Front Wards, Back Wards
- Description
- Reviews
- Citation
- Cataloging
- Transcript
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Now in her early thirties, Patti has severe physical and mental disabilities and requires specialized care. Her sister Cathy is full of praise for the staff of the Fernald Center, where Patti lives. But other residents have horrible memories of abuse and neglect. Says one, 'Nobody on the outside knew what was going on behind these walls.' Created in 1848 as a school to train people to function in their homes and communities, it was redefined as an 'asylum' in 1890, warehousing residents for the rest of their lives. They were called idiots, simpletons and fools, and for 160 years Fernald State School America's first institution for people who were then labeled mentally retarded was where they would stay. Still open today, Fernald stands as a model of the best and worst we can do for people we define as needing our assistance.
Those residents thought to be more capable or presentable were placed in the 'front wards,' while those considered more seriously disabled were hidden away in the 'back wards.' Still professing ideas of training and education, such institutions had come to provide beds and food but little else. Their purpose was to protect society from the negative effects of the 'feeble-minded.' Today Fernald is home for less than 200 highly dependent residents, now referred to as 'consumers,' and its future is in doubt.
Through the recollections of Fernald's staff, residents and families, this thoughtful program profiles the evolution of attitudes toward people with mental disabilities in the United States. A production of Coruway Film Institute, produced in association with WGBH, Boston, and ITVS, with funding provided by the Corporation for Public Broadcasting.
'The filmmaker knows the community well and it allows him to tell a story that is deeply moving and nuanced. Highly Recommended.'-Educational Media Reviews Online
Citation
Main credits
Rogers, W. C (screenwriter)
Rogers, W. C (film director)
Rogers, W. C (film producer)
Paly, Melissa (film producer)
Other credits
Cinematography, Sean Glenn; editor, Aaron Vega.
Distributor subjects
Access, Rights and Realities; Aging; Aging and Long-Term Care; Community and Public Health; Disabilities; Ethics; Fanlight Collection; Health Care Issues; Healthcare History and PolicyKeywords
WEBVTT
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Fernald State School won\'t let me go.
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I first came here when I was a boy to
visit my uncle. He was one of thousands,
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millions across America
held at institutions. I was
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fascinated by my uncle and the stories he
told. I made a film about him. How he got
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to Fernald, his life before and after,
and his relationship to my family.
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The family that brought
him to the institution.
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He got out in 1978. He lived
and thrived in the community
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until a car accident took his life.
And though my uncle
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Joe is gone, Fernald remains open today.
And I have questions.
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Why did we build walls to
hold people like my uncle
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and what about the 200 people that remain at
Fernald. How do we understand those with severe
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and profound needs? Where is
the line between us and them?
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This is my journey back to Fernald,
the place left behind by many,
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still home for some. It\'s a difficult
symbol of our institutional past.
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This is the story of how Fernald came to be
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and how a diverse cast of
characters came to be here.
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Here is Fernald.
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This program is brought to you by the Corporation for Public
Broadcasting and these funders and by the additional funders listed
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at the end of this program.
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We\'re all set to roll? OK. Hang on \'cause I got to go over
this little bump here unless I back up. Yeah. Let me back up.
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[music]
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Joe Almeida lived at Fernald
State School from 1950 to 1959.
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He\'s not my uncle Joe, though
they shared time at Fernald.
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You guys will have to forgive me because this is
like, only my second day of driving a big bus.
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20 years after he left Fernald, he came back. Down here
on your right is the old gym and the school house.
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To work at the place that used to hold him. This used
to be called Stephen Bullman Hall. There were kids
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probably, I\'d say probably three, four,
five years old in here; little kids.
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I got here when I was 9 years old. I was
living in Emmitt Square, Cambridge. And uh,
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me and my brother, had an older brother that
got here with me too. We finally ended up
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going to East Cambridge Court. So they took
us in a room gave us an aptitude test and
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we\'re diagnosed as morons suitable to be housed
in an institution for the feeble-minded.
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Idiots of the lowest
class or mere organisms,
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masses of flesh and bone in human
shape, without powers of locomotion,
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without speech, without any
manifestation of intellectual
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or effective facilities.
Fools are higher class of
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idiots who have considerable power
of locomotion and animal action,
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partial development of their effective
and intellectual faculties.
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But only the faintest
glimmer of reason and very
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imperfect speech. Simpletons are
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the highest class of idiots. Have normal
powers of locomotion and animal action.
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And reason enough for their
simple individual guidance
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but not enough for their social relations.
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I tell you now, gentlemen we
must have a place for these
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people.
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[sil.]
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Hi. I\'m here.
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I\'m a sibling guardian. My sister is uh, been here
for 30 years. She has a trachea, she has a G-tube,
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and she\'s oxygen dependent. Um, she\'s never
walked, she\'s never talked. You know, cognitively
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they told me that\'s she\'s between 4 and 5 years old.
And if you look at her, you look at this little
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spirit tapped in this amazing body.
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You say to yourself, well, she must be a
vegetable. She\'s not, the lights are on.
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Oh, God, here she goes. All right.
Check. Wait. Pat.
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We have to medicate us. The basket?
Is there something
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on your wastebasket? Whose junk is that? That\'s
mine, it\'s mine. I\'m sorry. I\'ll move it.
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Pat\'s anal retentive about
like, her room and stuff.
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She\'s not anal retentive. She\'s just very neat.
Very, very organized. OK. No, no. She\'s, let\'s,
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let\'s be honest. She\'s a pain in the ass. I come in here,
you know, on a Sunday morning. I have my big cup of coffee
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and God forbid if I put it down near the TV set because
it doesn\'t go there. That\'s how it is around here. She\'s
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very pushy. She\'s uh, a
very unique individual. And
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she has a lot of integrity.
Patti. You know, if, if
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you\'re talking about somebody in front
of her she\'ll absolutely have a fit
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because she doesn\'t like you saying
anything negative about anybody. And
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that\'s so unlike most of us.
We require uh, um,
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1 to 1 for Patti right now. I mean,
you would, she would never be able
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to be cared for properly if she had
one nurse who had 10 patients.
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She requires very intensive care.
I, I can\'t say enough
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about the team that we have. I mean, like every
Thanksgiving we have this wonderful turkey dinner.
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And people would come on their day off um,
to come to be a part of that. To be with us.
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And I mean, you can\'t buy
that kind of dedication
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and, and loyalty, and camaraderie. I
mean it\'s, it\'s, this is a really
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magical group home.
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Most people avoid the sight and even the
thought of idiots as much as possible
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and therefore fail to do
their duty towards them.
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There is no adequate provision for
the relief, care, and treatment
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of idiots in the commonwealth.
Samuel Gridley Howe, was a leading
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public figure of his time. As a young
man he traveled to Europe and supported
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revolutionary overthrow of kingdoms.
He was jailed for his work in Greece
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and then deported to America. Where he
began to work on less radical change.
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Howe had his finger in just about every reform
movement that existed in the early 19th century.
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Including uh, poor house
reform, jail reform,
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education reform. On his return
to his home in Boston, Howe ran
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the privately funded Perkins Institution for
the Blind where some of his students were
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significantly mentally disabled. If
so much could be done for idiots
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who are blind still more could be
done for those who have sight.
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My sympathies for them grew
stronger and stronger every day.
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The light goes on. I say, \"Oh, my God.\" What we\'ve
been doing for the blind and death can be applied
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to people with mental retardation.
In 1848, after
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years of lobbying the legislature of
Massachusetts, Howe formed America\'s first
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publicly supported institution
for idiotic and feeble-minded
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youth. Howe says serve children, they\'re your biggest
hope. If you adults you\'re going to get into a whole
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bunch of other things, so.
They established schools.
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Using techniques shown to be successful in Europe, Howe
and his teachers focused on training the five senses
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of his students. They believed if
you set up a schedule, and you kept
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to the routine, into the habit
mentally defected would look
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more like normal people and
act more like normal people.
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Howe established a small and controllable
environment. With techniques similar
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to today\'s preschool programs.
Lower level education was
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suppose to equip on the
student to earn some
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money or be of some help when
he went back to his family.
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Howe was very strong throughout his
career on small size. From about
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1855 to 1865 began to write in
letters to Wilbur and in his
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publications, we can\'t get any
bigger, we can\'t get large we\'ll,
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we\'ll fail if we do this. But as
time moved on, Howe\'s very success
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put pressure on him to enlarge
his school and change it into
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a new kind of facility, an asylum.
Where lifelong commitment
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was the goal. In his final annual report
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he wrote: The more I reflect upon the
subject the more I see objections
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and principal and practice to asylums.
What right do we have pack off
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the poor, the old, the blind into asylums?
They are of us.
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Our brothers, our sisters. They
belong in families. They are deprived
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of the dearest relations in life in
being put away in masses in asylums.
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Asylums generally are the offspring
of a low order of feeling.
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They\'re chief recommendation often is that they
do cheaply what we ought to only think of doing
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well. Samuel Gridley Howe
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died in 1876. Shortly after
his death the trustees of the
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school began to build the very
asylum he had warned against.
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A young graduate of medical school
and a new breed of social scientist.
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Walter Elmer Fernald would lead
the institution into the 20th
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century.
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Modern usage has sanctioned the term feeble-minded to
include all degrees and types of congenital mental
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defect. From that of the
simply backward boy or girl
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to the profound idiot. A helpless
speechless, disgusting burden
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with every degree of deficiency
between those extremes.
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The evil effects feared from congregating
a large number of this class
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have not been realized. We find we must
congregate them to get the best results.
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We must have large numbers.
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Open Randy, you\'re going to eat.
Open your mouth. OK.
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I\'ll hold it then.(crosstalk)
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Not today, huh. Not all. That\'s good.
Randy, two hands. Hold it,
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hold your cup and drink. One of the hardest questions I
was asked was how many brothers and sisters do you have.
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Sometimes I would say, I have one
brother and sometimes I would say
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I have three brothers. But that always
got into more complicated explanations.
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Randy and Ronnie newborn. At 6
months of my mother\'s pregnancy
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and when my mother saw them for the
first time and held them in her hands
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she said, they were tiny and she
didn\'t think they would live.
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They\'re both blind. They actually
were born with sight but the retina
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detached and in the first few
weeks and months of their lives
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they were in a lot of pain. They were
five years old when they came to Fernald
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because my parents wanted them to be
able to go school. And at that time
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there was no way for
children as retarded as them
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to go to school. So, they came to Fernald.
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Randy doesn\'t have the, the motor
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coordination to, for instance hold a
spoon the way you and I hold a spoon.
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But he can grasp it if it\'s built up
even better. If it\'s not too thin.
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So the fine motor things
are, are really, if not
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impossible hard for him. Can you show them that
you? Food has to be set up for him in the same
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way so he knows where things are.
But even so he doesn\'t
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initiate very much around eating.
Good job. OK. That\'s it.
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OK. You take my arm.
Ronnie had a little less
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brain damage than Randy.
Ronnie has very good walking
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and can walk uneven surfaces and stairs.
How about, wow, not this hill.
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Now, well, Ronnie and Randy
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have pumpkins that they
water in the summer. Um,
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that\'s their therapeutic gardening. They don\'t really
work with soil but they love the water. And so, that\'s
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what they do. Which they plant pumpkins
and have grown pumpkins really large.
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They say they\'re going to
Cop\'s Field Fair this year.
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Directly on Walter Fernald\'s
arrival as Superintendent he began
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building the new walls of the institution.
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The two large sunny wards on
the ground floor are occupied
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by 70 of the younger and feebler
boys and girls. The shady
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groves and grassy lawns of the retired
location give the children ample
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outdoor exercise without exposing
their deformities and deficiencies
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to idle curiosity seekers.
For Fernald asylum
00:14:20.000 --> 00:14:24.999
can be seen in two ways. In one sense
it protects those inside the asylum
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from those outside, as in political asylum.
But in another
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sense and the dominant one in Fernald\'s
day is asylum will keep society
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free from defects by putting
defective people away from society.
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People are beginning to become concerned
about a large wave of immigrants
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coming into the country. We have Germans, we
have Poles, we have Chinese sort of coming here
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to build our country and yet they\'re
different. And that in many cases
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they live in poverty. In the census
figures you begin to see between
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1870 and 1880 you see a huge raise
in the amounts of deafness,
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blindness, insanity, and idiocy.
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In this new society we were developing
uh, there was less and less room.
00:15:15.000 --> 00:15:19.999
So, we had to find room
for them to keep them.
00:15:20.000 --> 00:15:24.999
Residents began to become known as inmates
and the release of people into the community
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was seen as temporary or followed by a
social worker. And that this was referred to
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has the process of parole. A lot
of these people believed initially
00:15:35.000 --> 00:15:39.999
um, that they were being, uh, that they
were helping by being able to measure and
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send them in the right place and so on.
It resulted in of course in, in
00:15:45.000 --> 00:15:49.999
containment. The tendency to lead dissolute
lives is especially noticeable in the females.
00:15:50.000 --> 00:15:54.999
They either marry and bring forth in
geometrical ratio a new generation
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of defectives and dependents or
become irresponsible sources
00:16:00.000 --> 00:16:04.999
of corruption and debauchery in
the communities where they live.
00:16:05.000 --> 00:16:09.999
Fernald\'s words about those who at the
time called feeble-minded were moderate
00:16:10.000 --> 00:16:14.999
compared to many of his contemporaries. In an age
of growing scientific measurement and control.
00:16:15.000 --> 00:16:19.999
If people with mental retardation have a
genetic disorder and we can\'t cure \"them\"
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and if they reproduce and
this is an inference
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they\'re likely to have other people with these problems.
All\'s we\'re going to do is be creating a larger
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and larger class in our society of people
who can\'t be well and who will drain
00:16:35.000 --> 00:16:39.999
a lot of social resources. So, we\'ll spend less
emphasis on getting them out in the community
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and a little more emphasis in making sure that the
women don\'t get pregnant. And when the first examples
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of that was isolation by gender.
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Feeble-minded women are almost invariably immoral.
In the light of our present knowledge the only way
00:16:55.000 --> 00:16:59.999
to reduce the number of feeble-minded
is to prevent their birth.
00:17:00.000 --> 00:17:04.999
One of the answers in other places
may have been to sterilize her.
00:17:05.000 --> 00:17:09.999
The other thing is to keep her away
from perpetuating for a start,
00:17:10.000 --> 00:17:14.999
until she was either too old to get
pregnant or to retarded to care.
00:17:15.000 --> 00:17:19.999
I think he was trying hard for
most his professional career
00:17:20.000 --> 00:17:24.999
to believe that he really could help these folks.
That\'s my sense. Now, I\'m comparing him to people
00:17:25.000 --> 00:17:29.999
who, some of them have said that there\'s not a chance
you can help these folks. Furthermore, they\'re
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a menace to society and they
ought to be sterilized.
00:17:35.000 --> 00:17:39.999
Some of us very much torn if
you, if you would. He wants
00:17:40.000 --> 00:17:44.999
organize a study and he
found with amazement that
00:17:45.000 --> 00:17:49.999
the runaways who had been considered by
the institution particular problems.
00:17:50.000 --> 00:17:54.999
They runaway, they\'re doing very well.
00:17:55.000 --> 00:17:59.999
And while Walter Fernald built his career around
institutional confinement he also began late in his career
00:18:00.000 --> 00:18:04.999
to establish special programs in public
schools. The roots of special education.
00:18:05.000 --> 00:18:09.999
And shortly before his death he stunned
his fellow Superintendents with his words
00:18:10.000 --> 00:18:14.999
at their annual meeting. A
few years ago, wholesale
00:18:15.000 --> 00:18:19.999
institutional segregation became almost
universally accepted as the only
00:18:20.000 --> 00:18:24.999
logical solution to an otherwise hopeless
problem. Feeble-mindedness is not
00:18:25.000 --> 00:18:29.999
an entity but is an
infinity complex problem.
00:18:30.000 --> 00:18:34.999
The ultimate responsibility for the care
and training of the feeble-minded must
00:18:35.000 --> 00:18:39.999
be decentralized. If cared
for at all the majority
00:18:40.000 --> 00:18:44.999
of the feeble-minded in each community
must be protected and helped
00:18:45.000 --> 00:18:49.999
by trained individuals
in that local community.
00:18:50.000 --> 00:18:54.999
So, Walter Fernald, who had
promoted segregation came to
00:18:55.000 --> 00:18:59.999
a conclusion that was opposite,
absolutely opposite.
00:19:00.000 --> 00:19:04.999
Walter Fernald died on Thanksgiving
Day, 1924. After he died the trustee
00:19:05.000 --> 00:19:09.999
continued to fill the place he built
and named the institution after him,
00:19:10.000 --> 00:19:14.999
The Walter E. Fernald State School
for the feeble-minded. His name
00:19:15.000 --> 00:19:19.999
forever linked to the walls he created.
00:19:20.000 --> 00:19:28.000
[music] Now this right here is a door
00:19:30.000 --> 00:19:34.999
that goes to one of the tunnels. Uh, it\'s
locked right now. But that goes down
00:19:35.000 --> 00:19:39.999
to a tunnel. There\'s tunnels all underneath these
grounds. They go all the way up the hill even.
00:19:40.000 --> 00:19:44.999
Up by the school house. They go all
the way down the hill. The go up by,
00:19:45.000 --> 00:19:49.999
by the store room, there all tunnels. That\'s
where the heating pipes used to come.
00:19:50.000 --> 00:19:54.999
When Walter Fernald\'s fellow superintendent
published a memorial tribute
00:19:55.000 --> 00:19:59.999
to him the ignored his call to
decentralize care for the feeble-minded
00:20:00.000 --> 00:20:04.999
and instead pointed to the power plant as
the fulfillment of the desire of his heart.
00:20:05.000 --> 00:20:09.999
Fernald\'s central power plant was linked
to the many buildings of the institution
00:20:10.000 --> 00:20:14.999
by an underground network of steam tunnels.
Blood vessels running under
00:20:15.000 --> 00:20:19.999
the manicured lawns, and gardens, and
roadways. You have your east tunnel.
00:20:20.000 --> 00:20:24.999
They were one part of a complete institution.
A place like state facilities all across
00:20:25.000 --> 00:20:29.999
the country. You pull this off here.
Designed to be self-contained community
00:20:30.000 --> 00:20:34.999
separated from the world outside its walls.
Take care now, take care. All right. OK.
00:20:35.000 --> 00:20:39.999
You too. We\'ll see you soon. We\'re off to the
tunnel. 80 years later one of the Fernald residents
00:20:40.000 --> 00:20:44.999
finds comfort at the walls by the steam
tunnels. The doors were always open
00:20:45.000 --> 00:20:49.999
when he uh, when he used to like to go
into dark place. He saw that tunnel
00:20:50.000 --> 00:20:54.999
and he uh, got all excited about it and he
00:20:55.000 --> 00:20:59.999
went into the tunnel, he went into to tunnel. Now,
he\'s not into it now. He went into the tunnel
00:21:00.000 --> 00:21:04.999
for several years, like maybe about six or seven
years. Before we finally got the doors all locked
00:21:05.000 --> 00:21:09.999
and then now you can just go to the tunnel.
He sits outside the door.
00:21:10.000 --> 00:21:14.999
And then he likes it up there.
00:21:15.000 --> 00:21:19.999
OK. You\'re going to help. All right. Here
Brian, you take the blanket. Take, take the
00:21:20.000 --> 00:21:24.999
blanket. Brian, was uh,
he was born in 1959.
00:21:25.000 --> 00:21:29.999
Everything was great until
uh, he started to walk.
00:21:30.000 --> 00:21:34.999
And then when he started to walk he was really a
handful. It\'s like having 10 kids at home because
00:21:35.000 --> 00:21:39.999
he got into everything. I was
building an addition at the end
00:21:40.000 --> 00:21:44.999
of the house, he saw me out there hammering. Well I put
the hammer down, next thing I know he\'s got the hammer.
00:21:45.000 --> 00:21:49.999
He\'s hammering the top of the
television set. It wasn\'t funny then.
00:21:50.000 --> 00:21:54.999
But anyway, you know, you got,
it\'s how you have to watch him.
00:21:55.000 --> 00:21:59.999
Well, we never heard anything like autism uh,
any retardation. We do have it in the family.
00:22:00.000 --> 00:22:04.999
It was all kind of uh, new to us. There
was nowhere to turn except maybe
00:22:05.000 --> 00:22:09.999
a family doctor and children\'s hospital.
They thought the sooner we got to educating
00:22:10.000 --> 00:22:14.999
him the better. He went to school
in a private school. First visit
00:22:15.000 --> 00:22:19.999
the owner comes out and he says, please
look at the dining room and it\'s all glass.
00:22:20.000 --> 00:22:24.999
Big, big pieces of glass.
00:22:25.000 --> 00:22:29.999
Saw there\'s a couple of pieces of colored
plywood here and there. He says,
00:22:30.000 --> 00:22:34.999
see those pieces of plywood. He says, he says,
Brian broke that window. I said, I told you
00:22:35.000 --> 00:22:39.999
it\'s right in my letter that he breaks windows. They
had him for three years and they couldn\'t handle
00:22:40.000 --> 00:22:44.999
him anymore Well, actually the state cut our funds. Yeah.
They cut the funds anyway. They cut all the funds.
00:22:45.000 --> 00:22:49.999
That\'s what happens. So all those kids had to come back and
be thrown like, they said, well, they mentioned this place.
00:22:50.000 --> 00:22:54.999
And this wasn\'t uh, 10 minutes
from our home. And so
00:22:55.000 --> 00:22:59.999
we came here. I kept on saying, I\'m not going to do,
I\'m not going to do it. But after a while I knew
00:23:00.000 --> 00:23:04.999
there was nothing out there for him.
There was nothing. We just figured
00:23:05.000 --> 00:23:09.999
this is what we have to do
but it broke our hearts.
00:23:10.000 --> 00:23:14.999
Hey, good guy. Huh, yeah.
Did you go to sleep?
00:23:15.000 --> 00:23:19.999
Yeah. Do you want to go? No.
00:23:20.000 --> 00:23:24.999
Do you want to go eat today? No. You want to
have lunch? No. Brian, can\'t you talk nice?
00:23:25.000 --> 00:23:29.999
No. Daddy. Say it nice to me.
00:23:30.000 --> 00:23:34.999
No, thank you. OK. Brian.
I\'ll see you later.
00:23:35.000 --> 00:23:39.999
I\'ll see you in five minutes, all right.
No, thank you.
00:23:40.000 --> 00:23:44.999
Bye-bye.
00:23:45.000 --> 00:23:49.999
[music]
00:23:50.000 --> 00:23:54.999
From the 1920\'s or \'30s really into the
00:23:55.000 --> 00:23:59.999
mid-1960\'s the system really was doormat.
00:24:00.000 --> 00:24:04.999
The needs and demands of the people
and their families, the resources
00:24:05.000 --> 00:24:09.999
just they didn\'t exist. And so, you
know, as, as people just built up
00:24:10.000 --> 00:24:14.999
in the system uh, you know, the staffing
wasn\'t there, the dollars weren\'t there.
00:24:15.000 --> 00:24:19.999
The rehab wasn\'t there. Fernald was used
as a place to put many different types
00:24:20.000 --> 00:24:24.999
of individuals. I remember when I first
came uh, to Fernald, I went through some,
00:24:25.000 --> 00:24:29.999
the archives on some of the individuals
I worked with. and people had diagnosis
00:24:30.000 --> 00:24:34.999
of things like clumsy child, thick glassed
00:24:35.000 --> 00:24:39.999
child, promiscuous.
00:24:40.000 --> 00:24:44.999
We came up here, me my brother
and uh, we sat out front
00:24:45.000 --> 00:24:49.999
while they talked to my father.
Then he came out
00:24:50.000 --> 00:24:54.999
and he started walking out the door. My brother was crying.
Like I said, he older so, he knew we were being put away.
00:24:55.000 --> 00:24:59.999
I didn\'t. So, he says to my father,
\"Hey, Dad where you going?\" He says,
00:25:00.000 --> 00:25:04.999
\"Oh, I\'m going back over to that other
building.\" He says, to get the car.
00:25:05.000 --> 00:25:09.999
And that\'s the last we\'ve seen of him.
I still didn\'t quite know
00:25:10.000 --> 00:25:14.999
what the place was. Until one day I looked
out the window and as you can look across
00:25:15.000 --> 00:25:19.999
there was a building there called the North
Building. And they had like a big platform
00:25:20.000 --> 00:25:24.999
and there was these older men out there walking in a
circle, their hands on top of each other shoulders,
00:25:25.000 --> 00:25:29.999
and most of them were naked. I\'d been there
00:25:30.000 --> 00:25:34.999
27 years. I went there when
I was nine-and-a-half.
00:25:35.000 --> 00:25:43.000
And I was there at, make it up, I was
there, put there because my father had a
00:25:45.000 --> 00:25:49.999
very heavy drinking problem.
00:25:50.000 --> 00:25:54.999
Right down here there\'s
wall that goes down here.
00:25:55.000 --> 00:25:59.999
And that\'s where I used to be.
They had six wards in it,
00:26:00.000 --> 00:26:04.999
four upstairs and they had two downstairs.
00:26:05.000 --> 00:26:09.999
The ones that were downstairs
00:26:10.000 --> 00:26:14.999
are people that are severely,
severely retarded, severely.
00:26:15.000 --> 00:26:19.999
They had all bright kids in one ward.
The division between custodial
00:26:20.000 --> 00:26:24.999
and the more able population was between
the front wards and the back wards.
00:26:25.000 --> 00:26:29.999
In the front or bright wards were residents
who could take care of themselves
00:26:30.000 --> 00:26:34.999
and one another. In the back were
those seen as beyond improvement.
00:26:35.000 --> 00:26:39.999
I couldn\'t believe it, you know,
didn\'t believe this existed.
00:26:40.000 --> 00:26:44.999
And the way they acted. The way they wouldn\'t keep clothes
on. The way they would smear themselves in feces.
00:26:45.000 --> 00:26:49.999
They would sit there and rock back and forth.
Charlotte Bell, her mother, and father all worked
00:26:50.000 --> 00:26:54.999
at Fernald. What she saw through
their eyes as well as her own
00:26:55.000 --> 00:26:59.999
stays with her today 50 years later. Yeah.
I didn\'t think this happened.
00:27:00.000 --> 00:27:04.999
You know, I never heard of it.
00:27:05.000 --> 00:27:09.999
No curtains, you know, sitting on benches.
You know, taking showers
00:27:10.000 --> 00:27:14.999
lining up nude. It was like, wow.
It was like
00:27:15.000 --> 00:27:19.999
a human warehouse. You going
to have dormitories with uh,
00:27:20.000 --> 00:27:24.999
three toilets and two of them not functioning,
uh, broken, and so on and so forth. This, this
00:27:25.000 --> 00:27:29.999
unbelievable, unbelievable. \'Cause at
that time nobody on, on the outside
00:27:30.000 --> 00:27:34.999
knew what was going on behind these walls. I don\'t even
think the Superintendent knew. The rank and file staff
00:27:35.000 --> 00:27:39.999
had a lot of power
00:27:40.000 --> 00:27:44.999
because there was nobody to lead them. Then
it was time to go back to the building.
00:27:45.000 --> 00:27:49.999
And that\'s when your mind really started
turning. Saying, oh my God I got to go back
00:27:50.000 --> 00:27:54.999
to that building, into that torture place. You know, Who\'s
there tonight? Who\'s on duty? Who\'s going to beat me?
00:27:55.000 --> 00:27:59.999
Can you imagine living a life like that
when you\'re a kid, 8, 9, 10 years old,
00:28:00.000 --> 00:28:04.999
11 years old, 12 years old. And all you thought about
every day when you left the manual in the school was;
00:28:05.000 --> 00:28:09.999
who\'s on tonight.
00:28:10.000 --> 00:28:14.999
I found that the most fearful part of my life in
order to be put into uh, a school where nobody cares
00:28:15.000 --> 00:28:19.999
and you don\'t exist anymore. This is one of
their punishments. You take a coat hanger
00:28:20.000 --> 00:28:24.999
with a piece of wood an inch, inch in a half thick, and
as you\'s come out of the shower; we have an attendant
00:28:25.000 --> 00:28:29.999
who used to work there. We told her it was a joke
but she used to wrap that across you backside.
00:28:30.000 --> 00:28:34.999
I tried running away from here a few times, you know, had
no idea where I was, where to go. What am I suppose to do,
00:28:35.000 --> 00:28:39.999
I\'m just a little kid, you know. They put you in ward
22. They look you up there for a couple of weeks.
00:28:40.000 --> 00:28:44.999
And they put a pair of long johns on you and they locked you
in a cell. As you can see there was nothing in the room.
00:28:45.000 --> 00:28:49.999
The only thing they had in the room was a mattress. You
know, of course they could, you know, lay on the mattress.
00:28:50.000 --> 00:28:54.999
But this here is like a heavy screening type
thing and it was like a heavy mesh screening
00:28:55.000 --> 00:28:59.999
that was put on the inside of the windows so the person
wouldn\'t, you know, break glass and cut themselves type thing.
00:29:00.000 --> 00:29:04.999
And that what the outside
of the room looked like.
00:29:05.000 --> 00:29:09.999
When you were punished and put behind bars,
00:29:10.000 --> 00:29:14.999
you like a, like a prison. And they,
00:29:15.000 --> 00:29:19.999
and you had to have
somebody go out with you,
00:29:20.000 --> 00:29:24.999
like a, you know, like a prison guard.
After lunch we go into the day room.
00:29:25.000 --> 00:29:29.999
We watching television. So, this guy Mr.
Queenin(ph) had on what he wanted to watch
00:29:30.000 --> 00:29:34.999
and one of the kids switched the
station while he walked out.
00:29:35.000 --> 00:29:39.999
Well, he come back, he got all mad, wanted to know who did it. So one
guy got up and says, I did it. Another guy got up and said I did it.
00:29:40.000 --> 00:29:44.999
Before you know it everybody was standing up saying they did
it. And then this guy grabbed him by the seat of the pants
00:29:45.000 --> 00:29:49.999
and scuff of the neck and ran him out, out
through the day room, out through the hallway,
00:29:50.000 --> 00:29:54.999
and out the front door. Heaved him outside. Then
we just started ripping everything apart, smashing
00:29:55.000 --> 00:29:59.999
all the pipes, smashing all the toilets.
Right over there, my father
00:30:00.000 --> 00:30:04.999
was like a charge attendant. Toilets, sinks, everything
went flying through the windows. And they had to call
00:30:05.000 --> 00:30:09.999
the state police and uh, clear up the riot. We looked
out the window and it was like the hill was was loaded
00:30:10.000 --> 00:30:14.999
with people; fire engines, police cruisers.
So finally about
00:30:15.000 --> 00:30:19.999
12:30 or so, some of the guys we get together, we\'re look
there\'s no food here, you know, sooner or later we got
00:30:20.000 --> 00:30:24.999
to get out of here, you know. So, I yelled out
that we were going to come out. And the 15 of us
00:30:25.000 --> 00:30:29.999
climbed into the back of this patty wagon.
They closed the door and
00:30:30.000 --> 00:30:34.999
they just drove away. We had no
idea where we\'re going. All we know
00:30:35.000 --> 00:30:39.999
is the ride seemed long. And then they opened the back
of the patty wagon then I find out it\'s Bridgewater.
00:30:40.000 --> 00:30:44.999
[sil.]
00:30:45.000 --> 00:30:49.999
That was the thing back then, if you
acted up you went to Bridgewater.
00:30:50.000 --> 00:30:54.999
I worked in that state, if you looked the wrong
way or if you said the wrong word, Bridgewater.
00:30:55.000 --> 00:30:59.999
Bridgewater State Hospital for
the criminally insane was
00:31:00.000 --> 00:31:04.999
notorious in the common wealth of Massachusetts.
It was the last stop for those deemed a danger.
00:31:05.000 --> 00:31:09.999
Joe who remembers most of details
of the past remembers little
00:31:10.000 --> 00:31:14.999
of his time at Bridgewater. He knows from his record
that he was there for four months. After which he was
00:31:15.000 --> 00:31:19.999
sent back to Fernald. When
he returned he was given
00:31:20.000 --> 00:31:24.999
a job as a research assistant in the
Fernald Lab. My job there was cleaning
00:31:25.000 --> 00:31:29.999
test tubes, counting and cutting brains.
Massachusetts in
00:31:30.000 --> 00:31:34.999
recent years has taken a greater interest
in the problems of the mentally retarded.
00:31:35.000 --> 00:31:39.999
Primarily research in the causes of brain damage
in children is a long and costly and rigorous
00:31:40.000 --> 00:31:44.999
assignment. They\'d have these sacks of probably three or
four brains in it and I\'d have to read off the numbers.
00:31:45.000 --> 00:31:49.999
There wouldn\'t be any names but every month they would
check the list. Joe was also along with 16 others
00:31:50.000 --> 00:31:54.999
a member of the Fernald Science Club
in which they were the experiment.
00:31:55.000 --> 00:31:59.999
Researchers used radiation on them to
test digestion. They take, they\'d,
00:32:00.000 --> 00:32:04.999
I don\'t know why they took it out.
But they, they it was,
00:32:05.000 --> 00:32:09.999
it was a crazy, it was a crazy, crazy.
It was a crazy
00:32:10.000 --> 00:32:14.999
move. But most troubling
to Joe were the autopsies.
00:32:15.000 --> 00:32:19.999
That\'s the autopsy room. That\'s were they said to go in
and clean up after. Like you know, I used to put the pots
00:32:20.000 --> 00:32:24.999
they have in a bucket in a plastic bag.
Then I would take it and I would put it in
00:32:25.000 --> 00:32:29.999
the box and I would bring it down to the
in, uh, what do you call it, incinerator.
00:32:30.000 --> 00:32:34.999
And they threw it in the incinerator. And the
pots would be put back in. But that was my job,
00:32:35.000 --> 00:32:39.999
you know. Joe was going
to be let out on parole
00:32:40.000 --> 00:32:44.999
but within two months of the schedule release he was
brought before the Superintendent for beating up
00:32:45.000 --> 00:32:49.999
another resident. He says now we talk to
the Board they\'re adding six more months.
00:32:50.000 --> 00:32:54.999
That very night I left and I\'ve been out
00:32:55.000 --> 00:32:59.999
until I got the job over here. In
1959 Joe ran away from Fernald.
00:33:00.000 --> 00:33:04.999
The institution stopped chasing him
down and sent him a formal release
00:33:05.000 --> 00:33:09.999
six months later. There were many
more then they could handle who
00:33:10.000 --> 00:33:14.999
remained. My mother worked as the
matron at West Building. Uh, everybody
00:33:15.000 --> 00:33:19.999
called her Ma Bell from the facility director,
who was Dr. Farrell at that time to
00:33:20.000 --> 00:33:24.999
clients\' families, the clients. The
clients always caller her Ma Bell.
00:33:25.000 --> 00:33:29.999
Risking the loss of her job Charlotte Bell\'s mother
the starch white representative of the institution
00:33:30.000 --> 00:33:34.999
provided secret support to groups who wanted
to publicize the horrendous conditions at
00:33:35.000 --> 00:33:39.999
Fernald. My mother just said, you\'re
going up to Fernald some day and
00:33:40.000 --> 00:33:44.999
you\'re going to meet a group of people and somebody\'s going to let
you in the back door of West Building and we want you to take some
00:33:45.000 --> 00:33:49.999
pictures. Another group assisted by
Ma Bell published the clandestine
00:33:50.000 --> 00:33:54.999
photographs in a book, \"Christmas In Purgatory\" by
Author Burton Blatt and photographer Fred Kaplan.
00:33:55.000 --> 00:33:59.999
Burton Blatt wrote there is a hell on earth
00:34:00.000 --> 00:34:04.999
and in America there is a special inferno.
We were visitors
00:34:05.000 --> 00:34:09.999
there during Christmas 1965, although
our pictures could not even begin
00:34:10.000 --> 00:34:14.999
to capture the total and
overwhelming horror we saw, smelled,
00:34:15.000 --> 00:34:19.999
and felt they represent a side of America
that is rarely been shown to the
00:34:20.000 --> 00:34:24.999
general public. And is little
understood by most of us.
00:34:25.000 --> 00:34:33.000
[music] Fernald was one of the three
00:34:35.000 --> 00:34:39.999
institutions on which he wrote his book.
00:34:40.000 --> 00:34:44.999
[music] There were many of us
who wanted to, you know, like,
00:34:45.000 --> 00:34:49.999
you know, change the public schools and,
and work with the insane and knew that
00:34:50.000 --> 00:34:54.999
through, you know, documentary films. Knew
that, that state institutions were pissed.
00:34:55.000 --> 00:34:59.999
And that was all influx, so. You know,
both, I had both particular and, and
00:35:00.000 --> 00:35:04.999
kind of group generational
reasons that brought me here.
00:35:05.000 --> 00:35:09.999
The place was very idealistic looking. It
did look like sort of a small college.
00:35:10.000 --> 00:35:14.999
And there was always this young guy and he was
sort of sitting there with his legs crossed
00:35:15.000 --> 00:35:19.999
and just kind of rocking. You
know, and somehow he seemed like
00:35:20.000 --> 00:35:24.999
he was sort of in touch with everything. And he was
like the Buddha of this place kind of. And look at how,
00:35:25.000 --> 00:35:29.999
and you know, look at how innocent.
00:35:30.000 --> 00:35:34.999
I remember when I would go outside
with them into the yard, he goes like,
00:35:35.000 --> 00:35:39.999
I felt like, you know, like,
um, oh God we got go.
00:35:40.000 --> 00:35:44.999
You know, like when recess was over was like we had, was like being
back in grade school. And now I got to go back into the building again,
00:35:45.000 --> 00:35:49.999
you know, and stuff. And I was like, I got to go. I got to go to
California. I\'ve got to, you know, it\'s, it\'s like I needed to escape from
00:35:50.000 --> 00:35:54.999
Fernald myself, you know. Sadly,
00:35:55.000 --> 00:35:59.999
that was the empowering experience of
being here is that I got to go, go in
00:36:00.000 --> 00:36:04.999
and I got to go out. The people of
Fernald were no longer called morons,
00:36:05.000 --> 00:36:09.999
now they were called the mentally retarded.
Yet, they were still
00:36:10.000 --> 00:36:14.999
defined by their limitations. It
took a judge to redefine the terms.
00:36:15.000 --> 00:36:19.999
Unwashed, unattended residents milled aimlessly
in corridors. Some went without shoes
00:36:20.000 --> 00:36:24.999
because there wasn\'t the money to buy them.
Most went without training or education.
00:36:25.000 --> 00:36:29.999
Once Fernald was a model for others
but by the 1970\'s things had
00:36:30.000 --> 00:36:34.999
declined to such a state that the
parents had to sue for change.
00:36:35.000 --> 00:36:39.999
Families were realizing that the
civil rights these individuals
00:36:40.000 --> 00:36:44.999
was being violated. What I have here
is the uh, complaint that I drafted
00:36:45.000 --> 00:36:49.999
in July of 1974 in the uh, Federal Court
in the District of Massachusetts.
00:36:50.000 --> 00:36:54.999
It brought the subject matter of the lack of
treatment of retarded persons in these facilities.
00:36:55.000 --> 00:36:59.999
The plight of the residents and the parents came
to the attention of Federal Judge Joseph Tauro.
00:37:00.000 --> 00:37:04.999
He toured the school and was
shocked by what he saw.
00:37:05.000 --> 00:37:09.999
Uh, after the uh, the trip I was
asked for my comments by one
00:37:10.000 --> 00:37:14.999
of the TV newsmen and uh,
what I said was, \"That the
00:37:15.000 --> 00:37:19.999
place was a pig pen.\" He witnessed large scale
number of residents laying on the floor
00:37:20.000 --> 00:37:24.999
in a trance like state because
they had been given drugs in
00:37:25.000 --> 00:37:29.999
lieu of staff, drugs that
would put them to sleep.
00:37:30.000 --> 00:37:34.999
Most citizens including yours truly uh,
thought that the retarded were being
00:37:35.000 --> 00:37:39.999
very well taken cared of in these
beautiful enclosed institutions
00:37:40.000 --> 00:37:44.999
that were there up on the hill
surrounded by acres of uh, lush
00:37:45.000 --> 00:37:49.999
green grass. In an unprecedented
move Judge Tauro forged an agreement
00:37:50.000 --> 00:37:54.999
between the relatives and the State of
Massachusetts to fix the broken system.
00:37:55.000 --> 00:37:59.999
The landmark decision is
known as The Consent Decree.
00:38:00.000 --> 00:38:04.999
It\'s a settlement agreement over the supervision of the Federal
Court and the powers are bound by that. Well, by having that
00:38:05.000 --> 00:38:09.999
Consent Decree made conditions better here.
You know, they did the
00:38:10.000 --> 00:38:14.999
buildings over and, and it was
a tremendous gain for all the
00:38:15.000 --> 00:38:19.999
residents here. I saw a lot of things coming into
Fernald, more money, more staffing, and more programs.
00:38:20.000 --> 00:38:24.999
Um, renovation of buildings, you know.
Doing more with the
00:38:25.000 --> 00:38:29.999
clients. At the heart of the decision was
the idea that every individual will have
00:38:30.000 --> 00:38:34.999
a specific treatment plan. If the need is
lifelong then the plan will be lifelong.
00:38:35.000 --> 00:38:39.999
With the Consent Decree
00:38:40.000 --> 00:38:44.999
Fernald State School again became a
leader not this time in it\'s creation
00:38:45.000 --> 00:38:49.999
but now in institutional reform. And
then a national movement known as
00:38:50.000 --> 00:38:54.999
Deinstitutionalization.
00:38:55.000 --> 00:38:59.999
All across the country more than a million
people left places like Fernald behind.
00:39:00.000 --> 00:39:04.999
Once they started closing, I mean these people
what they were then to what they are now.
00:39:05.000 --> 00:39:09.999
It\'s amazing, you know. They couldn\'t hear, you
know, there was no sign language. They couldn\'t,
00:39:10.000 --> 00:39:14.999
you know, lip reader or anything. Once those
classes started they started signing and,
00:39:15.000 --> 00:39:19.999
you know they were able to move on. Some
of them moved on into the community.
00:39:20.000 --> 00:39:24.999
[sil.]
00:39:25.000 --> 00:39:29.999
We strive to get individuals into the community
as much as possible. We run employment programs
00:39:30.000 --> 00:39:34.999
where we train people in jobs in the community.
So, we have a job developer that will go out and
00:39:35.000 --> 00:39:39.999
find jobs for individuals.
When Fernald opened and
00:39:40.000 --> 00:39:44.999
people moved into Fernald they weren\'t out in the community
at all. As years have gone by and people have moved out
00:39:45.000 --> 00:39:49.999
of Fernald. People are now served in the
community. The live in residences or group homes,
00:39:50.000 --> 00:39:54.999
or apartments. I do that because
00:39:55.000 --> 00:39:59.999
I like this kind of work. See, then you do
00:40:00.000 --> 00:40:04.999
mail ad if they get a lot of work.
But that\'s what they put on when
00:40:05.000 --> 00:40:09.999
, when you don\'t have a lot of work.
They put you on something like that
00:40:10.000 --> 00:40:14.999
to keep you, you\'re still sharper.
00:40:15.000 --> 00:40:19.999
But you\'d prefer paperwork then Barbara? It don\'t
make a difference as long as I\'m doing some,
00:40:20.000 --> 00:40:24.999
something. Yeah. My foster mom put me
in Fernald school \'cause she was sick.
00:40:25.000 --> 00:40:29.999
So, she couldn\'t take care of me anymore. So,
she\'s the one that sent me to Fernald School.
00:40:30.000 --> 00:40:34.999
And I was 11. Do you remember
what time of year it was?
00:40:35.000 --> 00:40:39.999
When Elvis Presley was, either was
his birthday or when he died.
00:40:40.000 --> 00:40:44.999
And I got out in \'77. My life is better now. I mean,
me and Mike can go to Dunkin\' Donuts by ourselves.
00:40:45.000 --> 00:40:49.999
We can go to the mall; we can go shopping.
I work in the
00:40:50.000 --> 00:40:54.999
dish room at a college. I
do everything in there,
00:40:55.000 --> 00:40:59.999
like the silverware, all the glasses.
00:41:00.000 --> 00:41:04.999
Put them in the cup rack, glass rack
on, on top, on top where they go.
00:41:05.000 --> 00:41:09.999
People see those kind of residents, the 90%
of the retarded population that\'s not as
00:41:10.000 --> 00:41:14.999
disabled does have some
ability to make decisions.
00:41:15.000 --> 00:41:19.999
But there is a group that, that would not
be safe at all. What do you want to do?
00:41:20.000 --> 00:41:24.999
Mmm. I know you want to go outside.
We\'re going to do that later.
00:41:25.000 --> 00:41:29.999
Yeah, yeah. Well, Patti
communicates with her eyes
00:41:30.000 --> 00:41:34.999
and you can ask Patti yes, no
questions, she\'ll look up with her eyes
00:41:35.000 --> 00:41:39.999
to say yes and down or
straight ahead to say no.
00:41:40.000 --> 00:41:44.999
She interacts like, you or I.
00:41:45.000 --> 00:41:49.999
It\'s just that she can\'t verbalize
in and she\'s at a younger age.
00:41:50.000 --> 00:41:54.999
Even though she is 38 years old.
Is it daytime?
00:41:55.000 --> 00:41:59.999
That\'s a yes. That\'s pretty quick.
Is it nighttime?
00:42:00.000 --> 00:42:04.999
She\'s just, you know, looking
straight ahead. Which
00:42:05.000 --> 00:42:09.999
is a no. From day one I, I could see she
would respond to things that were going
00:42:10.000 --> 00:42:14.999
on with her facial expressions.
Um, if you were leaving
00:42:15.000 --> 00:42:19.999
Patti will frown, like that. If you come in
and you have a band-aide on your finger.
00:42:20.000 --> 00:42:24.999
She\'ll be looking at it, looking
at it, frowning, looking at you,
00:42:25.000 --> 00:42:29.999
looking at the band-aide, looking at you.
Saying what happened.
00:42:30.000 --> 00:42:34.999
I\'m going to go this way. Maybe I should of
grabbed that umbrella. Close your eyes Pat.
00:42:35.000 --> 00:42:39.999
You all right, Maureen? Yeah. OK.
00:42:40.000 --> 00:42:44.999
[sil.] OK.
00:42:45.000 --> 00:42:49.999
Here we are chickie. We\'re at Mimi\'s
little garden. Mimi and Patti were like
00:42:50.000 --> 00:42:54.999
sisters. It was like the girls. What,
what are the girls going to do today?
00:42:55.000 --> 00:42:59.999
Yeah. You know. Definitely. And you know,
we\'d say, Mimi don\'t say anything to Patti,
00:43:00.000 --> 00:43:04.999
you know, that we\'re going to the mall today or
that we\'re, you know, today we\'re going to have
00:43:05.000 --> 00:43:09.999
a party or whatever. Because Patti would
get so excited that her breathing
00:43:10.000 --> 00:43:14.999
would get all, you know, compromised.
And um, so, you know,
00:43:15.000 --> 00:43:19.999
it\'s so funny to be here without Mimi.
It was about… about a year ago that uh,
00:43:20.000 --> 00:43:24.999
Mimi just started to fail.
She, massive organ failure
00:43:25.000 --> 00:43:29.999
and she passed. It\'s hard like right
after Mimi\'s passing it was hard to
00:43:30.000 --> 00:43:34.999
do, you know, to, to think about doing
this but, but we were ready to do it
00:43:35.000 --> 00:43:39.999
this year. So, that\'s what we did.
00:43:40.000 --> 00:43:44.999
It makes all our mortality um, that much
closer. As Pat\'s guardian the hardest thing
00:43:45.000 --> 00:43:49.999
for me was to explain her passing.
And I remember
00:43:50.000 --> 00:43:54.999
I, I went and bought Pat a little
bible and um, a little frame
00:43:55.000 --> 00:43:59.999
for Mimi\'s picture. And then
when I got to the door, I said,
00:44:00.000 --> 00:44:04.999
\"oh, god give me the words.\" Give me
the words to be able to explain to her
00:44:05.000 --> 00:44:09.999
so that she\'ll understand. So, um,
00:44:10.000 --> 00:44:14.999
I, I did as good a job as I could.
I just said,
00:44:15.000 --> 00:44:19.999
sometimes people\'s bodies get tired and
they get weak and they don\'t work anymore.
00:44:20.000 --> 00:44:24.999
And then God takes you home
and he takes you home to a
00:44:25.000 --> 00:44:29.999
beautiful, beautiful place. And there\'s no
more pain, and there\'s no more suffering,
00:44:30.000 --> 00:44:34.999
and there\'s no more doctors
and nurses and hospitals,
00:44:35.000 --> 00:44:39.999
and, and you can run and you can,
you can play. And you can talk.
00:44:40.000 --> 00:44:44.999
And you know, I, I think
Pat really got that.
00:44:45.000 --> 00:44:49.999
I really do. And this is a kid they said
would never live to be 12 and she\'s 38.
00:44:50.000 --> 00:44:54.999
We\'re coming to the end of our run but there\'s
still a lot of people here who need care.
00:44:55.000 --> 00:44:59.999
You know what we got to tie your shoes.
People like me think there\'s
00:45:00.000 --> 00:45:04.999
room for uh, a whole spectrum of care. And that
includes a congregate type setting like this.
00:45:05.000 --> 00:45:09.999
Or what you call a intermediate care
setting which is more intensive
00:45:10.000 --> 00:45:14.999
nursing care setting. And that, that\'s
humane and the least restrictive
00:45:15.000 --> 00:45:19.999
environment for some kinds of people.
OK. Mmm.
00:45:20.000 --> 00:45:24.999
Give me a kiss. Can you give me a kiss.
00:45:25.000 --> 00:45:29.999
That\'s OK. While Randy and Ronnie will
never be productive in any traditional
00:45:30.000 --> 00:45:34.999
sense of that word. The, the sense
of earning money. The sense of
00:45:35.000 --> 00:45:39.999
having work, of providing for anyone else.
They will never even be independent
00:45:40.000 --> 00:45:44.999
and providing for themselves. In
society that values productivity
00:45:45.000 --> 00:45:49.999
and, and the ability to give to others.
00:45:50.000 --> 00:45:54.999
We could say their lives have no worth.
00:45:55.000 --> 00:45:59.999
Now, I will say that I have
come to appreciate how
00:46:00.000 --> 00:46:04.999
their lives give us a chance
to be heroes, little heroes,
00:46:05.000 --> 00:46:09.999
everyday heroes. And they\'re
all over this campus
00:46:10.000 --> 00:46:14.999
of people who have not
just done a job but cared
00:46:15.000 --> 00:46:19.999
for these people, really cared for them.
All right.
00:46:20.000 --> 00:46:24.999
There\'s 200 acres here with the cemetery. A long line
of grounds keepers, you know. When I started here
00:46:25.000 --> 00:46:29.999
there were 11 and yeah, and uh,
there\'s only three of us left.
00:46:30.000 --> 00:46:34.999
Pretty difficult. I\'m doing work in places
with flower beds and mowing the grass
00:46:35.000 --> 00:46:39.999
and that type of stuff. Where uh, guys have
been doing it for years, uh, hundreds of years,
00:46:40.000 --> 00:46:44.999
you know, 150 years or more. And
uh, you know, I hate to think
00:46:45.000 --> 00:46:49.999
uh, you know, I\'m a last
of a breed, you know.
00:46:50.000 --> 00:46:54.999
Uh, the clients have been working here for all of
those 150 years. I mean back when this was a working
00:46:55.000 --> 00:46:59.999
farm uh, there was a crew of 30
clients that worked here, residents.
00:47:00.000 --> 00:47:04.999
And they were proud of their work, weren\'t they John.
They sure was. I mean working for the farm was
00:47:05.000 --> 00:47:09.999
a respectable job. You\'re
the last of a long line of
00:47:10.000 --> 00:47:14.999
uh, well you could be the
last in a long line.
00:47:15.000 --> 00:47:19.999
Could be. And now Fernald\'s
contemporary history as full of irony
00:47:20.000 --> 00:47:24.999
and contradictions as its past.
00:47:25.000 --> 00:47:29.999
On February 26th, uh,
Governor Romney announced
00:47:30.000 --> 00:47:34.999
uh, his plan to close Fernald uh, Facility.
00:47:35.000 --> 00:47:39.999
The Governor has also uh,
announced uh, a plan
00:47:40.000 --> 00:47:44.999
to sell off the land here at uh, Fernald.
00:47:45.000 --> 00:47:49.999
Out underneath uh, the services
that are being uh, provided
00:47:50.000 --> 00:47:54.999
here. They had 2,000 when Brian came in and think
of it now, they, they looked at all of these
00:47:55.000 --> 00:47:59.999
people and, and they ship them out one
at a time because of the qualifications.
00:48:00.000 --> 00:48:04.999
Whether they could make it in the community
or not, well these 300 never made it.
00:48:05.000 --> 00:48:09.999
They didn\'t make the cut. The department has yet to
prove that they can take care of, you know, people with
00:48:10.000 --> 00:48:14.999
this level of disability out in the
community. So, you know, as far
00:48:15.000 --> 00:48:19.999
as I\'m concerned we fight \'til the bitter end. And
the Fernald advocates took their fight to the
00:48:20.000 --> 00:48:24.999
Massachusetts State House where they
presented a petition to the Governor.
00:48:25.000 --> 00:48:29.999
We are here with a coalition of families and advocates
for the retarded and we are presenting to you today
00:48:30.000 --> 00:48:34.999
a 5,626 signatures strongly
opposing the closure
00:48:35.000 --> 00:48:39.999
of Fernald Center. This is not
an issue of better services
00:48:40.000 --> 00:48:44.999
at Fernald versus community. This is
an issue of the State saving money.
00:48:45.000 --> 00:48:49.999
If they\'re doing it cheaper then they\'re not,
they\'re not servicing the, the kids, you know.
00:48:50.000 --> 00:48:54.999
They\'re not giving them the things they, they
they\'re suppose to be giving them. They\'re not,
00:48:55.000 --> 00:48:59.999
they\'re not abiding the Consent Decree. Throughout
the time we were shooting the Romney administration
00:49:00.000 --> 00:49:04.999
declined to comment for this film. Someone
like myself who has spent 10 years in a
00:49:05.000 --> 00:49:09.999
community agency bringing people back from Belchertown
State School. And trying to prevent other
00:49:10.000 --> 00:49:14.999
people from landing in such a facility.
I should be jumping up and screaming,
00:49:15.000 --> 00:49:19.999
but I\'m cautiously saying if the only grounds
for this is not moral or philosophical
00:49:20.000 --> 00:49:24.999
or a belief that this really is a
better way to go. But is predominantly
00:49:25.000 --> 00:49:29.999
a economic motive. The cheapest
thing to do for people
00:49:30.000 --> 00:49:34.999
with mental retardation might be to do nothing.
I know, in some regard it\'s offended some the
00:49:35.000 --> 00:49:39.999
, you know, the, the purest in the field, who
you know, who feel any kind of congregate care
00:49:40.000 --> 00:49:44.999
is inappropriate. But you know, I
point towards what\'s going on in
00:49:45.000 --> 00:49:49.999
the country relative to the aging
population and what\'s the greatest kind
00:49:50.000 --> 00:49:54.999
of growth service for elders, uh,
00:49:55.000 --> 00:49:59.999
seniors. Continuing care
communities, assisted living.
00:50:00.000 --> 00:50:04.999
What is assisted living? What
is a continued care community?
00:50:05.000 --> 00:50:09.999
Probably the same concept that Dr.
Fernald and Samuel Gridley Howe
00:50:10.000 --> 00:50:14.999
was to create a community where
people with maybe similar needs,
00:50:15.000 --> 00:50:19.999
interest, or issues could
come together to receive uh,
00:50:20.000 --> 00:50:24.999
focused attention.
00:50:25.000 --> 00:50:29.999
Yeah. You\'re still here.(crosstalk)
Outside now for good.
00:50:30.000 --> 00:50:34.999
Yeah. UNKNOWNPatti enjoys church. Sometimes she just
goes over doing her to wait. Sits in the church
00:50:35.000 --> 00:50:39.999
and looks at the flowers. Huh?
00:50:40.000 --> 00:50:44.999
It\'s a nice outing. From the
greatest to the least are gathered
00:50:45.000 --> 00:50:49.999
in this same faith. If
you want to be brave,
00:50:50.000 --> 00:50:54.999
if you want to be number one, remember
00:50:55.000 --> 00:50:59.999
the least among you is first.
00:51:00.000 --> 00:51:08.000
[music]
00:51:25.000 --> 00:51:29.999
It\'s kind of strange I\'m working here now. You, you don\'t
think I think that\'s strange. I think it\'s very weird.
00:51:30.000 --> 00:51:34.999
But I, I have to keep saying
in my mind Joe this is not
00:51:35.000 --> 00:51:39.999
the same place you was at. This is, and I
wanted to quit a few times but then I said,
00:51:40.000 --> 00:51:44.999
where am I going to get the kind of money I make here. Where
am I going to get these benefits. I still feel that they owe
00:51:45.000 --> 00:51:49.999
me. I feel because of me being
here, how they treated me,
00:51:50.000 --> 00:51:54.999
even after I left here I was in trouble all the time.
I, and that was one of the reasons I lost a lot of jobs
00:51:55.000 --> 00:51:59.999
because I couldn\'t, you know, nobody
was going to tell me what to do again.
00:52:00.000 --> 00:52:04.999
Like the Fernald advocates, Joe and Vic, and
others came to the State House to present
00:52:05.000 --> 00:52:09.999
a petition not to keep Fernald
open but looking for an apology
00:52:10.000 --> 00:52:14.999
for the past and compensation for the years
of forced labor. It wasn\'t the money.
00:52:15.000 --> 00:52:19.999
It was that, you know, something that
was more important to me anyways.
00:52:20.000 --> 00:52:24.999
These men have had their childhood robbed from them,
they were denied a proper reasonable education,
00:52:25.000 --> 00:52:29.999
and then they were dumped back into
society to fend for themselves.
00:52:30.000 --> 00:52:34.999
They were labeled morons. They were called
imbeciles. They were called feeble-minded and
00:52:35.000 --> 00:52:39.999
they were normal children dumped into the
state school system. We want their records
00:52:40.000 --> 00:52:44.999
cleaned up. My past was coming back,
the problems were coming back in life.
00:52:45.000 --> 00:52:49.999
But I\'ve started to settle into it now. I\'m not letting
it bother me as much as I did. At first kind of uh,
00:52:50.000 --> 00:52:54.999
uh a dream of going back to what you were.
00:52:55.000 --> 00:52:59.999
I kept saying, you know, they were going to punish me or something. I kept saying
you can do it. I don\'t live here no more. I don\'t live here no more, you know.
00:53:00.000 --> 00:53:04.999
And then I\'d wake up and it
be only a dream, you know.
00:53:05.000 --> 00:53:09.999
You learn, you build a wall, and you build a
solid wall; nobody can get through to you.
00:53:10.000 --> 00:53:14.999
And you can usually push things to the side. And I think
that\'s what we\'ve all done of the years. I\'ve done it myself
00:53:15.000 --> 00:53:19.999
and my wife can\'t get through to me. A lot of times
she\'ll, it\'s a waste of time I just can\'t through to you.
00:53:20.000 --> 00:53:24.999
You\'ve got a wall there, I
just can\'t get through it.
00:53:25.000 --> 00:53:29.999
When, when he\'s time is up, we, we
tell him what time it is and we, we
00:53:30.000 --> 00:53:34.999
give him five minutes longer. Like
give him a chance to get up because
00:53:35.000 --> 00:53:39.999
he normally won\'t get up. We have to
call staff to get him out of the tunnel.
00:53:40.000 --> 00:53:44.999
Hi, this is Mr. Hughes at the tunnel.
Yeah. Can you send someone up.
00:53:45.000 --> 00:53:49.999
Thank you. Bye-bye, bye-bye. I bet you\'re
going to get up all by yourself, right.
00:53:50.000 --> 00:53:54.999
OK. I\'ll wait in the car.
OK. You can get the mat
00:53:55.000 --> 00:53:59.999
and bring up the blanket. All right.
00:54:00.000 --> 00:54:04.999
Let\'s go Brian. No.
00:54:05.000 --> 00:54:09.999
Stop screaming. OK. No screaming at my ma.
Screaming don\'t hurt you.
00:54:10.000 --> 00:54:14.999
OK. Let\'s go. No. Let\'s go, let\'s go.
Screaming don\'t hurt you.
00:54:15.000 --> 00:54:17.999
Screaming won\'t hurt you.
It\'s not (inaudible)
00:54:18.000 --> 00:54:19.999
now. No.
00:54:20.000 --> 00:54:24.999
Don\'t take it away teacher. No.
00:54:25.000 --> 00:54:29.999
Let\'s go, let\'s go. No. And no screaming.
I give you a five more minutes. OK.
00:54:30.000 --> 00:54:34.999
No, more minutes today. I don\'t care about
00:54:35.000 --> 00:54:39.999
screaming.
00:54:40.000 --> 00:54:48.000
[music] There tremendous
analogies between our historical
00:54:50.000 --> 00:54:54.999
past in the field of developmental
disabilities in today.
00:54:55.000 --> 00:54:59.999
And we need to ask ourselves the question;
what is our will. What are we really
00:55:00.000 --> 00:55:04.999
going to do for people who need our help and,
and assistance. Which is always the question
00:55:05.000 --> 00:55:09.999
of people who are different from ourselves.
00:55:10.000 --> 00:55:14.999
[music] My own view of Fernald
has changed through time.
00:55:15.000 --> 00:55:19.999
I\'ve come to see that institutions
00:55:20.000 --> 00:55:24.999
are the places where we\'ve drawn the
line between ability and disability.
00:55:25.000 --> 00:55:29.999
At once fixed by the walls
00:55:30.000 --> 00:55:34.999
of the institution. Time has shown
me that the line changes because we
00:55:35.000 --> 00:55:39.999
change and what we see changes.
The line between ability
00:55:40.000 --> 00:55:44.999
and disability is in me.
00:55:45.000 --> 00:55:49.999
[music]
00:55:50.000 --> 00:55:58.000
[music]
00:56:25.000 --> 00:56:33.000
This program is brought to you by the corporation
for public broadcasting and these funders.
00:56:40.000 --> 00:56:48.000
[sil.]
00:57:00.000 --> 00:57:04.999
In 1848, Massachusetts built
America\'s first public facility
00:57:05.000 --> 00:57:09.999
for people they called idiots.
It\'s still open today.
00:57:10.000 --> 00:57:14.999
I couldn\'t believe it, you know, I just didn\'t believe
this existed. Originally intended as a school
00:57:15.000 --> 00:57:19.999
in 1890 it became an asylum from
which was little chance for release.
00:57:20.000 --> 00:57:24.999
Who\'s going to beat me? Can you imagine living life like
that when you\'re a kid. Front wards, back wards the
00:57:25.000 --> 00:57:29.999
troubling story of Fernald.
00:57:30.000 --> 00:57:38.000
[sil.]
00:57:50.000 --> 00:57:54.999
This story is a family portrait.
It began when I,
00:57:55.000 --> 00:57:59.999
as a young boy would ride in the backseat of
a car with my uncle Joe. As he was returned
00:58:00.000 --> 00:58:04.999
to the state institution where he lived.
Joe would tell me stories in these trips.
00:58:05.000 --> 00:58:09.999
His voice was a whisper of what it is today.
So, I have to lean towards him to hear
00:58:10.000 --> 00:58:14.999
but when I did I would get vivid
details of his life and his past.
00:58:15.000 --> 00:58:19.999
There\'s a passion hidden in this man. This man
who was told how to dress. Told when to eat.
00:58:20.000 --> 00:58:24.999
Told when to sleep. This
is a family portrait
00:58:25.000 --> 00:58:29.999
with my Uncle Joe at its center. A tale
told in a moving car. A story that made me
00:58:30.000 --> 00:58:34.999
lean in and listen.
00:58:35.000 --> 00:58:43.000
[music]
00:59:00.000 --> 00:59:04.999
Yeah. Well, I was born baby.
00:59:05.000 --> 00:59:09.999
Ah, see there it goes.
00:59:10.000 --> 00:59:14.999
Um, No. We got through number one
00:59:15.000 --> 00:59:19.999
but. Oh.
00:59:20.000 --> 00:59:24.999
[music] My Uncle Joe was born on
00:59:25.000 --> 00:59:29.999
July 13, 1933. Oh, the sky is crying.
00:59:30.000 --> 00:59:34.999
Born in the height of the Great Depression. Uncle Joe
was the fourth and last son of Hy and Helen Rogers.
00:59:35.000 --> 00:59:39.999
My grandmother and grandfather
began to notice that
00:59:40.000 --> 00:59:44.999
Joe was different from his three
older brothers my Uncle Dave,
00:59:45.000 --> 00:59:49.999
my father Mark, and my Uncle Len.
Uncle Joe was diagnosed as
00:59:50.000 --> 00:59:54.999
mildly mentally retarded. Oh, yeah.
Wait a minute.
00:59:55.000 --> 00:59:59.999
Oh, the sky is crying
and the wind goes down
01:00:00.000 --> 01:00:04.999
the street. Then at age 15, Uncle Joe was
01:00:05.000 --> 01:00:09.999
institutionalized at a state school in
Waltham and then Templeton, Massachusetts.
01:00:10.000 --> 01:00:14.999
He was there for the next 28 years.
01:00:15.000 --> 01:00:19.999
He lives today in his own apartment
in Quincy, Massachusetts.
01:00:20.000 --> 01:00:24.999
This is my Uncle Joe.
01:00:25.000 --> 01:00:29.999
I ask the teacher, well how come my, my mother won\'t let
me go here anymore. And she says, well, I don\'t know.
01:00:30.000 --> 01:00:34.999
They said I was, I don\'t know. She told
my mother I was, you know, you know,
01:00:35.000 --> 01:00:39.999
I was, I was a little slow. I couldn\'t,
I couldn\'t keep up with the other kids,
01:00:40.000 --> 01:00:44.999
you know, with the other students. The
brought me to a school in Brookline, called
01:00:45.000 --> 01:00:49.999
Pollock School in Brookline. Yeah.
01:00:50.000 --> 01:00:54.999
They, they always gone up there.
And I, I didn\'t like that because
01:00:55.000 --> 01:00:59.999
they were mean. The people were awful mean.
Yeah. Now, Mr. Pollock
01:01:00.000 --> 01:01:04.999
you see, well, he used, he use to hit
us with a razor strap, you know,
01:01:05.000 --> 01:01:09.999
big black belt, you know, a razor strap.
And they weren\'t even
01:01:10.000 --> 01:01:14.999
raising hell or anything and he came down with the
razor strap. And boy, what a, what a whaling.
01:01:15.000 --> 01:01:19.999
Boy, bang, bang. Oh, boy. So,
01:01:20.000 --> 01:01:24.999
19-, so 1950 I left the school
and got to, I went to Fernald.
01:01:25.000 --> 01:01:29.999
That was a little better but,
but the doors were locked.
01:01:30.000 --> 01:01:34.999
You were locked in and you
couldn\'t get out. You could only
01:01:35.000 --> 01:01:39.999
go out with a staff for, for about two
or three minutes and then come back in.
01:01:40.000 --> 01:01:44.999
I didn\'t like that.
01:01:45.000 --> 01:01:49.999
Well, when they brought me there my
mother and father, you know, they asked;
01:01:50.000 --> 01:01:54.999
Oh, well, I guess there was, uh. I guess one
of the people\'s asked my mother and father,
01:01:55.000 --> 01:01:59.999
well why did you bring your son here.
And she said, \"Well,
01:02:00.000 --> 01:02:04.999
well, we\'re unable to take care of him. We can\'t
take care of him. So we brought him here.
01:02:05.000 --> 01:02:09.999
Yeah.
01:02:10.000 --> 01:02:14.999
Walter E. Fernald\'s State
School annual school report:
01:02:15.000 --> 01:02:19.999
Joseph was very home sick and unhappy at first.
He would cry silently until he fell asleep
01:02:20.000 --> 01:02:24.999
in classes. The more delinquent boys
found him open prey for teasing.
01:02:25.000 --> 01:02:29.999
After a time Joseph asserted
himself and fought back.
01:02:30.000 --> 01:02:34.999
He\'s gradually made a good adjustment to the
institution. He is polite and friendly,
01:02:35.000 --> 01:02:39.999
sometimes laughs for no reason.
When questioned
01:02:40.000 --> 01:02:44.999
he says he\'s laughing at
nothing or because he is
01:02:45.000 --> 01:02:49.999
happy. Hi. Hi. Now, we\'re just here.
01:02:50.000 --> 01:02:54.999
I used to be, I used to be here.
I\'m just going to visit, visit.
01:02:55.000 --> 01:02:59.999
I\'m just going to visit for a while
and then we\'re going to leave.
01:03:00.000 --> 01:03:04.999
Hi. And you got permission and everything?
Yes. What was it like to live in Templeton?
01:03:05.000 --> 01:03:09.999
Well, well it was like a jail one way.
It was like a prison,
01:03:10.000 --> 01:03:14.999
you know, yeah. Well, you
had to, well, you had to be
01:03:15.000 --> 01:03:19.999
in bed by 9:00 and the lights
had to be out at 9:00.
01:03:20.000 --> 01:03:24.999
Couldn\'t, well, you couldn\'t play
radios and couldn\'t you know.
01:03:25.000 --> 01:03:29.999
The night watch had a give
you, give you a count
01:03:30.000 --> 01:03:34.999
check at night. Make sure
everybody was in, you know.
01:03:35.000 --> 01:03:39.999
Nah. Home was with his family.
Home was not there.
01:03:40.000 --> 01:03:44.999
And they tried to convince him otherwise
at the institution and he never accepted
01:03:45.000 --> 01:03:49.999
that definition. I want to go home.
01:03:50.000 --> 01:03:54.999
Walter E. Fernald State School
01:03:55.000 --> 01:03:59.999
psychological reports: This
boy seems a thoroughly
01:04:00.000 --> 01:04:04.999
unfortunate individual. Inferior in
appearance, limited in comprehension,
01:04:05.000 --> 01:04:09.999
and possessed a rather unattractive
personality. Though he obviously enjoys social
01:04:10.000 --> 01:04:14.999
interchange and initiates conversation at every
opportunity. He rocks gently back and forth in his
01:04:15.000 --> 01:04:19.999
chair staring straight before him.
His speech is rapid and explosive.
01:04:20.000 --> 01:04:24.999
In general, the quality of his work is poor
01:04:25.000 --> 01:04:29.999
but the distribution of credits is not typical
of the level achieved. And he occasionally shows
01:04:30.000 --> 01:04:34.999
a surprising bit of creative thinking.
In summary,
01:04:35.000 --> 01:04:39.999
the picture is a dismal one with many
weakness and no apparent strengths.
01:04:40.000 --> 01:04:44.999
Prognosis does not appear to be
01:04:45.000 --> 01:04:49.999
favorable. Well, I was in
Ward 19, you see. With the
01:04:50.000 --> 01:04:54.999
younger kids, you know. So, we had a
line, for the staff person would stand.
01:04:55.000 --> 01:04:59.999
And we stand at the edge
of the stairway, you know.
01:05:00.000 --> 01:05:04.999
He\'d say, OK. You can go down, you know. You
had to get out in single file, you know.
01:05:05.000 --> 01:05:09.999
And then they place you, and then
they place you where to sit,
01:05:10.000 --> 01:05:14.999
you know, you know. He\'d say, OK. You,
you sit over here with this table.
01:05:15.000 --> 01:05:19.999
You sit on that table, you know.
I felt like,
01:05:20.000 --> 01:05:24.999
I felt like, you know, you
know, just, just taking off,
01:05:25.000 --> 01:05:29.999
and say, you know, this place isn\'t for me.
It was very difficult because
01:05:30.000 --> 01:05:34.999
my mother felt that uh, there was
nothing else for him. She felt
01:05:35.000 --> 01:05:39.999
guilt or whatever um, fearful
for him that it would be,
01:05:40.000 --> 01:05:44.999
it would be inappropriate for him ever to
live in the outside world. He couldn\'t
01:05:45.000 --> 01:05:49.999
do it. In 1976, Joe\'s
mother, my grandmother
01:05:50.000 --> 01:05:54.999
had a stroke from which she never recovered.
It was shortly thereafter that Joe
01:05:55.000 --> 01:05:59.999
took the steps to leave Templeton.
His mother
01:06:00.000 --> 01:06:04.999
loved him, as a mother loves a child.
She was desperately afraid
01:06:05.000 --> 01:06:09.999
of what would happen to him in the outside
world. Uh, excuse me. What color is
01:06:10.000 --> 01:06:14.999
that? That\'s the light weight.
It\'s uh, 30-29, I don\'t know if
01:06:15.000 --> 01:06:19.999
that\'s the right size. Yeah. But
wouldn\'t you have a uh. Well,
01:06:20.000 --> 01:06:24.999
what is that a popping green. Yeah, yeah.
It\'s a light weight. Mmm.
01:06:25.000 --> 01:06:29.999
Well, wouldn\'t you have a darker green than that?
No. I checked. This is all we have left. No.
01:06:30.000 --> 01:06:34.999
That\'s all right. OK. See, see
this is just a birthday present.
01:06:35.000 --> 01:06:39.999
See, but next time I want, I\'ll be a
little more independent and do it myself.
01:06:40.000 --> 01:06:44.999
See. I don\'t like, you know.
See, you know, see I don\'t, see
01:06:45.000 --> 01:06:49.999
I don\'t believe in taking advantage of
people, you know. A birthday present,
01:06:50.000 --> 01:06:54.999
that\'s, you know, that\'s different,
you know. You know, what I mean.
01:06:55.000 --> 01:06:59.999
Yeah.
01:07:00.000 --> 01:07:04.999
So, Joe went through a
series steps of, he\'d be
01:07:05.000 --> 01:07:09.999
at the institution but he, he\'d be out working all day.
And then finally he was able to leave the institution
01:07:10.000 --> 01:07:14.999
and be in a kind of protected
home with eight other clients
01:07:15.000 --> 01:07:19.999
uh, in the Quincy area. Uh,
he lived there and he uh,
01:07:20.000 --> 01:07:24.999
there was, a social worker, and a
young couple who kind of supervised.
01:07:25.000 --> 01:07:29.999
The only thing I didn\'t like is when the
staffs at uh, if we were going out like 8:00,
01:07:30.000 --> 01:07:34.999
they would say be back by 10:00, you know.
If we came back late
01:07:35.000 --> 01:07:39.999
, you know, they wouldn\'t like it, you know. They,
they\'d give you hell if you came back late.
01:07:40.000 --> 01:07:44.999
You know, they would have meetings
the next night, you know.
01:07:45.000 --> 01:07:49.999
Then, then the guy would take you in, in the
living room and shut the door, both doors.
01:07:50.000 --> 01:07:54.999
He, they were sliding doors and he\'d shut
them so nobody would hear what he was saying.
01:07:55.000 --> 01:07:59.999
So, he said, he would say, what
time are you suppose to be in.
01:08:00.000 --> 01:08:04.999
I said, last night I said 10:00.
Well, how come you were late.
01:08:05.000 --> 01:08:09.999
I said, I said, well, I told him
01:08:10.000 --> 01:08:14.999
I was sorry. So, I didn\'t say anything.
01:08:15.000 --> 01:08:19.999
I said, what does, what does
this get like where I just got
01:08:20.000 --> 01:08:24.999
out of. My god. This is like
an institution isn\'t it?
01:08:25.000 --> 01:08:29.999
I, I said, this is like going
from one institution to another.
01:08:30.000 --> 01:08:34.999
You know, and I told him. I said, I said listen
I want my freedom. When I want to go out,
01:08:35.000 --> 01:08:39.999
I\'ll go out. And I\'ll come back when I want to
come back when I want to come back, you know.
01:08:40.000 --> 01:08:44.999
So, that was that, you know. Um, you know, the
other day we were at the uh, House of Pancakes.
01:08:45.000 --> 01:08:49.999
Yeah. We were talking about this idea
of whatever it means mentally retarded.
01:08:50.000 --> 01:08:54.999
Yeah. Does that mean anything to you?
I don\'t know what mental mean crazy.
01:08:55.000 --> 01:08:59.999
But that, that\'s what mental
used to mean crazy, you know.
01:09:00.000 --> 01:09:04.999
Like if you pick something up and throw it that
would be crazy, wouldn\'t it? That\'s mental,
01:09:05.000 --> 01:09:09.999
yeah. What about the other part.
Retarded, well that means slow.
01:09:10.000 --> 01:09:14.999
That means slow learning.
01:09:15.000 --> 01:09:19.999
I don\'t know how, I don\'t know
mental retarded could mean
01:09:20.000 --> 01:09:24.999
cra-, crazy learning. I mean,
01:09:25.000 --> 01:09:29.999
no. Feeble-minded, mental deficient,
backward children, mental retarded these
01:09:30.000 --> 01:09:34.999
are all terms used so that
we can understand them.
01:09:35.000 --> 01:09:39.999
The stories Joe tells though are the
ways I have learned to understand him.
01:09:40.000 --> 01:09:44.999
Ah, very good, Joe. That\'s terrific.
This is a chance for you to speak
01:09:45.000 --> 01:09:49.999
to an awful lot of people. Yeah. This clip is going to be seen
by an awful lot of people. Where? Uh, it\'s going to be seen
01:09:50.000 --> 01:09:54.999
on television. Will I be on television?
01:09:55.000 --> 01:09:59.999
Huh, huh.
01:10:00.000 --> 01:10:04.999
When? I don\'t know. When
would you like to be on?
01:10:05.000 --> 01:10:09.999
Will I be on channel 2? Huh, huh.
01:10:10.000 --> 01:10:14.999
No, anytime, it doesn\'t matter. Huh.
01:10:15.000 --> 01:10:19.999
If I didn\'t care.
01:10:20.000 --> 01:10:24.999
Would (inaudible) baby. Oh, let
me shout, if I didn\'t care.
01:10:25.000 --> 01:10:29.999
Would it be the same to me
01:10:30.000 --> 01:10:34.999
if I didn\'t care. All right.
01:10:35.000 --> 01:10:39.999
Yeah. For a long time my Uncle Joe and
many people like him were separated
01:10:40.000 --> 01:10:44.999
from us in institutions. Now,
01:10:45.000 --> 01:10:49.999
he has become my teacher.
01:10:50.000 --> 01:10:54.999
[music] Great Joe. All right.
01:10:55.000 --> 01:10:59.999
Boy.
01:11:00.000 --> 01:11:04.999
You\'re OK.
01:11:05.000 --> 01:11:13.000
[music]
01:12:20.000 --> 01:12:28.000
[sil.]
01:12:30.000 --> 01:12:34.999
[music]
01:12:35.000 --> 01:12:39.999
Live from Boston this is 7 News
01:12:40.000 --> 01:12:44.999
Today in New England on The News Station.
A moving tribute
01:12:45.000 --> 01:12:49.999
to a loved one. Family and friends remember
a man killed by hit and run driver.
01:12:50.000 --> 01:12:54.999
There\'s a key capture to tell you about inside Iraq. Saddam.
A Weymouth, Massachusetts man heads to court tomorrow
01:12:55.000 --> 01:12:59.999
to face charges in a fatal hit and run accident.
The victim was well-known in the community and
01:13:00.000 --> 01:13:04.999
also a subject of a documentary
that aired back in the 1990\'s.
01:13:05.000 --> 01:13:09.999
NECN\'s Ally Donnelly spoke with the family
of Joe Rogers. My mother said it was because
01:13:10.000 --> 01:13:14.999
I was mentally retarded. I was slow, and.
71-year old Joe Rogers was
01:13:15.000 --> 01:13:19.999
mentally retarded and institutionalized
most of his life at the Fernald School in
01:13:20.000 --> 01:13:24.999
Waltham, Massachusetts. But at 48-years old
he left the institution to live on his own.
01:13:25.000 --> 01:13:29.999
They used to say to me, Oh, you\'ll never
make it outside. Well, I\'ll show you up,
01:13:30.000 --> 01:13:34.999
I\'ll show you people and I did. This documentary,
\"My Uncle Joe\" was made by his nephew
01:13:35.000 --> 01:13:39.999
Bill 15 years ago, chronicling his life.
But now, the beloved uncle is
01:13:40.000 --> 01:13:44.999
dead. It was just a terrible sight.
Friday night Joe had just finished dinner
01:13:45.000 --> 01:13:49.999
at his usual spot, Jimmy\'s Broad Street Diner in
Weymouth. He was walking home to the apartment
01:13:50.000 --> 01:13:54.999
he was so proud of when he was mowed down by
a hit and run driver. Parts of the car were
01:13:55.000 --> 01:13:59.999
used to start an investigation. Uh, uh we
followed up on different Isuzu we knew
01:14:00.000 --> 01:14:04.999
were registered to residents of Weymouth.
Police arrested 33-year old Keith Atkinson.
01:14:05.000 --> 01:14:09.999
Although there remains an open container in his truck.
Police say they have no probably cause to charge him with
01:14:10.000 --> 01:14:14.999
drunk driving. Anything about why he left
the scene? Uh, I believe at this time he
01:14:15.000 --> 01:14:19.999
just panicked. So badly hurt, Joe did not
make \'til morning. But his brother Mark says,
01:14:20.000 --> 01:14:24.999
he would never have wanted to live a life where
he wasn\'t independent. He was the type of a
01:14:25.000 --> 01:14:29.999
person that you, uh, you
were sort of drawn to. Uh,
01:14:30.000 --> 01:14:34.999
that if you talked to
him he was your friend.
01:14:35.000 --> 01:14:39.999
Joe always had a job, washing dishes, sweeping
up or most recently working in a mail room.
01:14:40.000 --> 01:14:44.999
He liked to have money in his pocket for getting
dressed up and going out to eat. We knew that,
01:14:45.000 --> 01:14:49.999
you know, people, it was nice to leave
good tips. So, he\'d think nothing
01:14:50.000 --> 01:14:54.999
of leaving a $5 tip for a $2.50
01:14:55.000 --> 01:14:59.999
breakfast. When I was born baby.
01:15:00.000 --> 01:15:04.999
But it was music that was Joe\'s life.
01:15:05.000 --> 01:15:09.999
He\'d sit there and play the piano and when people
would gather around and uh, just watch him play.
01:15:10.000 --> 01:15:14.999
It\'s incredible. You could
ask him about Fat Swallow.
01:15:15.000 --> 01:15:19.999
What are some of the songs Fat Swallow used to
play, Joe? And boom, boom. He\'d tell you all
01:15:20.000 --> 01:15:24.999
about it. Mark says Joe would
tell you all about heaven too.
01:15:25.000 --> 01:15:26.999
Uh, it looks like new (inuadible
01:15:27.000 --> 01:15:29.999
(), very pretty. He would
say, well, he said,
01:15:30.000 --> 01:15:34.999
do you think I could really become
big Jazz star if I went to heaven.
01:15:35.000 --> 01:15:39.999
You think he was a big
jazz star up in heaven.
01:15:40.000 --> 01:15:44.999
I think he\'s one of the champs up there.
Great Joe. All right.
01:15:45.000 --> 01:15:49.999
Boy. Joe will be laid to rest
in Westwood, Massachusetts
01:15:50.000 --> 01:15:54.999
on Tuesday. Topping our news this morning a man is hit
and killed while crossing the street in Weymouth.
01:15:55.000 --> 01:15:59.999
The 71-year old died hours after the
hit and run crash on Friday night.
01:16:00.000 --> 01:16:04.999
But instead of focusing on the loss his family says,
they\'re remembering the man they call an inspiration.
01:16:05.000 --> 01:16:09.999
7\'s Linda Ergas with his story.
I can talk about
01:16:10.000 --> 01:16:14.999
music, you know. I could say
I like music, I like Blues
01:16:15.000 --> 01:16:19.999
and Jazz. This is Joseph Rogers.
01:16:20.000 --> 01:16:24.999
He was the star of a movie, playing piano,
01:16:25.000 --> 01:16:29.999
even singing. For a long time my
Uncle Joe and many people like
01:16:30.000 --> 01:16:34.999
him were separated from us in institutions.
It\'s a documentary made by
01:16:35.000 --> 01:16:39.999
Joe\'s nephew. A story of how Joe overcame
the constant obstacles of living
01:16:40.000 --> 01:16:44.999
a life mentally disabled. Now, all his
family and friends have are those memories.
01:16:45.000 --> 01:16:49.999
But they also have questions.
Out of the blue uh,
01:16:50.000 --> 01:16:54.999
he got hit by uh, a car.
Friday in the early evening.
01:16:55.000 --> 01:16:59.999
Joe was struck by this Isuzu Rodeo. The
driver never stopping. Evidence at the scene,
01:17:00.000 --> 01:17:04.999
a broken front grill lead
police to their suspect.
01:17:05.000 --> 01:17:09.999
At his home no one would come to the door.
Investigators saying it was
01:17:10.000 --> 01:17:14.999
33-year old Keith Atkinson who was
behind the wheel. It was senseless
01:17:15.000 --> 01:17:19.999
and uh, it was senseless for him to
uh, run away from the event after,
01:17:20.000 --> 01:17:24.999
you know, he could see
Joe flying through the
01:17:25.000 --> 01:17:29.999
air. This family does offer their compassion
for the driver as they hold on to
01:17:30.000 --> 01:17:34.999
Joe\'s legacy. His part in this, in, in
this world is not going to be forgotten.
01:17:35.000 --> 01:17:43.000
[music] Now, Joe was truly
known all over town.
01:17:45.000 --> 01:17:49.999
He used to sing at restaurants
all the time. As for the suspect
01:17:50.000 --> 01:17:54.999
he\'s out on bail. Police say he was not
drinking. Apparently he told officers
01:17:55.000 --> 01:17:59.999
he panicked and that\'s
why he left the scene.
01:18:00.000 --> 01:18:04.999
Reporting in Weymouth, Linda Ergas, 7 News Today
New England. Elderly man he hit and killed.
01:18:05.000 --> 01:18:09.999
Joe Rogers was mowed down last night
as he crossed a Weymouth street.
01:18:10.000 --> 01:18:14.999
Peg Rusconi has more now on the victim.
01:18:15.000 --> 01:18:19.999
My name is Joseph Rogers. This is Joe
Rogers as filmed by his nephew W.C. Rogers.
01:18:20.000 --> 01:18:24.999
In the award winning documentary, \"My Uncle
Joe\". I wanted people to understand um,
01:18:25.000 --> 01:18:29.999
not only what his
01:18:30.000 --> 01:18:34.999
story was, you know, how he was institutionalized
and how he got out. But how he sees his
01:18:35.000 --> 01:18:39.999
world. The film aired on public
television it chronicled
01:18:40.000 --> 01:18:44.999
Joe a mildly retarded man and
his move from institutions
01:18:45.000 --> 01:18:49.999
into mainstream society. So, you know, he had this
usual. Watching footage with a heavy heart W.C. Rogers
01:18:50.000 --> 01:18:54.999
says, Joe\'s mother always feared for
his safety in the outside world.
01:18:55.000 --> 01:18:59.999
Friday evening as he crossed the street
on his way home from this dinner,
01:19:00.000 --> 01:19:04.999
Joe Rogers was struck by a driver who didn\'t stop.
He died later at the hospital. Police say pieces
01:19:05.000 --> 01:19:09.999
of the vehicle and old-fashion police
work lead to the arrest of 33-year old
01:19:10.000 --> 01:19:14.999
Keith Atkinson. Apparently there were 125 Isuzu\'s
in the town of Weymouth. As they went down the list
01:19:15.000 --> 01:19:19.999
we narrowed it until we came to the suspect. W.C.
Rogers says, he doesn\'t know the circumstances
01:19:20.000 --> 01:19:24.999
of the hit and run. The, the fact
that he didn\'t stop Yeah. Is pretty
01:19:25.000 --> 01:19:29.999
hard. I could talk about music. Life
had significance. Yeah, yeah. Sure.
01:19:30.000 --> 01:19:34.999
Uh, that there\'s no, no doubt in my mind
01:19:35.000 --> 01:19:39.999
that his, his life had
significance and that uh,
01:19:40.000 --> 01:19:44.999
resonated. Police say the
alleged driver Keith Atkinson
01:19:45.000 --> 01:19:49.999
has a court date on Monday. They say he faces charges of
driving to endanger and leaving the scene of an accident.
01:19:50.000 --> 01:19:54.999
In Weymouth, I\'m Peg Rusconi, CBS 4 News.
Struck as he was walking home
01:19:55.000 --> 01:19:59.999
by a car that didn\'t stop. Joe
Rogers died this morning. At 71, he
01:20:00.000 --> 01:20:04.999
was living independently defying the
low expectations of the era in which
01:20:05.000 --> 01:20:09.999
he grew up. Joe spoke very coherently
and he could, you know, read and write.
01:20:10.000 --> 01:20:14.999
Um, but in other areas he was, you know,
01:20:15.000 --> 01:20:19.999
slower and, and mildly retarded.
I\'m a little slow.
01:20:20.000 --> 01:20:24.999
I, I couldn\'t keep up with the other kids. Joe
who would later celebrate his life on video
01:20:25.000 --> 01:20:29.999
was brought to the Fernald School as a teenager.
Then to a state colony for the retarded
01:20:30.000 --> 01:20:34.999
in Templeton. It was like a jail in
one way. Like a prison. Years later
01:20:35.000 --> 01:20:39.999
in his 40\'s, Joe Rogers became part of the first
wave of mentally retarded residents to be
01:20:40.000 --> 01:20:44.999
trained and freed to live independently.
Defying those who thought he couldn\'t.
01:20:45.000 --> 01:20:49.999
He proved that, that was OK. So that means he could
do it. After he was struck by a car last night
01:20:50.000 --> 01:20:54.999
while returning home from a neighborhood restaurant
police found parts of the grill and the name plate
01:20:55.000 --> 01:20:59.999
of a green Isuzu Rodeo. Running through.
As for the driver Atkinson,
01:21:00.000 --> 01:21:04.999
he\'s facing charges of leaving the scene of an accident
and driving to endanger. But because Joe has died
01:21:05.000 --> 01:21:09.999
he will also likely face vehicular manslaughter charges.
He\'ll be arraigned in District Court on Monday.
01:21:10.000 --> 01:21:14.999
In Weymouth, Massachusetts,
Ally Donnelly, NECN.
01:21:15.000 --> 01:21:17.000
[sil.]