe we live before
we ever came here to earth,
00:34:50.000 --> 00:34:54.999
that we\'ll have an opportunity to live
with our family as family. I will be
00:34:55.000 --> 00:34:59.999
joined with my husband again someday.
When we come to grips with that,
00:35:00.000 --> 00:35:04.999
the finality that, that is
not as final as we fear,
00:35:05.000 --> 00:35:09.999
and that there is something beyond that.
I think for me, it has freed me up to,
00:35:10.000 --> 00:35:14.999
to be more free to live.
00:35:15.000 --> 00:35:19.999
It\'s almost like um, a freeing of energy.
00:35:20.000 --> 00:35:24.999
It\'s not that final end
which is so crushing to
00:35:25.000 --> 00:35:29.999
people when they don\'t have something
to, to make sense of what\'s happening.
00:35:30.000 --> 00:35:34.999
The essence of who they
really are just transitions.
00:35:35.000 --> 00:35:39.999
It just moves from, again, one, one outfit
to another. I think it definitely eases
00:35:40.000 --> 00:35:44.999
people\'s minds to believe that there is an
afterlife. I mean, I think we just choose what
00:35:45.000 --> 00:35:49.999
comforts us most, and which makes, and what makes
the most sense. I\'ll know when I get there,
00:35:50.000 --> 00:35:54.999
you know? No, nobody\'s really telling me. Nobody\'s come outta
the ground to tell me where I\'m going or what\'s gonna happen.
00:35:55.000 --> 00:35:59.999
You, I believe you will go to a better place
that\'s, you know, just mine, but where and how
00:36:00.000 --> 00:36:04.999
or what, I dunno. So I had a friend
that had a massive heart attack.
00:36:05.000 --> 00:36:09.999
And he came back. And I asked
him, \"So, did you see anything?
00:36:10.000 --> 00:36:14.999
You know, did you see the light? Did you see
friends? Did you see your mother, fa-.\" He said,
00:36:15.000 --> 00:36:19.999
\"I didn\'t see a fucking thing.
It was black.\"
00:36:20.000 --> 00:36:24.999
[sil.]
00:36:25.000 --> 00:36:29.999
We don\'t truly die. We may
see that the body is dead,
00:36:30.000 --> 00:36:34.999
but we are more than our bodies. And
if it turns out there\'s an afterlife,
00:36:35.000 --> 00:36:39.999
it, then there\'s one more adventure
to come. And if there isn\'t,
00:36:40.000 --> 00:36:44.999
I had a good ride for the money,
as cowboys always say at rodeos.
00:36:45.000 --> 00:36:49.999
[sil.]
00:36:50.000 --> 00:36:54.999
You know, people don\'t wanna
00:36:55.000 --> 00:36:59.999
talk about death, I think for a variety of reasons.
Because when we, when we talk about death,
00:37:00.000 --> 00:37:04.999
we start to experience it.
We start questioning
00:37:05.000 --> 00:37:09.999
our own impermanence. So we just try
to put it away like it doesn\'t exist.
00:37:10.000 --> 00:37:14.999
I\'ve noticed that the more I try to talk about it,
the less comfortable they become. In our culture,
00:37:15.000 --> 00:37:19.999
we\'re superstitious that if we discuss death,
it\'s gonna knock on our door a little bit
00:37:20.000 --> 00:37:24.999
earlier. If you go to other
countries, death, dying,
00:37:25.000 --> 00:37:29.999
the sick, the aged, aged, they\'re embraced.
00:37:30.000 --> 00:37:34.999
We do not see the cycle of life in the way
we used to do when we lived in a more
00:37:35.000 --> 00:37:39.999
rural environment, and we saw
life and death on a daily basis.
00:37:40.000 --> 00:37:44.999
Also, the World Wars that had such,
00:37:45.000 --> 00:37:49.999
it, death on, such an enormous
scale, I think left a whole
00:37:50.000 --> 00:37:54.999
generation with a post-traumatic
stress disorder where they just
00:37:55.000 --> 00:37:59.999
could not talk about death. And it was so
uncomfortable they, they, they didn\'t want
00:38:00.000 --> 00:38:04.999
to address it. And we see
that a lot with our families
00:38:05.000 --> 00:38:09.999
whether it\'s an elder who won\'t speak about their
funeral, they don\'t want to plan it in any way, and they
00:38:10.000 --> 00:38:14.999
leave it to the children to do it. When
my father died, my mother didn\'t even
00:38:15.000 --> 00:38:19.999
like the word \"death,\" didn\'t like the
word \"funeral.\" It was all terribly
00:38:20.000 --> 00:38:24.999
distasteful. And there
are still people that
00:38:25.000 --> 00:38:29.999
asked us when we go into the home, don\'t use
the \"d-word\" or don\'t use the \"h-word,\" as in
00:38:30.000 --> 00:38:34.999
\"hospice.\" The word \"suffering\" and \"pain\"
00:38:35.000 --> 00:38:39.999
goes along with the word \"death.\" I mean,
it\'s almost as though it has sort of the
00:38:40.000 --> 00:38:44.999
implications of a four-letter word. It\'s a bad word.
It\'s a dirty word. It\'s a word we don\'t wanna hear
00:38:45.000 --> 00:38:49.999
too often or it\'ll upset people if we say,
\"Joe died,\" as opposed to, \"Joe passed on,\"
00:38:50.000 --> 00:38:54.999
or \"Joe\'s gone to his reward,\" or whatever we,
whatever euphemism, we choose to utilize.
00:38:55.000 --> 00:38:59.999
And it seems to me that actually, as
in many things in life, we do people a
00:39:00.000 --> 00:39:04.999
disservice when we don\'t use the word that
really suggests the reality we\'re dealing with.
00:39:05.000 --> 00:39:09.999
And we have a tendency of not telling it to our
children. And the more we can teach children about
00:39:10.000 --> 00:39:14.999
dealing with death in healthy ways, the
better. We stay away from phrases like
00:39:15.000 --> 00:39:19.999
\"passed away\" or \"we lost them\" or \"they went
to sleep\" cuz the kids are very literal,
00:39:20.000 --> 00:39:24.999
and they\'re like, well, they went, and then they\'re afraid
to go to sleep because well, if Grandpa died when he
00:39:25.000 --> 00:39:29.999
went to sleep, then I don\'t wanna go to sleep. To
say that, you know, Grandma died, and that means
00:39:30.000 --> 00:39:34.999
that her, her body doesn\'t work
anymore, and her, you know, she stopped
00:39:35.000 --> 00:39:39.999
breathing, and she, her heart doesn\'t beat anymore
and so her body is gone, and, and she\'s never
00:39:40.000 --> 00:39:44.999
gonna come back. And that sounds really harsh,
but kids will hold onto this kind of um,
00:39:45.000 --> 00:39:49.999
magical thinking that they\'re gonna come back. So we really need to
make that pretty clear up front that we-, they\'re never gonna come
00:39:50.000 --> 00:39:54.999
back. And tell me about Grandma Betty.
Why did she die? Because she was
00:39:55.000 --> 00:39:59.999
sick. Yeah, and how did that,
how did it make everybody feel?
00:40:00.000 --> 00:40:04.999
I think a little bit sad. Yeah?
00:40:05.000 --> 00:40:09.999
And how does it make you feel? S-, sad. Yeah. You\'re young,
and you\'re healthy, and you\'re pr-, you know, the chances
00:40:10.000 --> 00:40:14.999
that you\'re gonna die are, are really slim. And
we\'re gonna do everything we can to keep you safe,
00:40:15.000 --> 00:40:19.999
and we\'re gonna keep ourselves safe.
00:40:20.000 --> 00:40:24.999
But then yet not making promises
that I\'m never gonna leave you
00:40:25.000 --> 00:40:29.999
or Mom\'s never gonna leave you or, you
know, because that, that may not be true.
00:40:30.000 --> 00:40:34.999
We\'ve used the words like \"dead\" and \"dying\"
and that the, the person, my father died.
00:40:35.000 --> 00:40:39.999
So having them go to funerals, and let them see that
people are crying and that people are sad and that
00:40:40.000 --> 00:40:44.999
that\'s okay. If we\'re able,
as young people, to teach
00:40:45.000 --> 00:40:49.999
our children that death is very
much a part of life, they will grow
00:40:50.000 --> 00:40:54.999
with a healthier attitude.
00:40:55.000 --> 00:40:59.999
[sil.]
00:41:00.000 --> 00:41:04.999
We have medicalized the end of
life, and so death generally
00:41:05.000 --> 00:41:09.999
takes place in a hospital now or a facility. It
used to take place at home. And we could see
00:41:10.000 --> 00:41:14.999
uh, the journey that someone was on,
and then we saw them dying as well.
00:41:15.000 --> 00:41:19.999
And because it\'s so removed from
us now, we\'re disconnected from
00:41:20.000 --> 00:41:24.999
death. You know, the patient is alone and suffering
on their own and dealing with, with all the issues
00:41:25.000 --> 00:41:29.999
that they\'re faced with. And at the same time,
they cannot discuss any of that with the family or
00:41:30.000 --> 00:41:34.999
any of their caregivers. They don\'t wanna talk about the
fact that you\'re dying. Because they, they\'re not coping
00:41:35.000 --> 00:41:39.999
with it. There, there\'s a dysfunctionality.
There\'s the patient who
00:41:40.000 --> 00:41:44.999
actually does not wanna talk about their
own death because of hurting, you know,
00:41:45.000 --> 00:41:49.999
their, their family members and imposing
upon them suffering in some way.
00:41:50.000 --> 00:41:54.999
And that the family\'s unwilling to talk about what\'s
really happening with the patient. And I have
00:41:55.000 --> 00:41:59.999
great friends who understand that, and so we\'re kinda
doing desensitivity training. You know, we talk
00:42:00.000 --> 00:42:04.999
about it a little bit, and then we don\'t
talk about it. I can understand why my,
00:42:05.000 --> 00:42:09.999
some of my friends and family members have
difficulty with it. They feel awkward about it,
00:42:10.000 --> 00:42:14.999
maybe because they\'re alive, and they\'re healthy,
and they\'re well, and I\'m not. We think we\'re
00:42:15.000 --> 00:42:19.999
protecting them, but we\'re hurting them
in the long run. We see lots of families
00:42:20.000 --> 00:42:24.999
who, nobody talks about it because, you know, \"we
don\'t wanna make them sad,\" which is, you know,
00:42:25.000 --> 00:42:29.999
such a strange thing because they\'re already
sad anyway. I mentioned to somebody, \"Oh,
00:42:30.000 --> 00:42:34.999
you\'re, you\'re office could really use this air purifier.
So when I\'m gone, you should take that. I\'ll put your
00:42:35.000 --> 00:42:39.999
name on it.\" And she was just
like, you know, I could tell,
00:42:40.000 --> 00:42:44.999
visibly shaken. And, and I said,
\"Oh, sorry, but this is a reality
00:42:45.000 --> 00:42:49.999
that I\'m working with, and
this is my life right now.
00:42:50.000 --> 00:42:54.999
And I know it\'s hard for my friends,
but if I can\'t talk about it
00:42:55.000 --> 00:42:59.999
and share with them how I\'m really feeling and
what\'s really happening, how isolating is that
00:43:00.000 --> 00:43:04.999
for me?\" Sometimes a person isn\'t ready to
talk about it, and honoring where they are
00:43:05.000 --> 00:43:09.999
so you\'re not pushing it on them, you\'re not
forcing them to talk about it, but just
00:43:10.000 --> 00:43:14.999
saying, \"I\'m very sorry about what\'s happened,
and I\'m here for you and in any way that,
00:43:15.000 --> 00:43:19.999
that makes sense for you.\" I
think it takes a lot of courage,
00:43:20.000 --> 00:43:24.999
I really do, because it\'s not easy.
00:43:25.000 --> 00:43:29.999
It brings people closer together to have these
conversations. You know, once you get the hang of it, it\'s
00:43:30.000 --> 00:43:34.999
pretty normal. Really. And the more we
can open up and be there for people
00:43:35.000 --> 00:43:39.999
then I think, the less afraid we\'re gonna be of
talking about it, if it can become more of a norm.
00:43:40.000 --> 00:43:44.999
[sil.]
00:43:45.000 --> 00:43:49.999
Could be the end of your life here.
This is something that is
00:43:50.000 --> 00:43:54.999
so profoundly terrifying. \"What are you
going through? I\'m here to support you.
00:43:55.000 --> 00:43:59.999
What do you need from me. I\'m, I\'m not afraid
of this. I\'m willing to be there by your side
00:44:00.000 --> 00:44:04.999
every step of the way. You can\'t count on
me.\" This is part of my life, you know, and
00:44:05.000 --> 00:44:09.999
if we can\'t talk about it, then I\'m
invisible. So I think it, it helps,
00:44:10.000 --> 00:44:14.999
I think it really helps people live better.
Not just die better, but actually
00:44:15.000 --> 00:44:19.999
live better. Yes, there\'ll be pain. Yes,
there\'ll be crying and, and suffering,
00:44:20.000 --> 00:44:24.999
and that is a part of life experience
00:44:25.000 --> 00:44:29.999
here. That is who we are. That\'s our
humanity. And that just, that just makes us
00:44:30.000 --> 00:44:34.999
greater. And it just expands us to, to
love each other more unconditionally,
00:44:35.000 --> 00:44:39.999
no matter what we\'re going through. I do believe
that my speaking frankly about my impending
00:44:40.000 --> 00:44:44.999
death has helped open up
the lines of communication
00:44:45.000 --> 00:44:49.999
between those who are close to me
and, and made these final months
00:44:50.000 --> 00:44:54.999
better than they would have been otherwise. So we could
let people know that when someone experiences a death,
00:44:55.000 --> 00:44:59.999
that they want to talk about the person, and they want you to call.
And, and people are so afraid, \"Oh I don\'t have the right words,\"
00:45:00.000 --> 00:45:04.999
or, \"I don\'t know what to say.\" So that\'s
okay, say that. That feels better instantly,
00:45:05.000 --> 00:45:09.999
and when someone else says, \"Oh, I feel the same
way,\" then I feel like I\'m not walking alone.
00:45:10.000 --> 00:45:14.999
That, hey, wait a minute, this is not just me going
crazy, this is part of the human experience.
00:45:15.000 --> 00:45:19.999
And CNN can now
00:45:20.000 --> 00:45:24.999
project that Barack Obama I cannot
possibly express how much it means to me
00:45:25.000 --> 00:45:29.999
to have lived to see this day come.
I started crying.
00:45:30.000 --> 00:45:34.999
I don\'t mean, boo-hoo, blah, blah, but tears were
rolling down my cheeks. I love this country.
00:45:35.000 --> 00:45:39.999
And, and I have grandkids.
00:45:40.000 --> 00:45:44.999
I want them to grow up in clean environment. I
want the-, their children to have good educations
00:45:45.000 --> 00:45:49.999
and, and healthcare. When I die, I\'m gonna
be dying with great pride over the fact
00:45:50.000 --> 00:45:54.999
of yesterday. I\'m gonna miss my Obama
signs. I may just leave \'em up. Now that
00:45:55.000 --> 00:45:59.999
I\'ve got this new short-term goal of
January 20th of \'09, Inauguration Day,
00:46:00.000 --> 00:46:04.999
maybe I\'ll just leave them up
to celebrate that. But I\'m
00:46:05.000 --> 00:46:09.999
not feeling uh, nearly as uh, as stressed
00:46:10.000 --> 00:46:14.999
over making it to January 20th.
My, I got to vote.
00:46:15.000 --> 00:46:19.999
I had a multiple-loss childhood.
00:46:20.000 --> 00:46:24.999
Uh, when I was 4 years old,
my sister died of pneumonia.
00:46:25.000 --> 00:46:29.999
And uh, when I was 7, my grandmother
was shot and murdered here in Denver
00:46:30.000 --> 00:46:34.999
uh, by a family acquaintance. And then when
I was 14 my father died of a heart attack.
00:46:35.000 --> 00:46:39.999
You know, so much of grief is a
process, um, and we don\'t want to um,
00:46:40.000 --> 00:46:44.999
to take that away and say, \"Well, here\'s the answer,\"
you know, because then they\'re gonna lose that process
00:46:45.000 --> 00:46:49.999
that they need to go through. When I was
in college, and I just had a hard time uh,
00:46:50.000 --> 00:46:54.999
we call it a \"grief burst.\" I started getting depressed,
my grades went down, and I went to a counselor,
00:46:55.000 --> 00:46:59.999
and it was, hey, this is the stuff
coming up from when you\'re a kid.
00:47:00.000 --> 00:47:04.999
I think a lot of times, um, you know, in
this culture, you know, we typically give
00:47:05.000 --> 00:47:09.999
people about a year to grieve. Um, insurance companies
will pay for bereavement counseling for a year after
00:47:10.000 --> 00:47:14.999
the death. A family member
called me about three months
00:47:15.000 --> 00:47:19.999
after my daughter died and said, \"So, are you
better now? Are you over this yet?\" Three months.
00:47:20.000 --> 00:47:24.999
Any of us who\'ve been through grief knows that the
first year is just, you know, the tip of the ice berg.
00:47:25.000 --> 00:47:29.999
In the beginning, grief is over
here, and you\'re over here,
00:47:30.000 --> 00:47:34.999
and you can\'t find a way to work together
with your grief. And then over time,
00:47:35.000 --> 00:47:39.999
you come together and find a
way to do it, but the tragedy
00:47:40.000 --> 00:47:44.999
never goes away. So it\'s a slow
process, and it\'s a process that can
00:47:45.000 --> 00:47:49.999
take people an entire lifetime. But we work
with kids who have had unspeakable deaths
00:47:50.000 --> 00:47:54.999
um, and have witnessed just unspeakable
suicides. Um, and you think, \"How is this child
00:47:55.000 --> 00:47:59.999
ever gonna get over this?\" Um, but they do.
00:48:00.000 --> 00:48:08.000
[sil.]
00:48:10.000 --> 00:48:14.999
A person who\'s killed in
some horrific manner,
00:48:15.000 --> 00:48:19.999
that would certainly have elements of tragedy, but
at the same time, you might have a person who
00:48:20.000 --> 00:48:24.999
has really lived in a very fulfilling way.
And so even though there end could be
00:48:25.000 --> 00:48:29.999
very tragic, uh, the fact that their
life is ended at that time may not be
00:48:30.000 --> 00:48:34.999
as tragic only because perhaps they\'ve
contributed greatly to the world.
00:48:35.000 --> 00:48:39.999
The tragedy of, of death is more about an
00:48:40.000 --> 00:48:44.999
ill-spent life.
00:48:45.000 --> 00:48:49.999
So I would think that a person who approached
their death from a sense of despair, that
00:48:50.000 --> 00:48:54.999
my life was pointless, I never accomplished
anything, uh, I never made connections.
00:48:55.000 --> 00:48:59.999
My relationships weren\'t right. That I wasn\'t
comfortable. That I didn\'t, there wasn\'t peace within
00:49:00.000 --> 00:49:04.999
my own relationships. That would
be, for me, a tragic death.
00:49:05.000 --> 00:49:09.999
How we take this gift
of our life and use it
00:49:10.000 --> 00:49:14.999
and not throw time away because it\'s
really all we\'ve got. I, I think it takes
00:49:15.000 --> 00:49:19.999
a bit of a discipline to
really turn off the TV and
00:49:20.000 --> 00:49:24.999
not look for something to
amuse you, but to just go out
00:49:25.000 --> 00:49:29.999
and spend time. You know, and, and see what
evolves. See what connections are there for you
00:49:30.000 --> 00:49:34.999
with yourself, you know, for you with nature, for
you with your family, for you with your work.
00:49:35.000 --> 00:49:39.999
You know, it\'s like if-, people
are afraid sometimes of space
00:49:40.000 --> 00:49:44.999
and silence, but really, if, if you
can go there and consistently give
00:49:45.000 --> 00:49:49.999
yourself that kind of opportunity,
that\'s where a lot of creative process
00:49:50.000 --> 00:49:54.999
comes from, I think.
00:49:55.000 --> 00:49:59.999
Playing is a wonderful thing. I think it\'s important
for us all to have time to play. I certainly
00:50:00.000 --> 00:50:04.999
wouldn\'t think of that as wasted time. I think time is wasted
really when you\'re just not there for it. When you don\'t show
00:50:05.000 --> 00:50:09.999
up. You\'re kinda going through the motions, you\'re
doing what you\'re doing, but you\'re not engaged
00:50:10.000 --> 00:50:14.999
in it. And it\'s amazing how much
of our lives we spend that way.
00:50:15.000 --> 00:50:19.999
I think that we look at, at, at situations
00:50:20.000 --> 00:50:24.999
of death and dying or if someone gets killed in an
automobile accident, that, \"Oh, that was a bad way to go,\"
00:50:25.000 --> 00:50:29.999
or if someone dies in their sleep,
\"Oh, that\'s a beautiful way
00:50:30.000 --> 00:50:34.999
to go.\" I don\'t think that
that qualifies the beauty
00:50:35.000 --> 00:50:39.999
of death. It\'s part of our evolution as
souls here is that we need to experience
00:50:40.000 --> 00:50:44.999
all forms of death, and all
forms of death are necessary.
00:50:45.000 --> 00:50:49.999
When a person comes to grips or comes to a
00:50:50.000 --> 00:50:54.999
point of acceptance and finds
peace in that acceptance,
00:50:55.000 --> 00:50:59.999
and then they\'re able to make the transition.
To me, that\'s a beautiful death.
00:51:00.000 --> 00:51:04.999
Part of living
00:51:05.000 --> 00:51:09.999
is our mortality. When we know
00:51:10.000 --> 00:51:14.999
something comes to an end, it makes it
more precious. I do believe that this
00:51:15.000 --> 00:51:19.999
life is not just something that happens.
It\'s purposeful.
00:51:20.000 --> 00:51:24.999
We each have our own unique expression
here that we have to honor.
00:51:25.000 --> 00:51:29.999
Take time for yourself. Don\'t put it off.
Do what you need to do.
00:51:30.000 --> 00:51:34.999
Have balance in your life. Living life
every moment as if the next moment
00:51:35.000 --> 00:51:39.999
you will be gone is the key to living here.
00:51:40.000 --> 00:51:44.999
Appreciate beauty. Appreciate your family
00:51:45.000 --> 00:51:49.999
and friends. Tell people that you
love them. Do those things of,
00:51:50.000 --> 00:51:54.999
as far as uh, don\'t leave messes.
Clean up your relationships.
00:51:55.000 --> 00:51:59.999
Um, if you\'ve burned bridges,
rebuild those bridges back up.
00:52:00.000 --> 00:52:04.999
Because then, if someone dies unexpectedly,
you\'re not left with that because you\'ve
00:52:05.000 --> 00:52:09.999
you\'ve lived in character.
00:52:10.000 --> 00:52:14.999
Bucket list is a list of things
00:52:15.000 --> 00:52:19.999
that you want to do before you
kick the bucket. Everybody
00:52:20.000 --> 00:52:24.999
should make a bucket list now. Immediately.
00:52:25.000 --> 00:52:29.999
If you were at the end of your life, what would you
like people to be able to say about you? What would you
00:52:30.000 --> 00:52:34.999
want your heritage to be, your legacy?
Live life to the fullest
00:52:35.000 --> 00:52:39.999
well, uh, before you get the diagnosis because
you may not have time after you get it.
00:52:40.000 --> 00:52:44.999
I\'ll share with you what
00:52:45.000 --> 00:52:49.999
one hospice client shared with me.
She said, \"You know, many
00:52:50.000 --> 00:52:54.999
people think that we folk who
are dying are afraid to die
00:52:55.000 --> 00:52:59.999
or that we are grieving leaving all
of our stuff behind or grieving
00:53:00.000 --> 00:53:04.999
leaving our people behind,\" she said,
\"but that\'s not it.\" She said,
00:53:05.000 --> 00:53:09.999
\"What we ha-, have to come
to terms with are the things
00:53:10.000 --> 00:53:14.999
that we\'ve done in this life.\" She said, \"It
all comes back, you know,\" she said, \"the good
00:53:15.000 --> 00:53:19.999
or bad, and, and what we fear
most is facing ourselves. And if
00:53:20.000 --> 00:53:24.999
we have to face ourselves, we know
that we have to face God, and that\'s
00:53:25.000 --> 00:53:29.999
the hard part.\"
00:53:30.000 --> 00:53:34.999
If you can think about
the fact that you will
00:53:35.000 --> 00:53:39.999
come to an end and that you have an
opportunity while you\'re on the planet
00:53:40.000 --> 00:53:44.999
to do something that matters to you and to
other people, that is a good way of preparing.
00:53:45.000 --> 00:53:49.999
Let\'s just make sure that everybody knows that, that I care
about you, that I love you, that you\'ve helped me so much,
00:53:50.000 --> 00:53:54.999
and my life has been blessed with you.
00:53:55.000 --> 00:53:59.999
So death is not anything
00:54:00.000 --> 00:54:04.999
to fear or push away, it\'s
something to embrace as another
00:54:05.000 --> 00:54:09.999
experience of life because death just,
is just the vehicle that takes us
00:54:10.000 --> 00:54:14.999
to another dimension of life. So
will I walk in front of a truck> No.
00:54:15.000 --> 00:54:19.999
Will I embrace death? Yes, I will.
00:54:20.000 --> 00:54:24.999
[sil.]
00:54:25.000 --> 00:54:29.999
I can\'t say I have any huge regrets.
00:54:30.000 --> 00:54:34.999
You know, there\'s certainly things I probably would have done a
little differently, for sure. I mean, you can focus on all the bad
00:54:35.000 --> 00:54:39.999
stuff, but it doesn\'t get you very
far and if just kinda churns up
00:54:40.000 --> 00:54:44.999
misery. You know, it\'s like the seeds of suffering
just kinda pile on, and you\'re fueling the fire.
00:54:45.000 --> 00:54:49.999
It\'s funny, I, I guess
I, I don\'t think so much
00:54:50.000 --> 00:54:54.999
about what I\'m leaving behind.
I appreciate the moments.
00:54:55.000 --> 00:55:03.000
[sil.]
00:55:05.000 --> 00:55:09.999
Regrets. I\'m really,
00:55:10.000 --> 00:55:14.999
really, I\'m a really lucky lady.
You know, I, all round, with
00:55:15.000 --> 00:55:19.999
family and friends. And
therefore, when you ask me
00:55:20.000 --> 00:55:24.999
about regrets, it\'s kinda hard for me to come up
with a list because I push those, I, I stuck them in
00:55:25.000 --> 00:55:29.999
a bottom drawer. Um, somebody else
can unpack \'em after I\'m gone.
00:55:30.000 --> 00:55:34.999
Throw \'em out with the rest of the trash.
00:55:35.000 --> 00:55:43.000
[sil.]
00:57:15.000 --> 00:57:19.999
I think it\'s very important to have
a ritual and an opportunity to
00:57:20.000 --> 00:57:24.999
memorialize a person\'s life. There\'s a lot of
feelings that come up walking in a funeral home.
00:57:25.000 --> 00:57:29.999
Having a death-loss experience
is it brings me right back to,
00:57:30.000 --> 00:57:34.999
to those times. It\'s a very
emotional time for family
00:57:35.000 --> 00:57:39.999
members, and they\'re, they\'re, they\'re
vulnerable. You know, it\'s a business, and
00:57:40.000 --> 00:57:44.999
it provides a great service
that\'s needed. Um,
00:57:45.000 --> 00:57:49.999
and I think they try to be kind and
accommodating. Many times a day
00:57:50.000 --> 00:57:54.999
uh, we will meet with families who when
they come through the doors of our,
00:57:55.000 --> 00:57:59.999
our funeral home are, are
critical or cynical or expect
00:58:00.000 --> 00:58:04.999
us to take advantage of, of a
situation because the national media
00:58:05.000 --> 00:58:09.999
jumps on those stories. Our profession
is like any other profession.
00:58:10.000 --> 00:58:14.999
You have your good attorneys and your bad
attorneys. You have your good plumbers
00:58:15.000 --> 00:58:19.999
and your not-so-good plumbers. We\'re
the same. But it only takes one,
00:58:20.000 --> 00:58:24.999
because of the sensitivity of what
we do, that makes us all look bad.
00:58:25.000 --> 00:58:29.999
What you don\'t hear are 99% of the time
00:58:30.000 --> 00:58:34.999
funeral homes are doing extraordinary things for
families at very difficult times. The folk that I
00:58:35.000 --> 00:58:39.999
know have buried people
at no cost when they
00:58:40.000 --> 00:58:44.999
didn\'t have it. Uh, some I know have even,
you know, put themselves in financial
00:58:45.000 --> 00:58:49.999
jeopardy trying to help people
at that time in their lives.
00:58:50.000 --> 00:58:54.999
The number one
00:58:55.000 --> 00:58:59.999
thing we all think we make tons of money,
but they don\'t realize that so much
00:59:00.000 --> 00:59:04.999
of the fees and charges
that we charge go straight
00:59:05.000 --> 00:59:09.999
out to the florists, to
the newspaper, to the
00:59:10.000 --> 00:59:14.999
health department, to the cemetery.
I had an experience
00:59:15.000 --> 00:59:19.999
picking out an urn, um, and I was
married to geologist so I knew that
00:59:20.000 --> 00:59:24.999
I wanted it to be some form of rock.
And it turned out to be
00:59:25.000 --> 00:59:29.999
marble. Uh, small urn, was
hundreds and hundreds
00:59:30.000 --> 00:59:34.999
of dollars. The families that
00:59:35.000 --> 00:59:39.999
wanna keep a little bit of their loved one.
So what you have here
00:59:40.000 --> 00:59:44.999
are all like little um, keepsakes
00:59:45.000 --> 00:59:49.999
that people would just keep a little bit.
Little bit of cremates
00:59:50.000 --> 00:59:54.999
go up in here. Underneath you keep a
little bit of the cremated remains in here
00:59:55.000 --> 00:59:59.999
and then here\'s this lovely
little vase that you have.
01:00:00.000 --> 01:00:04.999
This is a memory glass, and in here
um, I have these (ph)glores and these
01:00:05.000 --> 01:00:09.999
little, specky, white things, those are
cremated remains in there. The teddy bear has
01:00:10.000 --> 01:00:14.999
this heart and you can either
put um, a locket of hair or
01:00:15.000 --> 01:00:19.999
cremates or just a photo in the bear. A portion
of the cremated remains are inserted here
01:00:20.000 --> 01:00:24.999
and, and, and the loved one can wear those
cremated remains. And what may be strange
01:00:25.000 --> 01:00:29.999
to some is very, very important and appropriate for
others. The cremated remains are placed in here
01:00:30.000 --> 01:00:34.999
with uh, the memorial etching here. It
feels pretty impersonal, no matter how
01:00:35.000 --> 01:00:39.999
nice they try to be, it\'s, it\'s pretty impersonal.
And suddenly you\'re picking out caskets
01:00:40.000 --> 01:00:44.999
and markers and embalming and
services and flowers and music,
01:00:45.000 --> 01:00:49.999
and you just get in this role. We even have
now the opportunity, we feel very strongly
01:00:50.000 --> 01:00:54.999
of letting the family participate in the selection process in a more
tangible way. And so they\'re able to come and use a touch-screen
01:00:55.000 --> 01:00:59.999
monitor to make their selections. And
01:01:00.000 --> 01:01:04.999
uh, let me, let me get outta here.
Just selecting the casket
01:01:05.000 --> 01:01:09.999
you\'re shown, the family can come in and click
through and see how they can personalize a casket.
01:01:10.000 --> 01:01:14.999
Doing a traditional funeral can really
break families financially. The
01:01:15.000 --> 01:01:19.999
average cost of a funeral is, I believe
a traditional funeral including
01:01:20.000 --> 01:01:24.999
the burial at the cemetery, you
know, $10,000 up. Sometimes
01:01:25.000 --> 01:01:29.999
the guilt that those of
us who are left behind
01:01:30.000 --> 01:01:34.999
feel when we have to bury
someone causes us to overspend.
01:01:35.000 --> 01:01:39.999
When someone dies, and especially if
they die suddenly, you\'re in shock.
01:01:40.000 --> 01:01:44.999
You\'re in your own denial and isolation
period. And so you\'re not always able to make
01:01:45.000 --> 01:01:49.999
the, the best judgments, the best decisions.
So if you have some of those decisions
01:01:50.000 --> 01:01:54.999
in place prior to that time, you\'re
less likely to be taken advantage of.
01:01:55.000 --> 01:01:59.999
You shouldn\'t just blame the funeral
directors, it\'s also what the people wanted.
01:02:00.000 --> 01:02:04.999
And this is why you have
these market on caskets,
01:02:05.000 --> 01:02:09.999
you know, I mean you can buy the caskets
online. It doesn\'t have to cost a lot,
01:02:10.000 --> 01:02:14.999
and people need to know they can make their
own casket. They don\'t even need a casket. If
01:02:15.000 --> 01:02:19.999
they\'re doing cremation, the crematory
generally provides a box for the body.
01:02:20.000 --> 01:02:24.999
I have seen people put diamond rings
01:02:25.000 --> 01:02:29.999
on their loved ones and,
and to be buried, and uh,
01:02:30.000 --> 01:02:34.999
when I\'m sure their loved one would rather for
them to have taken that money and put it towards
01:02:35.000 --> 01:02:39.999
something else. They didn\'t have to be
buried. It\'s important for me to fulfill
01:02:40.000 --> 01:02:44.999
those wishes that he or she made with me.
01:02:45.000 --> 01:02:49.999
I think the public needs to understand they have the
right to ask questions. They have the right to be
01:02:50.000 --> 01:02:54.999
there when their loved one is cremated. They
have the right to study a funeral bill.
01:02:55.000 --> 01:02:59.999
It seems like there\'s a movement
now that families are wanting
01:03:00.000 --> 01:03:04.999
to be more involved in that ritual.
What we do is really
01:03:05.000 --> 01:03:09.999
make it so they can do a very simple funeral if
they want when they\'re doing things themselves.
01:03:10.000 --> 01:03:14.999
It costs less. We\'re a non-profit
organization and our mission
01:03:15.000 --> 01:03:19.999
is to educate and empower families so they can
care for their own dead. So it\'s doing things
01:03:20.000 --> 01:03:24.999
the way it was done maybe 150 years ago where
families are really involved and connected
01:03:25.000 --> 01:03:29.999
to the death. It gives you a
process to go from the loss
01:03:30.000 --> 01:03:34.999
and the confusion to the beauty of it.
01:03:35.000 --> 01:03:39.999
With Pinky, her family had had time to
prepare. She did have a long illness,
01:03:40.000 --> 01:03:44.999
was exiting over um, years, really.
01:03:45.000 --> 01:03:49.999
And so, even though it\'s a shock
to know someone\'s really gone,
01:03:50.000 --> 01:03:54.999
they did have that time. And um,
yeah, they, they were also embracing
01:03:55.000 --> 01:03:59.999
this death as a part of nature, that it was
01:04:00.000 --> 01:04:04.999
part of the cycle of life.
01:04:05.000 --> 01:04:13.000
[music]
01:04:55.000 --> 01:04:59.999
Remember what I talked about my, my uncle being gray
and chalky? There\'s no reason for that now because
01:05:00.000 --> 01:05:04.999
today embalming fluid have dyes in
it already. When we\'re embalming,
01:05:05.000 --> 01:05:09.999
the tissue changes color.
So you can see the,
01:05:10.000 --> 01:05:14.999
the, the coloring come and then you
know you\'re getting fluid. Yeah.
01:05:15.000 --> 01:05:19.999
Which, you know, there\'s no such
thing as a gray, chalky body.
01:05:20.000 --> 01:05:24.999
Um, we\'re working with the circulatory
system which is your arteries and
01:05:25.000 --> 01:05:29.999
um, your veins. So we
inject embalming fluid
01:05:30.000 --> 01:05:34.999
into the artery, and we drain through
the vein. Well, this one has
01:05:35.000 --> 01:05:39.999
21.5 index of formaldehyde.
And there\'s also
01:05:40.000 --> 01:05:44.999
like, lanolin and some other emollients
so the body doesn\'t necessarily
01:05:45.000 --> 01:05:49.999
dehydrate so quickly. It just doesn\'t
make sense to empty the body of all its
01:05:50.000 --> 01:05:54.999
bodily fluids and then pump it full
of fluids so it\'s pump, pumped
01:05:55.000 --> 01:05:59.999
up and it, it looks as
\"normal\" as possible.
01:06:00.000 --> 01:06:04.999
All the plumbing has been cut, so
now we have to individually pick up
01:06:05.000 --> 01:06:09.999
the left arm and the right arm and the left side of
the face and then we have to um, suture everything
01:06:10.000 --> 01:06:14.999
back up.
01:06:15.000 --> 01:06:19.999
90% of my business is direct cremation.
01:06:20.000 --> 01:06:24.999
Some people will choose cremation
for spiritual reasons. It\'s
01:06:25.000 --> 01:06:29.999
purification by fire. We have societies in, in
our world that you wouldn\'t think of anything
01:06:30.000 --> 01:06:34.999
other than cremation. It\'s the
law of the land. The process
01:06:35.000 --> 01:06:39.999
of cremation, with my machine, it\'s
approximately four hours here.
01:06:40.000 --> 01:06:44.999
They have newer machines that take up to
an hour only. When everything\'s done,
01:06:45.000 --> 01:06:49.999
this is what\'s left.
01:06:50.000 --> 01:06:54.999
And as you can see, it\'s all bone. People
01:06:55.000 --> 01:06:59.999
always say to me, uh, is ashes.
Well, it\'s not ashes, it\'s bone.
01:07:00.000 --> 01:07:04.999
You can s-, still feel the heat in here.
Um, it was done earlier.
01:07:05.000 --> 01:07:09.999
90% of us are made out of water. So
what\'s left in my chambers is the
01:07:10.000 --> 01:07:14.999
skeletal system. It\'s um, not embalmed, therefore
there\'s no chemicals. We\'re in our natural state.
01:07:15.000 --> 01:07:19.999
This is it. This is one adult.
01:07:20.000 --> 01:07:24.999
But as the years went on, I realized,
\"You know, there\'s too much
01:07:25.000 --> 01:07:29.999
focus on the remains and not enough
focus on the people they leave
01:07:30.000 --> 01:07:34.999
behind.\" You know, when we
consider that our mission
01:07:35.000 --> 01:07:39.999
is making important differences
in people\'s lives, obviously
01:07:40.000 --> 01:07:44.999
we\'re talking about how we can help the survivors,
the living. When they walk in our door, it\'s
01:07:45.000 --> 01:07:49.999
real. I\'m just here to take
care of their loved one.
01:07:50.000 --> 01:07:54.999
But more importantly, take care of them. 90% of the
families that come through our doors know what
01:07:55.000 --> 01:07:59.999
they want, but a much less, lesser
percentage know what they need.
01:08:00.000 --> 01:08:04.999
We then have to become educators.
We have to help them understand
01:08:05.000 --> 01:08:09.999
that there are certain tasks that we
believe that they need to engage in
01:08:10.000 --> 01:08:14.999
to lean into their grief process.
Doing this work helps me, actually,
01:08:15.000 --> 01:08:19.999
with my own mortality. You know, and
there\'s gonna be times that we meet
01:08:20.000 --> 01:08:24.999
with families that they really get to you.
And, and when they do,
01:08:25.000 --> 01:08:29.999
it\'s okay cuz then it keeps you
in check that you\'re human.
01:08:30.000 --> 01:08:34.999
The whole funeral industry
has done a really nice job
01:08:35.000 --> 01:08:39.999
in really meeting the family\'s needs. And, I
mean, we work with funeral homes who have
01:08:40.000 --> 01:08:44.999
the children come in um, who really let them
be part of that process which is really
01:08:45.000 --> 01:08:49.999
important for kids to be able to do, to
feel like they had some say in this.
01:08:50.000 --> 01:08:54.999
[sil.]
01:08:55.000 --> 01:08:59.999
Our media represents our
culture in a lot of ways,
01:09:00.000 --> 01:09:04.999
and I think it defines our culture in a lot of ways.
I think the media sends a lot of wrong signals
01:09:05.000 --> 01:09:09.999
about a lot of things about life itself.
I appreciate the freedom
01:09:10.000 --> 01:09:14.999
of our media, and I also realize the severe
limitations of what we get. When you\'re watching
01:09:15.000 --> 01:09:19.999
the news, it\'s just in front of us all
day long. Death and death and death.
01:09:20.000 --> 01:09:24.999
And uh, I think that\'s desensitizing.
Our media,
01:09:25.000 --> 01:09:29.999
I think, is really responsible for
putting out there uh, what we
01:09:30.000 --> 01:09:34.999
think we believe and what we think is real.
Well, it\'s hard for our young children to,
01:09:35.000 --> 01:09:39.999
to get that first task of grieving which
is to realize that this is real um,
01:09:40.000 --> 01:09:44.999
when they\'ve watched lots of things on TV where, you
know, cartoons um, where the person is, you know,
01:09:45.000 --> 01:09:49.999
flattened or run over by a steamroller
and then stand back up again.
01:09:50.000 --> 01:09:54.999
You know, or they see somebody in a movie, a
character in a movie who dies and then, oh, gosh,
01:09:55.000 --> 01:09:59.999
couple months later I see a movie and there they are again.
And so that\'s something we have to talk about with kids that
01:10:00.000 --> 01:10:04.999
that\'s pretend and that\'s um, that\'s not real
life. And um, especially with the younger ones
01:10:05.000 --> 01:10:09.999
who are just so concrete that that\'s
what they believe. Death? Yeah.
01:10:10.000 --> 01:10:14.999
It\'s when if somebody falls off of a cliff,
01:10:15.000 --> 01:10:19.999
that\'s death. Mm-hmn. Death wall.
A death wall..
01:10:20.000 --> 01:10:24.999
Okay. Most movies
01:10:25.000 --> 01:10:29.999
have, have a \"Hollywood death\"
and not a natural death.
01:10:30.000 --> 01:10:34.999
It isn\'t as attractive as it is
in the movies. I don\'t think
01:10:35.000 --> 01:10:39.999
that the norm is, you see someone
dying at home with family in a
01:10:40.000 --> 01:10:44.999
very beautiful uh, holding environment.
People having
01:10:45.000 --> 01:10:49.999
these epiphanies, and all is well
and healed. I don\'t think that is
01:10:50.000 --> 01:10:54.999
realistic. It\'s sugarcoating something
that can be often very, very
01:10:55.000 --> 01:10:59.999
challenging. All these shows are, like crimes shows,
are all based in death. I don\'t think it, it\'s,
01:11:00.000 --> 01:11:04.999
it\'s, the story\'s there, but it really doesn\'t
discuss about how what, what we do when our loved
01:11:05.000 --> 01:11:09.999
ones are dying. I think it shows a funeral, people
with dark clothes and dark glasses, and that\'s
01:11:10.000 --> 01:11:14.999
all you get from it. Philadelphia Story.
Um, I remember that as an AIDS movie,
01:11:15.000 --> 01:11:19.999
and I had a younger brother more
than a decade ago who died of AIDS.
01:11:20.000 --> 01:11:24.999
And I saw that movie, and I
thought, \"How dare they!
01:11:25.000 --> 01:11:29.999
That\'s not how people die of AIDS.\" I mean,
it, it w-, it was a glamorous death.
01:11:30.000 --> 01:11:34.999
And that, that isn\'t true. So when
it, when they really experience it,
01:11:35.000 --> 01:11:39.999
and it\'s not like they\'re seeing, then it\'s a
letdown. They feel lost again. Yeah, I would say the
01:11:40.000 --> 01:11:44.999
video games concern me the most. I have a
12-year-old and, and isn\'t allowed to play
01:11:45.000 --> 01:11:49.999
the mature, the games that are marked mature. I see them
in the stores, and they\'ll have them up to try out,
01:11:50.000 --> 01:11:54.999
and it\'s, you know, you\'re behind the gun and
you\'re shooting people. And they\'re spewing blood.
01:11:55.000 --> 01:11:59.999
I don\'t, I don\'t think they have any
sense of the sanctity of life or
01:12:00.000 --> 01:12:04.999
death or what it truly means. Well, as a parent,
it\'s, it\'s, it\'s my responsibility to, to be
01:12:05.000 --> 01:12:09.999
a censor. And the, you know, my home is not a
democracy. So I get to make those decisions
01:12:10.000 --> 01:12:14.999
as a parent. So in, in these
video games or movies,
01:12:15.000 --> 01:12:19.999
as long as they are wrong and we are
right, then they can become vilified,
01:12:20.000 --> 01:12:24.999
and it\'s okay to kill them. Many of
our action movies don\'t deal with
01:12:25.000 --> 01:12:29.999
the topic of death on a personal level.
Just not the media, but we as a
01:12:30.000 --> 01:12:34.999
society, we have embraced that. We
say people are wrong and we can
01:12:35.000 --> 01:12:39.999
kill, go in their country and kill them and,
and, and kill their children, kill their
01:12:40.000 --> 01:12:44.999
wives, and, and it\'s okay. As
long as there\'s not much loss
01:12:45.000 --> 01:12:49.999
of American lives. And I think once you
realize that, you know, the real intention
01:12:50.000 --> 01:12:54.999
behind any institution is to propagate
some value. And if you can understand
01:12:55.000 --> 01:12:59.999
what is the value that they are
propagating that they think is true, then
01:13:00.000 --> 01:13:05.000
you can either accept it
or say, \"Well, maybe not.\"