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[electric piano playing]

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Woman: [Singing indistinctly]

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Wilhemina: You know, the spirit
was so high in there.

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It was like a different set
of people.

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From my church, everybody cold

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and looking like
they ain\'t have HIV.

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They don\'t want to get it.

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So how you gonna talk to
those kind of people?

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Man: As we sing, we want
to take this opportunity

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to allow our visitors
to come forth

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who will help us to have
a better understanding

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of this thing called AIDS.

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Vivian: I love what I do because
it has become my ministry.

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In South Carolina, we rank
number sixth in the nation,

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eighth in the nation
in the rate of AIDS.

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80% of all women
in South Carolina

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living with HIV/AIDS is black.

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80% of all children
living with HIV are black.

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And 73% of all men
living with HIV are black,

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so this is a black epidemic
for all practical purposes.

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This state right now
is investing very little

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in the saving of lives
of African-Americans

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impacted by HIV/AIDS.

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And so if you are waiting
on the cavalry to come,

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if you\'re waiting on somebody
else to come and save us,

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if you think help\'s coming,
just think about Katrina.

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They ain\'t coming.

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So we\'re gonna have to
save ourselves.

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And we\'re gonna have to save
our children.

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[Applause]

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My name
is Wilhemina Dixon.

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First I\'d like to thank
the reverend

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for having us here.

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I don\'t know how to put it
in all them fine wordslike she do,
but I got God here in my heart,

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and I came this morning
to ask you all to listen at me

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since AIDS is in my family.

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I was going here and there.

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They wouldn\'t even
let me talk about it

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in Summer Grove Baptist Church.

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That was my church.

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So I\'m just asking everybody,

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if we could come together,
do some workshops,

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and I just ask y\'all
and I thank y\'all.

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[Applause]

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Narrator: Each year
in the United States,

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50,000 people are diagnosed
with HIV,

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the virus that causes AIDS.

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Nearly half of them
live in the South,

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where the epidemic has
taken root in rural communities

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like Orangeburg,
South Carolina.

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June: I\'d covered
the AIDS epidemic,

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and I thought I knew
this story.

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But the statistics
were startling.

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In 2009, federal officials
cited AIDS

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as a leading cause of death
among young black women.

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The South has more people
living with HIV

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than New York and San Francisco
combined.

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And South Carolina has the
highest rate of rural people

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living with the virus
in the nation.

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Coming here from New York is
to take a walk back in time.

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Man: ♪ I\'m gonna move ♪

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♪ Way on the outskirts of town ♪

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♪ I\'m gonna move ♪

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♪ Way on the outskirts of town ♪

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♪ \'Cause I don\'t want nobody ♪

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♪ Woo, always hangings around ♪

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June: Like her parents
and her grandparents,

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Wilhemina Dixon works the land.

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She gets by on odd jobs
like picking peas.

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Wilhemina: We get $15 a bushel.

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June: How much
is a bushel?

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Is that a bushel?

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This is a bushel.
Two of these.

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That\'s a bushel.

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We can pick about
25 or 30 bushels a day.

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So I have different kinds
of jobs.

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I take care of some cattle
for some man,

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and I pick peas and I pull weeds
out of fields,

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and I make enough to live
without begging.

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So it helps you.

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And I can have pride
and be happy with who I am.

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June: I had found Wilhemina.

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Her daughter, Toni Dicks,

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and her granddaughter Dayshal

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after part of Dayshal\'s journal

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was published in a magazine.

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Dayshal: If it wasn\'t
for the Lord and my grandma,

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I don\'t know I would do
in this life.

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I know I can make it
if Magic Johnson did.

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Me and my grandma went
to see him in North Carolina.

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He said we could make it if we
take our medicines like he did.

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My name is Dayshal Dicks.

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All right, you gonna
get my invitation.

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I like talking on the phone
and going on MySpace...

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and listening to music.

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I\'ve had HIV for 15 years...
all my life.

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So you gonna drink it
or you want to just take it?

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I don\'t care.
Just get it over with.

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All right.

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June: By 2009, many HIV patients
in other parts of the country

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were being treated
with a single pill each day.

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But in South Carolina,
where Medicaid patients

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have limited access
to the latest health care,

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Dayshal took 12 pills
twice a day.

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Wilhemina:
Get it all down?

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Wilhemina: With Dayshal,

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they wasn\'t supposed to be
at the hospital,

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but my daughter never had
any insurance,

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and she was just a junkie,
so of course they didn\'t care.

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When they first gave her to me,
her lungs hadn\'t developed.

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They just gave her to me
for her to die.

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She was so little.

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And she had turned, like,

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I said like if you got a chicken
and you pick it

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and it starts to turn
kind of a bluish...

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I had my big light like they do
over the fries,

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and I would rub her down oil,

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and I would pray for her
whilst I rubbed her down,

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and I would shine that light on,

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and it would stay on her
all day.

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Willie would stay with her
one night,

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and I would stay with her
the next night.

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And then she got
a little bit bigger,

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and I used to kiss her feet
every night

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and tell her good night,

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and now she\'s about 5 years old
one night,

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laying up in the bed,
telling me, \"Kiss my foot.\"

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I said--ha ha--
\"Now you getting too big!\"

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But Dayshal, I let them know
that she couldn\'t help herself.

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That\'s how she was born.

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With Toni, I let \'em know,
\"This is my daughter, Toni.

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\"She\'s on drugs. She\'s HIV.

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\"It\'s up to you if you want
to deal with her,

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and it\'s up to you if you don\'t
want to deal with her.\"

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But me,
I got love in spite of.

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But me,
I got love in spite of.

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Dayshal: I call her Mina mother
\'cause she raised me.

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My mama, Toni, I don\'t feel
comfortable calling her mother

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since she never did
nothing for me.

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Melissa: I\'ve known Toni and
Dayshal approximately 12 years.

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And Toni would do things
that she knew better than to do.

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And then she would, you know,
call up her mother

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to try to help her,
and then she\'d say

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her mother wouldn\'t help her,

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and you know, I knew better,

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but it was not Toni
that I was dealing with;

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it was the addiction
that she had.

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I always put something extra
in my dishwater,

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either bleach or ammonia.

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And you know, any kind
of bacteria or germs,

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it might be able to kill them.

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And we probably
can put up with it,

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but Dayshal probably can\'t.

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Willie:
Everybody is kind of scared

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\'cause they know that
you got that disease,

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but sometimes they get scared

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\'cause, you know,
they\'re not ready for, you know,

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it seem like it go--
and they\'re the type of person--

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they\'re the type of person,
they\'re wiping off things

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when she leaves.

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I\'m just a person
with a disease.

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Treat me just like
everybody else be treated.

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June: Federal guidelines

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requiring patients to see
infectious disease specialists

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are another hardship.

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In Dayshal\'s case, the rule
means a 90-minute drive

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to the state capital, Columbia.

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Wilhemina: Dayshal sees
her doctor every two months.

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She goes to Columbia.

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When we get there,
they\'ll give us

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a little ticket for, like,
$15 or $20 to come back,

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but just thinking we got to go
all the way over there

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with that gas.

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That has been a burden on us
\'cause when gas got so high,we didn\'t have the money
to get gas,

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and a lot of times the car be
broke or something like that.It\'s just hard sometimes.

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Dayshal: At one time, I had
went up there with my aunt,

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and they wouldn\'t
let the doctor see me

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\'cause I was with
a different person.

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But then they didn\'t give us
no gas voucher.

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We hardly made it back home.

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Melissa: We used to be able to
give transportation vouchers,

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but we\'re not longer able
to give them to you.

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Where you used to be able
to pay HOFPWA,

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which is Housing Opportunity
For Persons With AIDS,

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and we would be able to pay,
like, rent, mortgage, utilities.

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It\'s hard.

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There\'s no funds for them
to be able to say,\"Ok, we\'re gonna help you.\"

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You know, \"We\'re gonna do this.\"

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It\'s pretty much put back
on the client

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to get out and survive.

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June: Wilhemina is the primary
caretaker for her family.

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She says that sometimes it seems
impossible to reach help at all.

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Wilhemina: Before y\'all come,
I was missing that.

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Something,
the South Carolina channel,

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and they were
talking about people

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not being able to get
medicine and stuff

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and call this number
and hey was gonna help,

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and I hurried up
and jot this number down

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\'cause I got
a 90-year-old mother,

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and call the number,
there\'s no number.

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This number had been disconnect.

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See, they get on there
and they sit back

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and they talk about things,

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and when you try to call
or something,

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you can\'t even get through
to them.

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I think that\'s a shame.

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Joe: We\'ve never had the kind
of access to health care

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for poor people and
working people in this state

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that others take for granted.

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Rural South Carolina
is dying on the vine.

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Farming has failed.

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There\'s no industry.

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We have a county here,
for example,

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of Bamberg
that lost its hospital.

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There\'s not one doctor
in the whole county.

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We\'re literally
seeing people dying

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because they can\'t get access
to ordinary care.

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June: As I began researching

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the history of the epidemic
in this state,

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I discovered that health
officials had warned in 1989

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that AIDS was being
underreported

12:17.800 --> 12:20.000
because white patients
were more likely to be told

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they had AIDS
than black patients.

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Today, many still don\'t know
they\'re positive,

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and that makes testing crucial.

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The South Carolina HIV Council

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is one of 3
community-based organizations

12:36.133 --> 12:39.409
in the state.

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It runs the only mobile van
to reach those

12:40.767 --> 12:44.300
who can\'t reach health care.

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Vivian: I usually set up

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in the entrance
where you coming in.

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This is one of those spots
where you have

12:55.133 --> 12:57.476
a high incidence of the HIV
and STDs

12:57.500 --> 13:00.209
using our surveillance data
from the health department,

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and also from

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knowing your communities.

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Shernell:
So you and your husband

13:07.500 --> 13:09.443
are still together?

13:09.467 --> 13:10.709
Mm-hmm.

13:10.733 --> 13:13.043
The winter rebate,
it\'s not a condom.Especially if you ain\'t
got that with you 24/7

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and you don\'t carry it
in your pocket,

13:15.600 --> 13:17.476
you don\'t know
where it\'s been.

13:17.500 --> 13:19.176
This disease is killing
African-American women

13:19.200 --> 13:21.300
at numbers you would
not begin to believe.

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You know,
back in the day,

13:26.067 --> 13:27.443
they used to say
that this was

13:27.467 --> 13:30.033
a white/gay disease.

13:30.800 --> 13:32.967
Guess who the face
of HIV is now?

13:34.933 --> 13:38.176
Me and you.

13:38.200 --> 13:39.676
Vivian: If there\'s a shortage
of men,

13:39.700 --> 13:41.609
and you\'re more likely
to share.

13:41.633 --> 13:42.976
So your partner\'s more likely
to have multiple sex partners.

13:43.000 --> 13:47.109
You know, you\'re more likely to
either know it or not know it,

13:47.133 --> 13:50.409
or to turn your head and pretend
that it is not happening.

13:50.433 --> 13:53.943
Number 3!
Number 3!

13:53.967 --> 13:57.076
This is your
test results.

13:57.100 --> 14:00.176
It is also negative.

14:00.200 --> 14:03.176
You should not leave home
without \'em.This should be like
your American Express card.

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And if they don\'t have one,
you should back up

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\'cause once you\'re positive,
you\'re positive,

14:08.033 --> 14:10.009
There\'s no,
\"Oops, I\'m sorry,\"

14:10.033 --> 14:11.909
No, \"Oops, I\'ll do it
next time.\"

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Once you\'re positive,
it changes everything.

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Your results
came back negative.

14:17.700 --> 14:20.409
I know.
Ha ha!

14:20.433 --> 14:23.643
Can we show this
on TV?

14:23.667 --> 14:25.143
That\'s right,
tell America.

14:25.167 --> 14:26.543
Yes, America,
I am negative.

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Once again.

14:29.833 --> 14:31.143
But she better use
them condoms.

14:31.167 --> 14:33.509
The next time
might not be so lucky.

14:33.533 --> 14:36.876
That\'s right.

14:36.900 --> 14:38.167
Shernell: We go where
other people don\'t dare to go.

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We go to the clubs,
we go to the liquor stores,

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we do church health fairs,

14:46.200 --> 14:48.909
and it takes a lot
to run that mobile unit,

14:48.933 --> 14:51.843
and our services are free.

14:51.867 --> 14:54.409
June: There is only
one mobile van

14:54.433 --> 14:57.176
for a state of 5 million people.

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So when White House officials
came to South Carolina,

14:59.867 --> 15:02.809
part of the development
of a national strategy

15:02.833 --> 15:05.333
to end HIV, advocates
arrived in force.

15:06.667 --> 15:10.243
Jeff:
Thank you for joining us

15:10.267 --> 15:11.576
for our Columbia,
South Carolina,

15:11.600 --> 15:13.776
HIV/AIDS community discussion.

15:13.800 --> 15:15.243
This is our eighth
of 14 community discussions

15:15.267 --> 15:18.276
we\'re doing across the country.

15:18.300 --> 15:19.509
I\'m here specifically
to address the fact

15:19.533 --> 15:22.143
that South Carolina is
number one in the nation

15:22.167 --> 15:24.943
in heterosexual
transmission.

15:24.967 --> 15:26.076
Linda: In South Carolina,
our prevention funds

15:26.100 --> 15:28.676
have been crippled
for the last 10 years.

15:28.700 --> 15:31.309
We can\'t do nothing
without money.

15:31.333 --> 15:33.409
Y\'all already see
it\'s a problem.

15:33.433 --> 15:35.476
We\'re number 8 in the nation.

15:35.500 --> 15:37.509
What else is it gonna take?

15:37.533 --> 15:42.209
We got a mobile unit, we go out
in the guts, in the trenches,but we cannot do anything
without money,

15:42.233 --> 15:44.700
so I need you, Mr. Crowley, to
go back and tell the president

15:45.133 --> 15:48.876
that I said we cannot
continue like this

15:48.900 --> 15:51.333
and we cannot keep allowing
our people to die off like this.

15:54.167 --> 15:57.400
Thank you.

15:58.200 --> 15:59.200
[Bell tolling]

16:01.500 --> 16:04.376
June: The White House announced

16:04.400 --> 16:06.567
its national HIV strategy
in 2010.

16:07.133 --> 16:10.643
But there was no financing,

16:10.667 --> 16:12.309
so for those living in places
like Williston,

16:12.333 --> 16:15.743
it was business as usual.

16:15.767 --> 16:16.900
Making do with nothing
was a family tradition.

16:19.467 --> 16:21.933
Wilhemina: And my daddy
had a lot of children.

16:23.333 --> 16:25.909
He was a sharecropper.

16:25.933 --> 16:27.243
We all learned
to work out there,

16:27.267 --> 16:28.609
but I just didn\'t pick enough

16:28.633 --> 16:29.943
for him to want to keep me
out there.

16:29.967 --> 16:31.843
My brothers and sisters picked,

16:31.867 --> 16:33.333
like, 400 and 500 pounds
of cotton a day.

16:33.467 --> 16:36.809
I was a caregiver.

16:36.833 --> 16:39.809
If the babies get sick,
I\'d pray for them to get wellso mama wouldn\'t have to come
home and see about them

16:39.833 --> 16:42.376
and I\'d go to the fields.

16:42.400 --> 16:43.676
So I took real good care of \'em,

16:43.700 --> 16:46.076
so that\'s what I do
most of the night.

16:46.100 --> 16:48.833
I don\'t read and write,
but I\'ve made it.

16:49.000 --> 16:52.643
I do home health care
in my home.

16:52.667 --> 16:55.143
The guy live in the back,
he\'s a cousin of mine.

16:55.167 --> 16:58.843
I\'m getting the water ready,
Smokey.

16:58.867 --> 17:00.743
They was gonna put him
in a nursing home,

17:00.767 --> 17:03.676
so I do home health care
for him.

17:03.700 --> 17:05.576
I rent him a place in back,

17:05.600 --> 17:06.709
and I see to him,
and I get paid for that.

17:06.733 --> 17:09.933
And I get about $12 an hour.

17:18.300 --> 17:21.876
We\'re going to my mama\'s house.

17:21.900 --> 17:24.109
We gonna take her
a little banana smoothie,

17:24.133 --> 17:26.967
and I\'ll just be there
for a short while.

17:30.033 --> 17:30.500
Hey, how y\'all doing?

17:33.467 --> 17:35.676
You know I\'m your
mama, don\'t you?

17:35.700 --> 17:37.809
Yes, do you know
I know it?

17:37.833 --> 17:39.676
All right.

17:39.700 --> 17:41.276
Don\'t get strong now.

17:41.300 --> 17:44.143
All right,
so this is my family,

17:44.167 --> 17:46.076
my mama,
my oldest sister,

17:46.100 --> 17:47.667
my nephew,
and my brother.

17:48.500 --> 17:50.467
I just tell the people
the truth about my daughter.

17:52.433 --> 17:55.476
They talking about
filming, and I say,

17:55.500 --> 17:57.009
Toni down there
doing what Toni do.

17:57.033 --> 17:58.676
Don\'t go down there
with no camera today.

17:58.700 --> 18:00.243
Ha ha!

18:00.267 --> 18:01.509
You\'ll have a bad day.

18:01.533 --> 18:02.967
All right, y\'all,
I thank y\'all for your time.

18:03.733 --> 18:07.009
We enjoyed it.

18:07.033 --> 18:08.409
I\'m going on, y\'all.

18:08.433 --> 18:09.843
All right,
have a good one.

18:09.867 --> 18:12.533
My mom done got so old

18:12.733 --> 18:14.809
she got old-timers.

18:14.833 --> 18:16.076
My husband, he\'s sick.
He\'s got cancer.

18:16.100 --> 18:18.376
There\'s so much going on
with all of \'em,

18:18.400 --> 18:21.200
it was just something.

18:22.033 --> 18:24.367
June: Down the road
from Wilhemina\'s

18:25.733 --> 18:28.509
at Sam\'s Place,

18:28.533 --> 18:30.276
I learned that few seem to know

18:30.300 --> 18:32.200
that they\'re in the heart
of an epidemic.

18:33.433 --> 18:35.833
Woman: HIV, you don\'t hear
too much about that around here

18:39.133 --> 18:42.576
\'cause if people got it,

18:42.600 --> 18:43.533
they\'re not gonna tell you
about it.

18:45.167 --> 18:46.933
Well, my younger son
has AIDS.

18:48.767 --> 18:51.076
But he lives in Columbia,
not here.

18:51.100 --> 18:53.200
I didn\'t like it, and I didn\'t
want it around me.

18:55.767 --> 18:58.600
\'Cause every time he comes down,

18:59.367 --> 19:00.609
he wants to bring his boyfriend
with him,

19:00.633 --> 19:01.800
and I don\'t want \'em
around me. Ha ha.

19:03.600 --> 19:06.100
You got prostitutes,

19:07.000 --> 19:08.433
people looking
for hookers, uh...

19:09.333 --> 19:12.943
I think those
are the more prone

19:12.967 --> 19:15.676
to--to carry
the virus

19:15.700 --> 19:18.376
than somebody
like myself,

19:18.400 --> 19:20.709
which is married,
kids,

19:20.733 --> 19:23.076
happy, working,
got a good job,

19:23.100 --> 19:25.643
like I\'ll never--

19:25.667 --> 19:27.476
I won\'t say
I\'ll never catch it,

19:27.500 --> 19:29.867
but somebody like me
won\'t never have it,

19:30.833 --> 19:34.109
I don\'t think.

19:34.133 --> 19:35.743
Bobby:
Well, this is a small town.

19:35.767 --> 19:37.709
I\'m pretty sure that just the
thought of being HIV positive,

19:37.733 --> 19:41.209
it scares a lot of people.

19:41.233 --> 19:42.543
And that\'s because they don\'t
have all the information.

19:42.567 --> 19:45.600
Nor do I believe they take
the time to get the information.

19:46.767 --> 19:50.209
June: Wilhemina told me

19:50.233 --> 19:51.376
that protecting Dayshal
from bullying

19:51.400 --> 19:54.243
was her first priority.

19:54.267 --> 19:55.309
Wilhemina: I prepared her
for school

19:55.333 --> 19:57.176
by telling her,
\"When you go to school,

19:57.200 --> 19:58.909
you\'re going to learn,
not to have friends,\"

19:58.933 --> 20:00.443
\'cause I didn\'t think
she was gonna have any friends.

20:00.467 --> 20:03.676
One teacher was real upset.

20:03.700 --> 20:05.376
The teacher started crying,
said she was pregnant

20:05.400 --> 20:07.309
and she was scared
that she was gonna catch HIV.

20:07.333 --> 20:09.809
Well, I was scared, too,
when I got her.

20:09.833 --> 20:11.976
I thought maybe she\'s wet on me,

20:12.000 --> 20:13.209
a hole was gonna get on my leg
or something.

20:13.233 --> 20:15.676
I was dumb about it, too.

20:15.700 --> 20:17.400
June: Over the years,
Wilhemina has educated herself.

20:17.700 --> 20:21.700
She even organized an HIV
testing event in Williston.

20:23.100 --> 20:26.409
The next person.

20:26.433 --> 20:30.009
June: Community outreach
has never been a priorityfor the South Carolina
State Legislature.

20:30.033 --> 20:32.967
In 2010, money for HIV programs
was practically eliminated.

20:35.900 --> 20:39.643
Man: We got to Columbia,
South Carolina,

20:39.667 --> 20:41.109
to talk with Democratic State
Representative Joe Neal.

20:41.133 --> 20:43.909
Joe: We\'ve lost not just
the prevention programs,

20:43.933 --> 20:46.676
but we lost funding for

20:46.700 --> 20:47.843
the AIDS drug assistance
programs as well.

20:47.867 --> 20:50.333
That means a number of people,
more than several thousand,

20:51.167 --> 20:55.000
who will not have access
to AIDS medication.

20:55.933 --> 20:59.900
Those individuals face
some pretty tough times ahead.

21:00.433 --> 21:03.976
Agencies that
serve the poor

21:04.000 --> 21:05.276
and our schools have
already taken huge cuts.

21:05.300 --> 21:08.343
The question...

21:08.367 --> 21:10.809
June: Among those who supported
the cutswas Republican State
Representative Nikki Haley.

21:10.833 --> 21:14.476
She would soon
be elected governor.

21:14.500 --> 21:16.743
What that showed was
the legislature\'s willingness

21:16.767 --> 21:18.843
to understand the value
of a dollar

21:18.867 --> 21:20.776
and the willingness
to understand

21:20.800 --> 21:22.443
you can\'t keep spending
the way we always have.

21:22.467 --> 21:24.333
June: Behind the cuts
lay a political philosophy

21:24.700 --> 21:28.143
embraced by republicans

21:28.167 --> 21:29.867
that government intervention
is a bad idea.

21:30.267 --> 21:33.943
Will:
If you give consumers choices

21:33.967 --> 21:36.109
and empower them to make choices

21:36.133 --> 21:38.243
within a truly competitive
marketplace,

21:38.267 --> 21:40.143
not a government regulated,
mandated,

21:40.167 --> 21:42.509
and controlled marketplace,

21:42.533 --> 21:43.976
you\'d find that the diseases,
like, whether it\'s AIDS,

21:44.000 --> 21:46.743
whether it\'s diabetes,
yeah, you name it,

21:46.767 --> 21:49.043
but I think we\'d get
far better outcomes.

21:49.067 --> 21:51.409
June: Improving health outcomes
was the stated goal

21:51.433 --> 21:54.243
of the Affordable Care Act.

21:54.267 --> 21:57.209
President Barack Obama signed it

21:57.233 --> 21:58.843
two weeks after South Carolina
state legislators

21:58.867 --> 22:02.509
cut community outreach funds.

22:02.533 --> 22:04.476
Nikki: South Carolina
is not like

22:04.500 --> 22:05.976
any other state in the country.

22:06.000 --> 22:07.909
The issues that drive us
on health care,

22:07.933 --> 22:11.576
it\'s not that we don\'t have
good quality health care;it\'s that we have unemployment
and poverty.

22:11.600 --> 22:14.143
We need to handle South Carolina

22:14.167 --> 22:15.543
in the way that
we know that\'s best,

22:15.567 --> 22:17.209
not the way the president
knows it\'s best.

22:17.233 --> 22:19.509
Right now I have
10.7% unemployment.

22:19.533 --> 22:22.109
I need to increase jobs.

22:22.133 --> 22:23.676
I don\'t need to be increasing
Medicaid.

22:23.700 --> 22:26.343
June: The legislature\'s
rejection

22:26.367 --> 22:28.409
of the Affordable Car Act

22:28.433 --> 22:30.067
devastated supporters, like
State Representative Joe Neal.

22:30.600 --> 22:34.543
Joe: South Carolina would have
received $11 billion.

22:34.567 --> 22:37.743
That would have been
the third highest amount

22:37.767 --> 22:40.576
of any state in the nation.

22:40.600 --> 22:42.743
We turned it down.

22:42.767 --> 22:44.776
It would have created
44,000 jobs

22:44.800 --> 22:47.376
at a time when we had

22:47.400 --> 22:48.609
one of the highest unemployment
rates in the country.

22:48.633 --> 22:51.376
We turned it down.

22:51.400 --> 22:52.409
We have perennial poverty,
generational poverty,

22:52.433 --> 22:56.167
and it has a cumulative effect
on children and communities.

22:56.800 --> 23:00.667
This would have been a big step
in eliminating

23:02.400 --> 23:06.076
some of the impacts
of that poverty

23:06.100 --> 23:08.743
because lack of access
to health care

23:08.767 --> 23:10.776
is one of the big ones.

23:10.800 --> 23:11.843
The second one would have been

23:11.867 --> 23:13.576
lack of access
to quality education.

23:13.600 --> 23:16.743
So those two things alone
pretty much dictate

23:16.767 --> 23:20.167
the future of children in this
state in many of these areas,

23:20.300 --> 23:23.809
and this Affordable Care Act

23:23.833 --> 23:25.700
would have solved
a big part of that.

23:27.233 --> 23:29.833
Vivian: Well, in South Carolina,
change is slow.

23:32.600 --> 23:36.343
Like I said, there was
a small scrimmage.

23:36.367 --> 23:38.443
It was called the Civil War.
They lost.

23:38.467 --> 23:41.367
News has not reached your yet
of that defeat.

23:42.167 --> 23:45.309
Ha ha!

23:45.333 --> 23:47.176
June: Without state funding,

23:47.200 --> 23:48.576
Vivian Clark-Armstead
now volunteers

23:48.600 --> 23:51.676
to educate ministers.

23:51.700 --> 23:53.609
Vivian: The normal routes
of dispersing information

23:53.633 --> 23:56.509
in the black community
has been through the church.

23:56.533 --> 23:59.843
And with this epidemic,

23:59.867 --> 24:04.543
we have not been able to use
that vehicle called the church.Vivian: The church is the
cornerstone of our community.

24:04.567 --> 24:07.809
Man: Oh, absolutely,
absolutely.

24:07.833 --> 24:09.109
And if pastor
doesn\'t say it,

24:09.133 --> 24:11.876
it ain\'t so.
Right.

24:11.900 --> 24:13.509
But when it comes to HIV,

24:13.533 --> 24:15.643
one of the biggest fights
that we have

24:15.667 --> 24:17.833
when we come out
into rural areas is them.

24:18.267 --> 24:21.476
I\'m sure.

24:21.500 --> 24:22.476
You know, we need
to save their lives

24:22.500 --> 24:24.209
so you can save
their souls, you know, so...

24:24.233 --> 24:27.809
There is just so much
fear attached.

24:27.833 --> 24:30.843
If I were to go into
other churches,

24:30.867 --> 24:32.609
\"Hey, I want to talk
about HIV.\"

24:32.633 --> 24:34.109
\"Oh, no you don\'t.\"

24:34.133 --> 24:35.076
\'Cause they\'d be
so afraid

24:35.100 --> 24:37.309
of that stigma

24:37.333 --> 24:38.943
that is associated
with gays and lesbians

24:38.967 --> 24:41.843
and HIV and AIDS
that that stigma

24:41.867 --> 24:44.009
would go from them
to their church.

24:44.033 --> 24:46.409
Does that make sense?

24:46.433 --> 24:47.443
People are hiding
because they\'re uninformed.

24:47.467 --> 24:50.667
And Bamberg has some
of the highest rates of HIV

24:53.100 --> 24:56.376
in the state,

24:56.400 --> 24:57.409
so there are people
sitting in those pews

24:57.433 --> 25:00.667
that haven\'t found a venue
in which they can go to

25:02.433 --> 25:05.809
to get information.

25:05.833 --> 25:07.143
and that\'s why
I brought this.

25:07.167 --> 25:08.643
When it talks about
our state,

25:08.667 --> 25:10.200
Our state is number one
in the nation

25:10.833 --> 25:14.576
in heterosexual
transmission of HIV.

25:14.600 --> 25:17.909
So when people, they go
straight to the gay story,

25:17.933 --> 25:21.009
it\'s not the gay story.

25:21.033 --> 25:22.243
Yeah, it\'s not.
Wow!

25:22.267 --> 25:24.143
It is not. We are
number one in the country

25:24.167 --> 25:26.876
in heterosexual contact.

25:26.900 --> 25:29.109
Wow.
You know.

25:29.133 --> 25:30.276
That\'s huge. Wow.

25:30.300 --> 25:31.909
I have to go marinade
on that for a minute.

25:31.933 --> 25:33.576
That really kind of
messed me up.

25:33.600 --> 25:35.276
Oh.
Well, thank you so much.

25:35.300 --> 25:36.809
Oh, my goodness.
Thank you!

25:36.833 --> 25:37.676
Now it\'s hugging time.
We friends now.

25:37.700 --> 25:40.443
Thank you so much.

25:40.467 --> 25:42.867
Vivian: My sister died
from the virus in 1996.And so I\'m compelled to do
something, you know,

25:44.000 --> 25:47.643
that no one else
has to go through

25:47.667 --> 25:49.533
what my sister went through,
that that type of suffering,

25:49.833 --> 25:53.633
the way that she died,
in shame and hiding

25:54.500 --> 25:58.043
and fear of people finding out

25:58.067 --> 26:01.276
when they\'re in the battle
for their life.

26:01.300 --> 26:03.509
June: Vivian and Toni told me
that part of the problem

26:03.533 --> 26:07.276
is that heterosexual black men
have been missing

26:07.300 --> 26:11.043
from the conversation
about AIDS.

26:11.067 --> 26:13.276
How do you feel personally
about using condoms

26:13.300 --> 26:16.433
when you\'re
sexually active?

26:34.567 --> 26:38.409
June: But knowing what to say
and believing it

26:38.433 --> 26:41.843
are two different things.

26:41.867 --> 26:43.467
Resistance abounds
as I discovered 3 months later

26:44.133 --> 26:47.743
when our cameraman
returned alone

26:47.767 --> 26:50.476
to that same barbershop.

26:50.500 --> 26:52.443
Man: But how is it
just the fact

26:52.467 --> 26:53.576
that black people
are the ones

26:53.600 --> 26:54.943
with it the most?

26:54.967 --> 26:55.976
I think it was man made
in a lab

26:56.000 --> 26:57.809
in a controlled population.

26:57.833 --> 27:01.109
You can\'t just say black people
are out here having sexmore than any other races.

27:01.133 --> 27:02.676
Ok, let me ask you
something.

27:02.700 --> 27:04.567
When the last time
you use a condom?

27:07.267 --> 27:07.533
All right?

27:19.700 --> 27:23.667
Wilhemina: People\'s don\'t
practice what they preach.

27:24.167 --> 27:27.709
I preach to these young girls,

27:27.733 --> 27:28.809
\"Please take care of yourself
and this and that.\"

27:28.833 --> 27:31.976
And basically I preach
to my girls

27:32.000 --> 27:33.776
\'cause I know they had HIV.

27:33.800 --> 27:35.309
But if you think I think
all these young girls

27:35.333 --> 27:37.176
are out there using something
or these guys, baloney.

27:37.200 --> 27:40.633
June: We met men who\'d only been
tested when they went to prison.

27:41.600 --> 27:45.309
Being diagnosed HIV positive
in prison

27:45.333 --> 27:48.709
means an even harder time
upon release.

27:48.733 --> 27:51.909
Wilhemina: I had a friend
who I called Me-Me.

27:51.933 --> 27:55.209
He got sick like that,
and he had been to jail,

27:55.233 --> 27:58.209
but then he couldn\'t get
food stamps

27:58.233 --> 28:00.809
because of his record.

28:00.833 --> 28:01.876
The thing is they
don\'t give you your disability

28:01.900 --> 28:03.976
and you can\'t get no job.

28:04.000 --> 28:05.876
You\'re homeless.
Tell \'em how bad it is

28:05.900 --> 28:09.009
to be HIV positive with no home

28:09.033 --> 28:12.243
and then talk about
depression.

28:12.267 --> 28:13.609
Depression is the worst thing
you can have with it.

28:13.633 --> 28:15.309
But how can you get yourself
straightened out

28:15.333 --> 28:17.809
with no home to go to
to sleep at night

28:17.833 --> 28:20.343
or just in the street.

28:20.367 --> 28:21.409
The medicine they give you
ain\'t worth a shoot.

28:21.433 --> 28:23.576
They might as well let everybody
that\'s got HIV just die

28:23.600 --> 28:26.843
because all the homeless people
I seen with it

28:26.867 --> 28:28.343
setting out in the street
talking about free medicine,

28:28.367 --> 28:30.976
they need a home
for y\'all to go into,

28:31.000 --> 28:34.209
help you with something.

28:34.233 --> 28:39.109
So what you supposed to do...
and everybody else like you?

28:39.133 --> 28:41.433
It\'s rough now.
Yep.

28:42.567 --> 28:44.476
Come on, Dayshal,
get on the interview with us.

28:44.500 --> 28:47.076
Dayshal: All right.
Coming.

28:47.100 --> 28:49.933
Well, we thank you anyway.

28:55.667 --> 28:59.267
♪ Lay your head on my pillow ♪

29:01.867 --> 29:05.567
Wilhemina: I hurt for her
just thinking about her

29:05.800 --> 29:08.543
even trying to tell some guy
about it.

29:08.567 --> 29:11.443
Everybody want to meet
a young guy

29:11.467 --> 29:13.976
to sweep \'em off their feets
and stuff like that.

29:14.000 --> 29:17.109
So I just don\'t know.

29:17.133 --> 29:18.809
Dayshal: Boys are dogs.

29:18.833 --> 29:21.409
They--When you hear the word
AIDS or HIV,

29:21.433 --> 29:24.543
they just break out in hives
and start to sweat,

29:24.567 --> 29:27.376
and I don\'t have time
for them.

29:27.400 --> 29:29.509
I talked to this boy,
and he was like,

29:29.533 --> 29:31.776
\"Man, no, no,
we can\'t be friends

29:31.800 --> 29:34.309
\"and we can\'t talk because
if you breathe on me wrong,

29:34.333 --> 29:37.743
\"I might get it, if you look
at me, I might get it.\"

29:37.767 --> 29:41.543
\"Right, really? You can\'t
get it like this, sorry.\"

29:41.567 --> 29:45.176
But I was like,
ok, that\'s fine with me.

29:45.200 --> 29:48.176
She told me she\'s bisexual,
whatever that is.

29:48.200 --> 29:51.800
But I think she was afraid of
what her sex life would be like.

29:53.033 --> 29:56.776
Dayshal: I went gay
about two years ago.

29:56.800 --> 30:00.233
Her name is Brittany.
She\'s 18.

30:03.600 --> 30:06.743
Ha ha!

30:06.767 --> 30:09.343
Um, we done been together
8 months, going on 9

30:09.367 --> 30:12.633
on the 17th.

30:13.133 --> 30:15.367
Oh. Brittany makes sure
I take my medicines,

30:19.133 --> 30:22.709
go to my doctor\'s appointments.

30:22.733 --> 30:25.709
She keep up with all of that.

30:25.733 --> 30:28.033
She\'s so supportive.
It\'s sweet.

30:33.967 --> 30:37.643
Wilhemina: We mostly
home school her

30:37.667 --> 30:39.776
to protect her from
all the harsh words

30:39.800 --> 30:42.343
and growing up with the children

30:42.367 --> 30:44.176
and them knowing about
her HIV.

30:44.200 --> 30:46.676
\'Cause if they found out
about it,

30:46.700 --> 30:48.709
somebody gonna talk.

30:48.733 --> 30:49.943
They would surely
say something about it

30:49.967 --> 30:52.143
and put her down.

30:52.167 --> 30:53.909
I miss school.

30:53.933 --> 30:55.843
I\'ve got tired of being home.

30:55.867 --> 30:57.776
I\'m wanting to be a lawyer,

30:57.800 --> 31:00.543
and I want to get all these
criminals off the street.

31:00.567 --> 31:03.900
Then I want to do hair,
so I\'m kinda stuck in between.

31:04.900 --> 31:08.376
I know you can\'t get a job

31:08.400 --> 31:09.509
unless you got
a high school diploma or a GED,

31:09.533 --> 31:12.443
and I do want to be independent
and get a job

31:12.467 --> 31:15.109
and go to college and stuff

31:15.133 --> 31:18.909
so I have to go to school
to get all my stuff together.Wilhemina: But Dayshal,
everybody don\'t learn alike.

31:18.933 --> 31:21.676
Some people just can\'t learn.

31:21.700 --> 31:25.609
You know what people tell you,
they tell you the biggest lie.You can do anything you want.

31:25.633 --> 31:27.309
You can be anything
you want to be.

31:27.333 --> 31:28.843
A liar. I don\'t know why
they even tell people that.

31:28.867 --> 31:32.509
You can find a pretty good job
or you can do good maybe,

31:32.533 --> 31:35.600
but you can\'t be anything
you want to be.

31:38.667 --> 31:39.267
Ha ha!

31:43.733 --> 31:47.476
Dayshal: Sometimes I wonder what
it would be like

31:47.500 --> 31:50.909
to live without HIV.

31:50.933 --> 31:52.509
Would people still put me down,
talk about me,

31:52.533 --> 31:56.076
point fingers and laugh at me
if I wasn\'t born with HIV?

31:56.100 --> 32:00.133
I don\'t think it would be as bad
as it is living with HIV

32:01.100 --> 32:05.200
because people really don\'t do
their homework about HIV/AIDS.

32:08.233 --> 32:10.700
Wilhemina:
She\'s a smart little girl.

32:11.933 --> 32:13.676
I\'m hoping that she won\'t take
the road her mother took,

32:13.700 --> 32:16.667
you know, just say, \"Boy, ain\'t
nothing working out for me.

32:16.800 --> 32:20.209
Maybe I hit it, too.\"

32:20.233 --> 32:21.709
I hope that don\'t happen.

32:21.733 --> 32:23.576
June: Two years
after filming began in 2011,

32:23.600 --> 32:27.009
Toni Dicks took a turn
for the worse.

32:27.033 --> 32:29.909
Melissa: There was times that
Toni just wanted to give up

32:29.933 --> 32:32.543
and quit taking her medicine.

32:32.567 --> 32:34.709
I think with persons
who are HIV positive,

32:34.733 --> 32:37.276
they get tired
of the constant battle,

32:37.300 --> 32:40.343
the constant, you know,
reminder,

32:40.367 --> 32:42.609
every time you swallow
that pill,

32:42.633 --> 32:44.300
it\'s a reminder that there\'s
a virus lives inside of you,

32:44.733 --> 32:48.376
and, you know,
it\'s not going away.

32:48.400 --> 32:50.667
It can be suppressed,
but it\'s not leaving.

32:55.167 --> 32:58.676
Wilhemina: She was so sick,

32:58.700 --> 33:03.009
but she got out to the road,
she got her strength back,and she caught a ride,

33:03.033 --> 33:05.443
and she went downtown
to the supermarket and she fell.

33:05.467 --> 33:08.200
They helped her
to get to the hospital.

33:09.233 --> 33:12.309
[Siren]

33:12.333 --> 33:13.809
And she told \'em that she
didn\'t want to come back home.

33:13.833 --> 33:17.576
And they just put her
in a nursing home.

33:17.600 --> 33:20.076
June: Once inside
the nursing home, though,

33:20.100 --> 33:22.433
Tony entered a system Wilhemina
was ill equipped to deal with.

33:23.367 --> 33:27.376
Wilhemina: They said she didn\'t
want to be home with me

33:27.400 --> 33:29.833
and it wasn\'t up to me
and I had no rights.

33:30.733 --> 33:34.643
June: Toni\'s Social Security
check was signed over

33:34.667 --> 33:37.367
to Laurel Baye of Blackville,
part of a private chain

33:38.533 --> 33:42.700
repeatedly cited by the federal
government for substandard care.

33:43.800 --> 33:47.600
Patient neglect led to bed sores
and falls.

33:47.867 --> 33:51.343
Toni Dicks fell 15 times.

33:51.367 --> 33:54.643
The family filmed this footage
and sent it to us

33:54.667 --> 33:57.743
in an effort to get Toni
out of Laurel Baye.

33:57.767 --> 34:00.767
When I saw it, it reminded me
of the bad old days of AIDS,

34:02.500 --> 34:06.343
and I realized this story
was about much more

34:06.367 --> 34:09.676
than prevention and treatment.

34:09.700 --> 34:12.333
Those living with HIV
in the rural south

34:12.467 --> 34:16.233
endure a kind
of medical apartheid.

34:16.900 --> 34:20.576
Dayshal: When she was here
with us,

34:20.600 --> 34:22.743
you never fell
or nothing.

34:22.767 --> 34:24.476
She ate, she took
her medication.

34:24.500 --> 34:26.576
[Indistinct]

34:26.600 --> 34:28.209
But when she got
out of there

34:28.233 --> 34:30.043
and they called us,

34:30.067 --> 34:30.876
\"Oh, we ain\'t
never put her

34:30.900 --> 34:31.943
\"on her AIDS
or HIV medicine

34:31.967 --> 34:33.109
since she been here.\"

34:33.133 --> 34:35.276
But why haven\'t you?

34:35.300 --> 34:38.376
June: 3 1/2 months after she was
admitted to Laurel Baye,

34:38.400 --> 34:41.733
Toni Dicks died.

34:48.767 --> 34:52.443
The peas that \'Mina
picked that week

34:52.467 --> 34:56.143
were prepared for
Toni\'s funeral dinner.

34:56.167 --> 34:59.243
In between shelling,
Wilhemina made calls.

34:59.267 --> 35:01.876
She was trying to find a pastor
to officiate at Toni\'s memorial.

35:01.900 --> 35:05.743
Wilhemina: I was trying
to get in contact with David.

35:05.767 --> 35:07.976
You know, I did some speaking
with him about HIV and stuff,

35:08.000 --> 35:11.333
and I was gonna ask him
would he speak over the body.

35:12.767 --> 35:16.376
June: Finally a cousin agreed.

35:16.400 --> 35:17.976
Wilhemina: I got Deacon Johnson
over there to talk

35:18.000 --> 35:20.209
\'cause he knew Toni was Toni.

35:20.233 --> 35:22.776
She wasn\'t a bad person.

35:22.800 --> 35:24.500
She hurt herself more than
she hurt anybody else.

35:25.067 --> 35:28.167
Deacon: Father, we just
thank you now for this moment.

35:29.633 --> 35:33.043
We thank you for Toni.

35:33.067 --> 35:35.576
Thank our Father for her
mother, grandmother,

35:35.600 --> 35:39.100
brothers, and sisters,
her children,

35:39.700 --> 35:43.109
even her grandbabies.

35:43.133 --> 35:45.000
We say thank you
for this family.

35:45.467 --> 35:49.276
June: Some of the activists
I\'d interviewed

35:49.300 --> 35:51.576
chose to reach out
to Wilhemina\'s family.

35:51.600 --> 35:55.309
We worked with the South
Carolina HIV/AIDS council,

35:55.333 --> 35:58.543
and we are part of a group
called Positive Voices.

35:58.567 --> 36:02.133
We came here in support of her
and in support of Ms. Wilhemina.

36:02.667 --> 36:06.343
I was diagnosed HIV positive
in 1988,

36:06.367 --> 36:10.033
so if you do the math,
that was 23 years ago.

36:10.233 --> 36:13.809
My medication, God\'s grace,

36:13.833 --> 36:16.609
and the people who love me
and support me

36:16.633 --> 36:19.109
are what keeps me here.

36:19.133 --> 36:20.743
We have the support
of the people around us.

36:20.767 --> 36:23.633
We have the support system,
and that\'s how people live.

36:24.267 --> 36:27.776
Ms. Wilhemina,
we love you.

36:27.800 --> 36:28.909
We know you and
your granddaughter,

36:28.933 --> 36:31.543
we love you all, and
we\'re here for you.

36:31.567 --> 36:34.409
Thank you.

36:34.433 --> 36:35.676
Man: Amen.

36:35.700 --> 36:37.900
[Applause]

36:40.467 --> 36:44.309
Wilhemina: Toni had so much pain
and suffering.

36:44.333 --> 36:48.109
I mean to think of her
being the way she was,

36:48.133 --> 36:50.876
and I know she died hungry,

36:50.900 --> 36:52.609
and they didn\'t give her water,
they didn\'t hook her up to no...

36:52.633 --> 36:56.067
to nothing, you know?

36:57.300 --> 36:59.033
We loved her.
We gonna miss her, too.

37:01.033 --> 37:03.743
She was one crazy girl.

37:03.767 --> 37:06.267
Ha ha!

37:08.900 --> 37:09.767
[Music playing]

37:16.233 --> 37:19.809
June: At Toni\'s funeral dinner,

37:19.833 --> 37:21.576
I saw a young woman
in a wheelchair

37:21.600 --> 37:24.209
sitting off to one side.

37:24.233 --> 37:26.376
Her name was Chamalla.

37:26.400 --> 37:27.400
She was 32 years old,
a mother of two,

37:27.867 --> 37:31.343
and one of Toni\'s cousins.

37:31.367 --> 37:34.343
Chamalla also had AIDS.

37:34.367 --> 37:35.700
Like many women, she\'d suffered
adverse side effects

37:35.833 --> 37:39.633
from the medication
and stopped taking it.

37:39.833 --> 37:43.443
Now she was planning
her funeral.

37:43.467 --> 37:45.243
Chamalla: I done went to
the--whatchacallit?

37:45.267 --> 37:48.900
Funeral home, and paid
some of the money for it.

37:49.833 --> 37:53.409
I mean, I done did
everything.

37:53.433 --> 37:55.709
And I got who
gonna do the prayer,

37:55.733 --> 37:58.643
who gonna do the scriptures,

37:58.667 --> 38:00.743
and I got who gonna do
the viewings.

38:00.767 --> 38:03.443
With the date that
is the departure,

38:03.467 --> 38:06.676
that\'s what my mama has given.

38:06.700 --> 38:08.700
So I done planned it.
I\'m at peace right now.

38:09.000 --> 38:12.800
June: In 10 days, she, too,
would be dead.

38:15.567 --> 38:17.900
Wilhemina: It just means
so much to me that they came.

38:19.567 --> 38:22.000
I just thank \'em
so very much for coming.

38:22.267 --> 38:25.509
We love you.

38:25.533 --> 38:26.443
And I love y\'all, too.

38:26.467 --> 38:29.343
Wilhemina: I wanted Dayshal,
since she was born with it

38:29.367 --> 38:32.776
and had to go through
all these things,

38:32.800 --> 38:34.976
to always have somebody that
could help her with something,

38:35.000 --> 38:37.876
have somebody to talk with that
she knows she can talk with.

38:37.900 --> 38:41.176
Monique:
When I heard her story,

38:41.200 --> 38:43.300
I thought, \"Oh, my God,
16 years old with the virus.\"

38:45.633 --> 38:49.509
After the funeral,
I exchanged numbers with her.

38:49.533 --> 38:53.209
Then one day
she sent me pictures,

38:53.233 --> 38:56.576
and she told me that, uh...

38:56.600 --> 38:59.043
I told her that
I had a girlfriend, too,

38:59.067 --> 39:01.243
but what kind of girlfriend
do you have?

39:01.267 --> 39:03.076
And we went back and forth,
and she was like,

39:03.100 --> 39:05.709
I said, \"Well,
are you comfortable

39:05.733 --> 39:07.643
with your relationship?\"

39:07.667 --> 39:09.043
She said, \"I love her.\"

39:09.067 --> 39:10.309
And I said,
\"I can relate to that.\"

39:10.333 --> 39:12.276
So we talked about that a lot.

39:12.300 --> 39:17.176
June: 3 months later, Dayshal
and Monique got together.

39:17.200 --> 39:19.633
Ah, it\'s good
to see you.

39:20.733 --> 39:23.609
Mmm!

39:23.633 --> 39:27.743
Heard you got in some
trouble last night, huh?Yeah.

39:27.767 --> 39:29.243
Monique:
What is this I hear

39:29.267 --> 39:32.443
that you had stopped taking
your medicine for a while?What happened?

39:32.467 --> 39:33.776
Uh...I guess
it was stress.

39:33.800 --> 39:36.909
Stress?
Yeah.

39:36.933 --> 39:38.209
You got depressed?
Yeah.

39:38.233 --> 39:39.633
Was this before or after
your mom passed?

39:39.800 --> 39:43.367
Um...I think
it was after...

39:44.500 --> 39:47.876
Yeah, after.
After?

39:47.900 --> 39:49.976
So why didn\'t you
tell me that

39:50.000 --> 39:51.543
when we was talking?

39:51.567 --> 39:52.743
\'Cause I don\'t talk
about that.

39:52.767 --> 39:54.509
You don\'t like
talk about it?

39:54.533 --> 39:56.409
It\'s all right to cry,
you know?

39:56.433 --> 39:59.143
No, it\'s not.

39:59.167 --> 40:00.367
Why?
Why do you say that?

40:01.367 --> 40:03.200
Why are you crying
right now?

40:04.933 --> 40:07.143
Tell me what hurts?

40:07.167 --> 40:09.000
Tell me
what makes you sad.

40:14.367 --> 40:18.209
What\'s the first thing
that comes to your mind

40:18.233 --> 40:20.933
when you cry?

40:24.267 --> 40:27.376
Hmm?

40:27.400 --> 40:28.643
You miss your mom?

40:28.667 --> 40:30.943
A little.

40:30.967 --> 40:32.476
Are you afraid that
that\'s what\'s gonna

40:32.500 --> 40:34.876
happen to you?

40:34.900 --> 40:36.609
Not if I got anything
to do with it.

40:36.633 --> 40:40.100
Look at me.
It\'s gonna be ok.

40:42.000 --> 40:45.333
You don\'t have to do
anything by yourself

40:45.767 --> 40:48.433
no more,
I promise, ok?

40:49.233 --> 40:52.333
I really do want you
to go home

40:52.833 --> 40:55.076
and think about everything
we talked about, ok?

40:55.100 --> 40:58.243
I will.

40:58.267 --> 41:00.409
And I\'m gonna
really miss you,so make sure
you call me.

41:00.433 --> 41:01.909
I will.

41:01.933 --> 41:03.976
And then we\'re gonna
get together againat the end of the month

41:04.000 --> 41:05.009
and talk about
your journal.

41:05.033 --> 41:06.743
All right.
Ok?

41:06.767 --> 41:07.943
All right,
I love you.

41:07.967 --> 41:09.276
I love you, too.

41:09.300 --> 41:11.000
Dayshal: I want to be a speaker
like Magic Johnson.

41:13.300 --> 41:17.100
I\'m gonna let everybody know
my life story.

41:18.167 --> 41:21.567
\'Cause I think
it\'s important

41:21.733 --> 41:23.200
that everybody tell
their own story about their life

41:24.333 --> 41:27.976
and what they\'ve
been going through

41:28.000 --> 41:30.467
and just everything about them
to help others out.

41:33.433 --> 41:37.033
They say the cure\'s out there,

41:37.500 --> 41:41.243
but none of it got
to South Carolina yet.

41:41.267 --> 41:43.800
So I hope sooner or later
there\'s a cure.

41:46.233 --> 41:49.333
Vivian: It was some
white gay boy\'s disease

41:51.300 --> 41:55.043
and then it comes knocking
on your door,

41:55.067 --> 41:56.443
and when it knocked on the door
in the black community,

41:56.467 --> 41:59.776
it kicked it in.

41:59.800 --> 42:02.643
It didn\'t knock; it kicked it
all the way in.It\'s just too late for some,
it came too late.

42:02.667 --> 42:04.943
The treatment and care
came to late.

42:04.967 --> 42:06.943
The antiviral therapy
came too late for Angela,

42:06.967 --> 42:10.100
but it\'s not too late
for a lot of people.

42:10.233 --> 42:13.443
And...

42:13.467 --> 42:15.900
We have to stop it.
We have to break the cycle.

42:16.433 --> 42:19.600
We have to...live.

42:21.767 --> 42:24.567
June: Wilhemina had been taking
care of family her entire life.

42:27.433 --> 42:31.433
Now in short succession,
she lost her daughter to AIDS,

42:32.367 --> 42:36.267
her mother to old age,
her husband to alcoholism,

42:37.267 --> 42:40.809
and a son to street violence.

42:40.833 --> 42:43.200
Wilhemina: I try not to really
think about my dead family.

42:45.467 --> 42:48.843
And I try to just...

42:48.867 --> 42:51.243
I do something
all the time,

42:51.267 --> 42:52.633
just keep moving,
moving, moving.

43:02.400 --> 43:06.043
June: Wilhemina
wanted to find out

43:06.067 --> 43:08.376
what happened to Toni
in Laurel Baye.

43:08.400 --> 43:10.267
For that, she needed her
daughter\'s medical records.

43:10.667 --> 43:14.376
But Wilhemina
had never been given

43:14.400 --> 43:16.576
power of attorney
for her daughter,

43:16.600 --> 43:18.809
so the nursing home
refused to release them.

43:18.833 --> 43:21.276
Wilhemina: Talking about,
\"You have to subpoena them.\"

43:21.300 --> 43:23.276
I said, \"They will
be subpoenaed.\"

43:23.300 --> 43:24.643
It was rough. I let \'em know
I was mad as hell.

43:24.667 --> 43:26.876
I told \'em, I said y\'all
a bunch of liars

43:26.900 --> 43:29.443
sitting around on your ass
and mistreat people

43:29.467 --> 43:31.243
and think you can tell--

43:31.267 --> 43:33.676
I said you seen me coming,
like, \"There she is now.\"Oh, she\'s black.
She\'s stupid.

43:33.700 --> 43:35.143
I can just do her
any kind of ways.\"

43:35.167 --> 43:36.776
I told her I\'ve been here
5 times already,

43:36.800 --> 43:39.100
and you keep telling lies.

43:39.933 --> 43:41.967
I got to keep going
\'cause Dayshal is coming along,

43:43.900 --> 43:46.767
and I don\'t want this
to happen to Dayshal.

43:48.500 --> 43:50.267
June: Wilhemina received
500 pages of medical records

43:53.667 --> 43:56.943
a year later.

43:56.967 --> 43:58.267
None explained why Toni had been
removed from AIDS medication.

44:01.433 --> 44:05.109
I later learned
that South Carolina

44:05.133 --> 44:08.467
doesn\'t reimburse for HIV drugs
in hospice care.

44:12.600 --> 44:13.567
In Williston,
Dayshal was growing up.

44:17.033 --> 44:20.343
She was 18 now.

44:20.367 --> 44:21.743
She might soon
have to rely on

44:21.767 --> 44:23.409
the AIDS Drugs Assistance
Program to stay alive.

44:23.433 --> 44:27.000
[Singing
indistinctly]

44:27.967 --> 44:29.900
June: In states that
haven\'t expanded Medicaid,

44:31.833 --> 44:35.143
ADAP is the payer
of last resort.

44:35.167 --> 44:38.309
So when a contingent
of demonstrators

44:38.333 --> 44:41.109
traveled to Atlanta to support
universal access,

44:41.133 --> 44:44.467
Wilhemina, Dayshal, and Toni\'s
former husband, Harry,

44:46.700 --> 44:49.976
all joined in.

44:50.000 --> 44:50.943
Wilhemina: I thought
I wasn\'t gonna enjoy it,

44:50.967 --> 44:53.267
but we got all our dancing
in the street.

44:57.467 --> 45:00.509
June: Harry and Dayshal
were interviewed

45:00.533 --> 45:02.676
by the AIDS Healthcare
Foundation.

45:02.700 --> 45:05.309
I was born with HIV,

45:05.333 --> 45:07.100
and I\'m here because
I was born with HIV,

45:08.233 --> 45:12.009
and I came from Williston,
South Carolina.

45:12.033 --> 45:15.109
We got on the bus
in Aiken, South Carolina,

45:15.133 --> 45:17.609
and I\'m happy to be here.

45:17.633 --> 45:19.543
My name is Harry Robinson.

45:19.567 --> 45:20.733
I contracted AIDS/HIV probably
about 20 years ago,

45:21.033 --> 45:24.676
and I just want
to let people know

45:24.700 --> 45:25.876
that they can live
a healthy life with it.

45:25.900 --> 45:28.609
Let me hear you say,
\"Still standing!\"

45:28.633 --> 45:30.943
Audience:
Still standing!

45:30.967 --> 45:32.376
Say end AIDS.

45:32.400 --> 45:34.109
End AIDS.

45:34.133 --> 45:35.309
That\'s what I\'m saying.

45:35.333 --> 45:37.776
June: That evening,
they were entertained
by gospel R&B singer
Monica Brown,

45:37.800 --> 45:40.676
one of Dayshal\'s
longtime favorites.

45:40.700 --> 45:43.343
Monica: ♪ Never let go ♪

45:43.367 --> 45:44.476
Chorus: ♪ Never let go,
never let go ♪

45:44.500 --> 45:46.609
Monica: ♪ Never let go ♪

45:46.633 --> 45:48.933
Dayshal: I just met Monica,
my favorite singer.

45:49.600 --> 45:53.109
Take our picture
together.

45:53.133 --> 45:54.576
Here, you come
on my camera.

45:54.600 --> 45:57.600
Dayshal: I am so excited.
Oh, my God, so happy.

45:58.833 --> 46:02.676
Wilhemina: When we got back,
she was so excited

46:02.700 --> 46:05.476
so she put it on Facebook.

46:05.500 --> 46:09.033
And that\'s when I think
her world came down.

46:37.533 --> 46:41.233
♪ So many things
it does for me ♪

46:42.500 --> 46:46.267
♪ Such a provider,
she cares for me ♪

46:46.700 --> 46:50.509
Wilhemina: It just changed
her whole outlook

46:50.533 --> 46:53.176
on what had happened.

46:53.200 --> 46:55.276
I think she thought
they would have been

46:55.300 --> 46:56.633
more glad for her,
but it wasn\'t like that.

46:58.300 --> 47:01.167
June: In 2014, 3 years
after her mother died,

47:02.133 --> 47:05.867
Dayshal agreed to talk to me
one last time.

47:06.233 --> 47:09.776
Dayshal: I don\'t like to talk.

47:09.800 --> 47:13.567
I guess the older I got,
the more privater I want to be.

47:14.367 --> 47:18.176
They can look at this
documentary 100 times

47:18.200 --> 47:21.276
but they still
will not understand

47:21.300 --> 47:23.876
Dayshal and what Dayshal
done been through

47:23.900 --> 47:26.567
so no, I ain\'t got time
for it no more.

47:30.800 --> 47:34.643
Wilhemina: I hope Dayshal
never have children

47:34.667 --> 47:36.876
\'cause though they said,
you know, right now,

47:36.900 --> 47:39.567
with HIV, if you take
your medicine...

47:39.900 --> 47:43.476
I don\'t know what would happen.

47:43.500 --> 47:45.267
With her being--might,
you know, would get sick,

47:45.800 --> 47:49.309
and then have a sick child,

47:49.333 --> 47:51.143
and I\'m dead
and can\'t help her with him

47:51.167 --> 47:53.109
\'cause I know her mother
just dropped her,

47:53.133 --> 47:56.009
and that was a hard time,

47:56.033 --> 47:57.533
trying to work and take care
of her in the beginning.

48:01.567 --> 48:02.700
I just try to talk to her
the best I can

48:05.333 --> 48:08.476
when she let me.

48:08.500 --> 48:10.409
If she don\'t let me,
I just go on.

48:10.433 --> 48:13.367
I wonder will she have
a short life or a long life,

48:13.533 --> 48:17.076
and I wonder will,
you know,

48:17.100 --> 48:19.409
the way she live it
make a difference.

48:19.433 --> 48:23.267
June: Wilhemina\'s insights
always impressed me,

48:24.267 --> 48:27.843
especially when contrasted with

48:27.867 --> 48:30.576
Governor Haley\'s
willful optimism.

48:30.600 --> 48:33.743
Nikki: It is a great day
in Bamberg county today.

48:33.767 --> 48:36.476
I am so excited that we have
so many good people here

48:36.500 --> 48:40.309
to lift up a community
that I know is great.

48:40.333 --> 48:43.776
June: Governor Haley\'s
administration

48:43.800 --> 48:46.000
has pushed regional hospitals
to do more outreach

48:46.433 --> 48:49.976
for families like Wilhemina\'s.

48:50.000 --> 48:52.109
But when a local
community health center

48:52.133 --> 48:54.776
put up an AIDS
awareness billboard

48:54.800 --> 48:56.876
in the governor\'s hometown,

48:56.900 --> 48:58.943
she worried about its impact
on business.

48:58.967 --> 49:01.409
Nikki: Just drive
through your community

49:01.433 --> 49:04.109
as if you were a CEO.

49:04.133 --> 49:05.776
We went to one area and they
bragged about the fact that--

49:05.800 --> 49:08.709
Well, they weren\'t bragging.

49:08.733 --> 49:10.043
They were trying
to educate the fact

49:10.067 --> 49:11.609
that they were number one
in HIV.

49:11.633 --> 49:14.209
You can\'t do that.

49:14.233 --> 49:16.176
Audience: [Laughter]

49:16.200 --> 49:17.276
Nikki: We\'ve asked them
to take that sign down

49:17.300 --> 49:19.943
because, well,
I get they\'re trying

49:19.967 --> 49:21.376
to educate their community.

49:21.400 --> 49:25.609
A CEO\'s gonna make a u-turn
as fast as anything else,and we won\'t get any companies
in there.

49:25.633 --> 49:28.476
Wilhemina: How does she think
that makes me feel?

49:28.500 --> 49:30.633
My daughter died of HIV,
and Dayshal was born with HIV.

49:31.367 --> 49:35.043
I think the governor
needs education

49:35.067 --> 49:37.809
about people and their families

49:37.833 --> 49:40.776
and how we supposed
to love one another.

49:40.800 --> 49:43.743
And how are--I need to ask her,

49:43.767 --> 49:45.609
\"Well, as somebody coming up
to your office and have HIV

49:45.633 --> 49:49.667
and fill out an application,
would you hire that person?\"

49:50.433 --> 49:53.976
June: I sent repeated requests

49:54.000 --> 49:55.976
for an interview
with Governor Haley,

49:56.000 --> 49:58.643
but they were ignored.

49:58.667 --> 50:00.243
The governor,
now in her second term,

50:00.267 --> 50:02.333
has yet to meet
with AIDS activists.

50:03.600 --> 50:06.967
Ever since the Atlanta fiasco
a year and a half earlier,

50:09.300 --> 50:12.809
Dayshal had been in a slump.

50:12.833 --> 50:14.843
She had broken up
with her girlfriend.

50:14.867 --> 50:17.976
She tried to enroll
in a GED class.

50:18.000 --> 50:20.909
But the board of education
said they had no record

50:20.933 --> 50:23.367
she\'d ever been a student,
and without that proof,

50:24.400 --> 50:27.776
she couldn\'t enroll.

50:27.800 --> 50:29.209
Then she stopped taking
her HIV medication.

50:29.233 --> 50:32.600
By now I had been following
this family for almost 5 years.

50:35.400 --> 50:39.143
I\'d watched Dayshal become
a young woman.

50:39.167 --> 50:41.943
It seemed impossible to pretend
that the normal boundaries

50:41.967 --> 50:45.409
between journalist and subject
still applied.

50:45.433 --> 50:49.043
So when an opportunity arose
to attend the annual conference

50:49.067 --> 50:52.543
of the Positive Women\'s Network,

50:52.567 --> 50:53.900
I asked Wilhemina and Dayshal
if they wanted to go,

50:55.367 --> 50:59.009
and for the first time
in her life,

50:59.033 --> 51:00.633
Dayshal Dicks was surrounded
by 300 HIV positive women

51:02.100 --> 51:05.676
speaking up for their own cause.

51:05.700 --> 51:08.509
No shame no more!

51:08.533 --> 51:10.476
No shame no more!

51:10.500 --> 51:13.043
No shame no more!

51:13.067 --> 51:14.609
No shame no more...

51:14.633 --> 51:19.409
Dayshal: I went to a trip
in Fort Walton Beach, Florida.I was scared,
but when I got there,

51:19.433 --> 51:22.343
I met a lot of new people.

51:22.367 --> 51:24.400
I\'ve learned so much from
everyone\'s story they told.

51:25.333 --> 51:28.809
Who got the right?
We do!

51:28.833 --> 51:30.476
We got the right.

51:30.500 --> 51:31.809
We got the right.

51:31.833 --> 51:33.609
Ha ha!

51:33.633 --> 51:34.509
Dayshal: I had a good time

51:34.533 --> 51:35.809
and would love to go back
someday,

51:35.833 --> 51:37.876
so when I got back home,

51:37.900 --> 51:38.976
I told everybody
how much fun I had

51:39.000 --> 51:40.476
and all the good people I met
along with being there.

51:40.500 --> 51:43.976
June: The support
Dayshal received

51:44.000 --> 51:46.733
lay in stark contrast to her
life at the end of a dirt road

51:47.833 --> 51:51.509
and reminded me
that the depression

51:51.533 --> 51:53.833
that results from isolation
can be as deadly as HIV.

51:54.733 --> 51:58.733
In Williston, the memory
of the conference still fresh,

51:59.433 --> 52:03.400
Dayshal went back to Facebook
and stood her ground.

52:04.367 --> 52:08.176
Thanks to my grandma
who took me in as a baby

52:08.200 --> 52:11.543
and took very good care of me
and still is.

52:11.567 --> 52:15.409
I think I will be
a very good advocate

52:15.433 --> 52:18.900
on young people born with HIV
to let them know

52:19.300 --> 52:22.900
we have HIV, HIV don\'t have us.

52:23.067 --> 52:26.867
Woman: ♪ I\'m still standing,
standing ♪

52:27.267 --> 52:30.833
♪ Standing, standing, hey ♪

52:31.300 --> 52:35.000
♪ You can take this
to a happy... ♪